Talking to producers of Easy Read health information for people with intellectual disability: Production practices, textual features, and imagined audiences

References

• Altermark, N. D. (2017). Citizenship inclusion and ID: Biopolitics post-institutionalisation. London: Routledge.
   Google Scholar
• Askehave, I., & Korning Zethsen, K. (2003). Communication barriers in public discourse: The patient package insert. Document Design, 4(1), 22–41. doi: 10.1075/dd.4.1.03ask
   Google Scholar
• Baynham, M. (1993). Code switching and mode switching: Community interpreters and mediators of literacy. In B. V. Street (Ed.), Cross-cultural approaches to literacy (pp. 294–314). Cambridge: Cambridge University Press.
   Google Scholar
• Bijker, W. E., & Law, J. (1992). Shaping technology/building society: Studies in sociotechnical change. Boston, MA: MIT Press.
   Google Scholar
• Bourdieu, P., & Wacquant, L. J. (1992). An invitation to reflexive sociology. Chicago, IL: University of Chicago Press.
   Google Scholar
• Bovaird, T. (2007). Beyond engagement and participation: User and community coproduction of public services. Public Administration Review, 67(5), 846–860. doi: 10.1111/j.1540-6210.2007.00773.x
   Web of Science ®Google Scholar
• Boyle, D., & Harris, M. (2009). The challenge of co-production. London: New Economics Foundation.
   Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi: 10.1191/1478088706qp063oa
   Google Scholar
• Brown, H., & Smith, H. (1992). Normalization: A reader for the 1990s. London: Routledge.
   Google Scholar
• Buell, S., Langdon, P. E., Bunning, K., & Pounds, G. (2016). The effects of linguistic simplification and mediation on the comprehension of adapted (‘Easy Read’) text by people with intellectual disabilities: A randomised experiment. Journal of Intellectual Disability Research, 60, 644–644.
   Google Scholar
• Change. (2015). How to make information accessible: A guide to producing Easy Read documents. Retrieved from www.changepeople.co.uk
   Google Scholar
• Chinn, D. (2017). Learning how to be (a) patient: Visual analysis of accessible health information leaflets for people with intellectual disabilities. Disability & Society, 32(10), 1485–1509. doi: 10.1080/09687599.2017.1372271
   Web of Science ®Google Scholar
• Chinn, D., & Homeyard, C. (2016). Easy Read and accessible information for people with intellectual disabilities: Is it worth it? A meta-narrative literature review. Health Expectations, 20(6), 1189–1200. doi: 10.1111/hex.12520
   PubMed Web of Science ®Google Scholar
• Department of Health. (2001). Valuing people - A new strategy for learning disability in the 21st century. London: Department of Health.
   Google Scholar
• Department of Health. (2010). Making written information easier to understand for people with learning disabilities: Guidance for people who commission or produce Easy Read information – Revised Edition. London: Department of Health.
   Google Scholar
• Dixon-Woods, M. (2001). Writing wrongs? An analysis of published discourses about the use of patient information leaflets. Social Science & Medicine, 52(9), 1417–1432. doi: 10.1016/S0277-9536(00)00247-1
   PubMed Web of Science ®Google Scholar
• England, N. H. S. (2015). Accessible information standard. Leeds: NHS England.
   Google Scholar
• Equality Act. (2010). Equality Act 2010. London: The Stationery Office.
   Google Scholar
• Fenwick, T. (2012). Co-production in professional practice: A sociomaterial analysis. Professions and Professionalism, 2(2), 1–16. doi: 10.7577/pp/v2i1.323
   Google Scholar
• Flewitt, R., Nind, M., & Payler, J. (2009). ‘If she’s left with books she’ll just eat them’: Considering inclusive multimodal literacy practices. Journal of Early Childhood Literacy, 9(2), 211–233. doi: 10.1177/1468798409105587
   Google Scholar
• Goddard, M. (2015). Competition in healthcare: Good, bad or ugly? International Journal of Health Policy and Management, 4(9), 567–569. doi: 10.15171/ijhpm.2015.144
   PubMed Web of Science ®Google Scholar
• Goffman, E. (1963). Stigma. London: Penguin.
   Google Scholar
• Hurtado, B., Jones, L., & Burniston, F. (2013). Is Easy Read information really easier to read? Journal of Intellectual Disability Research, 58(9), 822–829.
   PubMed Web of Science ®Google Scholar
• Jones, A., Tuffrey-Wijne, I., Bernal, J., Butler, G., & Hollins, S. (2007). Meeting the cancer information needs of people with learning disabilities: Experiences of paid carers. British Journal of Learning Disabilities, 35(1), 12–18. doi: 10.1111/j.1468-3156.2006.00400.x
   Google Scholar
• Kendall, E., & Rogers, A. (2007). Extinguishing the social?: State sponsored self-care policy and the chronic disease self-management programme. Disability & Society, 22(2), 129–143. doi: 10.1080/09687590601141535
   Web of Science ®Google Scholar
• Klein, H. K., & Kleinman, D. L. (2002). The social construction of technology: Structural considerations. Science, Technology, & Human Values, 27(1), 28–52. doi: 10.1177/016224390202700102
   Web of Science ®Google Scholar
• Kliewer, C., Biklen, D., & Kasa-Hendrickson, C. (2006). Who may be literate? Disability and resistance to the cultural denial of competence. American Educational Research Journal, 43(2), 163–192. doi: 10.3102/00028312043002163
   Web of Science ®Google Scholar
• Mace, R. (1988). Universal design: Housing for the lifespan of all people. Raleigh: North Carolina State University, The Center for Universal Design.
