1,950
Views
42
CrossRef citations to date
0
Altmetric
Research Papers

Perceptions of disability among south Asian immigrant mothers of children with disabilities in Canada: implications for rehabilitation service delivery

, , , , , , & show all
Pages 511-521 | Accepted 01 Jun 2010, Published online: 03 Jul 2010

References

  • Tran K, Kaddatz J, Allard P. South Asians in Canada: unity through diversity. Canadian social trends: statistics Canada. Internet. 2005. Electronic citation. www.statcan.gc.ca/kits-trousses/pdf/social/edu04_0128a-eng.pdf. Last accessed 14 July 2009.
  • South Asia: countries. Internet. 2008. Electronic citation. http://go.worldbank.org/GBUHVXX420. Last accessed 18 July 2009.
  • Gibson BE, Darrah J, Cameron D, Hashemi G, Kingsnorth S, Lepage RM, Lepage C, Martini R, Mandich A, Menna-Dack D. Revisiting therapy assumptions in children's rehabilitation: clinical and research implications. Disabil Rehabil 2009;31:1446–1453.
  • Panzarella KJ. Beginning with the end in mind: evaluating outcomes of cultural competence instruction in a doctor of physical therapy programme. Disabil Rehabil 2009;31:1144–1152.
  • The World Bank Group. South Asia: countries. Internet. 2008. Electronic citation. http://go.worldbank.org/GBUHVXX420. Last accessed 5 July 2009.
  • Maloni PK, Despres ER, Habbous J, Primmer AR, Slatten JB, Gibson BE, Landry MD. Perceptions of disability among mothers of children with disabilities (CWD) in Bangladesh: implications for rehabilitation service delivery. Disabil Rehabil 2010;32:845–854.
  • Raman S, Mandoda S, Kasim-Hussain L, Foley N, Hamdan E, Landry M. Exploring the meaning of childhood disability: perceptions of disability among mothers of children with disabilities (CWD) in Kuwait. World Health Popul 2010;11:49–60.
  • Access to rehabilitation for the 600 million people living with disabilities. Internet. 2003. Electronic citation. http://www.who.int/mediacentre/news/notes/2003/np24/en/. Last accessed 1 August 2009.
  • World Health Organization. International classification of impairments, disabilities, and handicap: a manual of classification relating to the consequences of disease. Albany, New York: Geneva; 1980. pp 3–13.
  • Rao S. Parameters of normality and cultural constructions of ‘mental retardation’: perspectives of Bengali families. Disabil Soc 2006;21:159–178.
  • Baker K, Donelly M. The social experiences of children with disability and the influence of environment: a framework for intervention. Disabil Soc 2001;16:71–85.
  • Brett J. The experience of disability from the perspective of parents of children with profound impairment: is it time for an alternative model of disability? Disabil Soc 2002;17:825–843.
  • Bui Y, Turnbull A. East meets West: analysis of person-centered planning in the context of Asian American values. Educ Train Ment Retard Dev Disabil 2003;38:18–31.
  • Masasa T, Irwin-Carruthers S, Faure M. Knowledge of, beliefs about and attitudes to disability: Implications for health professionals. SA Fam Pract 2005;47:40–44.
  • Officer A, Groce NE. Key concepts in disability. Lancet 2009;374:1795–1796.
  • Yousafzai A, Pagedar S, Wirz S, Filteau S. Beliefs about feeding practices and nutrition for children with disabilities among families in Dharavi, Mumbai. Int J Rehabil Res 2003;26:33–41.
  • McCubbin H, Thompson E, Thompson A, McCubbin M, Kaston A. Culture, ethnicity, and the family: critical factors in childhood chronic illnesses and disabilities. Pediatrics 1993;91:1063–1070.
  • Kleinman A. Patients and healers in the context of culture. Berkley (CA): University of California Press; 1980.
  • Mir G, Tovey P, Ahmed W. Cerebral Palsy and South Asian Communities. Leeds: Centre for Research in Primary Care, University of Leeds. In press.
  • Jabeen F, Karkara R. Government support to parenting in Bangladesh and India. Nepal: save the children Sweden. Internet. 2005. Electronic citation. http://sca.savethechildren.se/upload/scs/SCA/Publications/Government%20support%20to%20parenting%20in%20Bangladesh%20and%20India.pdf. Last accessed 11 August 2009.
  • Danesco ER. Parental beliefs on childhood disability: Insights on culture, child development and intervention. Int J Disabil Dev Educ 1997;44:41–52.
  • Groce N. Immigrants, disability and rehabilitation. In: Stone J, editor. Culture and disability. Thousand Oaks, CA: Sage Publications; 2005. pp. 1–14.
  • Campinha-Bacote J. The process of cultural competence in the delivery of healthcare services: a model of care. J Transcult Nurs 2002;13:181–184.
  • Vaughn LM. Families and cultural competency: where are we? Fam Commun Health 2009;32:247–256.
  • Diken I. Turkish mother's interpretation of the disability of their children with mental retardation. Int J Spec Educ 2006;21:8–17.
  • Hosain G, Hosain M, Ganguly K, Chatterjee N, Atkinson D. Use of unqualified practitioners by disabled people in rural Bangladesh. Mymensingh Med J 2005;44:160–164.
