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Research Papers

The paradox of normalization through rehabilitation: growing up and growing older with cerebral palsy

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Pages 1276-1283 | Received 02 Apr 2012, Accepted 01 Aug 2012, Published online: 15 Oct 2012

References

  • Colantonio A, Ratcliff G, Chase S, Vernich L. Aging with traumatic brain injury: long-term health conditions. Int J Rehabil Res 2004;27:209–214.
  • Dean S, Colantonio A, Ratcliff G, Chase S. Clients’ perspectives on problems many years after traumatic brain injury. Psychol Rep 2000;86:653–658.
  • Perry J. Aging with poliomyelitis. In: Kemp B, Mosqueda L, editors. Aging with a Disability: What the Clinician Needs to Know. Baltimore, MD: The Johns Hopkins University Press; 2004. pp 175–195.
  • Kemp B, Mosquida L. Aging with a Disability: What the Clinician Needs to Know. Baltimore, MD: The John Hopkins University Press; 2004.
  • Liem NR, McColl MA, King W, Smith KM. Aging with a spinal cord injury: factors associated with the need for more help with activities of daily living. Arch Phys Med Rehabil 2004;85:1567–1577.
  • Kielhofner G. Conceptual Foundations of Occupational Therapy. Philadelphia, PA: FA Davis; 2004.
  • Neri MT, Kroll T. Understanding the consequences of access barriers to health care: experiences of adults with disabilities. Disabil Rehabil 2003;25:85–96.
  • Schanke AK. Psychological distress, social support and coping behaviour among polio survivors: a 5-year perspective on 63 polio patients. Disabil Rehabil 1997;19:108–116.
  • Fougeyrollas P, Noreau L, Boschen KA. Interaction of the environment on social participation among individuals with spinal cord injury. Top Spinal Cord Inj Rehabil 2002;7:56–72.
  • Charlifue S, Lammertse DP, Adkins RH. Aging with spinal cord injury: changes in selected health indices and life satisfaction. Arch Phys Med Rehabil 2004;85:1848–1853.
  • Harrison TC, Stuifbergen A. A hermeneutic phenomenological analysis of aging with a childhood onset disability. Health Care Women Int 2005;26:731–747.
  • Liptak GS. Health and well being of adults with cerebral palsy. Curr Opin Neurol 2008;21:136–142.
  • Andersson C, Mattsson E. Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol 2001;43:76–82.
  • Hilberink SR, Roebroeck ME, Nieuwstraten W, Jalink L, Verheijden JM, Stam HJ. Health issues in young adults with cerebral palsy: towards a life-span perspective. J Rehabil Med 2007;39:605–611.
  • Wilkins S, Cott C. Aging, Chronic Illness and Disability in Perspectives on Disability: Text and Readings. In: Nagler M, editor. Palo Alto, CA: Health Market Research; 1993. pp 363–368.
  • Harrison T. A qualitative analysis of the meaning of aging for women with disabilities with policy implications. Adv Nurs Sci 2006;29:E1–13.
  • Lammertse DP. Maintaining health long-term with spinal cord injury. Top Spinal Cord Inj Rehabil 2001;6:1–21.
  • Jahnsen R, Villien L, Aamodt G, Stanghelle JK, Holm I. Physiotherapy and physical activity-experiences of adults with cerebral palsy, with implications for children. Adv Physiother 2003;51:21–32.
  • Opheim A, Jahnsen R, Olsson E, Stanghelle JK. Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study. Dev Med Child Neurol 2009;51:381–388.
  • Roebroeck ME, Jahnsen R, Carona C, Kent RM, Chamberlain MA. Adult outcomes and lifespan issues for people with childhood-onset physical disability. Dev Med Child Neurol 2009;51:670–678.
  • Gajdosik CG, Cicirello N. Secondary conditions of the musculoskeletal system in adolescents and adults with cerebral palsy. Phys Occup Ther Pediatr 2001;21:49–68.
