Factors influencing healthy aging with multiple sclerosis: a qualitative study

References

• Brønnum-Hansen H, Koch-Henriksen N, Stenager E. Trends in survival and cause of death in Danish patients with multiple sclerosis. Brain 2004;127:844–850.
   PubMed Web of Science ®Google Scholar
• Montel SR, Bungener C. Coping and quality of life in one hundred and thirty five subjects with multiple sclerosis. Mult Scler 2007;13:393–401.
   PubMed Web of Science ®Google Scholar
• Rimmer JH. Exercise and physical activity in persons aging with a physical disability. Phys Med Rehabil Clin N Am 2005;16:41–56.
   PubMedGoogle Scholar
• World Health Organization. Atlas: Multiple Sclerosis Resources in the World 2008: WHO Press; 2008. p. 8.
   Google Scholar
• Fraser J, Johnson E, Ehde D, Bishop M. Patient self-management in multiple sclerosis. CMSC White Paper Series; Consortium of Multiple Sclerosis Centers: 2009.
   Google Scholar
• Lorig KR, Holman H. Self-management education: History, definition, outcomes, and mechanisms. Ann Behav Med 2003;26:1–7.
   PubMed Web of Science ®Google Scholar
• D’hooghe MB, Nagels G, Bissay V, De Keyser J. Modifiable factors influencing relapses and disability in multiple sclerosis. Mult Scler 2010;16:773–785.
   PubMed Web of Science ®Google Scholar
• Marrie RA, Rudick R, Horwitz R, Cutter G, Tyry T, Campagnolo D, Vollmer T. Vascular comorbidity is associated with more rapid disability progression in multiple sclerosis. Neurology 2010;74:1041–1047.
   PubMed Web of Science ®Google Scholar
• Ghadirian P, Jain M, Ducic S, Shatenstein B, Morisset R. Nutritional factors in the aetiology of multiple sclerosis: A case-control study in Montreal, Canada. Int J Epidemiol 1998;27:845–852.
   PubMed Web of Science ®Google Scholar
• Di Pauli F, Reindl M, Ehling R, Schautzer F, Gneiss C, Lutterotti A, O’Reilly E, et al. Smoking is a risk factor for early conversion to clinically definite multiple sclerosis. Mult Scler 2008;14:1026–1030.
   PubMed Web of Science ®Google Scholar
• Stuifbergen AK, Rogers S. Health promotion: An essential component of rehabilitation for persons with chronic disabling conditions. ANS Adv Nurs Sci 1997;19:1–20.
   PubMed Web of Science ®Google Scholar
• Motl RW, McAuley E. Pathways between physical activity and quality of life in adults with multiple sclerosis. Health Psychol 2009;28:682–689.
   PubMed Web of Science ®Google Scholar
• DalMonte J, Finlayson M, Helfrich C. In their own words: Coping processes among women aging with multiple sclerosis. Occupational Therapy in Health Care 2003;17:115–137.
   Google Scholar
• Finlayson M, van Denend T, DalMonte J. Older adults’ perspectives on the positive and negative aspects of living with multiple sclerosis. British Journal of Occupational Therapy 2005;68:117–124.
   Google Scholar
• Finlayson M, van Denend T. Experiencing the loss of mobility: Perspectives of older adults with MS. Disabil Rehabil 2003;25:1168–1180.
   PubMed Web of Science ®Google Scholar
• Fong T, Finlayson M, Peacock N. The social experience of aging with a chronic illness: Perspectives of older adults with multiple sclerosis. Disabil Rehabil 2006;28:695–705.
   PubMed Web of Science ®Google Scholar
• DiLorenzo TA, Becker-Feigeles J, Halper J, Picone MA. A qualitative investigation of adaptation in older individuals with multiple sclerosis. Disabil Rehabil 2008;30:1088–1097.
   PubMed Web of Science ®Google Scholar
• Godwin M, Streight S, Dyachuk E, van den Hooven EC, Ploemacher J, Seguin R, Cuthbertson S. Testing the Simple Lifestyle Indicator Questionnaire: Initial psychometric study. Can Fam Physician 2008;54:76–77.
   PubMed Web of Science ®Google Scholar
• Ploughman M, Austin M, Stefanelli M, Godwin M. Applying cognitive debriefing to pre-test patient-reported outcomes in older people with multiple sclerosis. Qual Life Res 2010;19:483–487.
   PubMed Web of Science ®Google Scholar
• Groenvold M, Klee MC, Sprangers MA, Aaronson NK. Validation of the EORTC QLQ-C30 quality of life questionnaire through combined qualitative and quantitative assessment of patient-observer agreement. J Clin Epidemiol 1997;50:441–450.
