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Original Article

Needs and priorities of women with endometrial and cervical cancer

, , &
Pages 122-132 | Received 31 Jul 2014, Accepted 03 Jun 2015, Published online: 30 Jun 2015

References

  • Maher EJ, Denton A. Survivorship, late effects and cancer of the cervix. Clin Oncol (R Coll Radiol) 2008;20:479–87
  • Hewitt M, Greenfield S, Stovall E. From cancer patient to cancer survivor: lost in transition. Washington D.C.: The National Academies Press; 2005
  • Rehabiliteringsforum Danmark M. Hvidbog om rehabiliteringsbegrebet – Rehabilitering i Danmark [Whitebook on Rehabilitation – Rehabilitation in Denmark]; 2004
  • Carter J, Penson R, Barakat R, Wenzel L. Contemporary quality of life issues affecting gynecologic cancer survivors. Hematol Oncol Clin North Am 2012;26:169–94
  • Chase DM, Monk BJ, Wenzel LB, Tewari KS. Supportive care for women with gynecologic cancers. Expert Rev Anticancer Ther 2008;8:227–41
  • White ID. The assessment and management of sexual difficulties after treatment of cervical and endometrial malignancies. Clin Oncol (R Coll Radiol) 2008;20:488–96
  • Sun CC, Frumovitz M, Bodurka DC. Quality of life and gynecologic malignancies. Curr Oncol Rep 2005;7:459–65
  • Richardson A, Medina J, Brown V, Sitzia J. Patients’ needs assessment in cancer care: a review of assessment tools. Support Care Cancer 2007;15:1125–44
  • Bradshaw J. A taxonomy of social need. In: McLachlan G, ed. Problems and progress in medical care essays on current research. London: Oxford University Press; 1972:69–82
  • Johnsen AT, Petersen MA, Pedersen L, Groenvold M. Development and initial validation of the Three-Levels-of-Needs Questionnaire for self-assessment of palliative needs in patients with cancer. J Pain Symptom Manage 2011;41:1025–39
  • Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 1993;85:365–76
  • Greimel ER, Kuljanic Vlasic K, Waldenstrom AC, et al. The European Organization for Research and Treatment of Cancer (EORTC) Quality-of-Life questionnaire cervical cancer module: EORTC QLQ-CX24. Cancer 2006;107:1812–22
  • Greimel E, Nordin A, Lanceley A, et al. Psychometric validation of the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire-Endometrial Cancer Module (EORTC QLQ-EN24). Eur J Cancer 2011;47:183–90
  • Bottomley A, Flechtner H, Efficace F, et al. Health related quality of life outcomes in cancer clinical trials. Eur J Cancer 2005;41:1697–709
  • Cocks K, King MT, Velikova G, et al. Evidence-based guidelines for interpreting change scores for the European Organisation for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30. Eur J Cancer 2012;48:1713–21
  • Johnsen AT, Petersen MA, Pedersen L, et al. Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to 12 frequent symptoms/problems. Psychooncology 2012;22:1724–30
  • Kitzinger J. Qualitative research. Introducing focus groups. BMJ 1995;311:299–302
  • Kornblith AB, Powell M, Regan MM, et al. Long-term psychosocial adjustment of older vs younger survivors of breast and endometrial cancer. Psychooncology 2007;16:895–903
  • Gil KM, Gibbons HE, Jenison EL, et al. Baseline characteristics influencing quality of life in women undergoing gynecologic oncology surgery. Health Qual Life Outcomes 2007;5:25
  • Patton M.Q. Qualitative research and evaluation methods. 3rd ed. Thousand Oaks: Sage Publication; 2002:598
  • Antonovsky A. Unraveling the mystery of health: how people manage stress and stay well. San Francisco: Jossey-Bass; 1987
  • Klee M, Groenvold M, Machin D. Quality of life of Danish women: population-based norms of the EORTC QLQ-C30. Qual Life Res 1997;6:27–34
  • Klee M, Machin D. Health-related quality of life of patients with endometrial cancer who are disease-free following external irradiation. Acta Oncol 2001;40:816–24
  • Groenvold M, Klee MC, Sprangers MA, Aaronson NK. Validation of the EORTC QLQ-C30 quality of life questionnaire through combined qualitative and quantitative assessment of patient-observer agreement. J Clin Epidemiol 1997;50:441–50
