885
Views
17
CrossRef citations to date
0
Altmetric
Original Articles

A “Child’s Rights Perspective”: The “Right” of Children and Young People to Participate in Health Care Research

, MSc
Pages 161-180 | Received 28 Oct 2014, Accepted 03 Apr 2015, Published online: 02 Sep 2015

REFERENCES

  • Arton, M.E. (1987). The caretaker General Nursing Council and sick children’s nursing 1990–1923. RCN History of Nursing Bulletin, 2, 1–7
  • Arton, M. (1988). The supplementary register for sick children's nurses. Accident or Design, 2(4), 24–28
  • Barr, O., & Sines, D. (1996). The development of the generalist nurse within preregistration nurse education in the UK: some points for consideration. Nurse Education Today, 16, 274–277
  • Bowlby, J, & Robertson, J. (1952). A two-year-old goes to hospital. Proceedings of the Royal Society of Medicine, 46, 425–427
  • Briggs, A. (1972). Report of the Committee on Nursing. Cmnd 5115. London, UK: HMSO
  • Carter, B. (2009). Tick box for child? The ethical positioning of children as vulnerable, researchers as barbarians and reviewers as overly cautious. International Journal of Studies, 46, 858–864
  • Carter, B., Bray, L., Dickinson, A., Edwards, M. & Ford, K. (2014). Child-centered nursing: Promoting critical thinking. London, UK: Sage
  • Child Rights International Network. (2015). Committee on the Rights of the Child (CRC) General Comments. Retrieved April 29, 2015 from https://www.crin.org/en/library/publications/crc-general-comments
  • The Children's Act, 41 HMSO (1989)
  • Clarke, S. (2014). The value and contribution of qualitative research to inform nurse education and policy in response to the child’s experience of hospital. Issues in Comprehensive Pediatric Nursing, 37(3), 153–167. doi:10.3109/01460862.2014.919366
  • Coad, J. & Coad N. (2008). Children and young people's preference of thematic design and color for their hospital environment. Journal of Child Health Care, 12, 33–48
  • Corkin, D., Clarke, S. & Liggett, L. (Eds). (2012). Care planning in children & young people’s nursing. Oxford, UK: Wiley-Blackwell
  • Coyne, I. (2006a). Accessing children as research participants: examining the role of gatekeepers. Child: Care, Health, and Development, 36, 452–454
  • Coyne, I. (2006b). Children’s experiences of hospitalization. Journal of Child Health Care, 10, 326–336
  • Coyne, I. & Gallagher, P. (2011). Participation in communication and decision making: children and young people’s experiences in a hospital setting. Journal of Clinical Nursing, 20, 2334–2343
  • Davies, R. (2010). Marking the 50th anniversary of the Platt Report: from exclusion, to toleration and parental participation in the care of the hospitalized child. Journal of Child Health Care, 14, 6–23
  • Department of Health and Social Security (DHSS). 1976 Fit for the Future (the Court Report). The Report of the Committee on Child Health Services. London: HMSO
  • Department of Health, Social Services and Public Safety Northern Ireland. (2013). Enhancing healthcare services for children and young people in Northern Ireland (from birth to 18 years). A review of paediatric healthcare services provided in hospitals and community: Consultation document. Available at: http://www.dhsspsni.gov.uk/p-consultation-document.pdf
  • Every Child Matters. (2003). Every Child Matters green paper presented to Parliament by the Chief Secretary to the Treasury by Command of Her Majesty, September 2003 (Cm 5860), Norwich: HMSO
  • Freeman, M. (1996). Children’s education; A test case for best interests and autonomy. In R. Davie & D. Galloway (Eds), Listening to children in education (pp. 29–48). London, UK: David Fulton
  • Gibson, F., Aldiss, S., Horstman, M, Kumpunen, S. & Richardson, A. (2010). Children and young people's experiences of cancer care: a qualitative research study using participatory methods. International Journal of Nursing Studies, 47, 1397–1407
  • Glasper, E.A. (1995). The value of children’s nursing in the third millennium. British Journal of Nursing, 4, 27–30
  • Glasper, E.A. & Charles-Edwards, I. (2002a). The child first and always: the registered children’s nurse over 150 years/ Part one. Paediatric Nursing, 14, 38–42
  • Glasper, E.A. & Charles-Edwards, I. (2002b). The child first and always: the registered children’s nurse over 150 years/ Part two. Paediatric Nursing, 14, 38–43
  • Glasper, E.A. & Mitchell, R.M. (2010). Historical perspectives of children’s nursing. In E. Glasper & J. Richardson (Eds), A textbook of children and young persons nursing (2nd Ed., pp. 4–16). London, UK: Elsevier Press
