2,007
Views
22
CrossRef citations to date
0
Altmetric
Research Paper

Negotiating identity: a qualitative analysis of stigma and support seeking for individuals with cerebral palsy

, &
Pages 1162-1169 | Received 07 Oct 2013, Accepted 18 Aug 2014, Published online: 01 Sep 2014

References

  • Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol 2007;109:8–14
  • Young NL. The transition to adulthood for children with cerebral palsy: what do we know about their health care needs? J Pediatr Orthop 2007;27:476–9
  • Young NL, Gilbert TK, McCormick A, et al. Youth and young adults with cerebral palsy: their use of physician and hospital services. Arch Phys Med Rehabil 2007;88:696–702
  • Bottos M, Feliciangeli A, Sciuto L, et al. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol 2001;43:516–28
  • Beatty PW, Hagglund KJ, Neri MT, et al. Access to health care services among people with chronic or disabling conditions: patterns and predictors. Arch Phys Med Rehabil 2003;84:1417–25
  • Charlton JI. Nothing about us without us: disability oppression and empowerment. Berkeley (CA): University of California Press; 2000
  • Crocker J, Major B, Steele C. Social stigma. In: Gilbert DT, Fiske ST, Lindzey G, eds. The handbook of social psychology, 4th ed. vol. 2. New York: McGraw Hill; 1998:504–53
  • Goffman E. Stigma: notes on the management of spoiled identity. New York: Prentice-Hall; 1963
  • Jones EE, Farina A, Hastorf AH, et al. Social stigma: the psychology of marked relationships. New York: Freeman; 1984
  • Becker H, Stuifbergen A, Tinkle M. Reproductive health care experiences of women with physical disabilities: a qualitative study. Arch Phys Med Rehabil 1997;78:S26–33
  • Iacono T, Humphreys J, Davis R, Chandler N. Health care service provision for country people with developmental disability: an Australian perspective. Res Dev Disabil 2004;25:265–84
  • Martin HL, Rowell MM, Reid SM, et al. Cerebral palsy: what do medical students know and believe? J Paediatr Child Health 2005;41:43–7
  • Gething L. Perceptions of disability of persons with cerebral palsy, their close relatives and able bodied persons. Soc Sci Med 1985;20:561–5
  • Hebl MR, Kleck RE. The social consequences of physical disability. In: Heatherton TF, Kleck RE, Hebl MR, Hull JG, eds. The social psychology of stigma. New York: Guilford Press; 2000:419–40
  • McNaughton D, Light J, Arnold KB. Getting your wheel in the door: successful full-time employment experiences of individuals with cerebral palsy who use augmentative and alternative communication. Augment Altern Commun 2002;18:59–76
  • Yeung PHY, Passmore AE, Packer TL. Active citizens or passive recipients: how Australian young adults with cerebral palsy define citizenship. J Intellect Dev Disabil 2008;33:65–75
  • Balandin S, Hemsley B, Sigafoos J, Green V. Communicating with nurses: the experiences of 10 adults with cerebral palsy and complex communication needs. Appl Nurs Res 2007;20:56–62
  • Buzio A, Morgan J, Blount D. The experiences of adults with cerebral palsy during periods of hospitalisation. Aust J Adv Nurs 2002;19:8–14
  • Cahill SE, Eggleston R. Reconsidering the stigma of physical disability: wheelchair use and public kindness. Sociol Q 1995;36:681–98
  • Gibson BE, Mykitiuk R. Health care access and support for disabled women in Canada: falling short of the UN Convention on the rights of persons with disabilities: a qualitative study. Women's Health Iss 2012;22:111–18
  • Kroll T, Neri M. Experiences with care co-ordination among people with cerebral palsy, multiple sclerosis, or spinal cord injury. Disabil Rehabil 2003;25:1106–14
  • Branscombe NR, Fernández S, Gómez A, Cronin T. Moving toward or away from a group identity: different strategies for coping with pervasive discrimination. In: Jetten J, Haslam C, Haslam SA, eds. The social cure: identity, health and well-being. Sussex, UK: Psychology Press; 2012:115–31
  • Tajfel H, Turner JC. An integrative theory of intergroup conflict. In: Austin WG, Worchel S, eds. The social psychology of intergroup relations. Monterey (CA): Brooks-Cole; 1979:33–47
  • Turner JC, Hogg MA, Oakes PJ, et al. Rediscovering the social group: a self-categorization theory. Oxford, UK: Blackwell; 1987
  • Tajfel H. Human groups and social categories: studies in social psychology. Cambridge, UK: Cambridge University Press; 1981
  • Ablon J. The nature of stigma and medical conditions. Epilepsy Behav 2002;3:S2–9
  • Farrell M, Corrin K. The stigma of congenital abnormalities. In: Mason T, Carlisle C, Watkins C, Whitehead E, eds. Stigma and social exclusion in healthcare. London: Routledge; 2001:51–62
  • Linton S. Reassigning meaning. In: Davis LJ, ed. The disability studies reader. 3rd ed. New York: Routledge; 2010:223–36
