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Original Articles

Factors predicting quality of life for people with intellectual disability: Results from the ANFFAS study in ItalyFootnote

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References

  • Anastasi, A. (1961). Psychological testing (2nd ed.). New York, NY: Macmillan.
  • ANFFAS. (2015). Progettare qualità di Vita: report conclusivo e risultati progetto di ricerca “strumenti verso l’inclusione sociale, matrici ecologiche e progetto individuale di vita per adulti con disabilità intellettive e/o evolutive. Roma, Italia: Stamperia Romana.
  • ANFFAS, Consorzio SIR, MBS, Croce, L., & Lombardi, M. (2015). Matrici ecologiche: Progettare qualità per la vita. Bologna: MBS S. R. L. Retrieved from https://www.matriciecologiche.net/
  • Balboni, G., Coscarelli, A., Giunti, G., & Schalock, R. L. (2013). The assessment of the quality of life of adults with intellectual disability: The use of self-report and report of others assessment strategies. Research in Developmental Disabilities, 34, 4248–4254. doi:10.1016/j.ridd.2013.09.009
  • Bernheim, J. L. (1999). How to get serious answers to the serious question: ‘How have you been?’: Subjective quality of life (QOL) as an individual experiential emergent construct. Bioethics, 13, 272–287. doi:10.1111/1467-8519.00156
  • Brown, I., Keith, K., & Schalock, R. L. (2004). Quality of life conceptualisation, measurement, and application: Validation of the SIRG-QOL consensus principles [Abstract]. Journal of Intellectual Disability Research, 48, 451.
  • Brown, R. I., Schalock, R. L., & Brown, I. (2009). Quality of life: Its application to persons with intellectual disabilities and their families: Introduction and overview. Journal of Policy and Practice in Intellectual Disabilities, 6, 2–6. doi:10.1111/j.1741-1130.2008.00202.x
  • Buntinx, W. H. E. (2013). Understanding disability: A strengths-based approach. In M. L. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 7–18). New York, NY: Oxford Library of Psychology.
  • Buntinx, W. H. E., & Schalock, R. L. (2010). Models of disability, quality of life, and individualized supports: Implications for professional practice in intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 7, 283–294. doi:10.1111/j.1741-1130.2010.00278.x
  • Claes, C., Van Hove, G., Vandevelde, S., van Loon, J., & Schalock, R. (2012). The influence of supports strategies, environmental factors, and client characteristics on quality of life-related personal outcomes. Research in Developmental Disabilities, 33, 96–103. doi:10.1016/j.ridd.2011.08.024
  • Claes, C., Van Hove, G., van Loon, J., Vandevelde, S., & Schalock, R. L. (2010). Quality of life measurement in the field of intellectual disabilities: Eight principles for assessing quality of life-related personal outcomes. Social Indicators Research, 98, 61–72. doi:10.1007/s11205-009-9517-7
  • Coscarelli, A., & Balboni, G. (in press). Adattamento italiano della Personal Outcome Scale. Gussago: Vannini Editoria Scientifica.
  • Cottini, L., Fedeli, D., Leoni, M., & Croce, L. (2008). La Supports Intensity Scale nel panorama riabilitativo italiano: Standardizzazione e procedure psicometriche. American Journal on Intellectual and Developmental Disabilities, Edizione Italiana, 6(1), 21–38.
  • Croce, L., Lombardi, M., Nolani, M., & Cavagnola, R. (2011, June). Using SIS at organizational level to rule inclusive supports in services and communities. Paper presented at the AAIDD 2011: Inclusive Communities: Pathways to Realizing the Vision, St. Paul, Minnesota.
