The presence of posttraumatic growth (PTG) in mothers whose children are born unexpectedly with Down syndrome

References

• Acharya, K. (2011). Prenatal testing for intellectual disability: Misperceptions and reality with lessons from Down syndrome. Developmental Disabilities Research Reviews, 17, 27–31. doi:10.1002/ddrr.135
   PubMed Web of Science ®Google Scholar
• Aronson, J. (1994). A pragmatic view of thematic analysis. The Qualitative Report, 2, 1–3.
   Google Scholar
• Barnett, D., Clements, M., Kaplan-Estrin, M., & Fialka, J. (2003). Building new dreams: Supporting parents’ adaptation to their child with special needs. Infants & Young Children, 16, 184–200. doi:10.1097/00001163-200307000-00002
   Web of Science ®Google Scholar
• Barnett, W. S., & Boyce, G. C. (1995). Effects of children with Down syndrome on parents’ activities. American Journal on Mental Retardation, 100, 115–127.
   PubMedGoogle Scholar
• Beresford, B. A. (1994). Resources and strategies: How parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 35, 171–209. doi:10.1111/j.1469-7610.1994.tb01136.x
   PubMed Web of Science ®Google Scholar
• Birks, M., Chapman, Y., & Francis, K. (2008). Memoing in qualitative research: Probing data and processes. Journal of Research in Nursing, 13, 68–75. doi:10.1177/1744987107081254
   Google Scholar
• Bright, J. A., Hayward, P., & Clements, J. (1997). Dealing with chronic stress: Coping strategies, self-esteem and service use in mothers of handicapped children. Journal of Mental Health, 6, 67–74. doi:10.1080/09638239719058
   Google Scholar
• Bristor, M. W. (1984). The birth of a handicapped child: A wholistic model for grieving. Family Relations, 33, 25–32. doi:10.2307/584586
   Web of Science ®Google Scholar
• Byrne, E. A., & Cunningham, C. C. (1985). The effects of mentally handicapped children on families: A conceptual review. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 26, 847–864. doi:10.1111/j.1469-7610.1985.tb00602.x
   PubMed Web of Science ®Google Scholar
• Calhoun, L. G., & Tedeschi, R. G. (2006). The foundations of posttraumatic growth: An expanded framework. In L. G. Calhoun, & R. G. Tedeschi (Eds.), Handbook of posttraumatic growth: Research and practice (pp. 1–23). New York, NY: Erlbaum.
   Google Scholar
• Corrice, A. M., & Glidden, L. M. (2009). The Down syndrome advantage: Fact or fiction? American Journal on Intellectual and Developmental Disabilities, 114, 254–268. doi:10.1352/1944-7558-114.4.254-268
   PubMedGoogle Scholar
• Crnic, K. A., Friedrich, W. N., & Greenberg, M. T. (1983). Adaptation of families with mentally retarded children: A model of stress, coping, and family ecology. American Journal of Mental Deficiency, 88, 125–138.
   PubMedGoogle Scholar
• Cunningham, C. C. (1996). Families of children with Down syndrome. Down Syndrome Research and Practice, 4(3), 87–95. doi:10.3104/perspectives.66
   Google Scholar
• Donovan, J. (2012). Feminist theory: The intellectual traditions (4th ed.). New York, NY: Continuum International.
   Google Scholar
• Esbensen, A. J., & Seltzer, M. M. (2011). Accounting for the “Down syndrome advantage”. American Journal on Intellectual and Developmental Disabilities, 116, 3–15. doi:10.1352/1944-7558-116.1.3
   PubMedGoogle Scholar
• Fatima, I., & Suhail, K. (2010). Belief in a just world and subjective well-being: Mothers of normal and Down syndrome children. International Journal of Psychology, 45, 461–468. doi:10.1080/00207591003774519
   PubMed Web of Science ®Google Scholar
• Fazio, R. J., & Fazio, L. M. (2005). Growth through loss: Promoting healing and growth in the face of trauma, crisis, and loss. Journal of Loss and Trauma, 10, 221–252. doi:10.1080/15325020590928207
   Web of Science ®Google Scholar
• Frey, K. S., Greenberg, M. T., & Fewell, R. R. (1989). Stress and coping among parents of handicapped children: A multidimensional approach. American Journal on Mental Retardation, 94, 240–249.