  • Branscombe NR, Ellemers N. Coping with group-based discrimination: individualistic versus group-level strategies. In: Swim JK, Stangor C, eds. Prejudice: the target’s perspective. San Diego (CA): Academic Press; 1998:243–66
  • Nario-Redmond MR, Noel JG, Fern E. Redefining disability, re-imagining the self: disability identification predicts self-esteem and strategic responses to stigma. Self Identity 2013;12:468–88
  • Asch A, Fine M. Introduction: beyond pedestals. In: Fine M, Asch A, eds. Women with disabilities: essays in psychology, culture and politics. Philadelphia (PA): Temple University Press; 1988:1–37
  • Katz I. Stigma: a social psychological analysis. Hillsdale (NJ): Lawrence Erlbaum Associates; 1981
  • Brown LC. Stigma: an enigma demystified. In: Davis LJ, ed. The disability studies reader. 4th ed. New York: Routledge; 2013:147–60
  • Branscombe NR, Schmitt MT, Harvey RD. Perceiving pervasive discrimination among African Americans: implications for group identification and well-being. J Pers Soc Psychol 1999;77:135–49
  • Crocker J, Major B. Social stigma and self-esteem: the self-protective properties of stigma. Psychol Rev 1989;96:608–30
  • Aviram RB, Rosenfeld S. Application of social identity theory in group therapy with stigmatized adults. Int J Group Psychother 2002;52:121–30
  • Bat-Cheva Y. Group identification and self-esteem of deaf adults. Pers Soc Psychol Bull 1994;20:494–502
  • Fernández S, Branscombe NR, Gómez A, Morales JF. Influence of the social context on use of surgical-lengthening and group-empowering coping strategies among people with dwarfism. Rehabil Psychol 2012;57:224–35
  • Crabtree JW, Haslam SA, Postmes T, Haslam C. Mental health support groups, stigma, and self-esteem: Positive and negative implications of group identification. J Social Iss 2010;66:553–69
  • Tajfel H. The social psychology of minorities. London, UK: Minority Rights Group; 1978
  • Rüsch N, Corrigan PW, Wassel A, et al. Self-stigma, group identification, perceived legitimacy of discrimination and mental health service use. Br J Psychiatry 2009;195:551–2
  • Griffiths F, Cave J, Boardman F, et al. Social networks – the future for health care delivery. Soc Sci Med 2012;75:2233–41
  • Bowker N. Understanding barriers to online experience for people with physical and sensory disabilities using discursive social psychology. Universal Access in the Information Society 2010;9:121–36
  • Jahnsen R, Aamodt G, Rosenbaum P. Gross Motor Function Classification System used in adults with cerebral palsy: agreement of self-reported versus professional rating. Dev Med Child Neurol 2006;48:734–8
  • Palisano R, Rosenbaum P, Walter S, et al. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol 1997;39:214–23
  • McCormick A, Brien M, Plourde J, et al. Stability of the Gross Motor Function Classification System in adults with cerebral palsy. Dev Med Child Neurol 2007;49:265–9
  • Crooks VA, Chouinard VV, Wilton RD. Understanding, embracing, rejecting: women’s negotiations of disability constructions and categorizations after becoming chronically ill. Soc Sci Med 2008;67:1837–46
  • Buljevac M, Majdak M, Leutar Z. The stigma of disability: croatian experiences. Disabil Rehabil 2012;34:725–32
  • Sandström K. The lived body – experiences from adults with cerebral palsy. Clin Rehabil 2007;21:432–41
  • Turner JC, Oakes PJ, Haslam SA, McGarty C. Self and collective: cognition and social context. Pers Soc Psychol Bull 1994;20:454–63
  • Hogan A, Reynolds KJ, O’Brien L. Towards a social psychology of living with acquired hearing loss. Perspectives Aural Rehabil Instrum 2011;18:13–22
  • McLaughlin K. Surviving identity: vulnerability and the psychology of recognition. Sussex, UK: Routledge; 2012
  • Hornsey MJ, Jetten J. The individual within the group: balancing the need to belong with the need to be different. Pers Soc Psychol Bull 2004;8:248–64
  • Postmes T, Jetten J. Individuality and the group: advances in social identity. London, UK: Sage; 2006
  • Cossrow NH, Jeffery RW, McGuire MT. Understanding weight discrimination: a focus group study. J Nutr Educ 2001;33:208–14
  • Himmelmann K, Beckung E, Hagberg G, Uvebrant P. Gross and fine motor function and accompanying impairments in cerebral palsy. Dev Med Child Neurol 2006;48:417–23
  • Colver AF, Dickinson HO, Parkinson K, et al. Access of children with cerebral palsy to the physical, social and attitudinal environment they need: a cross-sectional European study. Disabil Rehabil 2011;33:28–35
  • Crandall CS, Moriarty D. Physical illness stigma and social rejection. Br J Soc Psychol 1995;34:67–83

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.