Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses

References

• Christiansen CH, Townsend E, editors. Introduction to occupation. the art and science of living. 2nd. Upper Saddle River: Pearson Education; 2011.
   Google Scholar
• Hammell KW. Dimensions of meaning in the occupations of daily life. Can J Occup Ther. 2004;71:296–305.
   PubMedGoogle Scholar
• Bury M, Bury M. Chronic illness as biographical disruption. Sociol Health Illn. 1982;4:167–182.
   PubMedGoogle Scholar
• Corbin J. The body in health and illness. Qual Health Res. 2003;13:256–267.
   PubMed Web of Science ®Google Scholar
• Buscherhof JR. From abled to disabled: a life transition. Top Stroke Rehabil. 1998;5:19–29.
   Google Scholar
• Clarke P, Black SE. Quality of life following stroke: negotiating disability, identity, and resources. J Appl Gerontol. 2005;24:319–336.
   Web of Science ®Google Scholar
• Salter K, Hellings C, Foley N, et al. The experience of living with stroke: a qualitative meta-synthesis. J Rehabil Med. 2008;40:595–602.
   PubMed Web of Science ®Google Scholar
• Satink T, Cup EH, Ilott I, et al. Patients' views on the impact of stroke on their roles and self: a thematic synthesis of qualitative studies. Arch Phys Med Rehabil. 2013;94:1171–1183.
   PubMed Web of Science ®Google Scholar
• Secrest JA, Thomas SP. Continuity and discontinuity: the quality of life following stroke. Rehabil Nurs. 1999;24:240–246.
   PubMedGoogle Scholar
• Becker G. Continuity after a stroke: implications of life-course disruption in old age. Gerontologist. 1993;33:148–158.
   PubMed Web of Science ®Google Scholar
• Satink T, Cup EH, de Swart BJ, et al. How is self-management perceived by community living people after a stroke? A focus group study. Disabil Rehabil. 2015;37:223–230.
   PubMed Web of Science ®Google Scholar
• Sumathipala K, Radcliffe E, Sadler E, et al. Identifying the long-term needs of stroke survivors using the international classification of functioning, disability and health. Chronic Illn. 2012;8:31–44.
   PubMedGoogle Scholar
• Peoples H, Satink T, Steultjens E. Stroke survivors' experiences of rehabilitation: a systematic review of qualitative studies. Scand J Occup Ther. 2011;18:163–171.
   PubMed Web of Science ®Google Scholar
• Ellis-Hill C, Payne S, Ward C. Using stroke to explore the life thread model: an alternative approach to understanding rehabilitation following an acquired disability. Disabil Rehabil. 2008;30:150–159.
   PubMed Web of Science ®Google Scholar
• Kirkevold M. The unfolding illness trajectory of stroke. Disabil Rehabil. 2002;24:887–898.
   PubMed Web of Science ®Google Scholar
• Pound P, Gompertz P, Ebrahim S. Social and practical strategies described by people living at home with stroke. Health Soc Care Community. 1999;7:120–128.
   PubMed Web of Science ®Google Scholar
• Rittman M, Faircloth C, Boylstein C, et al. The experience of time in the transition from hospital to home following stroke. J Rehabil Res Dev. 2004;41:259–268.
   PubMed Web of Science ®Google Scholar
• Greenwood N, Mackenzie A, Cloud GC, et al. Informal primary carers of stroke survivors living at home-challenges, satisfactions and coping: a systematic review of qualitative studies. Disabil Rehabil. 2009;31:337–351.
   PubMed Web of Science ®Google Scholar
• Quinn K, Murray C, Malone C. Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research. Disabil Rehabil. 2014;36:185–198.
   PubMed Web of Science ®Google Scholar
• Jones F. Strategies to enhance chronic disease self-management: How can we apply this to stroke? Disabil Rehabil. 2006;28:841–847.
   PubMed Web of Science ®Google Scholar
• Lennon S, McKenna S, Jones F. Self-management programmes for people post stroke: a systematic review. Clin Rehabil. 2013;27:867–878.
   PubMed Web of Science ®Google Scholar
• Jones F, Riazi A, Norris M. Self-management after stroke: time for some more questions? Disabil Rehabil. 2013;35:257–264.
   PubMed Web of Science ®Google Scholar
• Wilkinson A, Whitehead L. Evolution of the concept of self-care and implications for nurses: a literature review. Int J Nurs Stud. 2009;46:1143–1147.
   PubMed Web of Science ®Google Scholar
• Corbin J, Strauss A. Unending work and care: managing chronic illness at home. San Fransisco: Jossey-BAss; 1988.
