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Medical personnel’s knowledge, attitudes, and experiences with regard to mothers with intellectual disability in the Czech Republic

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References

  • The Arc. (2005). Parents with intellectual disabilities. Retrieved from http://www.thearc.org/what-we-do/resources/fact-sheets/parents-with-idd
  • Aulagnier, M., Verger, P., Ravaud, J.-F., Souville, M., Lussault, P.-Y., Garnier, J.-P., & Paraponaris, A. (2005). General practitioners’ attitudes towards patients with disabilities: The need for training and support. Disability and Rehabilitation, 27, 1343–1352. doi:10.1080/09638280500164107
  • Aunos, M., Goupil, G., & Feldman, A. M. (2004). Mothers with intellectual disabilities who do or do not have custody of their children. Journal on Developmental Disabilities, 10, 65–79.
  • Babbie, E. (2007). The practice of social research (11th ed.). Belmont, CA: Thompson-Wadsworth.
  • Beake, S., Clark, L. L., Turner, T., & Bick, D. (2013). A mixed methods study to develop and pilot a competency assessment tool to support midwifery care of women with intellectual disabilities. Nurse Education Today, 33, 901–906. doi:10.1016/j.nedt.2012.08.007
  • Czech Statistical Office. (2014). Sample survey of people with disabilities 2013. Retrieved from https://www.czso.cz/documents/10180/20543019/k3_260006-14_1.pdf/4384f318-fcae-4a20-941c-33f10d5a6324?version=1.0
  • Černá, M., Strnadová, I., Šiška, J., Titzl, B., & Kainová, T. (Ed.). (2008–2015). Czech psychopedy: Special education of people with intellectual disabilities. Praha, Czech Republic: Charles University in Prague, Karolinum.
  • Department of Justice. (2012). Act No. 89/2012 Coll., Civil Code.
  • Department of Labour and Social Affairs. (1963). Act No. 94/ 1963 Coll., Family Law.
  • Elo, S., & Kyngäs, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62, 107–115. doi:10.1111/j.1365-2648.2007.04569.x
  • Feldman, M. A., Varghese, J., Ramsay, J., & Rajska, D. (2002). Relationships between social support, stress and mother–child interactions in mothers with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 314–323. doi:10.1046/j.1468-3148.2002.00132.x
  • Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112. doi:10.1016/j.nedt.2003.10.001
  • Gundersen, A., Young, E., & Pettersen, K. T. (2013). Good enough care? A study of the difficulties Norwegian child welfare workers experience in working with mothers who have intellectual disabilities. Scandinavian Journal of Disability Research, 15, 282–297. doi:10.1080/15017419.2012.692709
  • Höglund, B. (2012). Pregnancy, childbirth and midwifery care among women with intellectual disability in Sweden: Epidemiological and descriptive studies (Doctoral dissertation). Uppsala University, Sweden.
  • Höglund, B., & Larsson, M. (2013). Struggling for motherhood with an intellectual disability–A qualitative study of women’s experiences in Sweden. Midwifery, 29, 698–704. doi:10.1016/j.midw.2012.06.014
  • Höglund, B., Lindgren, P., & Larsson, M. (2013). Midwives’ knowledge of, attitudes towards and experiences of caring for women with intellectual disability during pregnancy and childbirth: A cross-sectional study in Sweden. Midwifery, 29, 950–955. doi:10.1016/j.midw.2012.12.002
  • Johnová, M. (2015, March). Jak je v České republice naplňováno právo lidí s postižením na život v běžném prostředí? [How are the rights of people with intellectual disability to live in their natural environment fulfilled in the Czech Republic?]. Paper presented at Quip, Praha, Česká republika. Retrieved from http://www.kvalitavpraxi.cz/res/archive/028/003611.pdf?seek=1437671118
  • Jöreskog, K., & Starke, M. (2013). Professionals’ perceptions of and approach to parents with intellectual disability: A question of knowledge? International Journal of Social Science Studies, 1(2), 20–30. doi:10.11114/ijsss.v1i2.134
  • Lewis, S., & Stenfert-Kroese, B. (2010). An investigation of nursing staff attitudes and emotional reactions towards patients with intellectual disability in a general hospital setting. Journal of Applied Research in Intellectual Disabilities, 23, 355–365. doi:10.1111/j.1468-3148.2009.00542.x
