Self-rated physical and psychosocial health in a cohort of young adults with juvenile idiopathic arthritis

References

• Petty RE, Southwood TR, Manners P, Baum J, Glass DN, Goldenberg J, International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001. J Rheumatol 2004;31:390–2.
   PubMed Web of Science ®Google Scholar
• Flato B. Outcome and predictive factors in juvenile arthritis and allied disorders. Doctoral thesis, University of Oslo, Norway, 1999.
   Google Scholar
• Oen KG. Long-term outcomes and predictors of outcomes for patients with juvenile idiopathic arthritis. Best Pract Res Clin Rheumatol 2002;16:347–60.
   PubMedGoogle Scholar
• Ravelli A. Toward an understanding of the long-term outcome of juvenile idiopathic arthritis. Clin Exp Rheumatol 2004;22:271–5.
   PubMed Web of Science ®Google Scholar
• Foster HE, Marshall N, Myers A, Dunkley P, Griffiths ID. Outcome in adults with juvenile idiopathic arthritis. A quality of life study. Arthritis Rheum 2003;48:767–75.
   PubMed Web of Science ®Google Scholar
• OOOstlie IL, Aasland A, Johansson I, Flato B, Moller A. A longitudinal follow-up study of physical and psychosocial health in young adults with chronic childhood arthritis. Clin Exp Rheumatol 2009;27:1039–46.
   PubMedGoogle Scholar
• Ostlie IL, Johansson I, Moller A. Struggle and adjustment to an insecure everyday life and an unpredictable life course. Living with juvenile idiopathic arthritis from childhood to adult life – an interview study. Disabil Rehabil 2009;31:666–74.
   PubMed Web of Science ®Google Scholar
• Shaw KL, Southwood TR, Duffy CM, McDonagh JE. Health-related quality of life in adolescents with juvenile idiopathic arthritis. Arthritis Rheum 2006;55:199–207.
   PubMedGoogle Scholar
• World Health Assembly. Health for all policy for the twenty-first century. Geneva: World Health Organisation; 1998. Resolution WHA51.7.
   Google Scholar
• Bjorner JB, Sondergaard Kristensen T, Orth-Gomer K, Tibblin G, Sullivan M, Westerholm P. Self-rated health. A useful concept in research, prevention and clinical medicine. Report 96:9. Stockholm: Swedish Council for Planning and Coordination of Research, 1996.
   Google Scholar
• Carr AJ, Gibson B, Robinson PG. Is quality of life determined by expectations or experiences? Br Med J 2001;322:1240–3.
   PubMed Web of Science ®Google Scholar
• Sallfors C, Hallberg L-M, Fasth A. Well-being in children with juvenile chronic arthritis. Clin Exp Rheumatol 2004;22:125–30.
   PubMed Web of Science ®Google Scholar
• Sawyer M, Whitham J, Roberton D, Taplin J, Varni J, Baghurst P. The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis. Rheumatology (Oxford) 2004;43:325–30.
   PubMed Web of Science ®Google Scholar
• Arkela-Kautiainen M, Haapasaari J, Kautiainen H, Vilkkumaa I, Malkia E, Leirisalo-Repo M. Favourable social functioning and health related quality of life of patients with JIA in early adulthood. Ann Rheum Dis 2005;64:875–80.
   PubMed Web of Science ®Google Scholar
• Flato B, Lien G, Smerdel A, Vinje O, Dale K, Johnston V, Prognostic factors in juvenile rheumatoid arthritis: a case-control study revealing early predictors and outcome after 14.9 years. J Rheumatol 2003;30:386–93.
   PubMed Web of Science ®Google Scholar
• Minden K, Niewerth M, Listing J, Biedermann T, Bollow M, Schontube M, Long-term outcome in patients with juvenile idiopathic arthritis. Arthritis Rheum 2002;46:2392–401.
   PubMed Web of Science ®Google Scholar
• Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: education and employment. Rheumatology (Oxford) 2002;41:1436–9.
   PubMed Web of Science ®Google Scholar
• Peterson LS, Mason T, Nelson AM, O’Fallon WM, Gabriel SE. Psychosocial outcomes and health status of adults who have had juvenile rheumatoid arthritis: a controlled, population-based study. Arthritis Rheum 1997;40:2235–40.
   PubMedGoogle Scholar
• David J, Cooper C, Hickey L, Lloyd J, Doré C, McCullough C, The functional and psychological outcomes of juvenile chronic arthritis in young adulthood. Br J Rheumatol 1994;33:876–81.
   PubMedGoogle Scholar
• [Statistics Norway. Living conditions 2002. Health, care and social networks], in Norwegian. Oslo, Norway: Statistics Norway, 2002.
   Google Scholar
• Vandvik IH, Fagertun H, Høyeraal HM. Prediction of short-term prognosis by biopsychosocial variables in patients with juvenile rheumatic diseases. J Rheumatol 1991;18:125–32.
   PubMedGoogle Scholar
• Flato B, Aasland A, Vinje O, Forre O. Outcome and predictive factors in juvenile rheumatoid arthritis and juvenile spondyloarthropathy. J Rheumatol 1998;25:366–75.
   PubMed Web of Science ®Google Scholar
• Aasland A, Flato B, Vandvik IH. Psychosocial outcome in juvenile chronic arthritis: a nine-year follow-up. Clin Exp Rheumatol 1997;15:561–8.
   PubMed Web of Science ®Google Scholar
• Medical Outcomes Trust. How to score the SF-36 health survey. Boston, MA: Medical Outcomes Trust, 1994.
