“Recovery” in bipolar disorder: How can service users be supported through a self-management intervention? A qualitative focus group study

References

• Anthony, W.A. (1993). Recovery from mental illness: The guiding vision of the mental health service system in the 1990s. Psychosocial Rehabilitation Journal, 16(4), 11–23.
   Google Scholar
• APA. (2000). Diagnostic and Statistical Manual of Mental Disorders. Fourth Edition, Text Revision. Washington, DC: American Psychiatric Association.
   Google Scholar
• Barnes, C., Harvey, R., Mitchell, P., Smith, M., & Wilhelm, K. (2007). Evaluation of an online relapse prevention program for bipolar disorder: An overview of the aims and methodology of a randomized controlled trial. Disease Management & Health Outcomes, 15(4), 215–224.
   Google Scholar
• Bodenheimer, T., Lorig, K., Holman, H., & Grumbach, K. (2002). Patient self-management of chronic disease in primary care. JAMA: The Journal of the American Medical Association, 288(19), 2469–2475.
   PubMed Web of Science ®Google Scholar
• Bonney, S., & Stickley, T. (2008). Recovery and mental health: A review of the British Literature. Journal of Psychiatric and Mental Health Nursing, 15(2), 140–153.
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.
   Google Scholar
• Buchanan-Barker, P., & Barker, P.J. (2006). The ten commitments: A value base for mental health recovery. Journal of Psychosocial Nursing & Mental Health Services, 44(9), 29–33.
   PubMed Web of Science ®Google Scholar
• Castle, D.J., Berk, L., Lauder, S., Berk, M., & Murray, G. (2009). Psychosocial interventions for bipolar disorder. Acta Neuropsychiatrica, 21(6), 275–284.
   Web of Science ®Google Scholar
• Chapman, J.R. (2002). Bipolar Disorder: Responding to Challenges to Identity. Unpublished PhD dissertation, University of Texas, Austin, USA.
   Google Scholar
• Colom, F., Vieta, E., Martinez-Aran, A., Reinares, M., Goikolea, J.M., Benabarre, A., (2003). A randomized trial on the efficacy of group psychoeducation in the prophylaxis of recurrences in bipolar patients whose disease is in remission. Archives of General Psychiatry, 60(4), 402–407.
   PubMed Web of Science ®Google Scholar
• Copeland, M.E. (2005). Wellness Recovery Action Plan. Liverpool: Sefton Recovery Group.
   Google Scholar
• Davidson, L., O'Connell, M.J., Tondora, J., Lawless, M., & Evans, A.C. (2005). Recovery in serious mental illness: A new wine or just a new bottle? Professional Psychology: Research and Practice, 36(5), 480–487.
   Web of Science ®Google Scholar
• Davidson, L., O'Connell, M., Tondora, J., Styron, T., & Kangas, K. (2006). The top ten concerns about recovery encountered in mental health system transformation. Psychiatr Serv, 57(5), 640–645.
   PubMed Web of Science ®Google Scholar
• DH. (2001). The expert patient: A new approach to chronic disease management for the 21st century. Retrieved from http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4006801
   Google Scholar
• Galvez, J.F., Thommi, S., & Ghaemi, S.N. (2011). Positive aspects of mental illness: A review in bipolar disorder. Journal of Affective Disorders, 128(3), 185–190.
   PubMed Web of Science ®Google Scholar
• Hirschfeld, R.M.A., Williams, J.B.W., Spitzer, R.L., Calabrese, J.R., Flynn, L., Keck, P.E., Jr. , (2000). Development and validation of a screening instrument for bipolar spectrum disorder: The mood disorder questionnaire. Am J Psychiatry, 157(11), 1873–1875.
   PubMed Web of Science ®Google Scholar
• HM Government. (2009). New horizons: A shared vision for mental health. Retrieved from http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_109705
   Google Scholar
• Inder, M., Crowe, M., Moor, S., Luty, S., Carter, J., & Joyce, P. (2008). “I actually don't know who I am”: The impact of bipolar disorder on the development of self. Psychiatry, 2(71), 123–133.
   Google Scholar
• Jones, S.H., Higginson, S., Murray, C., & Morrison, T. (in submission). Recovery in the early stages of bipolar disorder: A qualitative study.
