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Mortality, predictors and causes among people with intellectual disabilities: A systematic narrative review supplemented by machine learning

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  • Anderson, A., Wong, K., Jacoby, P., Downs, J., & Leonard, H. (2014). Twenty years of surveillance in Rett syndrome: What does this tell us? Orphanet Journal of Rare Diseases, 9(1), 87–87. https://doi.org/10.1186/1750-1172-9-87
  • Arvio, M., Salokivi, T., & Bjelogrlic-Laakso, N. (2017). Age at death in individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 30(4), 782–785. https://doi.org/10.1111/jar.12269
  • Arvio, M., Salokivi, T., Tiitinen, A., & Haataja, L. (2016). Mortality in individuals with intellectual disabilities in Finland. Brain and Behavior, 6(2), e00431. https://doi.org/10.1002/brb3.431
  • Aucoin, M., LaChance, L., Cooley, K., & Kidd, S. (2018). Diet and psychosis: A scoping review. Neuropsychobiology, 79(1), 1–23. https://doi.org/10.1159/000493399
  • Australian Civil Society CRPD Shadow Report Working Group. (2019). Disability rights now. Australian Civil Society shadow report to the United Nations Committee on the rights of persons with disabilities: UN CRPD Review 2019. Retrieved March 2, 2020, from https://tbinternet.ohchr.org/Treaties/CRPD/Shared%20Documents/AUS/INT_CRPD_CSS_AUS_35639_E.pdf
  • Bourke, J., Nembhard, W. N., Wong, K., & Leonard, H. (2017). Twenty-five year survival of children with intellectual disability in Western Australia. The Journal of Pediatrics, 188, 232–239.e2. https://doi.org/10.1016/j.jpeds.2017.06.008
  • Brameld, K., Spilsbury, K., Rosenwax, L., Leonard, H., & Semmens, J. (2018). Use of health services in the last year of life and cause of death in people with intellectual disability: A retrospective matched cohort study. BMJ Open, 8(2), e020268. https://doi.org/10.1136/bmjopen-2017-020268
  • Brugha, T. S., Spiers, N., Bankart, J., Cooper, S. A., McManus, S., Scott, F. J., Smith, J., & Tyrer, F. (2016). Epidemiology of autism in adults across age groups and abilitylevels. British Journal of Psychiatry, 209(6), 498–503. https://doi.org/10.1192/bjp.bp.115.174649
  • Carey, I. M., Hosking, F. J., Harris, T., DeWilde, S., Beighton, C., & Cook, D. G. (2017). An evaluation of the effectiveness of annual health checks and quality of health care for adults with intellectual disability: An observational study using a primary care database. NIHR Journals Library. Health Services and Delivery Research, 09: 09.
  • Center for Developmental Disabilities Evaluation & Research. (2010). 2008 mortality report. University of Massachusetts Medical School. Retrieved February 1, 2020, from http://www.mass.gov/eohhs/docs/dmr/reports/mortalityreport2008.pdf
  • Center for Developmental Disabilities Evaluation & Research. (2012a). 2009 mortality report. University of Massachusetts Medical School. Retrieved February 1, 2020, from http://www.mass.gov/eohhs/docs/dmr/reports/mortalityreport2009.pdf
  • Center for Developmental Disabilities Evaluation & Research. (2012b). 2010 & 2011 mortality report. Center for Developmental Disabilities Evaluation and Research. Retrieved February 1, 2020, from http://shriver.umassmed.edu/sites/shriver.umassmed.edu/files/documents/2010-11%20DDS%20Mortality%20Report%20Final_web.pdf
  • Center for Developmental Disabilities Evaluation & Research. (2013). 2012 & 2013 mortality report. Center for Developmental Disabilities Evaluation and Research. Retrieved February 1, 2020, from https://shriver.umassmed.edu/sites/shriver.umassmed.edu/files/2012-13%20DDS%20Mortality%20Report%20Final_v2.pdf
  • Cooper, S. A., McLean, G., Guthrie, B., McConnachie, A., Mercer, S., Sullivan, F., & Morrison, J. (2015). Multiple physical and mental health comorbidity in adults with intellectual disabilities: Population-based cross-sectional analysis. BMC Family Practice, 16(1), 110. https://doi.org/10.1186/s12875-015-0329-3
  • Coppus, A. M. W., Evenhuis, H. M., Verberne, G., Visser, F. E., Oostra, B. A., Eikelenboom, P., van Gool, W. A., Janssens, A. C. J., & van Duijn, C. M. (2008). Survival in elderly persons with Down syndrome. Journal of the American Geriatrics Society, 56(12), 2311–2316. https://doi.org/10.1111/j.1532-5415.2008.01999.x
  • Critical Appraisal Skills Programme (2018). CASP (Cohort Study) Checklist [online]. Retrieved September 19, 2020, from https://casp-uk.net/casp-tools-checklists
  • Cronin, P., Ryan, F., & Coughlan, M. (2008). Undertaking a literature review: A step-by-step approach. British Journal of Nursing, 17(1), 38–43. https://doi.org/10.12968/bjon.2008.17.1.28059
  • de Winter, C. F., van den Berge, A. P. J., Schoufour, J. D., Oppewal, A., & Evenhuis, H. M. (2016). A 3-year follow-up study on cardiovascular disease and mortality in older people with intellectual disabilities. Research in Developmental Disabilities, 53-54, 115–126. https://doi.org/10.1016/j.ridd.2016.01.020
  • Department of Health and Social Care. (2019a). Annual report and accounts 2018-19.
