References
- Castilla E, Botto L, Bakker M. Annual report 2011 with data for 2009. Roma, Italy: International Centre on Birth Defects; 2011. Available from: http://www.icbdsr.org/filebank/documents/ar2005/Report2011.pdf.
- Copp A, Adzick S, Chitty L, et al. Spina bifida. Nat Rev. 2015;1:1–18.
- Singh D. Families of children with spina bifida: a review. J Dev Phys Disabil. 2003;15:37–54.
- Zukerman J, Devine K, Holmbeck G. Adolescent predictors of emerging adulthood milestones in youth with spina bifida. J Pediatr Psychol. 2010;36:265–276.
- Ridosh M, Braun P, Roux G, et al. Transition in young adults with spina bifida: a qualitative study. Child Care Health Dev. 2011;37:866–874.
- Brislin D. Reaching for independence: counseling implications for youth with spina bifida. J Couns Dev. 2008;86:34–39.
- Liptak G, Kennedy J, Nienke D. Youth with spina bifida and transitions: health and social participation in a nationally represented sample. J Pediatr. 2010;157:584–588.
- van Mechelen M, Verhoef M, Van Asbeck F, et al. Work participation among young adults with spina bifida in the Netherlands. Dev Med Child Neurol. 2008;50:772–777.
- Barf H, Post M, Verhoef M, et al. Restrictions in social participation of young adults with spina bifida. Disabil Rehabil. 2009;31:921–927.
- Cohen P, Kasen S, Chen H, et al. Variations in patterns of developmental transitions in the emerging adulthood period. Dev Psychol. 2003;39:657–669.
- Lindsay S. A qualitative synthesis of adolescents' experiences of living with spina bifida. experiences living spina. Qual Health Res. 2014;24:1298–1309.
- Lindsay S, McDougall C, Sanford R, et al. Exploring employment readiness through mock job interview and role-play exercises: comparing youth with physical disabilities to their typically developing peers. Disabil Rehabil. 2015; early online:1–13. http://www.ncbi.nlm.nih.gov/pubmed/25323394.
- Lindsay S, McDougall C, Menna-Dack D, et al. An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers and job counselors. Disabil Rehabil. 2015;37:701–711.
- Feldman D. The role of physical disabilities in early career: vocational choice, the school-to-work transition and becoming established. Hum Resour Manage Rev. 2004;14:247–274.
- Achtergerg T, Wind H, deBoer A, et al. Factors that promote or hinder young disabled people in work participation: a systematic review. J Occup Rehabil. 2009;19:129–141.
- Segal R, Mandich A, Polatajko H, et al. Stigma and its management: a pilot study of parental perceptions of the experiences of children with developmental coordination disorder. Am J Occup Ther. 2002;56:422–428.
- Blomquist K. Health, education, work and independence of young adults with disabilities. Orthop Nurs. 2006;25:68–188.
- Lustig D, Strauser D. An empirical typology of career thoughts of individuals with disabilities. Rehabil Couns Bull. 2003;46:98–107.
- Lindsay S, Adams T, McDougall C, et al. Skill development in an employment training programme for adolescents with disabilities. Disabil Rehabil. 2012;34:228–237.
- Campen C, Cardol v. When work and satisfaction with life do not go hand in hand: health barriers and personal resources in the participation of people with chronic physical disabilities. Soc Sci Med. 2009;69:56–60.
- Vondracek F, Lerner R, Schulenberg J. Career development: a life-span developmental approach. Hillsdale, New Jersey: Lawrence Erlbaum; 1986.
- Blustein D, Phillips S, Jobin-Davis K, et al. A theory-building investigation of the school-to-work transition. Couns Psychol. 1997;25:364–402.
- Phillips S, Blustein D. Readiness for career choices: planning, exploring and deciding. Career Dev Q. 1994;43:63–73.
- Lindsay S, Cruickshank H, McPherson A, et al. Implementation of an inter-agency transition model for youth with spina bifida. Child Care Health Dev. 2016;42:203–212.
- NVivo (software). Version 10, QSR International. Available from: http://www.qsrinternational.com/products_nvivo.aspx
- Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62:107–115.
- Graneheim U, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurs Educ. 2004;24:105–112.
- Sawin K, Bellin M, Roux G. The experience of self-management in adolescent women with spina bifida. Rehabil Nurs. 2009;34:26–39.
- Lindsay S, McDougall C, Sanford R. Disclosure, accommodations and self-care at work among adolescents with disabilities and at among with. Disabil Rehabil. 2013;35:2227–2236.
- Cook J, Burke J. Public policy and employment of people with disabilities: exploring new paradigms. Behav Sci Law. 2002;20:541–557.
- Magill-Evans J, Galambos N, Darrah J, et al. Predictors of employment for young adults with developmental motor disabilities. Work. 2008;28:433–442.
- Darrah D, Magill-Evans J, Galambos N. Community services for young adults with motor disabilities – a paradox. Disabil Rehabil. 2010;32:223–229.
- Fischer N, Church P, Lyons J, et al. A qualitative exploration of the experiences of children with spina bifida and their parents around incontinence and social participation. Child Care Health Dev. 2015; early online. Available from: http://onlinelibrary.wiley.com/doi/10.1111/cch.12257/abstract.
- Bowman R, McLone D, Grant J, et al. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg. 2001;34:114–120.
- Holmbeck G, Westhoven V, Philips W, et al. A multi-method, multi-informant and multi-dimensional perspective on psychosocial adjustment in preadolescents with SB. J Consult Clin Psychol. 2003;71:782–796.
- Lindsay S. A scoping review of the experiences, benefits and challenges of volunteering among youth and young adults with a disability. Disabil Rehabil. 2016; [Epub ahead of print]. doi: 10.3109/09638288.2015.1107634.