Depression and grief in Spanish family caregivers of people with traumatic brain injury: The roles of social support and coping

References

• Langlois J, Rutland-Brow W, Marlena W. The epidemiology and impact of traumatic brain injury: A brief overview. Journal of Head Trauma Rehabilitation 2006; 21: 375–378
   PubMed Web of Science ®Google Scholar
• Chan J, Parmenter T, Stancliffe R. The impact of traumatic brain injury on the mental health outcomes of individuals and their family carers. Advanced in Mental Health 2009; 8: 155–164
   Google Scholar
• CEADAC. Daño Cerebral Sobrevenido. Available online at: http://www.ceadac.es/ceadac_01/auxiliares/dano_cerebral/index.htm#ancla3, accessed 13 October 2010
   Google Scholar
• Masel B, Dewitt D. Traumatic brain injury: A disease process, not an event. Journal of Neurotrauma 2010; 27: 1529–1540
   PubMed Web of Science ®Google Scholar
• Aitken M, McCarthy M, Slomine B, Ding R, Durbin D, Jaffe K, Paidas CH, Dorsch A, Christensen J, MacKenzie E, The CHAT Study Group. Family burden after traumatic brain injury in children. Pediatrics 2009; 123: 199–206
   PubMed Web of Science ®Google Scholar
• Carnes S, Quinn W. Family adaptation to brain injury: Coping and psychological distress. Families, Systems & Health 2005; 23: 186–203
   Google Scholar
• Kreutzer J, Rapport L, Marwitz J, Harrison-Felix C, Hart T, Glenn M, Hammond F. Caregivers, well-being after traumatic brain injury: A multicenter prospective investigation. Archives of Physical Medicine and Rehabilitation 2009; 90: 939–946
   PubMed Web of Science ®Google Scholar
• Rivera P, Elliot T, Berry J, Grant J, Oswald K. Predictors of caregiver depression among community residing families living with traumatic brain injury. Neurorehabilitation 2007; 22: 3–8
   PubMed Web of Science ®Google Scholar
• Hoofien D, Gilboa A, Vakil E, Donovick P. Traumatic brain injury (TBI) 10-20 years later: A comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Injury 2001; 15: 189–209
   PubMed Web of Science ®Google Scholar
• Lefebvre H, Cloutier G, Levert MJ. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Injury 2008; 22: 535–543
   PubMed Web of Science ®Google Scholar
• Fernández Guinea S, Muñoz Céspedes JM. Las familias en el proceso de rehabilitación de las personas con daño cerebral sobrevenido. Psicologia.com 1997;1. Available online at: http://www.bibliopsiquis.com/bibliopsiquis/bitstream/10401/1439/1/psicologiacom_1997_1_1_6.pdf, accessed 8 October 2010
   Google Scholar
• Kreutzer J, Marwitz JH, Kepler K. Traumatic brain injury: Family response and outcome. Archives of Physical Medicine and Rehabilitation 1992; 73: 771–778
   PubMed Web of Science ®Google Scholar
• Wade SL, Taylor HG, Drotar D, Stancin T, Yeates KO, Minich B. A prospective study of long-term caregiver and family adaptation following brain injury in children. Journal of Head Trauma Rehabilitation 2002; 17: 96–111
   PubMed Web of Science ®Google Scholar
• Zinner E, Ball J, Stutts M, Philput C. Grief reactions of mothers of adolescents and young adults with traumatic brain injury. Archives of Clinical Neuropsychology 1997; 12: 435–447
   PubMed Web of Science ®Google Scholar
• Verhaeghe S, Delfloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: A review of the literature. Journal of Clinical Nursing 2005; 14: 1004–1012
   PubMed Web of Science ®Google Scholar
• Boss P. Loss, trauma and resilience: Therapeutic work with ambiguous loss. W.W. Norton, New York 2006
   Google Scholar