  • Department of Health and Social Care. (2019b). Advancing our health: Prevention in the 2020s—Consultation document. Department of Health and Social Care. Retrieved July 27, 2020, from https://www.gov.uk/government/consultations/advancing-our-health-prevention-in-the-2020s/advancing-our-health-prevention-in-the-2020s-consultation-document
  • Dieckmann, F., Giovis, C., & Offergeld, J. (2015). The life expectancy of people with intellectual disabilities in Germany. Journal of Applied Research in Intellectual Disabilities, 28(5), 373–382. https://doi.org/10.1111/jar.12193
  • Emerson, E., Baines, S., Allerton, L., & Welch, V. (2011). Health inequalities and people with learning disabilities in the UK. Learning Disability Observatory.
  • Emerson, E., Glover, G., Hatton, C., & Wolstenholme, J. (2014). Trends in age-standardised mortality rates and life expectancy of people with learning disabilities in Sheffield over a 33-year period. Tizard Learning Disability Review, 19(2), 90–95. https://doi.org/10.1108/TLDR-01-2014-0003
  • Emerson, E., Robertson, J., Baines, S., & Hatton, C. (2014). The self-rated health of British adults with intellectual disability. Research in Developmental Disabilities, 35(3), 591–596. https://doi.org/10.1016/j.ridd.2014.01.005
  • Florio, T., & Trollor, J. (2015). Mortality among a cohort of persons with an intellectual disability in New South Wales, Australia. Journal of Applied Research in Intellectual Disabilities, 28(5), 383–393. https://doi.org/10.1111/jar.12190
  • Freilinger, M., Bebbington, A., Lanator, I., De Klerk, N., Dunkler, D., Seidl, R., Leonard, H., & Ronen, G. M. (2010). Survival with Rett syndrome: Comparing Rett’s original sample with data from the Australian Rett syndrome database. Developmental Medicine & Child Neurology, 52(10), 962–965. https://doi.org/10.1111/j.1469-8749.2010.03716.x
  • Gates, A., Guitard, S., Pillay, J., Elliott, S. A., Dyson, M. P., Newton, A. S., & Hartling, L. (2019). Performance and usability of machine learning for screening in systematic reviews: A comparative evaluation of three tools. Systematic Reviews, 8(1), 278. https://doi.org/10.1186/s13643-019-1222-2
  • Glasson, E. J., Jacques, A., Wong, K., Bourke, J., & Leonard, H. (2016). Improved survival in Down syndrome over the last 60 years and the impact of perinatal factors in recent decades. The Journal of Pediatrics, 169, 214–220.e1. https://doi.org/10.1016/j.jpeds.2015.10.083
  • Glasson, E. J., Sullivan, S. G., Hussain, R., Petterson, B. A., Montgomery, P. D., & Bittles, A. H. (2003). Comparative survival advantage of males with Down syndrome. American Journal of Human Biology, 15(2), 192–195. https://doi.org/10.1002/ajhb.10132
  • Glover, G., & Ayub, M. (2010). How people with learning disabilities die. Improving Health and Lives: Learning Disabilities Observatory.
