2,130
Views
0
CrossRef citations to date
0
Altmetric
Editorial

Next-generation Disadvantages: Identifying Potential Barriers to Integrating Genomics into Underserved Medical Settings

, &
Pages 623-625 | Published online: 10 Sep 2013

References

  • Burke W . Achieving Justice in Genomic Translation: Rethinking the Pathway to Benefit. Oxford University Press, NY, USA (2011).
  • Khoury MJ , GwinnM, YoonPW, DowlingN, MooreCA, BradleyL. The continuum of translation research in genomic medicine: how can we accelerate the appropriate integration of human genome discoveries into healthcare and disease prevention? Genet. Med.9(10) , 665–674 (2007).
  • Smart A , MartinP, ParkerM. Tailored medicine: whom will it fit? The ethics of patient and disease stratification. Bioethics18(4) , 322–342 (2004).
  • Singer E , AntonucciT, Van Hoewyk J. Racial and ethnic variations in knowledge and attitudes about genetic testing. Genet. Test.8(1) , 31–43 (2004).
  • Brunham LR , HaydenMR. Medicine. Whole-genome sequencing: the new standard of care? Science336(6085) , 1112–1113 (2012).
  • Boyer BB , DillardD, WoodahlEL, WhitenerR, ThummelKE, BurkeW. Ethical issues in developing pharmacogenetic research partnerships with American Indigenous communities. Clin. Pharmacol. Ther.89(3) , 343–345 (2011).
  • Goldenberg AJ , HartmannCD, MorelloL, BrooksS, Colon-ZimmermannK, MarshallPA. Gene–environment interactions and health inequalities: views of underserved communities. J. Comm. Genet. doi:10.1007/s12687-013-0143-3 (2013) (Epub ahead of print).
  • Kass NE , MedleyAM, NatowiczMR et al. Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions. Am. J. Med. Genet. A 143(7) , 707–717 (2007).
  • Suther S , KirosGE. Barriers to the use of genetic testing: a study of racial and ethnic disparities. Genet. Med.11(9) , 655–662 (2009).
  • Feldman EA . The Genetic Information Nondiscrimination Act (GINA): public policy and medical practice in the age of personalized medicine. J. Gen. Intern. Med.27(6) , 743–746 (2012).
  • Beene-Harris RY , WangC, BachJV. Barriers to access: results from focus groups to identify genetic service needs in the community. Comm. Genet.10(1) , 10–18 (2007).
  • Catz DS , GreenNS, TobinJN et al. Attitudes about genetics in underserved, culturally diverse populations. Comm. Genet. 8(3) , 161–172 (2005).
  • Gollust SE , GordonES, ZayacC et al. Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants. Public Health Genom. 15(1) , 22–30 (2012).
  • McGowan ML , GlinkaA, HighlandJ, AsaadG, SharpRR. Genetics patients‘ perspectives on clinical genomic testing. Pers. Med.10(4) , 339–347 (2013).
  • Sharp RR . Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small. Genet. Med.13(3) , 191–194 (2011).

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.