  • Cronbach, L. J., & Meehl, P. E. (1955). Construct validity in psychological tests. Psychological Bulletin, 52, 281–302. doi:10.1037/h0040957
  • Cummins, R. A. (1997). Self-rated quality of life scales for people with an intellectual disability: A review. Journal of Applied Research in Intellectual Disabilities, 10, 199–216. doi:10.1111/j.1468-3148.1997.tb00017.x
  • Felce, D., & Perry, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16, 51–74. doi:10.1016/0891-4222(94)00028-8
  • Felce, D., Perry, J., Romeo, R., Robertson, J., Meek, A., Emerson, E., & Knapp, M. (2008). Outcomes and costs of community living: Semi-independent living and fully staffed group homes. American Journal on Mental Retardation, 113, 87–101. doi:10.1352/0895-8017(2008)113[87:OACOCL]2.0.CO;2
  • Gardner, J. F., & Carran, D. T. (2005). Attainment of personal outcomes by people with developmental disabilities. Mental Retardation, 43, 157–174. doi:10.1352/0047-6765(2005)43[157:AOPOBP]2.0.CO;2
  • Gómez, L. E., Peña, E., Arias, B., & Verdugo, M. A. (2016). Impact of individual and organizational variables on quality of life. Social Indicators Research, 125, 649–664. doi:10.1007/s11205-014-0857-6
  • Gómez, L. E., Verdugo, M. Á., Arias, B., Navas, P., & Schalock, R. L. (2013). The development and use of provider profiles at the organizational and systems level. Evaluation and Program Planning, 40, 17–26. doi:10.1016/j.evalprogplan.2013.05.001
  • Jenaro, C., Verdugo, M. A., Caballo, C., Balboni, G., Lachapelle, Y., Otrebski, W., & Schalock, R. L. (2005). Cross-cultural study of person-centred quality of life domains and indicators: A replication. Journal of Intellectual Disability Research, 49, 734–739. doi:10.1111/j.1365-2788.2005.00742.x
  • Keith, K. D., & Bonham, G. S. (2005). The use of quality of life data at the organization and systems level. Journal of Intellectual Disability Research, 49, 799–805. doi:10.1111/j.1365-2788.2005.00755.x
  • Leoni, M., & Croce, L. (2008). Italian translation of the Supports Intensity Scale. In R. L. Schalock, J. R. Thompson, & M. J. Tassé (Eds.), International implementation of the Supports Intensity Scale (pp. 5–6). Retrieved from http://aaidd.org/docs/default-source/sis-docs/siswpinternational.pdf?sfvrsn=0
  • Lyons, G. (2005). The Life Satisfaction Matrix: An instrument and procedure for assessing the subjective quality of life of individuals with profound multiple disabilities. Journal of Intellectual Disability Research, 49, 766–769. doi:10.1111/j.1365-2788.2005.00748.x
  • McConkey, R., & Collins, S. (2010). The role of support staff in promoting the social inclusion of persons with an intellectual disability. Journal of Intellectual Disability Research, 54, 691–700. doi:10.1111/j.1365-2788.2010.01295.x
  • Murphy, K. R., & Davidshofer, C. O. (1998). Psychological testing: Principles and applications (4th ed.). Upper Saddle River, NJ: Prentice Hall.
  • Nota, L., Soresi, S., & Perry, J. (2006). Quality of life in adults with an intellectual disability: The Evaluation of Quality of Life Instrument. Journal of Intellectual Disability Research, 50, 371–385. doi:10.1111/j.1365-2788.2006.00785.x
  • Schalock, R. L., Bonham, G. S., & Verdugo, M. A. (2008). The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities. Evaluation and Program Planning, 31, 181–190. doi:10.1016/j.evalprogplan.2008.02.001
  • Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., … Yeager, M. H. (2010). Intellectual disability: Definition, classification, and systems of supports (11th ed.). Washington, DC: American Association on Intellectual and Developmental Disabilities.
  • Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., … Parmenter, T. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40, 457–470. doi:10.1352/0047-6765(2002)040<0457:CMAAOQ>2.0.CO;2
  • Schalock, R. L., Gardner, J. F., & Bradley, V. J. (2007). Quality of life for people with intellectual and other developmental disabilities: Applications across individuals, organizations, communities, and systems. Washington, DC: American Association on Intellectual and Developmental Disabilities.
  • Schalock, R. L., & Luckasson, R. (2014). Clinical judgment (2nd ed.). Washington, DC: American Association on Intellectual and Developmental Disabilities.
  • Schalock, R. L., & Verdugo, M. A. (2002). Handbook on quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation.
  • Schalock, R. L., & Verdugo, M. A. (2012). A leadership guide for today’s disabilities organizations: Overcoming challenges and making change happen. Baltimore, MD: Brookes.