• Landau J, Hissett JL. Mild traumatic brain injury: Impact on identity and ambiguous loss in the family. Family Systems and Health 2008; 26: 69–85
   Google Scholar
• López de Arroyabe E, Calvete E. Síntomas de duelo en familiares de personas con daño cerebral adquirido. Grief symptoms in relatives of people with traumatic brain injury. Mapfre Medicina 2005; 16: 266–276
   Google Scholar
• Wade SL, Borawski E, Taylor HG, Drotar D, Yeates KO, Stancin T. The relationship of caregiver coping to family outcomes during the initial year following pediatric traumatic injury. Journal of Consulting and Clinical Psychology 2001; 69: 406–415
   PubMed Web of Science ®Google Scholar
• Chwalisz K. The perceived stress model of caregiver burden: Evidence from spouses of persons with brain injuries. Rehabilitation Psychology 1996; 41: 91–114
   Web of Science ®Google Scholar
• Douglas JM, Spellacy FJ. Correlates of depression in adults with severe traumatic brain injury and their carers. Brain Injury 2000; 14: 71–88
   PubMed Web of Science ®Google Scholar
• Ergh T, Rapport L, Coleman R, Hanks R. Predictors of caregiver and family functioning following traumatic brain injury: Social support moderates caregiver distress. Journal of Head Trauma Rehabilitation 2002; 17: 155–174
   PubMed Web of Science ®Google Scholar
• Harris JK, Godfrey HP, Partridge FM, Knight RG. Caregiver depression following traumatic brain injury (TBI): A consequence of adverse effects on family members?. Brain Injury 2001; 15: 223–238
   PubMed Web of Science ®Google Scholar
• Wallace CA, Bogner J, Corrigan JD, Clinchot D, Mysiw WJ, Fugate LP. Primary caregivers of persons with brain injury: Life change 1 year after injury. Brain Injury 1998; 12: 483–493
   PubMed Web of Science ®Google Scholar
• Chronister J, Chan F. A stress process model of caregiving for individuals with traumatic brain injury. Rehabilitation Psychology 2006; 51: 190–201
   Web of Science ®Google Scholar
• Riley GA. Stress and depression in family carers following traumatic brain injury: The influence of beliefs about difficult behaviours. Clinical Rehabilitation 2007; 21: 82–88
   PubMed Web of Science ®Google Scholar
• Knight RG, Devereux R, Godfrey HD. Caring for a family member with a traumatic brain injury. Brain Injury 1998; 12: 467–481
   PubMed Web of Science ®Google Scholar
• Sanders S, Ott CH, Kelber ST, Noonan P. The experience of high levels of grief in caregivers of persons with Alzheimer's disease and related dementia. Death Studies 2008; 32: 495–523
   PubMed Web of Science ®Google Scholar
• Kendall E, Terry D. Understanding adjustment following traumatic brain injury: Is the goodness-of-fit coping hypothesis useful?. Social Science & Medicine 2008; 67: 1217–1224
   PubMed Web of Science ®Google Scholar
• Minnes P, Graffi S, Nolte ML, Carlson P, Harrick L. Coping and stress in Canadian family caregivers of persons with traumatic brain injuries. Brain Injury 2000; 14: 737–748
   PubMed Web of Science ®Google Scholar
• Skinner EA, Edge K, Altman J, Sherwood H. Searching for the structure of coping: A review and critique of category systems for classifying ways of coping. Psychological Bulletin 2003; 129: 216–269
   PubMed Web of Science ®Google Scholar
• Lazarus RS, Folkman S. Stress, appraisal and coping. Springer, New York 1984
   Google Scholar
• Holahan CJ, Moos RH. Personal and contextual determinants of coping strategies. Journal of Personality and Social Psychology 1987; 52: 946–955
   PubMed Web of Science ®Google Scholar
• Lakey B, Cohen S. Social support theory and measurement. Social support measurement and interventions: A guide for health and social scientists, S Cohen, LG Underwood, BH Gottlieb. Oxford, New York 2000