  • Glover, G., Williams, R., Heslop, P., Oyinlola, J., & Grey, J. (2017). Mortality in people with intellectual disabilities in England. Journal of Intellectual Disability Research, 61(1), 62–74. https://doi.org/10.1111/jir.12314
  • Heslop, P., Blair, P., Fleming, P., Hoghton, M., Marriott, A., & Russ, L. (2013). Confidential inquiry into premature deaths of people with learning disabilities (CIPOLD). University of Bristol: Norah Fry Research Centre. Retrieved February 2, 2020, from http://www.bristol.ac.uk/media-library/sites/cipold/migrated/documents/fullfinalreport.pdf
  • Heslop, P., Blair, P., Fleming, P., Hoghton, M., Marriott, A., & Russ, L. (2014). The Confidential Inquiry into premature deaths of people with intellectual disabilities in the UK: a population-based study. Lancet, 383(9920):889–895. https://doi.org/10.1016/S0140-6736(13)62026-7
  • Hithersay, R., Startin, C. M., Hamburg, S., Mok, K. Y., Hardy, J., Fisher, E. M. C., Tybulewicz, V. L. J., Nizetic, D., & Strydom, A. (2019). Association of dementia with mortality among adults with Down syndrome older than 35 years. JAMA Neurology, 76(2), 152–160. https://doi.org/10.1001/jamaneurol.2018.3616
  • Hosking, F. J., Carey, I. M., Shah, S. M., Harris, T., DeWilde, S., Beighton, C., & Cook, D. G. (2016). Mortality among adults with intellectual disability in England: Comparisons with the general population. American Journal of Public Health, 106(8), 1483–1490. https://doi.org/10.2105/AJPH.2016.303240
  • Kiani, R., Tyrer, F., Jesu, A., Bhaumik, S., Gangavati, S., Walker, G., Kazmi, S., & Barrett, M. (2014). Mortality from sudden unexpected death in epilepsy (SUDEP) in a cohort of adults with intellectual disability. Journal of Intellectual Disability Research, 58(6), 508–520. https://doi.org/10.1111/jir.12047
  • Kirby, R. S., Lane, J. B., Childers, J., Skinner, S. A., Annese, F., Barrish, J. O., Glaze, D. G., Macleod, P., & Percy, A. K. (2010). Longevity in Rett syndrome: Analysis of the North American Database. The Journal of Pediatrics, 156(1), 135–138.e1. https://doi.org/10.1016/j.jpeds.2009.07.015
  • Krahn, G. L., Hammond, L., & Turner, A. (2006). A cascade of disparities: Health and health care access for people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 12(1), 70–82. https://doi.org/10.1002/mrdd.20098
  • Kucik, J. E., Shin, M., Siffel, C., Marengo, L., & Correa, A. (2013). Trends in survival among children with Down syndrome in 10 regions of the United States. Pediatrics, 131(1), e27–e36. https://doi.org/10.1542/peds.2012-1616
  • La Torre, G., Backhaus, I., & Mannocci, A. (2015). Rating for narrative reviews: Concept and development of the international narrative systematic assessment tool. Senses and Sciences, 2, 31–35.
  • Landes, S. D. (2017a). The association between education and mortality for adults with intellectual disability. Journal of Health and Social Behavior, 58(1), 70–85. https://doi.org/10.1177/0022146516683227
  • Landes, S. D. (2017b). Redefining the problem: Socioeconomic predictors of mortality for adults with intellectual disability. (Doctoral Thesis). University of Florida. Retrieved February 2, 2020, from https://search.proquest.com/openview/e62d65baf58cb354e27b4b5c148c8eb8/1?cbl=18750&diss=y&pq-origsite=gscholar
  • Landes, S. D. (2017c). The intellectual disability mortality disadvantage: Diminishing with age? American Journal on Intellectual and Developmental Disabilities, 122(2), 192–207. https://doi.org/10.1352/1944-7558-122.2.192
  • Lauer, E., & McCallion, P. (2015). Mortality of people with intellectual and developmental disabilities from select US state disability service systems and medical claims data. Journal of Applied Research in Intellectual Disabilities, 28(5), 394–405. https://doi.org/10.1111/jar.12191
  • LeDeR team. (2018). The Learning Disability Mortality (LeDeR) review programme: Annual report 2017. University of Bristol: Norah Fry Centre for Disability Studies. Retrieved February 3, 2020, from http://www.bristol.ac.uk/media-library/sites/sps/leder/leder_annual_report_2016-2017.pdf