   PubMedGoogle Scholar
• Gath, A. (1985). Parental reactions to loss and disappointment: The diagnosis of Down’s syndrome. Developmental Medicine & Child Neurology, 27, 392–400. doi:10.1111/j.1469-8749.1985.tb04557.x
   PubMed Web of Science ®Google Scholar
• Gath, A. (1990). Down syndrome children and their families. American Journal of Medical Genetics Part A, 37(Suppl. S7), 314–316. doi:10.1002/ajmg.1320370762
   Google Scholar
• Gilmore, L., & Cuskelly, M. (2012). Parenting satisfaction and self-efficacy: A longitudinal study of mothers of children with Down syndrome. Journal of Family Studies, 18, 28–35. doi:10.5172/jfs.2012.18.1.28
   Web of Science ®Google Scholar
• Global Down Syndrome Foundation. (n.d.). Facts and FAQ about Down syndrome. Retrieved September 1, 2012, from http://www.globaldownsyndrome.org/about-down-syndrome/facts-about-down-syndrome/
   Google Scholar
• Grant, G., & Whittell, B. (2000). Differentiated coping strategies in families with children or adults with intellectual disabilities: The relevance of gender, family composition and the life span. Journal of Applied Research in Intellectual Disabilities, 13, 256–275. doi:10.1046/j.1468-3148.2000.00035.x
   Web of Science ®Google Scholar
• Grant, J. (1993). Fundamental feminism: Contesting the core concepts of feminist theory. New York, NY: Routledge.
   Google Scholar
• Green, S. E. (2007). “We’re tired, not sad”: Benefits and burdens of mothering a child with a disability. Social Science & Medicine, 64, 150–163. doi:10.1016/j.socscimed.2006.08.025
   PubMed Web of Science ®Google Scholar
• Hall, S., & Marteau, T. M. (2003). Causal attributions and blame: Associations with mothers’ adjustment to the birth of a child with Down syndrome. Psychology, Health & Medicine, 8, 415–423. doi:10.1080/1354850310001604559
   PubMedGoogle Scholar
• Harris, V. S., & McHale, S. M. (1989). Family life problems, daily caregiving activities, and the psychological well-being of mothers of mentally retarded children. American Journal on Mental Retardation, 94, 231–239.
   PubMedGoogle Scholar
• Helm, D. T., Miranda, S., & Chedd, N. A. (1998). Prenatal diagnosis of Down syndrome: Mothers’ reflections on supports needed from diagnosis to birth. Mental Retardation, 36, 55–61. doi:10.1352/0047-6765(1998)036<0055:PDODSM>2.0.CO;2
   PubMedGoogle Scholar
• Hodapp, R. M., Ly, T. M., Fidler, D. J., & Ricci, L. A. (2001). Less stress, more rewarding: Parenting children with Down syndrome. Parenting, Science and Practice, 1, 317–337. doi:10.1207/S15327922PAR0104_3
   Web of Science ®Google Scholar
• Hodapp, R. M., & Urbano, R. C. (2008). Demographics of African-American vs. European-heritage mothers of newborns with Down syndrome. Journal of Policy and Practice in Intellectual Disabilities, 5, 187–193. doi:10.1111/j.1741-1130.2008.00172.x
   Web of Science ®Google Scholar
• King, L. A., Scollon, C. K., Ramsey, C., & Williams, T. (2000). Stories of life transition: Subjective well-being and ego development in parents of children with Down syndrome. Journal of Research in Personality, 34, 509–536. doi:10.1006/jrpe.2000.2285
   Web of Science ®Google Scholar
• Konrad, S. C. (2006). Posttraumatic growth in mothers of children with acquired disabilities. Journal of Loss and Trauma, 11, 101–113. doi:10.1080/15325020500358274
   Web of Science ®Google Scholar
• Lalvani, P. (2011). Constructing the (m)other: Dominant and contested narratives on mothering a child with Down syndrome. Narrative Inquiry, 21, 276–293. doi:10.1075/ni.21.2.06lal
   Web of Science ®Google Scholar
• Marcenko, M. O., & Meyers, J. C. (1991). Mothers of children with developmental disabilities: Who shares the burden? Family Relations, 40, 186–190. doi:10.2307/585481
   Web of Science ®Google Scholar
• Marshall, C., & Rossman, G. B. (2006). Designing qualitative research (4th ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Mulroy, S., Robertson, L., Aiberti, K., Leonard, H., & Bower, C. (2008). The impact of having a sibling with an intellectual disability: Parental perspectives in two disorders. Journal of Intellectual Disability Research, 52, 216–229. doi:10.1111/j.1365-2788.2007.01005.x
   PubMed Web of Science ®Google Scholar
• Narayan, U. (1997). Contesting cultures. In L. Nicholson (Eds.), The second wave: A reader in feminist theory (pp. 396–414). New York, NY: Routledge.