   Google Scholar
• Blakfeld DF, Holahan CJ. Social support, coping, and psychological adjustment among caregivers of head-injured patients. Psychology and Health 1999; 14: 609–624
   Web of Science ®Google Scholar
• Fleishman JA, Sherbourne CD, Crystal S, Collins RL, Marshall GN, Kelly M, Bozzette SA, Shapiro MF, Hays RD. Coping, conflicting social interactions, social support, and mood among HIV-infected persons. American Journal of Community Psychology 2000; 28: 421–453
   PubMed Web of Science ®Google Scholar
• Calvete E, Connor-Smith JK. Perceived social support, coping and symptoms of distress in American and Spanish students. Anxiety, Stress & Coping 2006; 19: 47–65
   Web of Science ®Google Scholar
• Oyserman D, Coon H, Kemmelmeier M. Rethinking individualism and collectivism: Evaluation of theoretical assumptions and meta–analyses. Psychological Bulletin 2002; 128: 3–73
   PubMed Web of Science ®Google Scholar
• Triandis HC. Individualism and collectivism. Westview Press, San Francisco, CA 1995
   Google Scholar
• Rokach A, Moya M, Orzeck T, Exposito F. Loneliness in North America and Spain. Social Behavior and Personality 2001; 29: 477–490
   Web of Science ®Google Scholar
• Kreutzer J, Family Needs Questionnaire. Richmond, VA: Rehabilitation Research and Training Center on Severe Traumatic Brain Injury, Medical College of Virginia; 1988
   Google Scholar
• Kreutzer J, Serio C, Bergquist S. Family Needs after brain injury: A quantitative analysis. Journal of Head Trauma Rehabilitation 1994; 9: 104–115
   Web of Science ®Google Scholar
• Schaefer C, Coyne JC, Lazarus RS. The health-related functions of social support. Journal of Behavioral Medicine 1981; 4: 381–406
   PubMedGoogle Scholar
• Uchino BN. Social support and physical health: Understanding the health consequences of relationships. Yale University Press, New Haven, CT 2004
   Google Scholar
• Devany CW, Kreutzer J, A factor analytic study of the Family Needs Questionnaire. Annual Conference on the Rehabilitation of the Severely Brain Injured Adult and Child. Williamsburg, VA; 1992
   Google Scholar
• Serio C, Kreutzer J, Witol A. Family needs after traumatic brain injury: A factor analytic study of the Family Needs Questionnaire. Bain Injury 1997; 11: 1–9
   PubMed Web of Science ®Google Scholar
• López de Arroyabe E, Calvete E. Evaluación de las necesidades de los familiares de personas afectadas de Daño Cerebral Adquirido mediante el Cuestionario de Necesidades Familiares. Anales de Psicología; in press
   Google Scholar
• Connor-Smith JK, Compas BE, Wadsworth ME, Thomsen AH, Saltzman H. Responses to stress in adolescence: Measurement of coping and involuntary stress responses. Journal of Consulting and Clinical Psychology 2000; 68: 974–992
   Web of Science ®Google Scholar
• Connor-Smith JK, Calvete E. Cross-cultural equivalence of coping and involuntary responses to stress in Spain and the United States. Anxiety, Stress & Coping 2004; 17: 163–185
   Web of Science ®Google Scholar
• Faschingbauer T, DeVaul R, Zisook S. Texas Revised Inventory of Grief Manual. Honeycomb Publishing, Houston, TX 1981
   Google Scholar
• Radloff LS. The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement 1977; 1: 385–401
   Web of Science ®Google Scholar
• Boyd JM, Weissman MM, Thompson D, Myers JK. Screening for depression in a community sample. Archives of General Psychiatry 1982; 39: 1195–1200
   PubMed Web of Science ®Google Scholar