  • Glasper, E.A. & Richardson, J. (Eds). (2010). A textbook of children and young persons nursing. (2nd Ed.) London, UK: Elsevier Press
  • Greene, S. & Hill, M. (2005). Conceptual, methodological and ethical issues in researching children’s experience. In S. Greene & D. Hogan (Eds), Researching children’s experiences: approaches and methods (pp. 1–21). London, UK: Sage
  • Groundwater-Smith, S., Dockett, S. & Bottrell, D (2014). Participatory research with children and young people. London, UK: Sage
  • Hollywood, E. (2011). The lived experiences of newly qualified children’s nurses. British Journal of Nursing, 20, 661–671
  • Lambert, V., Glacken, M. & McCarron, M. (2013). Using a range of methods to access children’s voices. Journal of Research in Nursing, 18, 601–616
  • Landsdown, G. (2011). Every child’s right to be heard: A resource guide on the UN Committee on the Rights of the Child General Comment No 12, UNICEF and Save the Children Fund
  • Lintern, S. (2015). Lord Willis launches blueprint for the future of nursing. Local Government Chronicle. Available at: http://www.lgcplus.com/news/health/social-care/-lord-willis-launches-blueprint-for-the-future-of-nursing/5083458.article
  • Livesley, J. & Long, T. (2013). Children’s experiences as hospital in-patients: voice, competence and work. Messages for nursing form a critical ethnographic study International Journal of Nursing Studies, 50, 1242–1303
  • Lundy, L. (2007). “Voice” is not enough: conceptualising Article 12 of the United Nations Convention on the Rights of the Child British. Educational Research Journal, 33, 927–942
  • Lundy, L. & McEvoy, L. (2012). Children’s rights and research processes: assisting children to (in)formed views. Childhood, 19, 129–144
  • Lundy, L. & Stalford, H. (2013). Children’s rights and participation: Background paper for Eurochild Annual conference
  • McNaughton, G., Hughes, P. & Smith, K. (2007). Young children’s rights and public policy: practices and possibilities for citizenship in the early years. Children and Society, 21, 458–469
  • Moncrieff, A. (1944). The future of the nursing the sick child. The Association of Sick Children’s Hospital Nurses. Great Ormond Street Archives
  • Munro, E.M., Holmes, L. & Ward, H. (2005). Researching vulnerable groups: ethical issues and the effective conduct of research in local authorities. British Journal of Social Work, 35, 1023–1038
  • Nightingale, F. (1859). Notes on Nursing: What it is and what it is not. London: Harrison
  • Nursing Midwifery Council. (2015). The Code: Professional standards of practice and behaviour for nurses and midwives. London, UK: NMC
  • Platt Report. (1959). The welfare of children in hospital. London, UK: Ministry of Health, Central Health Services Council
  • Price, S. (1993). Children’s nursing: lessons from the past. Nursing Standard, 7, 31–35
  • Punch, S. (2002). Research with children: the same or different from research with adults?. Childhood, 9, 321–341
  • Raising the bar, “shape of caring”: A review of the future education and training of registered nurses and care assistants. (2015). Lord Willis, Independent Chair—Shape of Caring review Health Education England. Available at: http://hee.nhs.uk/wp-content/blogs.dir/321/files/2015/03/2348-Shape-of-caring-review-FINAL.pdf
  • Rousseau, J. (1762). Emile. In J. Sigler, Education: Ends and means (pp. 181–216). Lanham, MD: University Press of America (1997)
  • Saxton, J. (1978). Thoughts of 100 years of nurse training at the hospital for sick children. Great Ormond Street. p. 11–12. GOS Archives
  • Shields, L., Pratt, J. & Hunter, J. (2006). Family-centered care: a review of qualitative studies. Journal of Clinical Nursing, 15, 1317–1323
  • Shier, H. (2001). Pathways to participation: openings, opportunities and obligations. A new model for enhancing children’s participation in decision-making, in line with Article 12.1 of the United Nations Convention on the Rights of the Child. Children and Society, 15, 107–117
  • United Nations. (1948). Universal Declaration of Human Rights. Office of the High Commissioner, United Nations, Geneva
  • United Nations (UN). (1989). Convention on the Rights of the Child. New York, NY: United Nations General Assembly
  • United Nations Committee on the Rights of the Child. (2005). General Comment No. 7, Geneva, Switzerland: Author
  • Wood, C. (1888). The training of nurses for sick children. The Nursing Record. December 6, p. 507–510
  • World Health Organization. (2007). World Health Statistics. Geneva, Switzerland: Author

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.