   Google Scholar
• Machin, D. (2004). Building the world’s visual language: The increasing global importance of image banks in corporate media. Visual Communication, 3(3), 316–336. doi: 10.1177/1470357204045785
   Google Scholar
• MacKenzie, D., & Wajcman, J. (1986). The social shaping of technology. Milton Keynes: Open University Press.
   Google Scholar
• Malli, M. A., Sams, L., Forrester-Jones, R., Murphy, G., & Henwood, M. (2018). Austerity and the lives of people with learning disabilities. A thematic synthesis of current literature. Disability & Society. doi: 10.1080/09687599.2018.1497950
   Web of Science ®Google Scholar
• Mander, C. (2016). An investigation of the delivery of health-related accessible information for adults with learning disabilities. Tizard Learning Disability Review, 21(1), 15–23. doi: 10.1108/TLDR-12-2014-0043
   Web of Science ®Google Scholar
• Mencap. (2008). Make it clear: A guide to making Easy Read information. London: Mencap.
   Google Scholar
• Michalko, R. (2009). The excessive appearance of disability. International Journal of Qualitative Studies in Education, 22(1), 65–74. doi: 10.1080/09518390802581885
   Google Scholar
• Morgan, M. F., Moni, K. B., & Cuskelly, M. (2013). Literacy strategies used by adults with ID in negotiating their everyday community environments. Australian Journal of Adult Learning, 53(3), 411.
   Web of Science ®Google Scholar
• Nutbeam, D. (2000). Health literacy as a public health goal: A challenge for contemporary health education and communication strategies into the 21st century. Health Promotion International, 15(3), 259–267. doi: 10.1093/heapro/15.3.259
   Web of Science ®Google Scholar
• Oldreive, W., & Waight, M. (2013). Enabling access to information by people with learning disabilities. Tizard Learning Disability Review, 18(1), 5–15. doi: 10.1108/13595471311295950
   Google Scholar
• Porter, E., Kidd, G., Murray, N., Uytman, C., Spink, A., & Anderson, B. (2012). Developing the pregnancy support pack for people who have a learning disability. Journal of Learning Disabilities, 40(4), 310–317. doi: 10.1111/j.1468-3156.2011.00713.x
   Web of Science ®Google Scholar
• Rose, G. (2016). Visual methodologies: An introduction to researching with visual materials. London: Sage.
   Google Scholar
• Russell, L. (2006). Developing health resources with the help of people with down syndrome. Learning Disability Practice, 9(4), 16–18. doi: 10.7748/ldp2006.05.9.4.16.c1662
   Google Scholar
• Seale, J. (2004). The development of accessibility practices in e-learning: An exploration of communities of practice. Association for Learning Technology Journal, 12(1), 51–63. doi: 10.3402/rlt.v12i1.11226
   Google Scholar
• Sutherland, R. J., & Isherwood, T. (2016). The evidence for Easy-Read for people with intellectual disabilities: A systematic literature review. Journal of Policy and Practice in Intellectual Disabilities, 13(4), 297–310. doi: 10.1111/jppi.12201
   Web of Science ®Google Scholar
• The United Nations. (2006). Convention on the rights of persons with disabilities (Treaty Series, 2515, 3).
   Google Scholar
• Walmsley, J. (2010). Access in mind: A review of approaches to accessible information for people with learning disabilities. In J. Seale & M. Nind (Eds.), Understanding and promoting access for people with learning difficulties: Seeing the opportunities and challenges of risk (pp. 23–42). Abingdon: Routledge.
   Google Scholar
• Walmsley, J. (2013). Commentary on “enabling access to information by people with learning disabilities”. Tizard Learning Disability Review, 18(1), 16–19. doi: 10.1108/13595471311295969
   Google Scholar
• Williams, V., Tarleton, B., Heslop, P., Porter, S., Sass, B., Blue, S., … Mason-Angelow, V. (2018). Understanding disabling barriers: A fruitful partnership between disability Studies and social practices? Disability & Society, 33(2), 157–174. doi: 10.1080/09687599.2017.1401527
   Web of Science ®Google Scholar
• Yaneva, V. (2015). Easy-Read documents as a gold standard for evaluation of text simplification output. Student Research Workshop (pp. 30–36). Retrieved from http://www.anthology.aclweb.org/R/R15/R15-2.pdf#page=38
   Google Scholar