  • LeDeR team. (2019). The Learning Disability Mortality (LeDeR) review programme: Annual report 2018. University of Bristol: Norah Fry Centre for Disability Studies. Retrieved February 3, 2020, from http://www.bristol.ac.uk/media-library/sites/sps/leder/LeDeR_Annual_Report_2018%20published%20May%202019.pdf
  • LeDeR team. (2020). The Learning Disability Mortality (LeDeR) review programme: Annual Report 2018. Bristol, University of Bristol: Norah Fry Centre for Disability Studies. Retrieved September 24, 2020, from http://www.bristol.ac.uk/media-library/sites/sps/leder/LeDeR_2019_annual_report_FINAL2.pdf
  • Mainardi, P. C., Pastore, G., Castronovo, C., Godi, M., Guala, A., Tamiazzo, S., Provera, S., Pierluigi, M., & Bricarelli, F. D. (2006). The natural history of Cri du Chat syndrome. A report from the Italian register. European Journal of Medical Genetics, 49(5), 363–383. https://doi.org/10.1016/j.ejmg.2005.12.004
  • Marmot, M., Allen, J., Boyce, T., Goldblatt, P., & Morrison, J. (2020). Health equity in England: The Marmot Review 10 years on. London. Retrieved July 27, 2020, from http://www.instituteofhealthequity.org/resources-reports/marmot-review-10-years-on
  • McCarron, M., Carroll, R., Kelly, C., & McCallion, P. (2015). Mortality rates in the general Irish population compared to those with an intellectual disability from 2003 to 2012. Journal of Applied Research in Intellectual Disabilities, 28(5), 406–413. https://doi.org/10.1111/jar.12194
  • Ministry of Health. (2011). Health indicators for New Zealanders with intellectual disability. Retrieved February 1, 2020, from https://www.health.govt.nz/system/files/documents/publications/health-indicators-nzders-intellectual-disability.pdf
  • Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Journal of Clinical Epidemiology, 62(10), 1006–1012. https://doi.org/10.1016/j.jclinepi.2009.06.005
  • Nahar, R., Kotecha, U., Puri, R. D., Pandey, R. M., & Verma, I. C. (2013). Survival analysis of Down syndrome cohort in a tertiary health care center in India. The Indian Journal of Pediatrics, 80(2), 118–123. https://doi.org/10.1007/s12098-012-0836-3
  • Narawane, A., Eng, J., Rappazzo, C., Sfeir, J., King, K., Musso, M. F., & Ongkasuwan, J. (2020). Airway protection & patterns of dysphagia in infants with Down syndrome: Videofluoroscopic swallow study findings & correlations. International Journal of Pediatric Otorhinolaryngology, 132, 109908. https://doi.org/10.1016/j.ijporl.2020.109908
  • National Institute for Health and Care Excellence (NICE). (2012). Epilepsies: Diagnosis and management. Clinical Guideline CG137.
  • Ng, N., Flygare Wallen, E., & Ahlstrom, G. (2017). Mortality patterns and risk among older men and women with intellectual disability: A Swedish national retrospective cohort study. BMC Geriatrics, 17(1), 269. https://doi.org/10.1186/s12877-017-0665-3
  • NHS Digital. (2016). Health and care of people with learning disabilities: Experimental statistics: 2014 to 2015. Retrieved February 1, 2020, from https://digital.nhs.uk/data-and-information/publications/statistical/health-and-care-of-people-with-learning-disabilities/health-and-care-of-people-with-learning-disabilities-experimental-statistics-2014-to-2015
  • NHS Digital. (2017a). Health and care of people with learning disabilities: Experimental statistics: 2015 to 2016. Retrieved February 1, 2020, from https://digital.nhs.uk/data-and-information/publications/statistical/health-and-care-of-people-with-learning-disabilities/health-and-care-of-people-with-learning-disabilities-experimental-statistics-2015-to-2016
  • NHS Digital. (2017b). Health and care of people with learning disabilities: Experimental statistics: 2016 to 2017. Retrieved February 1, 2020, from https://digital.nhs.uk/data-and-information/publications/statistical/health-and-care-of-people-with-learning-disabilities/health-and-care-of-people-with-learning-disabilities-experimental-statistics-2016-to-2017
  • NHS Digital. (2019a). Health and care of people with learning disabilities: Experimental statistics: 2017 to 2018. Retrieved February 1, 2020, from https://digital.nhs.uk/data-and-information/publications/statistical/health-and-care-of-people-with-learning-disabilities/experimental-statistics-2017-to-2018