   Google Scholar
• Jones, S.H., Lobban, F.A., & Cooke, A. (2010). Understanding Bipolar Disorder : Why Some People Experience Extreme Mood States and What can Help. Leicester: British Psychological Society.
   Google Scholar
• Lam, D.H., Bright, J., Jones, S., Hayward, P., Schuck, N., Chisholm, D., (2000). Cognitive therapy for bipolar illness – A pilot study of relapse prevention. Cognitive Therapy and Research, 24(5), 503–520.
   Web of Science ®Google Scholar
• Lobban, F.A., Taylor, K., Murray, C., & Jones, S.H. (in submission). Positives in bipolar disorder: A qualitative study.
   Google Scholar
• Lobban, F.A., Taylor, L., Chandler, C., Tyler, E., Kinderman, P., Kolamunnage-Dona, R., (2010). Enhanced relapse prevention for bipolar disorder by community mental health teams: Cluster feasibility randomised trial. The British Journal of Psychiatry, 196(1), 59–63.
   PubMed Web of Science ®Google Scholar
• Mansell, W., Powell, S., Pedley, R., Thomas, N., & Jones, S.A. (2010). The process of recovery from bipolar I disorder: A qualitative analysis of personal accounts in relation to an integrative cognitive model. British Journal of Clinical Psychology, 49(2), 193–215.
   PubMed Web of Science ®Google Scholar
• Martyn, D. (2003). Self management, the Experiences and Views of Self management of People with a Diagnosis of Schizophrenia. London: Rethink.
   Google Scholar
• MDF. (1998). Staying Well…with Bipolar Disorder. London: MDF The Bipolar Organisation.
   Google Scholar
• Mead, S., & Copeland, M.E. (2000). What recovery means to us: Consumers' perspectives. Community Mental Health Journal, 36(3), 315–328.
   PubMed Web of Science ®Google Scholar
• Merikangas, K.R., Akiskal, H.S., Angst, J., Greenberg, P.E., Hirschfeld, R.M.A., Petukhova, M., (2007). Lifetime and 12-month prevalence of bipolar spectrum disorder in the National Comorbidity Survey Replication. Arch Gen Psychiatry, 64(5), 543–552.
   PubMed Web of Science ®Google Scholar
• Michalak, E., Yatham, L., Kolesar, S., & Lam, R. (2006). Bipolar disorder and quality of life: A patient-centered perspective. Quality of Life Research, 15(1), 25–37.
   PubMed Web of Science ®Google Scholar
• Morriss, R., Faizal Mohammad, A., Jones Ashley, P., Williamson Paula, R., Bolton Catherine, A., & McCarthy James, P. (2007). Interventions for helping people recognise early signs of recurrence in bipolar disorder. Cochrane Database of Systematic Reviews, 24(1). Retrieved from http://www.mrw.interscience.wiley.com/cochrane/clsysrev/articles/CD004854/frame.html. doi:10.1002/14651858.CD004854.pub2
   Google Scholar
• Morriss, R., Lobban, F., Jones, S., Riste, L., Peters, S., Roberts, C., (2011). Pragmatic randomised controlled trial of group psychoeducation versus group support in the maintenance of bipolar disorder. BMC Psychiatry, 11(1), 114.
   Google Scholar
• Mueser, K.T., Meyer, P.S., Penn, D.L., Clancy, R., Clancy, D.M., & Salyers, M.P. (2006). The illness management and recovery program: Rationale, development, and preliminary findings. Schizophrenia Bulletin, 32( Suppl. 1), S32–S43.
   PubMed Web of Science ®Google Scholar
• Munetz, M.R., & Frese, F.J., III. (2001). Getting ready for recovery: Reconciling mandatory treatment with the recovery vision. Psychiatric Rehabilitation Journal, 25(1), 35–42.
   PubMed Web of Science ®Google Scholar
• Murray, C.J.L., & Lopez, A.D. (1997). Mortality by cause for eight regions of the world: Global burden of disease study. The Lancet, 349(9061), 1269–1276.
   PubMed Web of Science ®Google Scholar
• Murray, G., Suto, M., Hole, R., Hale, S., Amari, E., & Michalak, E.E. (2011). Self-management strategies used by ‘high functioning’ individuals with bipolar disorder: From research to clinical practice. Clinical Psychology & Psychotherapy, 18(2), 95–109.
