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Research Article

Communication and AAC in the Lives of Adults with Autism: The Stories of Their Older Parents

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Pages 256-266 | Received 05 Dec 2010, Accepted 27 Mar 2011, Published online: 03 Dec 2011

References

  • Aman, M. G. (2005). Treatment planning for patients with autism spectrum disorders. Journal of Clinical Psychiatry, 66 (Suppl. 10), 38–45. Retrieved from http://www.psychiatrist.com/
  • American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR (4th ed.). Washington, DC: American Psychiatric Association.
  • Balandin, S. (2002a). Communication and older people with lifelong disability: A role for speech pathologists? Advances in Speech-Language Pathology, 4(2), 109–117. doi: 10.1080/14417040210001669331
  • Balandin, S. (2002b). Message from the President. ISAAC Bulletin, 67, 2.
  • Balandin, S. (2007). The role of the case manager in supporting communication. In Bigby, C., Fyffe, C., & Ozanne, E. (Eds.), Planning and support for people with intellectual disabilties: Issues for case managers and other professionals (pp. 233–247). London: Jessica Kingsley.
  • Balandin, S., & Iacono, T. (1999). Crews, wusses and whoppas: Core and fringe vocabularies of Australian meal-break conversations in the workplace. Augmentative and Alternative Communication, 15, 95–109. doi: 10.1080/07434619912331278605
  • Bondy, A., & Frost, L. (2001). The Picture Exchange Communication System. Behavior Modification, 25(5), 725–744. doi: 10.1177/108835769400900301
  • Bowen, C. (2005). What is the evidence for oral motor therapy? Acquiring Knowledge in Speech, Language and Hearing, 7(3), 144–147.
  • Brereton, A. V., & Tonge, B. J. (2002). Autism and related disorders in adults. Current Opinion in Psychiatry, 15(5), 483–487. Retrieved from http://journals.lww.com/co-psychiatry/pages/default.aspx
  • Burns, M. K. (2000). Examining special education labels through attribution theory: A potential source for learned helplessness. Ethical Human Sciences and Services, 2(1), 101–107.
  • Cortazzi, M. (1993). Narrative analysis. London, Washington, DC: Falmer Press.
  • Creswell, J. W. (2007). Qualitative inquiry and research design (2nd ed.). London: Sage Publications, Inc.
  • Dempsey, I., & Nankervis, K. (2006). Conceptions of disability. In Dempsey, I. & Nankervis, K. (Eds.), Community disability services: An evidence-based approach to practice (pp. 3–26). Sydney: University of New South Wales.
  • Elder, J. (1994). Beliefs held by parents of autistic children. Journal of Child and Adolescent Psychiatric Nursing, 7(1), 9–16. doi:10.1111/j.1744-6171.1994.tb00184.x
  • Elliott, J. (2005). Using narrative in social research: Qualitative and quantitative approaches. London: Sage Publications.
  • Ello, L. M., & Donovan, S. J. (2005). Assessment of the relationship between parenting stress and a child’s ability to functionally communicate. Research on Social Work Practice, 15(6), 531–544. doi: 10.1177/1049731505278928
  • Fraser, H. (2004). Doing narrative research: Analysing personal stories line by line. Qualitative Social Work, 3(2), 179–201. doi:10.1177/1473325004043383
  • Grant, G., Ramcharan, P., McGrath, M., Nolan, M., & Keady, J. (1998). Rewards and gratifications among family caregivers: Towards a refined model of caring and coping. Journal of Intellectual Disability Research, 42(1), 58–71. doi: 10.1046/j.1365-2788.1998.00079.x
  • Gray, D. E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual & Developmental Disability, 27(3), 215–222. doi: 10.1080/1366825021000008639
  • Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou, R. J. A., & Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism. American Journal of Orthopsychiatry, 74(1), 14–25. doi: 10.1037/0002-9432.74.1.14
