535
Views
18
CrossRef citations to date
0
Altmetric
Articles

Are illness perception and coping style associated with the delay between symptom onset and the first general practitioner consultation in early rheumatoid arthritis management? An exploratory study within the CareRA trial

, , , , , , , , & show all
Pages 171-178 | Accepted 15 Jul 2015, Published online: 23 Sep 2015

References

  • Singh JA, Furst DE, Bharat A, Curtis JR, Kavanaugh AF, Kremer JM, et al. 2012 update of the 2008 American College of Rheumatology recommendations for the use of disease-modifying antirheumatic drugs and biologic agents in the treatment of rheumatoid arthritis. Arthritis Care Res (Hoboken) 2012;64:625–39.
  • Smolen JS, Landewe R, Breedveld FC, Buch M, Burmester G, Dougados M, et al. EULAR recommendations for the management of rheumatoid arthritis with synthetic and biological disease-modifying antirheumatic drugs: 2013 update. Ann Rheum Dis 2014;73:492–509.
  • Deighton C, O’Mahony R, Tosh J, Turner C, Rudolf M. Guideline Development Group. Management of rheumatoid arthritis: summary of NICE guidance. BMJ 2009;338:b702.
  • van der Linden MP, le Cessie S, Raza K, van der Woude D, Knevel R, Huizinga TW, et al. Long-term impact of delay in assessment of patients with early arthritis. Arthritis Rheum 2010;62:3537–46.
  • Feldman DE, Bernatsky S, Haggerty J, Leffondre K, Tousignant P, Roy Y, et al. Delay in consultation with specialists for persons with suspected new-onset rheumatoid arthritis: a population-based study. Arthritis Rheum 2007;57:1419–25.
  • Mottonen T, Hannonen P, Korpela M, Nissila M, Kautiainen H, Ilonen J, et al. Delay to institution of therapy and induction of remission using single-drug or combination-disease-modifying antirheumatic drug therapy in early rheumatoid arthritis. Arthritis Rheum 2002;46:894–8.
  • Raza K, Stack R, Kumar K, Filer A, Detert J, Bastian H, et al. Delays in assessment of patients with rheumatoid arthritis: variations across Europe. Ann Rheum Dis 2011;70:1822–5.
  • Suter LG, Fraenkel L, Holmboe ES. What factors account for referral delays for patients with suspected rheumatoid arthritis? Arthritis Rheum 2006;55:300–5.
  • Kumar K, Daley E, Khattak F, Buckley CD, Raza K. The influence of ethnicity on the extent of, and reasons underlying, delay in general practitioner consultation in patients with RA. Rheumatology (Oxford) 2010;49:1005–12.
  • Potter T, Mulherin D, Pugh M. Early intervention with disease-modifying therapy for rheumatoid arthritis: where do the delays occur? Rheumatology (Oxford) 2002;41:953–5.
  • Kumar K, Daley E, Carruthers DM, Situnayake D, Gordon C, Grindulis K, et al. Delay in presentation to primary care physicians is the main reason why patients with rheumatoid arthritis are seen late by rheumatologists. Rheumatology (Oxford) 2007;46:1438–40.
  • De Cock D, Meyfroidt S, Joly J, Van der Elst K, Westhovens R, Verschueren P. A detailed analysis of treatment delay from the onset of symptoms in early rheumatoid arthritis patients. Scand J Rheumatol 2014;43:1–8.
  • Stack RJ, van Tuyl LH, Sloots M, van de Stadt LA, Hoogland W, Maat B, et al. Symptom complexes in patients with seropositive arthralgia and in patients newly diagnosed with rheumatoid arthritis: a qualitative exploration of symptom development. Rheumatology (Oxford) 2014;53:1646–53.
  • Stack RJ, Sahni M, Mallen CD, Raza K. Symptom complexes at the earliest phases of rheumatoid arthritis: a synthesis of the qualitative literature. Arthritis Care Res (Hoboken) 2013;65:1916–26.
  • Petrie KJ, Weinman J. Why illness perceptions matter. Clin Med 2006;6:536–9.
  • Cameron LD, Leventhal H, eds. The self-regulation of health and illness behaviour. London and New York: Routledge, 2003.
  • Treharne GJ, Kitas GD, Lyons AC, Booth DA. Well-being in rheumatoid arthritis: the effects of disease duration and psychosocial factors. J Health Psychol 2005;10:457–74.
  • Murphy H, Dickens C, Creed F, Bernstein R. Depression, illness perception and coping in rheumatoid arthritis. J Psychosom Res 1999;46:155–64.
  • Zyrianova Y, Kelly BD, Sheehan J, McCarthy C, Dinan TG. The psychological impact of arthritis: the effects of illness perception and coping. Ir J Med Sci 2011;180:203–10.