   PubMed Web of Science ®Google Scholar
• Fisk JD, Brown MG, Sketris IS, Metz LM, Murray TJ, Stadnyk KJ. A comparison of health utility measures for the evaluation of multiple sclerosis treatments. J Neurol Neurosurg Psychiatr 2005;76:58–63.
   PubMed Web of Science ®Google Scholar
• Green JT, Thorogood N. Qualitative methods for health research. 2nd Edn. Thousand Oaks, CA: Sage Publications, Ltd., 2009.
   Google Scholar
• Veugelers PJ, Fisk JD, Brown MG, Stadnyk K, Sketris IS, Murray TJ, Bhan V. Disease progression among multiple sclerosis patients before and during a disease-modifying drug program: A longitudinal population-based evaluation. Mult Scler 2009;15:1286–1294.
   PubMed Web of Science ®Google Scholar
• Marrie RA, Yu N, Blanchard J, Leung S, Elliott L. The rising prevalence and changing age distribution of multiple sclerosis in Manitoba. Neurology 2010;74:465–471.
   PubMed Web of Science ®Google Scholar
• Fischer JS, LaRocca NG, Miller DM, Ritvo PG, Andrews H, Paty D. Recent developments in the assessment of quality of life in multiple sclerosis (MS). Mult Scler 1999;5:251–259.
   PubMed Web of Science ®Google Scholar
• Vickrey BG, Hays RD, Harooni R, Myers LW, Ellison GW. A health-related quality of life measure for multiple sclerosis. Qual Life Res 1995;4:187–206.
   PubMed Web of Science ®Google Scholar
• Trisolini M, Wiener J. Principles to promote the quality of life of people with multiple sclerosis 2005; Multiple Sclerosis International Federation.
   Google Scholar
• Naci H, Fleurence R, Birt J, Duhig A. Economic burden of multiple sclerosis: A systematic review of the literature. Pharmacoeconomics 2010;28:363–379.
   PubMed Web of Science ®Google Scholar
• Goretti B, Portaccio E, Zipoli V, Hakiki B, Siracusa G, Sorbi S, Amato MP. Coping strategies, psychological variables and their relationship with quality of life in multiple sclerosis. Neurol Sci 2009;30:15–20.
   PubMed Web of Science ®Google Scholar
• Kempen GI, van Heuvelen MJ, van Sonderen E, van den Brink RH, Kooijman AC, Ormel J. The relationship of functional limitations to disability and the moderating effects of psychological attributes in community-dwelling older persons. Soc Sci Med 1999;48:1161–1172.
   PubMed Web of Science ®Google Scholar
• Reichstadt J, Sengupta G, Depp CA, Palinkas LA, Jeste DV. Older adults’ perspectives on successful aging: Qualitative interviews. Am J Geriatr Psychiatry 2010;18:567–575.
   PubMed Web of Science ®Google Scholar
• Shevil E, Finlayson M. Perceptions of persons with multiple sclerosis on cognitive changes and their impact on daily life. Disabil Rehabil 2006;28:779–788.
   PubMed Web of Science ®Google Scholar
• Stuifbergen AK, Seraphine A, Roberts G. An explanatory model of health promotion and quality of life in chronic disabling conditions. Nurs Res 2000;49:122–129.
   PubMed Web of Science ®Google Scholar
• Doble SE, Santha JC. Occupational well-being: Rethinking occupational therapy outcomes. Can J Occup Ther 2008;75:184–190.
   PubMedGoogle Scholar
• Roberts G, Stuifbergen AK. Health appraisal models in multiple sclerosis. Soc Sci Med 1998;47:243–253.
   PubMed Web of Science ®Google Scholar
• Rejeski WJ, Focht BC. Aging and physical disability: On integrating group and individual counseling with the promotion of physical activity. Exerc Sport Sci Rev 2002;30:166–170.
   PubMed Web of Science ®Google Scholar
• Dettmers C, Sulzmann M, Ruchay-Plössl A, Gütler R, Vieten M. Endurance exercise improves walking distance in MS patients with fatigue. Acta Neurol Scand 2009;120:251–257.
   PubMed Web of Science ®Google Scholar
• Dalgas U, Stenager E, Jakobsen J, Petersen T, Hansen HJ, Knudsen C, Overgaard K, Ingemann-Hansen T. Fatigue, mood and quality of life improve in MS patients after progressive resistance training. Mult Scler 2010;16:480–490.
   PubMed Web of Science ®Google Scholar