  • Hare, D. J., Pratt, C., Burton, M., Bromley, J., & Emerson, E. (2004). The health and social care needs of family carers supporting adults with autistic spectrum disorders. Autism, 8(4), 425–444. doi: 10.1177/1362361304047225
  • Hayden, M. F., & Heller, T. (1997). Support, problem-solving/coping ability and personal burden of younger and older caregivers of adults with mental retardation. Mental Retardation, 35(5), 364–372. Retrieved from http://www.aaiddjournals.org/
  • Heron, C. (1998). Working with carers. London: Jessica Kingsley.
  • Krauss, M. W., Seltzer, M. M., & Jacobson, H. T. (2005). Adults with autism living at home or in non-family settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research, 49, 111–124. doi: 10.1111/j.1365-2788.2004.00599.x
  • Labov, W. (1981). Speech actions and reactions in personal narrative. In Tannen, D. (Ed.), Analyzing discourse: Text and talk (pp. 219–247). Washington, DC: Georgetown University Press.
  • Light, J. C., Roberts, B., Dimarco, R., & Greiner, N. (1998). Augmentative and alternative communication to support receptive and expressive communication for people with autism. Journal of Communication Disorders, 31(2), 153–180. doi: 10.1016/S0021-9924(97)00087-7
  • Lubinski, R. (1997). Perspectives on aging and communication. In Lubinski, R. & Higginbotham, D.J. (Eds.), Communication technologies for the elderly (pp. 1–22). San Diego, CA: Singular Publishing.
  • Mirenda, P. (2003). Toward functional augmentative and alternative communication for students with autism: Manual signs, graphic symbols, and voice output communication aids. Language Speech and Hearing Services in Schools, 34(3), 203–216. doi: 10.1044/0161-1461(2003/017)
  • Quill, K. A. (1997). Instructional considerations for young children with autism: The rationale for visually cued instruction. Journal of Autism & Developmental Disorders, 27(6), 697–714. doi:10.1023/A:1025806900162
  • Richards, L. (1999). Using NVivo in qualitative research. London: Sage Publications.
  • Riessman, C. K. (1993). Narrative analysis. Newbury Park, CA: Sage Publications.
  • Riessman, C. K. (2001). Analysis of personal narratives. In Gubrium, J.F., & Holstein, J.A. (Eds.), Handbook of interview research: Context and method (pp. 695–710). Thousand Oaks, CA: Sage Publications.
  • Riessman, C. K. (2004). Narrative analysis. In Lewis-Beck, M.S., Bryman, A. & Liao, T.F. (Eds.), The Sage encyclopedia of social science research methods (Vol. 2). Thousand Oaks, CA: Sage Publications.
  • Roberts, J. (2002). Communication, autism, and ageing. Advances in Speech-Language Pathology, 4(2), 129–133. doi: 10.1080/14417040210001669361
  • Schlosser, R. W., & Wendt, O. (2008). Effects of augmentative and alternative communication intervention on speech production in children with autism: A systematic review. American Journal of Speech-Language Pathology, 17(3), 212–230. doi: 10.1044/1058-0360(2008/021)
  • Seltzer, M. M., Krauss, M. W., Orsmond, G. I., & Vestal, C. (2001). Families of adolescents and adults with autism: Uncharted territory. International Review of Research in Mental Retardation, 23, 267–294. Retrieved from: http://www.waisman.wisc.edu/family/pubs/Autism/2001_uncharted_territory.Pdf
  • Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33(6), 565–581. doi: 10.1023/B:JADD.0000005995.02453.0b
  • Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10(4), 234–247. doi: 10.1002/mrdd.20038
  • Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., Kring, S., et al. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1735–1747. doi: 10.1007/s10803-006-0307-7
  • Todd, S., & Jones, S. (2002). “Mum’s the word!”: Maternal accounts of dealings with the professional world. Journal of Applied Research in Intellectual Disabilities, 16(3), 229–244. Retrieved from: http://www.wiley.com/bw/submit.asp?ref=1360-2322&site=1

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