   Google Scholar
• Schulman-Green D, Jaser S, Martin F, et al. Processes of self-management in chronic illness. J Nurs Scholarsh. 2012;44:136–144.
   PubMed Web of Science ®Google Scholar
• Bendz M. The first year of rehabilitation after a stroke - from two perspectives. Scand J Caring Sci. 2003;17: 215–222.
   PubMed Web of Science ®Google Scholar
• Burton CR. Living with stroke: a phenomenological study. J Adv Nurs. 2000;32:301–309.
   PubMed Web of Science ®Google Scholar
• Ellis-Hill C, Robison J, Wiles R, et al. Going home to get on with life: patients and carers experiences of being discharged from hospital following a stroke. Disabil Rehabil. 2009;31:61–72.
   PubMed Web of Science ®Google Scholar
• Erikson A, Park M, Tham K. Belonging: a qualitative, longitudinal study of what matters for persons after stroke during the one year of rehabilitation. J Rehabil Med. 2010;42:831–838.
   PubMed Web of Science ®Google Scholar
• Green TL, King KM. Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: a descriptive qualitative study. Int J Nurs Stud. 2009;46:1194–1200.
   PubMed Web of Science ®Google Scholar
• McKevitt C, Redfern J, Mold F, et al. Qualitative studies of stroke: a systematic review. Stroke. 2004;35:1499–1505.
   PubMed Web of Science ®Google Scholar
• Lorig K, Holman H, Sobel D, et al. Living a healthy life with chronic conditions. 3rd ed. Boulders: James Bull; 2006.
   Google Scholar
• Bandura A. Toward a psychology of human agency. Perspect Psychol Sci. 2006;1:164–180.
   PubMedGoogle Scholar
• Proot IM, ter Meulen RH, Abu-Saad HH, et al. Supporting stroke patients' autonomy during rehabilitation. Nurs Ethics. 2007;14:229–241.
   PubMed Web of Science ®Google Scholar
• Christiansen CH. The 1999 eleanor clarke slagle lecture. defining lives: occupation as identity: an essay on competence, coherence, and the creation of meaning. Am J Occup Ther. 1999;53:547–558.
   PubMed Web of Science ®Google Scholar
• Johansson K, Josephsson S, Lilja M. Creating possibilities for action in the presence of environmental barriers in the process of ‘ageing in place'. Ageing Soc. 2009;29:49–70.
   Web of Science ®Google Scholar
• Vik K, Nygard L, Borell L, et al. Agency and engagement: older adults' experiences of participation in occupation during home-based rehabilitation. Can J Occup Ther. 2008;75:262–271.
   PubMedGoogle Scholar
• Nyman A, Josephsson S, Isaksson G. A narrative of agency enacted within the everyday occupations of an older Swedish woman. J Occup Sci. 2014;21:459–472.
   Google Scholar
• Bergström AL. Participation in everyday occupations and life satisfaction in the stroke-caregiver dyad. Stockholm: Karolinska Institutet; 2012.
   Google Scholar
• Nyman A. Togetherness in everyday occupations – how participation in on-going life with others enables change. Luleå: Luleå University of Technology; 2013.
   Google Scholar
• Wray S. What constitutes agency and empowerment for women in later life? Sociological Rev. 2004;52:22–38.
   Web of Science ®Google Scholar
• Bandura A. Social cognitive theory: an agentic perspective. Annu Rev Psychol. 2001;52:1–26.
   PubMed Web of Science ®Google Scholar
• Ricoeur P. Time and narrative. (Vol. 1) ed. Chicago: The University of Chigaco Press; 1984.
   Google Scholar
• Ricoeur P. From text to action: essays in hermeneutics. Evanston: Northwestern University Press; 1991.
   Google Scholar
• Josephsson S, Asaba E, Jonsson H, et al. Creativity and order in communication: implications from philosophy to narrative research concerning human occupation. Scand J Occup Ther. 2006;13:86–93.
   PubMedGoogle Scholar
• Alsaker S, Bongaardt R, Josephsson S. Studying narrative-in-action in women with chronic rheumatic conditions. Qual Health Res. 2009;19:1154–1161.
   PubMed Web of Science ®Google Scholar
• Mattingly C. Healing dramas and clinical plots. The narrative structure of experience. Los Angeles: University of California Press; 1998.
   Google Scholar
• Carlsson GE, Moller A, Blomstrand C. Managing an everyday life of uncertainty-a qualitative study of coping in persons with mild stroke. Disabil Rehabil. 2009;31:773–782.
