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Perspective

Scaling Crowdsourced Health Studies: The Emergence of a new form of Contract Research Organization

Pages 223-234 | Published online: 06 Mar 2012

References

  • Swan M . Future of health: overview of participant-driven research and medicine. Presented at: Interpharma 37th Health Seminar. Lausanne, Switzerland, 10November2011.
  • Swan M . Emerging patient-driven health care models: an examination of health social networks, consumer personalized medicine and quantified self-tracking.Int. J. Environ. Res. Public Health2, 492–525 (2009).
  • Tutton R , PrainsackB. Enterprising or altruistic selves? Making up research subjects in genetics research.Sociol. Health Illn.33(7), 1081–1095 (2011).
  • Harvey A . Genetic risks and healthy choices: creating citizen-consumers of genetic services through empowerment and facilitation.Sociol. Health Illn.32(3), 365–381 (2010).
  • McGowan ML , FishmanJR, LambrixMA. Personal genomics and individual identities: motivations and moral imperatives of early users.New Genet. Soc.29(3), 261–290 (2010).
  • Hogarth S , JavittG, MelzerD. The current landscape for direct-to-consumer genetic testing: legal, ethical, and policy issues.Annu. Rev. Genomics Hum. Genet.9, 161–182 (2008).
  • Gibson G , CopenhaverGP. Consent and internet-enabled human genomics.PLoS Genet.6(6), e1000965 (2010).
  • Swan M , HathawayK, HoggCet al. Citizen science genomics as a model for crowdsourced preventive medicine research. J. Participat. Med. 2, e20 (2010).
  • Shirky C . Collective action and institutional challenges. In: Here Comes Everybody: The Power of Organizing Without Organizations (1st Edition). Penguin Press, NY, USA, 143–160 (2008).
  • Zawati MH , BorryP, HowardHC. Closure of population biobanks and direct-to-consumer genetic testing companies.Hum. Genet.130(3), 425–432 (2011).
  • Kohane IS , AltmanRB. Health-information altruists – a potentially critical resource.N. Engl. J. Med.353, 2074–2077 (2005).
  • Luce JM . Informed consent for clinical research involving patients with chest disease in the United States.Chest135(4), 1061–1068 (2009).
  • Kapur S , KapurS, ZavaD. Cardiometabolic risk factors assessed by a finger stick dried blood spot method. J. Diabetes Sci. Technol. 2(2), 236–241 (2008).
  • Zheng R , ParkBW, KimDSet al. Development of a highly specific amine-terminated aptamer functionalized surface plasmon resonance biosensor for blood protein detection. Biomed. Opt. Express. 2(9), 2731–2740 (2011).
  • Amir O , WeinsteinD, ZilbermanSet al. Continuous noninvasive glucose monitoring technology based on ‘occlusion spectroscopy’. J. Diabetes Sci. Technol. 1(4), 463–469 (2007).
  • Hood L , FriendSH. Predictive, personalized, preventive, participatory (P4) cancer medicine.Nat. Rev. Clin. Oncol.8(3), 184–187 (2011).
  • Song JJ , HwangI, ChoKHet al. Plasma carboxypeptidase B downregulates inflammatory responses in autoimmune arthritis. J. Clin. Invest. 121(9), 3517–3527 (2011).
  • Hood L . Systems medicine, transformational technologies and the emergence of proactive P4 medicine. Presented at: Personalized Medicine World Conference. Mountain View, CA, USA, 19–20January2010.
  • Dufau S , DuñabeitiaJA, Moret-TatayCet al. Smart phone, smart science: how the use of smartphones can revolutionize research in cognitive science. PLoS ONE 6(9), e24974 (2011)
  • Do CB , TungJY, DorfmanEet al. Web-based genome-wide association study identifies two novel loci and a substantial genetic component for Parkinson’s disease. PLoS Genet. 7(6), e1002141 (2011).

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