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Articles

Working with lay people in health service research: A model of co-evolution based on complexity theory

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Pages 31-40 | Published online: 10 Dec 2009

References

  • Austoker, J. (1999). Involving patients in clinical research. British Medical Journal, 319, 724–725.
  • Bak, P. (1996). How nature works: The science of self organised criticality. New York: Springer-Verlag.
  • Bal, R., Bijker, W., Hendriks, R. (2004). Democratisation of scientific advice. British Medical Journal, 329, 1339–1341.
  • Baxter, L., Thorne, L., Mitchell, A. (2002). Small voices big noises. Exeter: Washington Singer Press.
  • Belam, J., Harris, G., Kernick, D., Kline, F., Lindley, K., McWatt, J., Mitchell, A., Reinhold, D. (2005). A qualitative study of migraine involving patient researchers. British Journal of General Practice, 55, 87–93.
  • Beresford, P. (2005). Developing the theoretical basis of a service user/survivor led research and equal involvement in research. Epidemiologia e Psichiatria Sociale, 14(1), 4–9.
  • Black, N. (2000). Evidence based policy: Proceed with care. British Medical Journal, 323, 275–279.
  • Boote, J., Telford, R., Cooper, C. (2002). Consumer involvement in health services research: A review and research agenda. Health Policy, 61, 213–236.
  • Cilliers, P. (1998). Complexity and post modernism. London: Routledge.
  • Department of Health (1998). In the public interest – developing a strategy for public participation in the NHS. London: DoH.
  • Fox, A. (1974). Beyond contract: Work, power and trust relations. London: Faber and Faber.
  • Gergen, K. (1999). An intervention to Social Constructionism. Thousand Oaks, CA: Sage Publications.
  • Giacomini, M. (2004). Interdisciplinarity in health services research: Dreams and nightmares, maladies and remedies. Journal of Health Services Research & Policy, 9(3), 177–183.
  • Gleick, J. (1987). Chaos making a new science. New York: Viking Penguin.
  • Hanley, B., Bradburn, J., Gorin, S., Barnes, M., Evans, C., et al (2000). Involving consumers in research and development in the NHS: Briefing notes for researchers. Winchester: Consumers in NHS Research Support Unit.
  • Kernick, D. (2003). Complexity and health care organisation. Abingdon: Radcliffe Press.
  • Kernick, D. (2002). The demise of linearity in managing health services: A call for post-normal health care. Journal of Health Service Research & Policy, 7(2), 121–124.
  • Liberati, A. (1997). Consumer participation in research and healthcare. British Medical Journal, 315, 499.
  • Marion, R. (1999). The edge of organisation. Thousand Oaks, CA: Sage Publications.
  • Oliver, S., Milne, R., Bradburn, J., Buchanan, P., Cerridge, L., Walley, T., Gabbay, J. (2001). Involving consumers in a needs led research programme: A pilot study. Health Expectation, 4, 18–28.
  • Ovretveit, J., Gustafson, D. (2003). Using research to inform quality programmes. British Medical Journal, 326, 759–761.
  • Park, P. (1992). The discovery of participatory research as a new scientific paradigm: Personal and intellectual accounts. American Sociologist, 23, 29–43.
  • Pilgrim, D., Waldron, L. (1998). User involvement in mental health service development: How far can it go. Journal of Mental Health, 7, 95–104.
  • Plsek, P. (2000). Re-designing healthcare with insights from the science of complex adaptive systems. In Crossing the quality chasm: A new health system for the 21st century ( pp. 309–322). Washington, DC: Institute of Medicine/National Academy Press.
  • Schrijvers, J. (1991). Dialectics of dialogical ideal: Studying down, studying sideways and studying up. In Constructing knowledge. L. Rencel, P. Pells (Eds.), London: Sage.
  • Smith, E., Ross, F., Donovan, S., Manthorpe, J., Brearley, S., et al (2008). Service user involvement in nursing, midwifery and health visiting research: A review of evidence and practice. International Journal of Nursing Studies, 45, 298–315.
  • Srivastva, S., Obert, S., Neilson, E. (1997). Organisational analysis through group processes. A theoretical perspective. In C. Cooper, (Ed.), Organisational development in the UK and USA ( Ch. 4, pp. 83–111). London: MacMillan.
  • Stacey, R., Griffen, D., Shaw, P. (2000). Complexity and management. London: Routledge.
  • Telford, R., Boote, J., Cooper, C., Stobbs, M. (2003). Principles of successful consumer involvement in NHS research: Results of a consensus study and national survey. University of Sheffield: Scharr.
  • Walter, I., Davies, H., Nutley, S. (2003). Increasing research impact through partnerships: Evidence from outside health care. Journal of Health Service Research Policy, 2, 58–61.
  • Wickham, J., Collins, G. (2006). Involving users in social science research – a new European paradigm? European Journal of Education, 41(20), 269–280.

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