  • Schalock, R. L., & Verdugo, M. A. (2013). The impact of quality of life concept on the field of intellectual disability. In M. L. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 37–47). New York, NY: Oxford University Press. doi:10.1093/oxfordhb/9780195398786.013.013.0004
  • Schalock, R. L., Verdugo, M. A., Bonham, G. S., Fantova, F., & Van Loon, J. (2008). Enhancing personal outcomes: Organizational strategies, guidelines, and examples. Journal of Policy and Practice in Intellectual Disabilities, 5, 276–285. doi:10.1111/j.1741-1130.2007.00135.x
  • Schalock, R. L., Verdugo, M. A., Jenaro, C., Wang, M., Wehmeyer, M., Jiancheng, X., & Lachapelle, Y. (2005). Cross-cultural study of quality of life indicators. American Journal on Mental Retardation, 110, 298–311. doi:10.1352/0895-8017(2005)110[298:CSOQOL]2.0.CO;2
  • Shogren, K. A. (2013). Positive psychology and disability: A historical analysis. In M. L. Wehmeyer (Ed.), The Oxford handbook of positive psychology and disability (pp. 19–33). New York, NY: Oxford University Press. doi:10.1093/oxfordhb/9780195398786.013.013.0003
  • Shogren, K. A., Bradley, V. J., Gomez, S. C., Yeager, M. H., Schalock, R. L., Borthwick-Duffy, W. S., … Wehmeyer, M. L. (2009). Public policy and the enhancement of desired outcomes for persons with intellectual disability. Intellectual and Developmental Disabilities, 47, 307–319. doi:10.1352/1934-9556-47.4.307
  • Shogren, K. A., Wehmeyer, M. L., Forber-Pratt, A. J., & Palmer, S. B. (2015). VIA Inventory of Strengths for Youth (VIA-Youth): Supplement for use when supporting youth with intellectual and developmental disabilities to complete the VIA-Youth. Lawrence, KS: Kansas University Center on Developmental Disabilities.
  • StatSoft, I. (2010). STATISTICA [Computer software]. Tulsa, OK: StatSoft.
  • Thompson, J. R., Bradley, V. J., Buntinx, W. H. E., Schalock, R. L., Shogren, K. A., Snell, M. E., … Yeager, M. H. (2009). Conceptualizing supports and the support needs of people with intellectual disability. Intellectual and Developmental Disabilities, 47, 135–146. doi:10.1352/1934-9556-47.2.135
  • Thompson, J. R., Bryant, B. R., Campbell, E. M., Craig, E. M., Hughes, C. M., Rotholz, D. A., … Wehmeyer, M. L. (2004). Support Intensity Scale: Users manual. Washington, DC: American Association on Mental Retardation.
  • Thompson, J. R., Hughes, C., Schalock, R. L., Silverman, W., Tassé, M. J., Bryant, B., … Campbell, E. M. (2002). Integrating supports in assessment and planning. Mental Retardation, 40, 390–405. doi:10.1352/0047-6765(2002)040<0390:ISIAAP>2.0.CO;2
  • Thompson, J. R., Schalock, R. L., Agosta, J., Teninty, L., & Fortune, J. (2014). How the supports paradigm is transforming the developmental disabilities service system. Inclusion, 2, 86–99. doi:10.1352/2326-6988-2.2.86
  • Tichá, R., Hewitt, A., Nord, D., & Larson, S. (2013). System and individual outcomes and their predictors in services and support for people with IDD. Intellectual and Developmental Disabilities, 51, 298–315. doi:10.1352/1934-9556-51.5.298
  • United Nations. (2006). Convention on the rights of persons with disabilities. Geneva, Switzerland: Author.
  • van Loon, J. H. M., Bonham, G. S., Peterson, D. D., Schalock, R. L., Claes, C., & Decramer, A. E. M. (2013). The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability. Evaluation and Program Planning, 36(1), 80–87. doi:10.1016/j.evalprogplan.2012.08.002
  • van Loon, J., Hove, G. V., Schalock, R., & Claes, C. (2008). Personal Outcomes Scale. Gent, Belgium: Garant Uitgevers nv.
  • Verdugo, M. Á., Arias, B., Gómez, L. E., & Schalock, R. L. (2010). Development of an objective instrument to assess quality of life in social services: Reliability and validity in Spain. International Journal of Clinical and Health Psychology, 10, 105–123.
  • Wang, M., Schalock, R. L., Verdugo, M. A., & Jenaro, C. (2010). Examining the factor structure and hierarchical nature of the quality of life construct. American Journal on Intellectual and Developmental Disabilities, 115, 218–233. doi:10.1352/1944-7558-115.3.218
  • Wehmeyer, M. L. (Ed.). (2013). The Oxford handbook of positive psychology and disability. New York, NY: Oxford University Press.
  • Wehmeyer, M. L., & Garner, N. W. (2003). The impact of personal characteristics of people with intellectual and developmental disability on self-determination and autonomous functioning. Journal of Applied Research in Intellectual Disabilities, 16, 255–265. doi:10.1046/j.1468-3148.2003.00161.x
  • World Medical Association. (2013). World Medical Association Declaration of Helsinki: Ethical principles for medical research involving human subjects. Journal of the American Medical Association, 310, 2191–2194. doi:10.1001/jama.2013.281053

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