  • Opheim A, Jahnsen R, Olsson E, Stanghelle JK. Balance in relation to walking deterioration in adults with spastic bilateral cerebral palsy. Phys Ther 2012;92:279–288.
  • Strauss D, Ojdana K, Shavelle R, Rosenbloom L. Decline in function and life expectancy of older persons with cerebral palsy. NeuroRehabilitation 2004;19:69–78.
  • Zaffuto-Sforza CD. Aging with cerebral palsy. Phys Med Rehabil Clin N Am 2005;16:235–249.
  • Andrén E, Grimby G. Dependence and perceived difficulty in activities of daily living in adults with cerebral palsy and spina bifida. Disabil Rehabil 1999;22:299–307.
  • Sandström K. The lived body - experiences from adults with cerebral palsy. Clin Rehabil 2007;21:432–441.
  • Frank A. The Wounded Storyteller: Body, Illness, and Ethics. Chicago, IL: Chicago University of Chicago Press; 1995.
  • Clandinin DJ, Connelly FM. Narrative Inquiry: Experience and Story in Qualitative Research. San Francisco, CA: Jossey-Bass - A Wiley Company Inc.; 2000.
  • Nochi M. Reconstructing self-narratives in coping with traumatic brain injury. Soc Sci Med 2000;51:1795–1804.
  • Smith B, Sparkes A. Men, sport, and spinal cord injury: an analysis of metaphors and narrative types. Disabil Soc 2004;19:613–626.
  • Priestley M. Disability: A Life Course Approach. Cambridge: Polity Press; 2003.
  • Giele JZ, Elder GH Jr. Methods of Life Course Research: Qualitative and Quantitative Approaches. Thousand Oaks, CA: Sage Publications Inc.; 1998.
  • Kohler-Riessman C. Narrative Methods for the Human Science. California: Sage Publications Inc.; 2008.
  • Kuzel A. Sampling in qualitative inquiry. In: Crabtree BF, Miller WL, editors. Doing Qualitative Research (Research Methods for Primary Care). Thousand Oaks, CA: Sage Publications; 1999. pp 33–46.
  • Patton M. Designing qualitative studies. In: Patton M, editor. Qualitative Research and Evaluation Methods. Thousand Oaks, CA: Sage Publications Inc.; 2002. pp 223–246.
  • Clausen J. The life course of individuals. In: Riley MW, Johnson ME, Fonter A, editors. Aging and Society: A Sociology of Age Stratification. Volume 3. New York, NY: Russel Sage; 1972. pp 457–514.
  • Clausen J. Life reviews and life stories. In: Giele JZ, Elder GH Jr, editors. Methods of Life Course Research: Qualitative and Quantitative Approaches. Thousand Oaks, CA: Sage Publications; 1998. pp 189–212.
  • Back KW, Bourque LB. Life graphs: aging and cohort effect. J Gerontol 1970;25:249–255.
  • Foucault M. The Birth of the Clinic: An Archeology of Medical Perception. London and New York: Routledge; 2003/1973.
  • Davis LJ. Enforcing Normalcy: Disability, Deafness and the Body. London, NY: Verso; 1995.
  • Oliver M. Theories of disability in health practice and research. Br Med J 1998;317:1446–1449.
  • Sullivan M. Subjected bodies: paraplegia, rehabilitation, and the politics of movement. In: Tremain S, editor. Foucault and the Government of Disability. Ann Arbor, MI: The University of Michigan Press; 2005. pp 340.
  • Hewitt M. Bio-politics and social policy: Foucault’s account of welfare. In: Featherstone M, Hepworth M, Turner B, editors. The Body Social Process and Cultural Theory. London: Newbury Park, CA: Sage Publications; 1991. pp 225–255.
  • Pimm P. Cerebral palsy: “A non-progressive disorder”? Educ Child Psychol 1992;9:27–33.
  • Kemp BJ, Ettleson D. Quality of Life While Living and Aging with a Spinal Cord Injury and Other Impairments. Top Spinal Cord Inj Rehabil 2001;6:116–127.
  • Wiart L, Darrah J. Philosophical perspectives on the management of children with physical disabilities--their effect on the use of powered mobility. Disabil Rehabil 2002;24:492–498.