   PubMed Web of Science ®Google Scholar
• Robison J, Wiles R, Ellis-Hill C, et al. Resuming previously valued activities post-stroke: who or what helps? Disabil Rehabil. 2009;31:1555–1566.
   PubMed Web of Science ®Google Scholar
• Wood JP, Connelly DM, Maly MR. 'Getting back to real living': a qualitative study of the process of community reintegration after stroke. Clin Rehabil. 2010;24:1045–1056.
   PubMed Web of Science ®Google Scholar
• Polkinghorne DE. Narrative configuration in qualitative analysis. Qual Stud Educ. 1995;8:5–23.
   Google Scholar
• Hydèn LC. Illness and narrative. Sociol Health Illn. 1997;19:48–69.
   Web of Science ®Google Scholar
• Aben I, Verhey F, Lousberg R, et al. Validity of the beck depression inventory, hospital anxiety and depression scale, SCL-90, and hamilton depression rating scale as screening instruments for depression in stroke patients. Psychosomatics. 2002;43:386–393.
   PubMed Web of Science ®Google Scholar
• Spinhoven P, Ormel J, Sloekers PP, et al. A validation study of the hospital anxiety and depression scale (HADS) in different groups of Dutch subjects. Psychol Med. 1997;27:363–370.
   PubMed Web of Science ®Google Scholar
• Hammersley M, Atkinson P. Ethnography – principles in practice. London: Routledge: Taylor & Francis Group; 2007.
   Google Scholar
• Alsaker S, Josephsson S. Negotiating occupational identities while living with chronic rheumatic disease. Scand J Occup Ther. 2003;10:167–176.
   Google Scholar
• Josephsson S, Alsaker S. Narrative methodology – a tool to access unfolding and situated meaning in occupation. In: M. Stanley, S. Nayar, editors. Qualitative research methods in occupational science and therapy. New York/London: Routledge; 2015.
   Google Scholar
• Cup EH, Kinebanian A, Satink T, et al. Living with myotonic dystrophy; what can be learned from couples? A qualitative study. BMC Neurol. 2011;11:86–2377.
   PubMed Web of Science ®Google Scholar
• Brown M, Levack W, McPherson KM, et al. Survival, momentum, and things that make me after stroke: patients' perceptions of goal setting after stroke. Disabil Rehabil. 2014;36:1020–1026.
   PubMed Web of Science ®Google Scholar
• Pringle J, Drummond JS, McLafferty E. Revisioning, reconnecting and revisiting: the psychosocial transition of returning home from hospital following a stroke. Disabil Rehabil. 2013;35:1991–1999.
   PubMed Web of Science ®Google Scholar
• Kessler D, Dubouloz CJ, Urbanowski R, et al. Meaning perspective transformation following stroke: the process of change. Disabil Rehabil. 2009;31:1056–1065.
   PubMed Web of Science ®Google Scholar
• Laliberte-Rudman D. Linking occupation and identity: lessons learned through qualitative exploration. J Occup Sci. 2002;9:12–19.
   Google Scholar
• Unruh AM. Reflections on: “so.. what do you do?t; occupation and the construction of identity?” Can J Occup Ther. 2004;71:290–295.
   PubMedGoogle Scholar
• Schkade J, McClung M. Occupational adaptation in practice - concepts and cases. Thorofare: Slack Incorporated; 2001.
   Google Scholar
• Mattingly C, Garro LC, editors. Narrative and the cultural construction of illness and healing. Berkely and Los Angeles: University of California Press; 2000.
   Google Scholar
• Frank G, Polkinghorne DE. Qualitative research in occupational therapy: from the first to the second generation. OTJR. 2010;30:51–57.
   Web of Science ®Google Scholar
• Polkinghorne DE. Validity issues in narrative research. Qual Inq. 2007;13:471–486.
   Web of Science ®Google Scholar
• Bergstrom AL, Eriksson G, Asaba E, et al. Complex negotiations: the lived experience of enacting agency after a stroke. Scand J Occup Ther. 2015;22:43–53.
   PubMed Web of Science ®Google Scholar
• Ringstad O. Understanding through experience: information, experience and understanding in clinical rehabilitation practice. Disabil Rehabil. 2014;36:978–986.
   PubMed Web of Science ®Google Scholar
• Sit JW, Wong TK, Clinton M, et al. Stroke care in the home: the impact of social support on the general health of family caregivers. J Clin Nurs. 2004;13:816–824.
   PubMed Web of Science ®Google Scholar