A life-course perspective on stigma-handling: resilience in persons of restricted growth narrated in life histories

References

• Lejon, E. Klovnens tid. (The clown’s time.) Klassekampen (Newspaper), Oslo, 11.8. 2010. p 9
   Google Scholar
• Shakespeare T, Thompson S, Wright M. No laughing matter: medical and social experiences of restricted growth. Scand J Disabil Res 2010;12:19–31
   Google Scholar
• Horton WA, Hecht JT. Chondrodysplasias. In: Royce PM, Steinmann B, eds. Connective tissue and its heritable disorders. 2nd ed. New York: Wiley-Liss, Inc; 2002:901–37
   Google Scholar
• Hecht JT, Hood OJ, Schwartz JCH, et al. Obesity in achodroplasia. Am J Med Genet 1988;31:597–602
   PubMed Web of Science ®Google Scholar
• Thompson S, Shakespeare T, Wright M. Disability and identity across life course: the restricted growth experience. Medische Antropologie 2010;22:237–51
   Google Scholar
• Shakespeare T. The disability reader. Cambridge: Cassel; 1998
   Google Scholar
• Søndergaard DM. Tegnet på kroppen. Køn: Koder og konstruktioner blandt unge voksne i Akademia. Copenhagen: København Museum Tusculanums Forlag; 1996
   Google Scholar
• Grue, J. Differentness and identity. Disability and the troublesome dichtomomies. In: Kristeva J, Engebretsen E, eds. Differentness. The language and politics of vulnerability. Oslo: Gyldendal Academic Publishing; 2010:84–101
   Google Scholar
• Thorsen K. Kjønn, livsløp og alderdom. En studie av livshistorier, selvbilde og modernitet. (Gender, life course and ageing. A study of life stories, self-image and modernity). Bergen: Fagbokforlaget; 1998
   Google Scholar
• Hermans HJM. Voicing the self: from information processing to dialogical interchange. Psychol Bull 1996;119:31–50
   Web of Science ®Google Scholar
• Gergen KJ, Gergen M. Narratives of the self. In: Sarbin T, Schiebe E, eds. Studies in social identity. New York: Praeger; 1983:254–73
   Google Scholar
• Ylvisaker M, Feeney T. Reconstruction of identity after brain injury. Brain Impairment 2000;1:12–28
   Google Scholar
• Olkin R. What psychotherapists should know about disability. New York: The Guilford Press; 1999
   Google Scholar
• Shakespeare T. Disability rights and wrongs. London: Routledge; 2006
   Google Scholar
• Garland-Thomson R. Staring. How we look. Oxford: Oxford University Press; 2009
   Google Scholar
• Goffman E. Stigma. London: Penguin Books; 1963
   Google Scholar
• Yang LH, Kleinman A, Link BG, et al. Culture and stigma: adding moral experience to stigma theory. Soc Sci Med 2006;64:1524–35
   PubMed Web of Science ®Google Scholar
• Crocker J, Quinn DM. Social stigma and the self: meaning, situations and self-esteem. In: Heatherton TF, Kleck RE, Hebl MR, Hull JG, eds. The social psychology of stigma. New York: Guilford; 2000:153–83
   Google Scholar
• Shih M. Positive stigma: examining resilience and empowerment in overcoming stigma. Ann Am Acad Political Soc Sci 2004;591:175–85
   Web of Science ®Google Scholar
• Corrigan PW, Watson AC. The paradox of self-stigma and mental illness. Clin Psychol: Sci Practice 2002;9:35–53
   Web of Science ®Google Scholar
• Miller CT, Kaiser CR. A theoretical perspective on coping with stigma. J Soc Issues 2001;57:73–92
   Web of Science ®Google Scholar
• Krantz OK, Bolin K, Persson D. Stigma-handling strategies in everyday life among women aged 20 to 30 with transversal upper limb reduction deficiency. Scand J Disabil Res 2008;10:209–26
   Google Scholar
• Mallett RK, Swim JK. Bring it on: proactive coping with discrimination. Motivation Emotion 2005;29:411–41
   Web of Science ®Google Scholar
• Levine I. Differentness and interaction. Vulnerability in encounter with the other. In: Kristeva J, Engebretsen E, eds. Differentness. The language and politics of vulnerability. Oslo: Gyldendal Academic Publishing; 2010:164–79
   Google Scholar
• Bonanno GA, Mancini AD. The human capacity to thrive in the face of potential trauma. Pediatrics 2008;12:369–74
   Web of Science ®Google Scholar
• Bonanno GA. Uses and abuses of the resilience construct: loss, trauma, and health-related adversities. Soc Sci Med 2012;74:753–6
   PubMed Web of Science ®Google Scholar
• Bonanno GA, Kennedy P, Galatzer-Levy IR, et al. Trajectories of resilience, depression and anxiety following spinal cord injury. Rehabil Psychol 2012;57:236–47