  • Bauman W, Waters R. Aging with a spinal cord injury. In: Kemp B, Mosqueda L, editors. Aging with a Disability: What the Clinician Needs to Know. Baltimore, MD: The Johns Hopkins University Press; 2004. pp 196–212.
  • Lankasky K. A consumer’s perspective on living with a disability: how change in function affects daily life. In: Kemp BJ, Mosqueda L, editors. Aging with a Disability: What the Clinician Needs to Know. Baltimore, MD: The Johns Hopkins University Press; 2004. pp 9–18.
  • Hughes B. Wounded/monstrous/abject: a critique of the disabled body in the sociological imaginary. Disabil Soc 2009;24:399–410.
  • Jahnsen R, Villien L, Egeland T, Stanghelle JK, Holm I. Locomotion skills in adults with cerebral palsy. Clin Rehabil 2004;18:309–316.
  • Hammel KW. Perspectives on Disability and Rehabilitation: Contesting Assumptions; Challenging Practice. Toronto, Ontario: Elsevier; 2006.
  • Nicholls DA, Gibson BE. The body and physiotherapy. Physiother Theory Pract 2010;26:497–509.
  • De Kleijn-De Vrankrijker MW. The long way from the International Classification of Impairments, Disabilities and Handicaps (ICIDH) to the International Classification of Functioning, Disability and Health (ICF). Disabil Rehabil 2003;25:561–564.
  • Hurst R. The International Disability Rights Movement and the ICF. Disabil Rehabil 2003;25:572–576.
  • Oliver M. The Politics of Disablement. London: MacMillan; 1990.
  • Bury M. Defining and researching disability: challenges and responses. In: Barnes C, Mercer G, editors. Exploring the Divide: Illness and Disability. Leeds: The Disability Press; 1996. pp 18–38.
  • Thomas C. Female Forms: Experiencing and Understanding Disability. Disability, Human Rights & Society. In: Barton L, editor. Buckingham; Philadelphia, PA: Open University Press; 1999.
  • Barnes C, Mercer G, Shakespeare T. Exploring Disability: A Sociological Introduction. Cambridge: Polity Press; 1999.
  • Morris J. Impairment and disability: constructing an ethics of care that promotes human rights. Hypatia 2001;16:1–16.
  • Oliver M. Defining Impairment and Disability: Issues at Stake. Exploring the Divide: Illness and Disability. In: Barnes C, Mercer G, editors. Leeds, UK: Disability Press; 1996
  • Thomas C. Disability theory: key ideas, issues and thinkers. In: Colin B, Oliver M, Len B, editors. Disability Studies Today. Cambridge, UK: Polity Press in association with Blackwell Publishers; 2002.
  • Seymour W. Remaking the Body: Rehabilitation and Change. New York, NY: Routledge; 1998.
  • Jahnsen R, Villien L, Stanghelle JK, Holm I. Coping potential and disability–sense of coherence in adults with cerebral palsy. Disabil Rehabil 2002;24:511–518.
  • Turner B, editor. Regulating Bodies: Essays in Medical Sociology. New York, NY: Routledge; 1992.
  • Valvano J, Long T. Neurodevelopmental treatment: a review of the writings of the Bobaths. Pediatr Phys Ther 1991;3:125–129.
  • Tefft D, Guerette P, Furumasu J. The development of a powered wheelchair mobility program for young children. Tech Disabil 1996;5:41–48.
  • Johnstone D. An Introduction to Disability Studies. London: David Fulton Publications Ltd.; 1998.
  • Lankasky K. A consumer’s perspective on living with a disability: how change in function affects daily life. Aging with a Disability: What the Clinician Needs to Know 2004.
  • Harrison T. Women aging with childhood onset disability: a holistic approach using the life course paradigm. J Holist Nurs 2003;21:242–259.

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