   Google Scholar
• Aaronson NK, Acquadro C, Alonso J, Apolone G, Bucquet D, Bullinger M, . International Quality of Life Assessment (IQOLA) Project. Qual Life Res 1992;1:349–51.
   PubMedGoogle Scholar
• Ware JE. Conceptualization and measurement of health-related quality of life: comments on an evolving field. Arch Phys Med Rehabil 2003;84:43–51.
   PubMed Web of Science ®Google Scholar
• Ware JE. SF-36 health survey update. Spine 2000;25:3130–9.
   PubMed Web of Science ®Google Scholar
• Loge JH, Kaasa S. Short form 36 (SF-36) health survey: normative data from a general Norwegian population. Scand J Soc Med 1998;26:250–8.
   PubMedGoogle Scholar
• Fries JF, Spitz PW, Young DY. The dimensions of health outcomes: the Health Assessment Questionnaire, disability and pain scales. J Rheumatol 1982;9:789–93.
   PubMed Web of Science ®Google Scholar
• Bruce B, Fries JF. The Stanford Health Assessment Questionnaire: dimensions and practical applications. Health Qual Life Outcomes 2003;1:20.
   PubMedGoogle Scholar
• Felson DT, Anderson JJ, Boers M, Bombardier C, Chernoff M, Fried B, The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. The Committee on Outcome Measures in Rheumatoid Arthritis Clinical Trials. Arthritis Rheum 1993;36:729–40.
   PubMed Web of Science ®Google Scholar
• Wolfe F, Pincus T. Listening to the patient. A practical guide to self-report questionnaires in clinical care. Arthritis Rheum 1999;42:1797–808.
   PubMed Web of Science ®Google Scholar
• Bruce B, Fries JF. The Stanford Health Assessment Questionnaire (HAQ): a review of its history, issues, progress, and documentation. J Rheumatol 2003;30:167–78.
   PubMed Web of Science ®Google Scholar
• Wewers ME, Lowe NK. A critical review of visual analogue scales in the measurement of clinical phenomena. Res Nurs Health 1990;13:227–36.
   PubMed Web of Science ®Google Scholar
• Goldberg D, Williams P. A user’s guide to the General Health Questionnaire. Windsor: NFER-Nelson, 1988.
   Google Scholar
• Huppert FA, Walters DE, Day NE, Elliot B. The factor structure of the General Health Questionnaire (GHQ-30). Br J Psychiatry 1989;155:178–85.
   PubMed Web of Science ®Google Scholar
• Malt UF, Nerdrum P, Oppedal B, Gundersen R, Holte M, Löne J. Physical and mental problems attributed to dental amalgam fillings: a descriptive study of 99 self-referred patients compared with 272 controls. Psychosom Med 1997;59:32–41.
   PubMed Web of Science ®Google Scholar
• Bekkelund SI, Husby G, Mellgren SI. Quality of life in rheumatoid arthritis: a case-control study in patients living in northern Norway. Clin Exp Rheumatol 1995;13:471–75.
   PubMed Web of Science ®Google Scholar
• World Medical Association. The Declaration of Helsinki, 5th revision. Edinburgh: WMA, 2000.
   Google Scholar
• Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: functional outcome. Rheumatology (Oxford) 2002;41:1428–35.
   PubMed Web of Science ®Google Scholar
• Aasland A, Diseth TH. Can the Harter Self-Perception Profile for Adolescents (SPPA) be used as an indicator of psychosocial outcome in adolescents with chronic physical disorders? Eur Child Adolesc Psychiatry 1999;8:78–85.
   PubMed Web of Science ®Google Scholar
• Vandvik IH. Mental health and psychosocial functioning in children with recent onset of rheumatic disease. J Child Psychol Psychiatry 1990;31:961–71.
   PubMed Web of Science ®Google Scholar
• Ruperto N, Levinson JE, Ravelli A, Shear ES, Tague BL, Murray K, Long-term health outcomes and quality of life in American and Italian inception cohorts of patients with juvenile rheumatoid arthritis. I. Outcome status. J Rheumatol 1997;24:945–51.
   PubMed Web of Science ®Google Scholar
• Duarte-Salazar C, Guzmán-Vázquez S, Soto-Molina H, Cháidez-Rosales P, Ilizaliturri-Sánchez V, Nieves-Silva J, Disability impact on quality of life in Mexican adults with juvenile idiopathic arthritis and juvenile ankylosing spondylitis. Clin Exp Rheumatol 2007;25:922–7.
   PubMedGoogle Scholar
• Sällfors C, Hallberg L-M, Fasth A. Oscillating between hope and despair – a qualitative study. Child Care Health Dev 2002;28:495–505.
   PubMed Web of Science ®Google Scholar
• Odegård S. Disease course of rheumatoid arthritis (RA) in a 10-year perspective. Doctoral thesis, Faculty of Medicine, University of Oslo, 2008.
   Google Scholar
• Nilsson B, Luhr E. [Adolescence, disability, detachment], in Norwegian. 1st edn. Oslo: Kommuneforlaget AS, 1998.
   Google Scholar
• Carlsson G. Mild stroke – consequences in everyday life, coping and life satisfaction. Academic dissertation, Göteborg University, Göteborg, 2007.
   Google Scholar
• Forsberg-Warleby G. Spouses of stroke patients. Psychological well-being and life satisfaction. Academic dissertation, Göteborg University, Göteborg, 2002.
   Google Scholar
• Porn I. [To the question of the meaning of life. In: Liss P-E, Petersson B, editors. Healthy thoughts], in Norwegian. Falun: Nya Doxa, 1995:126–35.
   Google Scholar
• Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet 2001;358:483–8.
   PubMed Web of Science ®Google Scholar