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Research Papers

The roles of effective communication and client engagement in delivering culturally sensitive care to immigrant parents of children with disabilities

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Pages 1372-1381 | Received 24 Mar 2014, Accepted 30 Sep 2014, Published online: 17 Oct 2014

References

  • King GA, Esses VM, Solomon N. Immigrant and refugee families raising children with disabling conditions: a review of the international literature on service access, service utilization, and service care experiences. In: Grigorenko EL, ed. Handbook of US immigration and education. New York: Springer; 2013:179–206
  • Bonilla ZE, Edwards PD. Difficulties encountered by health care providers serving Latino families and their children with craniofacial conditions. Hisp Health Care Int 2011;9:61–72
  • Kummerer SE, Lopez-Reyna NA, Hughes MT. Mexican immigrant mothers' perceptions of their children’s communication disabilities, emergent literacy development, and speech-language therapy program. Am J Speech Lang Pathol 2007;16:271–82
  • Daudji A, Eby S, Foo T, et al. Perceptions of disability among south Asian immigrant mothers of children with disabilities in Canada: implications for rehabilitation service delivery. Disabil Rehabil 2011;33:511–21
  • Rosenbaum P, King S, Law M, et al. Family-centred service: a conceptual framework and research review. Phys Occup Ther Pediatr 1998;18:1–20
  • Hasnain R, Kondratowicz DM, Borokhovski E, et al. Do cultural competency interventions work: a systematic review on improving rehabilitation outcomes for ethnically and linguistically diverse individuals with disabilities. National Centre for Dissemination of Disability Research 2011
  • Chamba R, Ahmad W, Hirst M, et al. Minority ethnic families caring for a severely disabled child. West Sussex, UK: Joseph Rowntree Foundation; 1999
  • King GA, Servais M, Bolack L, et al. Development of a measure to assess effective listening and interactive communication skills in the delivery of children's rehabilitation services. Disabil Rehabil 2011;34:459–69
  • Bavelas JB, Coates L, Johnson T. Listener responses as a collaborative process: the role of gaze. J Commun 2002;52:566–80
  • Higgins TE. The “communication game”: implications for social cognition and persuasion. In: Higgins ET, Herman CP, Zanna MP, eds. Social cognition: the Ontario symposium. Hillsdale, NJ: Lawrence Erlbaum Associates; 1981:343–92
  • Duffy FD, Gordon GH, Whelan G, et al. Assessing competence in communication and interpersonal skills: the Kalamazoo II report. Acad Med 2004;79:495–507
  • Boudreau JD, Cassell E, Fuks A. Preparing medical students to become attentive listeners. Med Teach 2009;31:22–9
  • Mercer LM, Tanabe P, Pang PS, et al. Patient perspectives on communication with the medical team: pilot study using the communication assessment tool-team (CAT-T). Patient Educ Couns 2008;73:220–3
  • Gibson CH. Facilitating clinical reflection in mothers of chronically ill children. J Clin Nurs 1999;83:305–12
  • MacKean GL, Thurston WE, Scott CM. Bridging the divide between families and health professionals' perspectives on family-centred care. Health Expect 2005;8:74–85
  • Bedell GM, Cohn ES, Dumas HM. Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. Am J Occup Ther 2005;59:273–84
  • King G, Baxter D, Rosenbaum P, et al. Belief systems of families of children with autism spectrum disorders or Down syndrome. Focus Autism Other Dev Disabil 2009;24:50–64
  • Shepherd T, King G, Servais M, et al. Clinical scenario discussions of listening in interprofessional health care teams. Int J Listen 2014;28:47–63
  • Tatla SK, Sauve K, Virji-Babul N, et al. Evidence for outcomes of motivational rehabilitation interventions for children and adolescents with cerebral palsy: an American Academy for Cerebral Palsy and Developmental Medicine systematic review. Dev Med & Child Neurol 2013;55:593–601