   PubMed Web of Science ®Google Scholar
• Perry, A., Tarrier, N., Morriss, R., McCarthy, E., & Limb, K. (1999). Randomised controlled trial of efficacy of teaching patients with bipolar disorder to identify early symptoms of relapse and obtain treatment. British Medical Journal, 318(7177), 149–153.
   PubMed Web of Science ®Google Scholar
• Pollack, L.E. (1996). Inpatient self-management of bipolar disorder. Applied Nursing Research, 9(2), 71–79.
   PubMed Web of Science ®Google Scholar
• Proudfoot, J., Parker, G., Hyett, M., Manicavasagar, V., Smith, M., Grdovic, S., (2007). Next generation of self-management education: Web-based bipolar disorder program. Australian and New Zealand Journal of Psychiatry, 41(11), 903–909.
   PubMed Web of Science ®Google Scholar
• Repper, J., & Perkins, R. (2003). Social Inclusion and Recovery: A Model for Mental Health Practice. London: Elsevier Science Limited Bailliere Tindall.
   Google Scholar
• Roberts, G., & Wolfson, P. (2004). The rediscovery of recovery: Open to all. Advances in Psychiatric Treatment, 10(1), 37–48.
   Google Scholar
• Roe, D. (2001). Progressing from patienthood to personhood across the multidimensional outcomes in schizophrenia and related disorders. The Journal Of Nervous And Mental Disease, 189(10), 691–699.
   PubMed Web of Science ®Google Scholar
• Russell, S.J., & Browne, J.L. (2005). Staying well with bipolar disorder. Australian and New Zealand Journal of Psychiatry, 39(3), 187–193.
   PubMed Web of Science ®Google Scholar
• Salyers, M., Godfrey, J., Mueser, K., & Labriola, S. (2007). Measuring illness management outcomes: A psychometric study of clinician and consumer rating scales for illness self management and recovery. Community Mental Health Journal, 43(5), 459–480.
   PubMed Web of Science ®Google Scholar
• Silverstein, S.M., & Bellack, A.S. (2008). A scientific agenda for the concept of recovery as it applies to schizophrenia. Clinical Psychology Review, 28(7), 1108–1124.
   PubMed Web of Science ®Google Scholar
• Simpson, S., Barnes, E., Griffiths, E., Hood, K., Cohen, D., Craddock, N., (2009). The Bipolar Interactive Psychoeducation (BIPED) study: Trial design and protocol. BMC Psychiatry, 9(1), 50.
   PubMedGoogle Scholar
• Slade, M. (2009). 100 Ways to support recovery: A guide for mental health professionals - Rethink recovery series: volume 1. Retrieved from: http://www.rethink.org/mental_health_shop/products/rethink_publications/100_ways_to_support.html
   Google Scholar
• Stewart, D., Shamdasani, P.N., & Rook, D. (2006). Focus Groups: Theory and Practice (Second Edition). London: Sage Publications.
   Google Scholar
• Stewart, L., & Wheeler, K. (2005). Occupation for recovery. Occupational Therapy News, 13(11), 24–25.
   Google Scholar
• Suto, M., Murray, G., Hale, S., Amari, E., & Michalak, E.E. (2010). What works for people with bipolar disorder? Tips from the experts. Journal of Affective Disorders, 124(1–2), 76–84.
   PubMed Web of Science ®Google Scholar
• Todd, N.J., Solis-Trapala, I., Jones, S.H., & Lobban, F.A. (in submission). An online randomised controlled trial to assess the feasibility, acceptability and potential effectiveness of ‘Living with Bipolar’: a web-based self-management intervention bipolar disorder.
   Google Scholar
• Todd, N.J., Jones, S.H., & Lobban, F.A. (under review). What do service users with bipolar disorder want from a web-based self-management intervention? A qualitative focus group study.
   Google Scholar
• Twiss, J., Jones, S., & Anderson, I. (2008). Validation of the Mood Disorder Questionnaire for screening for bipolar disorder in a UK sample. Journal of Affective Disorders, 110(1–2), 180–184.
   PubMed Web of Science ®Google Scholar
• Young, S.L., & Ensing, D.S. (1999). Exploring recovery from the perspective of people with psychiatric disabilities. Psychiatric Rehabilitation Journal, 22(3), 219–231.
   Web of Science ®Google Scholar