  • Scharloo M, Kaptein AA, Weinman J, Hazes JM, Willems LN, Bergman W, et al. Illness perceptions, coping and functioning in patients with rheumatoid arthritis, chronic obstructive pulmonary disease and psoriasis. J Psychosom Res 1998;44:573–85.
  • Sirri L, Fava GA, Sonino N. The unifying concept of illness behavior. Psychother Psychosom 2013;82:74–81.
  • Verschueren P, De Cock D, Corluy L, Joos R, Langenaken C, Taelman V, et al. Methotrexate in combination with other DMARDs is not superior to methotrexate alone for remission induction with moderate-to-high-dose glucocorticoid bridging in early rheumatoid arthritis after 16 weeks of treatment: the CareRA trial. Ann Rheum Dis 2015;74:27–34.
  • Heijmans M, Rijken M. Validation of the IPQ-R in a large, representative Dutch sample. Book of abstracts of the 17th Conference of the European Health Psychology Society, ‘European health psychology. Gender, culture and health’, 24–27 September 2003, Kos, Greece, p. 14.
  • Moss-Morris R, Weinman J, Petrie KJ, Horne R, Cameron LD, Buick D. The revised illness perception questionnaire (IPQ-R). Psychol Health 2002;17:1–16.
  • Schreurs PJG, Tellegen B, Vanderwillige G. Health, stress and coping - the development of the Utrechtse coping scale. Gedrag-Tijdschrift Voor Psychologie 1984;12:101–17.
  • World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA 2000;284:3043–5.
  • Sheppard J, Kumar K, Buckley CD, Shaw KL, Raza K. ‘I just thought it was normal aches and pains’: a qualitative study of decision-making processes in patients with early rheumatoid arthritis. Rheumatology (Oxford) 2008;47:1577–82.
  • Gulec H. Normalizing attributions may contribute to non-help-seeking behavior in people with fibromyalgia syndrome. Psychosomatics 2008;49:212–17.
  • Stack RJ, Shaw K, Mallen C, Herron-Marx S, Horne R, Raza K. Delays in help seeking at the onset of the symptoms of rheumatoid arthritis: a systematic synthesis of qualitative literature. Ann Rheum Dis 2012;71:493–7.
  • Horne R, James D, Petrie K, Weinman J, Vincent R. Patients’ interpretation of symptoms as a cause of delay in reaching hospital during acute myocardial infarction. Heart 2000;83:388–93.
  • Quaife SL, Forbes LJL, Ramirez AJ, Brain KE, Donnelly C, Simon AE, et al. Recognition of cancer warning signs and anticipated delay in help-seeking in a population sample of adults in the UK. Br J Cancer 2014;110:12–18.
  • Taylor J, Morris M, Weinman J, Davis B, Andrews T, Hewlett S, et al. Understanding the patient perspective: IP43. Being Diagnosed with an Inflammatory Arthritis: the Patients’ Perspective. Rheumatology 2011;50:iii9–iii10.
  • Pedersen AF, Olesen F, Hansen RP, Zachariae R, Vedsted P. Coping strategies and patient delay in patients with cancer. J Psychosoc Oncol 2013;31:204–18.
  • Zegrean M, Fox-Wasylyshyn SM, El-Masri MM. Alternative coping strategies and decision delay in seeking care for acute myocardial infarction. J Cardiovasc Nurs 2009;24:151–5.
  • Kentsch M, Rodemerk U, Muller-Esch G, Schnoor U, Munzel T, Ittel TH, et al. Emotional attitudes toward symptoms and inadequate coping strategies are major determinants of patient delay in acute myocardial infarction. Z Kardiol 2002;91:147–55.
  • Flurey CA, Morris M, Pollock J, Richards P, Hughes R, Hewlett S. A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis. BMC Musculoskelet Disord 2014;15:364.
  • Ireland JA, Reid M, Powell R, Petrie KJ. The role of illness perceptions: psychological distress and treatment-seeking delay in patients with genital warts. Int J STD AIDS 2005;16:667–70.
  • Villeneuve E, Nam JL, Bell MJ, Deighton CM, Felson DT, Hazes JM, et al. A systematic literature review of strategies promoting early referral and reducing delays in the diagnosis and management of inflammatory arthritis. Postgrad Med J 2013;89:231–40.
  • Stack RJ, Llewellyn Z, Deighton C, Kiely P, Mallen CD, Raza K. General practitioners’ perspectives on campaigns to promote rapid help-seeking behaviour at the onset of rheumatoid arthritis. Scand J Prim Health Care 2014;32:37–43.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.