  • NHS Digital. (2019b). Health and care of people with learning disabillities standardised mortality ratio indicator. Retrieved February 1, 2020, from https://digital.nhs.uk/data-and-information/publications/statistical/health-and-care-of-people-with-learning-disabilities/standardised-mortality-ratio-indicator#summary
  • NHS Digital. (2019c). NHS outcomes framework indicators - August 2019 release. Retrieved February 1, 2020, from https://digital.nhs.uk/data-and-information/publications/clinical-indicators/nhs-outcomes-framework/current
  • NHS England. (2019). Learning Disability Mortality Review (LeDeR) Programme: Action from learning. Retrieved February 1, 2020, from https://www.england.nhs.uk/publication/leder-action-from-learning/
  • O’Leary, L., Cooper, S. A., & Hughes-McCormack, L. (2018). Early death and causes of death of people with intellectual disabilities: A systematic review. Journal of Applied Research in Intellectual Disabilities, 31(3), 325–342. https://doi.org/10.1111/jar.12417
  • Oppewal, A., & Hilgenkamp, T. I. M. (2019). Physical fitness is predictive for 5-year survival in older adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(4), 958–966. https://doi.org/10.1111/jar.12589
  • Oppewal, A., Schoufour, J. D., van der Maarl, H. J. K., Evenhuis, H. M., Hilgenkamp, T. I. M., & Festen, D. A. (2018). Causes of mortality in older people with intellectual disability: Results from the HA-ID study. American Journal on Intellectual and Developmental Disabilities, 123(1), 61–71. https://doi.org/10.1352/1944-7558-123.1.61
  • O’Shea, M. S., Girón, J. M., Cabrera, L., Lescano, A. G., & Taren, D. L. (2012). Public perceptions of intellectual disability in a shantytown community in Lima, Peru. International Health, 4(4), 253–259. https://doi.org/10.1016/j.inhe.2012.07.001
  • Perez, C. M., Wagner, A. P., Ball, S. L., White, S. R., Clare, I. C. H., Holland, A. J., & Redley, M. (2017). Prognostic models for identifying adults with intellectual disabilities and mealtime support needs who are at greatest risk of respiratory infection and emergency hospitalisation. Journal of Intellectual Disability Research, 61(8), 737–754. https://doi.org/10.1111/jir.12376
  • Popay, J., Roberts, H., Sowden, A., Petticrew, M., Arai, L., Rodgers, M., Britten, N., Rowen, K., & Duffy, S. (2006). Guidance on the conduct of narrative synthesis in systematic reviews: A product from the ESRC methods programme (Version 1). University of Lancaster.
  • Public Health England. (2016). People with learning disabilities in England 2015: Main report. Retrieved February 2, 2020, from https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/613182/PWLDIE_2015_main_report_NB090517.pdf
  • Rankin, J., Tennant, P. W., Bythell, M., & Pearce, M. S. (2012). Predictors of survival in children born with Down syndrome: A registry-based study. Pediatrics, 129(6), e1373–e1381. https://doi.org/10.1542/peds.2011-3051
  • Ring, H., Howlett, J., Pennington, M., Smith, C., Redley, M., Murphy, C., Hook, R., Platt, A., Gilbert, N., Jones, E., Kelly, J., Pullen, A., Mander, A., Donaldson, C., Rowe, S., Wason, J., & Irvine, F. (2018). Training nurses in a competency framework to support adults with epilepsy and intellectual disability: The EpAID cluster RCT. Health Technology Assessment, 22(10), 1–104. https://doi.org/10.3310/hta22100
  • Santoro, S. L., Esbensen, A. J., Hopkin, R. J., Hendershot, L., Hickey, F., & Patterson, B. (2016). Contributions to racial disparity in mortality among children with Down syndrome. The Journal of Pediatrics, 174, 240–246.e1. https://doi.org/10.1016/j.jpeds.2016.03.023
  • Schendel, D. E., Overgaard, M., Christensen, J., Hjort, L., Jorgensen, M., Vestergaard, M., & Parner, E. T. (2016). Association of psychiatric and neurologic comorbidity with mortality among persons with autism spectrum disorder in a Danish population. JAMA Pediatrics, 170(3), 243–250. https://doi.org/10.1001/jamapediatrics.2015.3935
