References
- Garrett JW, Drossman DA. Health status in inflammatory bowel disease. Biological and behavioral consideration. Gastroenterology 1990;99:90–96.
- Sandborn WJ, Feagan BG, Hanauer SB, Lochs H, Löfberg R, Modigliani R, A review of activity indices and efficacy endpoints for clinical trials of medical therapy in adults with Crohn's disease. Gastroenterology 2002;122:512–30.
- Drossman DA, Patrick DL, Mitchell CM, Zagami EA, Appelbaum MI. Health-related quality of life in inflammatory bowel disease. Functional status and patient worries and concerns. Dig Dis Sci 1989;9:1379–86.
- Hjortswang H, Almer S, Ström M. The network: a strategy to describe the relationship between quality of life and disease activity. The case of inflammatory bowel disease. Eur J Gastroenterol Hepatol 1999;11:1099–104.
- Drossman DA, Leserman J, Li Z, Mitchell CM, Zagami EA, Patrick DL. The Rating Form of IBD Patients Concerns: a new measure of health status. Psychosom Med 1991;53:701–12.
- Provenzale D, Shearin M, Phillips-Bute BG, Drossman DA, Li Z, Tillinger W, Health-related quality of life after ileoanal pull-through: evaluation and assessment of new health status measures. Gastroenterology 1997;113:7–14.
- Yazdanpanah Y, Klein O, Gambiez L, Baron P, Desreumaux P, Marquis P, Impact of surgery on quality of life in Crohn's disease. Am J Gastroenterol 1997;92:1897–900.
- Maunder B, de Rooy EC, Toner BB, Greenberg GR, Steinhart AH, McLeod RS, Health-related concerns of people who receive psychological support for inflammatory bowel disease. Can J Gastroenterol 1997;11:681–5.
- Robb B, Pritts T, Nussbaum M, Gang G, Warner B, Seeskin C, Quality of life in patients undergoing ileal pouch-anal anastomosis at the University of Cincinnati. Am J Surg 2002;183:353–60.
- Carlsson E, Bosaeus I, Nordgren S. What concerns subjects with inflammatory bowel disease and ileostomy? Scand J Gastroenterol 2003;38:978–84.
- Hjortswang H, Ström M, Almeida R, Almer S. Evaluation of the RFIPC, a disease-specific health-related quality of life questionnaire in Swedish patients with ulcerative colitis. Scand J Gastroenterol 1997;32:1235–40.
- Best WR, Becktel JM, Singleton JW, Kern F. Development of a Crohn's disease activity index. Gastroenterology 1976;70:439–44.
- Ware JE, Sherbourne CD The MOS 36-item Short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30 Suppl:MS253–65.
- Sullivan M, Karlsson J, Ware JE. The Swedish SF-36 health survey.III. Evaluation of criterion based validity: results from normative population. J Clin Epidemiol 1998;51:1105–113.
- Dupuy HJ The Psychological General Well-Being (PGWB) Index. In: Wenger NK, Mattson ME, Furberg CF, Elinson J, eds. Assessment of Quality of Life in Clinical Trials of Cardiovascular Therapies. USA: Le Jacq Publishing Inc; 1984. pp 170–83.
- Wiklund I, Karlberg J. Evaluation of quality of life in clinical trials: selecting quality of life measures. Controlled Clin Trials 1991;12:S204–16.
- Guyatt GH, Mitchell A, Irvine EJ, Singer J, Williams N, Goodacre R, A new measure of health status for clinical trials in inflammatory bowel disease. Gastroenterology 1989;96:804–10.
- Stjernman H, Grännö C, Bodemar G, Järnerot G, Ockander L, Tysk C, Evaluation of the Inflammatory Bowel Disease Questionnaire in Swedish patients with Crohn´s disease. Scand J Gastroenterol 2006;41:934–43.
- Hjortswang H, Järnerot G, Ström M, Curman B, Sandberg-Gertzén H, Tysk C, The Short Health Scale: a valid measure of subjective health in ulcerative colitis. Scand J Gastroenterol 2006;41:1196–203.
- Stjernman H, Grännö C, Järnerot G, Ockander L, Tysk C, Blomberg B, Short health scale: a valid, reliable, and responsive instrument for subjective health assessment in Crohn's disease. Inflamm Bowel Dis 2008;14:47–52.
- McHorney CA, Tarlov AR. Individual-patient monitoring in clinical practice; are available health status surveys adequate? Qual life Res 1995;4:293–307.
- Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika 1951;16:297–334.
- Carmines EG, Zeller RA Reliability and validity assessment. Beverly Hills: CA Sage Publications; 1997.
- Nunnally J Psychometric theory. 2nd ed. New York: McGraw-Hill, USA; 1978.
- Guyatt GH, Walter S, Norman G. Measuring change over time: assessing the usefulness of evaluative instruments. J Chronic Dis 1987;40:171–8.
- Deyo RA, Diehr P, Patrick D. Reproducibility and responsiveness of health status measures. Controlled Clin Trials 1991;12:142S–58S.
- Hjortswang H, Järnerot G, Curman B, Sandberg-Gertzén H, Tysk C, Blomberg B, The influence of demographic and disease-related factors on health-related quality of life in patients with ulcerative colitis. Eur J Gastroenterol Hepatol 2003;15:1011–20.
- Moser G, Tillinger W, Sachs G, Genser D, Maier-Dobersberger, Spiess K, Disease-related worries and concerns: a study on out-patients with inflammatory bowel disease. Eur J Gastroenterol 1995;7:853–8.
- De Rooy E, Toner B, Maunder R, Greenberg G, Baron D, Steinhart H, Concerns of patients with inflammatory bowel disease: results from a clinical population. Am J Gastroenterol 2001;96:1816–21.
- Mussel M, Böcker U, Nagel N, Singer MV. Predictors of disease-related concerns and other aspects of health-related quality of life in inflammatory bowel disease. Eur J Gastroenterol Hepatol 2004;16:1273–80.
- Irvine EJ, Feagan B, Rochon J, Archambault A, Fedorak RN, Groll A, Quality of life: A valid and reliable measure of therapeutic efficacy in the treatment of inflammatory bowel disease. Gastroenterology 1994;106:287–96.
- Cheung W, Garrett A, Russell I, Williams J. The UK-IBDQ. A British version of the inflammatory bowel disease questionnaire: development and validation. J Clin Epidemiol 2000;53:297–306.
- Bernklev T, Moum B, Moum T. Quality life in patients with inflammatory bowel disease: translation, data quality, scaling assumptions, validity, reliability and sensitivity to change of the Norwegian version of IBDQ. Scand J Gastroenterol 2002;37:1164–74.
- Levenstein S, Li Z, Almer S, Barbosa A, Marquis P, Moser G, Cross-cultural variation in disease-related concerns among patients with inflammatory bowel disease. Am J Gastroenterol 2001;6:1822–30.
- Blondel-Kucharski F, Chircop C, Marquis P, Cortot A, Baron F, Gendre JP, Health-related quality of life in Crohn's disease: a prospective longitudinal study in 231 patients. Am J Gastroenterol 2001;96:2915–20.
- Maunder R, Toner B, de Rooy E, Moskovitz D. Influence of sex and disease on illness-related concerns in inflammatory bowel disease. Can J Gastroenterol 1999;13:728–32.