  • Hamidou Z, Dabakuyo TS, Bonnetain F. Impact of response shift on longitudinal quality-of-life assessment in cancer clinical trials. Expert Rev Pharmacoecon Outcomes Res 2011;11:549–59
  • Greimel E, Thiel I, Peintinger F, et al. Prospective assessment of quality of life of female cancer patients. Gynecol Oncol 2002;85:140–7
  • Greimel ER, Freidl W. Functioning in daily living and psychological well-being of female cancer patients. J Psychosom Obstet Gynaecol 2000;21:25–30
  • Johnsen AT PC, Grønvold M. Kræftpatientens verden – en undersøgelse af, hvilke problemet danske kræftpatienter oplever. [The Life of the Cancer Patient – a Study of the Problems Encountered by Danish Cancer Patients]. Kræftens bekæmpelse; 2006
  • Khan NF, Evans J, Rose PW. A qualitative study of unmet needs and interactions with primary care among cancer survivors. Br J Cancer 2011;105:S46–51
  • Weidner K, Siedentopf F, Zimmermann K, et al. Which gynecological and obstetric patients want to attend psychosomatic services? J Psychosom Obstet Gynaecol 2008;29:280–9
  • Juraskova I, Butow P, Robertson R, et al. Post-treatment sexual adjustment following cervical and endometrial cancer: a qualitative insight. Psychooncology 2003;12:267–79
  • Nout RA, Putter H, Jurgenliemk-Schulz IM, et al. Five-year quality of life of endometrial cancer patients treated in the randomised Post Operative Radiation Therapy in Endometrial Cancer (PORTEC-2) trial and comparison with norm data. Eur J Cancer 2012;48:1638–48
  • Nout RA, Putter H, Jurgenliemk-Schulz IM, et al. Quality of life after pelvic radiotherapy or vaginal brachytherapy for endometrial cancer: first results of the randomized PORTEC-2 trial. J Clin Oncol 2009;27:3547–56
  • Beesley V, Janda M, Eakin E, et al. Lymphedema after gynecological cancer treatment: prevalence, correlates, and supportive care needs. Cancer 2007;109:2607–14
  • Erekson EA, Sung VW, DiSilvestro PA, Myers DL. Urinary symptoms and impact on quality of life in women after treatment for endometrial cancer. Int Urogynecol J Pelvic Floor Dysfunct 2009;20:159–63
  • Jensen PT, Groenvold M, Klee MC, et al. Early-stage cervical carcinoma, radical hysterectomy, and sexual function. A longitudinal study. Cancer 2004;100:97–106
  • Jensen PT, Groenvold M, Klee MC, et al. Longitudinal study of sexual function and vaginal changes after radiotherapy for cervical cancer. Int J Radiat Oncol Biol Phys 2003;56:937–49
  • Flay LD, Matthews JH. The effects of radiotherapy and surgery on the sexual function of women treated for cervical cancer. Int J Radiat Oncol Biol Phys 1995;31:399–404
  • Hawighorst-Knapstein S, Fusshoeller C, Franz C, et al. The impact of treatment for genital cancer on quality of life and body image – results of a prospective longitudinal 10-year study. Gynecol Oncol 2004;94:398–403
  • Schover LR, Fife M, Gershenson DM. Sexual dysfunction and treatment for early stage cervical cancer. Cancer 1989;63:204–12
  • Lalos O, Kjellberg L, Lalos A. Urinary, climacteric and sexual symptoms 1 year after treatment of cervical cancer without brachytherapy. J Psychosom Obstet Gynaecol 2009;30:269–74
  • Leenhouts GH, Kylstra WA, Everaerd W, et al. Sexual outcomes following treatment for early-stage gynecological cancer: a prospective and cross-sectional multi-center study. J Psychosom Obstet Gynaecol 2002;23:123–32
  • McCallum M, Lefebvre M, Jolicoeur L, et al. Sexual health and gynecological cancer: conceptualizing patient needs and overcoming barriers to seeking and accessing services. J Psychosom Obstet Gynaecol 2012;33:135–42
  • Beesley V, Eakin E, Steginga S, et al. Unmet needs of gynaecological cancer survivors: implications for developing community support services. Psychooncology 2008;17:392–400
  • Vistad I, Fossa SD, Dahl AA. A critical review of patient-rated quality of life studies of long-term survivors of cervical cancer. Gynecol Oncol 2006;102:563–72
  • Kong A, Johnson N, Kitchener HC, Lawrie TA. Adjuvant radiotherapy for stage I endometrial cancer. Cochrane Database Syst Rev 2012;3:CD003916

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