  • Hosain M, Atkinson D, Underwood P. Impact of disability on quality of life of rural disabled people in Bangladesh. J Health Popul Nutr 2002;20:297–305.
  • Landsman G. Mothers and models of disability. J Med Humanit 2005;26:121–139.
  • Hornby G. Improving parental involvement. New York: Cassell; 2000.
  • Taylor GR. Parenting skills and collaborative services for students with disabilities. Lanham, MD: Scarecrow Education; 2004.
  • Marinelli R, Orto A, editors. The psychological and social impact of disability. 4th ed. Michigan: Springer Publishing Company; 1999.
  • Heiman T. Parents of children with disabilities: resilience, coping, and future expectations. J Dev Phys Disabil 2002;14:159–171.
  • Huang YT, Fried JH, Hsu TH. Taiwanese mothers' attitude change toward individuals with disabilities. J Soc Work Disabil Rehabil 2009;8:82–94.
  • Crabtree S. Family responses to the social inclusion of children with developmental disabilities in the United Arab Emirates. Disabil Soc 2007;22:49–62.
  • Hosain G, Chatterjee N. Health-care utilization by disabled persons: a survey in rural Bangladesh. Disabil Rehabil 1998;20:337–345.
  • Green S. “What do you mean ‘what's wrong with her?’”: stigma and the lives of families of children with disabilities. Soc Sci Med 2003;57:1361–1375.
  • Hastings RP, Allen R, McDermott K, Still D. Factors related to positive perceptions in mothers of children with intellectual disabilities. J Appl Res Intell Disabil 2002;15:269–275.
  • Azar M, Badr LK. Predictors of coping in parents of children with an intellectual disability: comparison between Lebanese mothers and fathers. J Pediatr Nurs 2010;25:45–56.
  • Ibrahim HD. An overview of parental perceptions in cross-cultural groups on disability. Childhood Educ 2006;82:236–241.
  • Armstrong J, Ager A. Perspectives on disability in Afghanistan and their implications for rehabilitation services. Int J Rehabil Res 2005;28:87–92.
  • Croot EJ, Grant G, Cooper CL, Mathers N. Perceptions of the causes of childhood disability among Pakistani families living in the UK. Health Soc Care Commun 2008;16:606–613.
  • Sandelowski M. Focus on research methods: whatever happened to qualitative description? Res Nurs Health 2000;23:334–340.
  • Wright J, McKeever P. Qualitative research: its role in clinical research. Ann R Coll Physicians Surg Can 2000;33:275–280.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psych 2006;3:77–101.
  • Bickenbach JE. Disability culture and the UN convention. Disabil Rehabil 2009;31:1111–1124.
  • Dhar RL. Living with a developmentally disabled child: attitude of family members in India. Soc Sci J 2009;46:738–755.
  • Mardiros M. Conception of childhood disability among Mexican-American parents. Med Anthropol 1989;12:55–68.
  • Olasoji HO, Ugboko VI, Arotiba GT. Cultural and religious components in Nigerian parents' perceptions of the aetiology of cleft lip and palate: implications for treatment and rehabilitation. Br J Oral Maxillofac Surg 2007;45:302–305.
  • Chang M, McConkey R. The perceptions and experiences of Taiwanese parents who have children with an intellectual disability. Int J Dev Disabil Educ 2008;55:27–41.
  • Iddon JL, Morgan DJR, Loveday C, Sahakian BJ, Pickard JD. Neuropsychological profile of young adults with spina bifida with or without hydrocephalus. J Neurol Neurosurg Psychiatry 2004;75:1112–1128.
  • Middleton RA, Rollins CW, Sanderson PL, Leung P, Harley DA, Ebener D, Leal-Idrogo A. Endorsement of professional multicultural rehabilitation competencies and standards: a call to action. Rehabil Counsel Bull 2000;43:219–240.
  • Cohen AB. Many forms of culture. Am Psychol 2009;64:194–204.
  • Straus EW. Phenomenological psychology. New York: Basic Books; 1966.
  • Piggot J, Paterson J, Hocking C. Participation in home therapy programs for children with cerebral palsy: a compelling challenge. Qual Health Res 2002;12:1112–1129.
  • McKeever P, Miller K. Mothering children who have disabilities: a Bourdieusian interpretation of maternal practices. Soc Sci Med 2004;59:1177–1191.
  • Balcazar FE, Suarez-Balcazar Y, Taylor-Ritzler T. Cultural competence: development of a conceptual framework. Disabil Rehabil 2009;31:1153–1160.
  • Benbassat J, Pilpel D, Tidhar M. Patients' preferences for participation in clinical decision-making: a review of published surveys. Behav Med 1998;24:81–88.
  • Deber RB, Kraetschmer N, Irvine J. What role do patients wish to play in treatment decision making? Arch Int Med 1996;156:1414–1420.
  • Groce NE. Framing disability issues in local concepts and beliefs. Asia Pac Disabil Rehabil J 2000;10:4–7.
  • Bywaters P, Ali Z, Fazil Q, Wallace LM, Singh G. Attitudes towards disability amongst Pakistani and Bangladeshi parents of disabled children in the UK: considerations for service providers and the disability movement. Health Soc Care Commun 2003;11:502–509.
  • Iwama MK, Thomson NA, Macdonald RM. The Kawa model: the power of culturally responsive occupational therapy. Disabil Rehabil 2009;31:1125–1135.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.