   Google Scholar
• National Association of Down Syndrome. (n.d.). Facts about Down syndrome. Retrieved September 1, 2012, from http://www.nads.org/resources/facts-about-down-syndrome/
   Google Scholar
• National Down Syndrome Society. (n.d.-a). About the national Buddy Walk program. Retrieved May 2, 2014, from http://www.ndss.org/Buddy-Walk/About-the-National-Buddy-Walk-Program/History
   Google Scholar
• National Down Syndrome Society. (n.d.-b). What is Down syndrome? Retrieved September 15, 2012, from http://www.ndss.org/Down-Syndrome/What-Is-Down-Syndrome/
   Google Scholar
• Padgett, D. K. (2008). Qualitative methods in social work research (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Pillay, D., Girdler, S., Collins, M., & Leonard, H. (2012). “It’s not what you were expecting, but it’s still a beautiful journey”: The experience of mothers of children with Down syndrome. Disability and Rehabilitation, 34, 1501–1510. doi:10.3109/09638288.2011.650313
   PubMed Web of Science ®Google Scholar
• Povee, K., Roberts, L., Bourke, J., & Leonard, H. (2012). Family functioning in families with a child with Down syndrome: A mixed methods approach. Journal of Intellectual Disability Research, 56, 961–973. doi:10.1111/j.1365-2788.2012.01561.x
   PubMed Web of Science ®Google Scholar
• Redmond, B., & Richardson, V. (2003). Just getting on with it: Exploring the service needs of mothers who care for your children with severe/profound and life-threatening intellectual disability. Journal of Applied Research in Intellectual Disabilities, 16, 205–218. doi:10.1046/j.1468-3148.2003.00165.x
   Web of Science ®Google Scholar
• Reissman, C. K. (2008). Narrative methods for the human sciences. Thousand Oaks, CA: Sage.
   Google Scholar
• Roach, M. A., Orsmond, G. I., & Barratt, M. S. (1999). Mothers and fathers of children with Down syndrome: Parental stress and involvement in childcare. American Journal on Mental Retardation, 104, 422–436. doi:10.1352/0895-8017(1999)104<0422:MAFOCW>2.0.CO;2
   PubMedGoogle Scholar
• Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1992). Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development. Journal of Autism and Developmental Disorders, 22, 249–263. doi:10.1007/BF01058154
   PubMed Web of Science ®Google Scholar
• Roller, M. (2012). Interviewer bias and reflexivity in qualitative research [Blog post]. Retrieved November 5, 2015, from http://www.researchdesignreview.com/2012/11/14/interviewer-bias-reflexivity-in-qualitative-research/
   Google Scholar
• Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child & Family Behavior Therapy, 19(4), 15–32. doi:10.1300/J019v19n04_02
   Web of Science ®Google Scholar
• Sari, H. Y., Baser, G., & Turan, J. M. (2006). Experiences of mothers of children with Down syndrome. Paediatric Nursing, 18(4), 29–32. doi:10.7748/paed2006.05.18.4.29.c1024
   PubMedGoogle Scholar
• Serpa, J., & Menéres, S. (2003). The development of children with Down syndrome: The influence of maternal adaptation, mother-child interaction and early forms of support. European Journal of Special Needs Education, 18, 209–225. doi:10.1080/0885625032000078998
   Google Scholar
• Shuman, A. (2011). On the verge: Phenomenology and empathic unsettlement. Journal of American Folklore, 124, 147–174. doi:10.5406/jamerfolk.124.493.0147
   PubMed Web of Science ®Google Scholar
• Skotko, B. G., Kishnani, P. S., Capone, G. T., & the Down Syndrome Diagnosis Study Group. (2009). Prenatal diagnosis of Down syndrome: How best to deliver the news. American Journal of Medical Genetics Part A, 149A, 2361–2367. doi:10.1002/ajmg.a.33082
   PubMed Web of Science ®Google Scholar
• Skotko, B. G., Levine, S. P., & Goldstein, R. (2011). Having a brother or sister with Down syndrome: Perspectives from siblings. American Journal of Medical Genetics Part A, 155, 2348–2359. doi:10.1002/ajmg.a.34228
   Web of Science ®Google Scholar
• Talbot, K. (1997). Mothers now childless: Survival after the death of an only child. Omega: Journal of Death and Dying, 34, 177–189. doi:10.2190/WXA0-HNX1-3CN6-9A2W
   Web of Science ®Google Scholar
• United States Department of Education. (2006). Building the Legacy: IDEA 2004. Retrieved August 5, 2015, from http://idea.ed.gov/explore/view/p/,root,regs,300,D,300%252E32
   Google Scholar
• Van Riper, M. (2007). Families of children with Down syndrome: Responding to “a change in plans” with resilience. Journal of Pediatric Nursing, 22, 116–128. doi:10.1016/j.pedn.2006.07.004
   PubMedGoogle Scholar
• Wikler, L. (1981). Chronic stresses of families of mentally retarded children. Family Relations, 30, 281–288. doi:10.2307/584142
   Web of Science ®Google Scholar