  • Schoufour, J. D., Mitnitski, A., Rockwood, K., Evenhuis, H. M., & Echteld, M. A. (2015). Predicting 3-year survival in older people with intellectual disabilities using a frailty index. Journal of the American Geriatrics Society, 63(3), 531–536. https://doi.org/10.1111/jgs.13239
  • Schoufour, J. D., Oppewal, A., van der Maarl, H. J. K., Hermans, H., Evenhuis, H. M., Hilgenkamp, T. I. M., & Festen, D. A. (2018). Multimorbidity and polypharmacy are independently associated with mortality in older people with intellectual disabilities: A 5-year follow-up from the HA-ID study. American Journal on Intellectual and Developmental Disabilities, 123(1), 72–82. https://doi.org/10.1352/1944-7558-123.1.72
  • Schoufour, J., Echteld, M., & Evenhuis, H. (2017). Comparing two frailty concepts among older people with intellectual disabilities. European Journal of Ageing, 14(1), 63–79. https://doi.org/10.1007/s10433-016-0388-x
  • Schrier, S. A., Sherer, I., Deardorff, M. A., Clark, D., Audette, L., Gillis, L., Kline, A. D., Ernst, L., Loomes, K., Krantz, I. D., & Jackson, L. G. (2011). Causes of death and autopsy findings in a large study cohort of individuals with Cornelia de Lange syndrome and review of the literature. American Journal of Medical Genetics Part A, 155(12), 3007–3024. https://doi.org/10.1002/ajmg.a.34329
  • Shankar, R., Henley, W., Boland, C., Laugharne, R., McLean, B. N., Newman, C., Hanna, J., Ashby, S., Walker, M. C., & Sander, J. W. (2018). Decreasing the risk of sudden unexpected death in epilepsy: Structured communication of risk factors for premature mortality in people with epilepsy. European Journal of Neurology, 25(9), 1121–1127. https://doi.org/10.1111/ene.13651
  • Tarquinio, D. C., Hou, W., Neul, J. L., Kaufmann, W. E., Glaze, D. G., Motil, K. J., Skinner, S. A., Lee, H. S., & Percy, A. K. (2015). The changing face of survival in Rett syndrome and MECP2-related disorders. Pediatric Neurology, 53(5), 402–411. https://doi.org/10.1016/j.pediatrneurol.2015.06.003
  • Thorpe, L., Pahwa, P., Bennett, V., Kirk, A., & Nanson, J. (2012). Clinical predictors of mortality in adults with intellectual disabilities with and without Down syndrome. Current Gerontology and Geriatrics Research, 2012, 1–11. https://doi.org/10.1155/2012/943890
  • Trollor, J., Srasuebkul, P., Xu, H., & Howlett, S. (2017). Cause of death and potentially avoidable deaths in Australian adults with intellectual disability using retrospective linked data. BMJ Open, 7(2), e013489. https://doi.org/10.1136/bmjopen-2016-013489
  • Tsafnat, G., Glasziou, P., Choong, M. K., Dunn, A., Galgani, F., & Coiera, E. (2014). Systematic review automation technologies. Systematic Reviews, 3(1), 74. https://doi.org/10.1186/2046-4053-3-74
  • Wagner, A. P., Croudace, T. J., Bateman, N., Pennington, M. W., Prince, E., Redley, M., White, S. R., & Ring, H. (2017). Clinical services for adults with an intellectual disability and epilepsy: A comparison of management alternatives. PLoS ONE, 12(7), e0180266. https://doi.org/10.1371/journal.pone.0180266
  • Wallace, B. C., Small, K., Brodley, C. E., Lau, J., & Trikalinos, T. A. (2012). Deploying an interactive machine learning system in an evidence-based practice center: Abstrackr. Proceedings of the ACM International Health Informatics Symposium (IHI), 819–824. https://doi.org/10.1145/2110363.2110464
  • Wang, Y., Hu, J., Druschel, C. M., & Kirby, R. S. (2011). Twenty-five-year survival of children with birth defects in New York state: A population-based study. Birth Defects Research Part A: Clinical and Molecular Teratology, 91(12), 995–1003. https://doi.org/10.1002/bdra.22858
  • WHO and World Bank. (2011). World report on disability. World Health Organization and World Bank.
  • Zablotsky, B., Black, L. I., & Blumberg, S. J. (2017). Estimated prevalence of children with diagnosed developmental disabilities in the United States, 2014-2016. NCHS Data Brief, 291, 1–8.
  • Zhu, J. L., Hasle, H., Correa, A., Schendel, D., Friedman, J. M., Olsen, J., & Rasmussen, S. A. (2013). Survival among people with Down syndrome: A nationwide population-based study in Denmark. Genetics in Medicine, 15(1), 64–69. https://doi.org/10.1038/gim.2012.93

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