   PubMed Web of Science ®Google Scholar
• Tedeschi RG, Kilmer RP. Assessing strengths, resilience, and growth to guide clinical interventions. Profess Psychol 2005;36:230–7
   Google Scholar
• White B, Driver S, Warren A-M. Considering resilience in the rehabilitation of people with traumatic disabilities. Rehabil Psychol 2008;53:9–17
   Web of Science ®Google Scholar
• Quale AJ, Schanke AK. Resilience in the face of coping with a severe physical injury: a study of trajectories of adjustment in a rehabilitation setting. Rehabil Psychol 2010;55:12–22
   Google Scholar
• Masten AS, Hubbard JJ, Gest SD, et al. Competence in the context of adversity; pathways to resilience and maladaptation from childhood to late adolescence. Dev Psychopathol 1999;11:143–69
   PubMed Web of Science ®Google Scholar
• Schanke AK. Never second best? A narrative perspective on the shaping and reconstruction of identity in twenty polio survivors. Scand J Disabil Res 2005;6:89–109
   Google Scholar
• Dunn DS, Brody C. Defining the good life following acquired brain injury. Rehabil Psychol 2008;53:413–25
   Web of Science ®Google Scholar
• Thorsen K, Grut L, Myrvang VH. Sjelden og vanlig. Livsberetninger, livsløp og aldring med sjeldne diagnose. (Ordinary and rare. Life stories, life course and ageing with a rare diagnosis.) Tønsberg: Forlaget Aldring og helse; 2011
   Google Scholar
• Finkelstein V. To deny or not to deny disability. In: Brechin A, Liddiard P, Swain J, eds. Handicap in a social world. Seven Oaks: Hodder and Stoughton in association with The Open University Press; 1981:34–6
   Google Scholar
• Oliver M. The politics of disablement. London: Macmillan; 1990
   Google Scholar
• Riessman CK. Narrative analysis. London: Sage Publications; 1993
   Google Scholar
• Randall, WL. The stories we are: an essay on self-creation. Toronto: University of Toronto Press. 2nd printing; 1997
   Google Scholar
• Coles R. The call of stories. Boston: Hougthon Miffin; 1990
   Google Scholar
• Giele ZJ, Elder GH, eds. Methods of life course research. Qualitative and quantitative approaches. London: Sage Publications; 1998
   Google Scholar
• Elder GH. Time, human agency and social change: perspectives on the life-course. Soc Psychol Quart 1994;57:4–15
   Web of Science ®Google Scholar
• Elder GH. The life course of human development. In Lerner RM, ed. Handbook of child psychology, volume 1: theoretical models of human development. 5th ed. New York: Wiley; 1998:939–91
   Google Scholar
• Malterud K. Kvalitative metoder i medisinsk forskning. En innføring. (Qualitative methods in medical research. An introduction). Oslo: Universitetsforlaget; 2010
   Google Scholar
• Nerheim H. Vitenskap og kommunikasjon. Paradigmer, modeller og kommunikative strategier i helsefagenes vitenskapsteori. (Science and communication. Paradigm, models and communicative strategies in the scientific theories of health sciences). Oslo: Universitetsforlaget; 1995
   Google Scholar
• Kvale S, Brinkman S. Det kvalitative forskningsintervju. 2nd ed. The Qualitative Research Interview, Ad Notam Gyldendal, Oslo; 2009
   Google Scholar
• Polkinghorne DE. Narrative knowing and the human sciences. Albany: State University of New York Press; 1988
   Google Scholar
• Thorsen, K. Life course perspectives in ageing research. NOVA tidsskriftserie 5. Oslo: Norwegian Social Research; 2002
   Google Scholar
• Geertz C. Thick descriptions. Toward an interpretive theory of culture. In: Geertz C, ed. Interpretations of cultures: selected essays. New York: Basic Books; 1973:3–30
   Google Scholar
• Fog J. Med samtalen som utgangspunkt: Det kvalitative forskningsinterjvu. (Starting with conversation. The qualitative research interview). København: Akademiske forlag; 1994
   Google Scholar
• Mishler EG. Research interviewing: context and narrative. Cambridge: Harvard University Press; 1986
   Google Scholar
• Dahl HM. Fra kitler til eget tøj, diskurser om professionalisme, omsorg og køn. (From white coats to own clothes – discourses about professionalism, care and gender). Århus: Politica; 2000
   Google Scholar
• Watson C. The ‘impossible vanity’: uses and abuses of empathy in qualitative research. Qual Res 2009;9:105–17
   Web of Science ®Google Scholar