  • Ziviani J, Poulsen A, King G, Johnson D. Motivation and paediatric interventions: a predisposition, mechanism for change or outcome? [Letter to the editor]. Dev Med Child Neurol 2013;55:965–6
  • Tetley A, Jinks M, Huband N, Howells K. A systematic review of measures of therapeutic engagement in psychosocial and psychological treatment. J Clin Psychol 2011;67:927–41
  • Davidson J, Wiens S, Anderson K. Creating a provincial family council to engage youth and families in child & youth mental health systems. J Can Acad Child Adolesc Psychiatry 2012;19:169–75
  • Lequerica AH, Donnell CS, Tate DG. Patient engagement in rehabilitation therapy: physical and occupational therapist impressions. Disabil Rehabil 2009;31:753–60
  • Danzl MM, Etter NM, Andreatta RD, Kitzman PH. Facilitating neurorehabilitation through principles of engagement. J Allied Health 2012;41:35–41
  • Foster AM, Armstrong J, Buckley A, et al. Encouraging family engagement in the rehabilitation process: a rehabilitation provider's development of support strategies for family members of people with traumatic brain injury. Disabil Rehabil 2012;34:1855–62
  • Prezant FP, Marshak L. Helpful actions seen through the eyes of parents of children with disabilities. Disabil Soc 2006;21:31–45
  • Lindsay S, Tetreault S, Desmarais C, et al. Social workers as ‘cultural brokers’ in providing culturally sensitive care to immigrant families raising a child with a physical disability. Health Soc Work 2014;e10–e20. [Epub ahead of print]
  • Lindsay S, Tetreault S, Desmarais C, et al. The cultural brokerage work of occupational therapists in providing culturally sensitive care. Can J Occup Ther 2014;81:114–23
  • Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs 2008;62:107–15
  • Cavanagh S. Content analysis: concepts, methods and applications. Nurse Res 1997;4:5–13
  • Hancock B. Trent focus for research and development in primary health care: an introduction to qualitative research. Trent Focus 1998
  • Krefting L. Rigor in qualitative research: the assessment of trustworthiness. Am J Occup Ther 1991;45:214–22
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004;24:105–12
  • Lincoln YS, Guba EG. Naturalistic inquiry. Newbury Park, CA: Sage Publications; 1985:1–416
  • Miles M, Huberman A. Qualitative data analysis: an expanded source book. 2nd ed. Thousand Oaks, CA: Sage; 1994
  • Green J, Thorogood N. Qualitative methods for health research. London: Sage Publications; 2004
  • Sandelowski M. The problem of rigor in qualitative research. Adv Nurs Sci 1986;8:27–37
  • King G, Chiarello L. Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice. J Child Neurol 2014;29:1046–54
  • King G, Currie M, Bartlett D, et al. The development of expertise in pediatric rehabilitation therapists: changes in approach, self-knowledge, and use of enabling and customizing strategies. Dev Neurorehabil 2007;10:223–40
  • Leanza YR. Exercer la pédiatrie en contexte interculturel. Chêne-Bourg: Georg; 2011
  • Mahele-Nyota J. Familles immigrantes et handicap de développement: une double minorisation? Reflets: Revue D'intervention Sociale Communautaire 2010;16:214–34
  • King G. A relational goal-oriented model of optimal service delivery to children and families. Phys Occup Ther Pediatr 2009;29:384–408
  • Kuhlthau KA, Bloom S, Van Cleave J, et al. Evidence for family-centered care for children with special health care needs: a systematic review. Acad Pediatr 2011;11:136–43
  • Dey I. Qualitative data analysis: a user friendly guide for social scientists. London: Routledge; 1993
  • Chang E, Simon M, Dong X. Integrating cultural humility into health care professional education and training. Adv Health Sci Educ Theory Pract 2012;17:269–78
  • Rogers EM, Hart WB, Miike Y, Edward T. Hall and the history of intercultural communication: the United States and Japan. Keio Commun Rev 2002;24:3–26

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