  • Llewellyn, G., & McConnell, D. (2010). You have to prove yourself all the time: People with learning disabilities as parents. In G. Grant, P. Ramcharan, M. Flynn, & M. Richardson (Eds.), Learning disability: A life cycle approach (2nd ed., pp. 311–328). Berkshire, UK: Open University Press.
  • Llewellyn, G., McConnell, D., & Bye, R. (1998). Perception of service needs by parents with intellectual disability, their significant others and their service workers. Research in Developmental Disabilities, 19, 245–260. doi:10.1016/S0891-4222(98)00006-7
  • Llewellyn, G., Traustadóttir, R., McConnell, D., & Sigurjónsdóttir, H. B. (Eds.). (2010). Parents with intellectual disabilities: Past, present and futures. Chichester, UK: Wiley. doi:10.1002/9780470660393
  • Mayes, R., Llewellyn, G., & McConnell, D. (2006). Misconception: The experience of pregnancy for women with intellectual disabilities. Scandinavian Journal of Disability Research, 8, 120–131. doi:10.1080/15017410600774178
  • Mayes, R., Llewellyn, G., & McConnell, D. (2008). Active negotiation: Mothers with intellectual disabilities creating their social support networks. Journal of Applied Research in Intellectual Disabilities, 21, 341–350. doi:10.1111/j.1468-3148.2008.00448.x
  • McConnell, D., Mayes, R., & Llewellyn, G. (2008). Pre-partum distress in women with intellectual disabilities. Journal of Intellectual & Developmental Disability, 33, 177–183. doi:10.1080/13668250802007903
  • Parish, S. L. (2002). Parenting. In P. N. Walsh & T. Heller (Eds.), Health of women with intellectual disabilities (pp. 103–120). Oxford, UK: Blackwell.
  • Smeltzer, S. C., Sharts-Hopko, N. C., Ott, B. B., Zimmerman, V., & Duffin, J. (2007). Perspectives of women with disabilities on reaching those who are hard to reach. Journal of Neuroscience Nursing, 39, 163–171. doi:10.1097/01376517-200706000-00007
  • Stefánsdóttir, G. V. (2014). Sterilisation and women with intellectual disability in Iceland. Journal of Intellectual & Developmental Disability, 39, 188–197. doi:10.3109/13668250.2014.899327
  • Strnadová, I., Bernoldová, J., Adamčíková, Z., & Klusáček, J. (2016). Good enough support? Exploring the attitudes, knowledge and experiences of practitioners in social services and child welfare working with mothers with intellectual disability. Journal of Applied Research in Intellectual Disabilities. Advance online publication. doi:10.1111/jar.12307
  • Strnadová, I., & Cumming, T. M. (2014). The importance of quality transition processes for students with disabilities across settings: Learning from the current situation in New South Wales. Australian Journal of Education, 58, 318–336. doi:10.1177/0004944114543603
  • United Nations. (2006). Convention on the rights of persons with disabilities, 13 December 2006, A/RES/61/106, Annex I. Retrieved April 3, 2015, from http://www.refworld.org/docid/4680cd212.html
  • Vann, B. H., & Šiška, J. (2006). From ‘cage beds’ to inclusion: The long road for individuals with intellectual disability in the Czech Republic. Disability & Society, 21, 425–439. doi:10.1080/09687590600785811
  • Wade, C. M., Mildon, R. L., & Matthews, J. M. (2007). Service delivery to parents with an intellectual disability: Family-centred or professionally centred? Journal of Applied Research in Intellectual Disabilities, 20, 87–98. doi:10.1111/j.1468-3148.2005.00297.x
  • Walsh-Gallagher, D., McConkey, R., Sinclair, M., & Clarke, R. (2013). Normalising birth for women with a disability: The challenges facing practitioners. Midwifery, 29, 294–299. doi:10.1016/j.midw.2011.10.007
  • Walsh-Gallagher, D., Sinclair, M., & McConkey, R. (2012). The ambiguity of disabled women’s experiences of pregnancy, childbirth and motherhood: A phenomenological understanding. Midwifery, 28, 156–162. doi:10.1016/j.midw.2011.01.003
  • Walton-Allen, N. G., & Feldman, M. A. (1991). Perception of service needs by parents who are mentally retarded and their social service workers. Comprehensive Mental Health Care, 1, 137–147.
  • Wilson, S., McKenzie, K., Quayle, E., & Murray, G. C. (2013). The postnatal support needs of mothers with an intellectual disability. Midwifery, 29, 592–598. doi:10.1016/j.midw.2012.05.002

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