• Calvete E, Cardeñoso O. Creencias y síntomas depresivos: Resultados preliminares en el desarrollo de una Escala de Creencias Irracionales Abreviada. Anales de Psicología 1999; 15: 179–190
   Google Scholar
• Hu L, Bentler PM. Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling 1999; 6: 1–55
   Web of Science ®Google Scholar
• Little TD, Slegers DW, Card NA. A non-arbitrary method of identifying and scaling latent variables in SEM and MACS models. Structural Equation Modeling 2006; 13: 59–72
   Web of Science ®Google Scholar
• Cole DA, Maxwell SE. Testing meditational models with longitudinal data: Questions and tips in the use of structural equation modeling. Journal of Abnormal Psychology 2003; 112: 558–577
   PubMed Web of Science ®Google Scholar
• Shrout PE, Bolger N. Mediation in experimental and nonexperimental studies: New procedures and recommendations. Psychological Methods 2002; 7: 422–445
   PubMed Web of Science ®Google Scholar
• Arango-Lasprilla JC, Quijano MC, Aponte M, Cuervo MT, Nicholls E, Rogers HL, Kreutzer J. Family needs in caregivers of individuals with traumatic brain injury from Colombia, South America. Brain Injury 2010; 24: 1017–1026
   PubMed Web of Science ®Google Scholar
• Gan C, Gargaro J, Brandys C, Gerber G, Boschen K. Family caregivers' support needs after brain injury: A synthesis of perspectives from caregivers, programs and researchers. Neurorehabilitation 2010; 27: 5–18
   PubMed Web of Science ®Google Scholar
• Witol A, Sander A, Kreutzer J. A longitudinal analysis of family needs following traumatic brain injury. Neurorehabilitation 1996; 7: 175–187
   PubMed Web of Science ®Google Scholar
• Davis LC, Sander AM, Struchen MA, Sherer M, Nakase-Richardson R, Malec JF. Medical and psychosocial predictors of caregiver distress and perceived burden following traumatic brain injury. Journal of Head Trauma Rehabilitation 2009; 24: 145–154
   PubMed Web of Science ®Google Scholar
• Kreutzer J, Sander AM, Hernandez CC. Misperceptions, mishaps, and pitfalls in working with families after traumatic brain injury. Journal of Head Trauma Rehabilitation 1997; 12: 63–73
   Web of Science ®Google Scholar
• Kolakowsky-Hayner SS, Minner KD, Kreutzer J. Long-term life quality and family needs after traumatic brain injury. Head Trauma Rehabilitation 2001; 16: 374–385
   PubMed Web of Science ®Google Scholar
• Ponsford J, Schönberger M. Family functioning and emotional state two and five years after traumatic brain injury. Journal of the International Neuropsychological Society 2010; 16: 306–317
   PubMed Web of Science ®Google Scholar
• Kreutzer J, Kolakowsky-Hayner S, Demm S, Meade M. A structured approach to family intervention after brain injury. Journal of Head Trauma Rehabilitation 2002; 17: 349–367
   PubMed Web of Science ®Google Scholar
• Bishop M, Degeneffe CH, Mast M. Family needs after traumatic brain injury: Implications for rehabilitation counseling. Australian Journal of Rehabilitation Counselling 2006; 12: 73–87
   Google Scholar
• Moore Sholberg M, McLaughlin K, Todis B, Larsen J, Glang A. What does it take to collaborate with families affected by brain injury? A preliminary model. Journal of Head Trauma Rehabilitation 2001; 16: 498–511
   PubMed Web of Science ®Google Scholar
• Serio C, Kreutzer J, Gervasio A. Predicting family needs after brain injury: Implications for intervention. Journal of Head Trauma Rehabilitation 1995; 10: 32–45
   Web of Science ®Google Scholar
• Mauss-Clum N, Ryan M. Brain injury and the family. Journal of Neurosurgical Nursing 1981; 13: 165–169
   PubMedGoogle Scholar