Passing laws is not enough to change staff practice: The case of legally mandated “incident” reporting in Sweden

References

• Alvesson, M. (2003). Beyond neopositivisits, romantics and localists: A reflective approach to interviews in organizational research. Academy of Management Review, 28(1), 13–33. https://doi.org/10.5465/amr.2003.8925191
   Web of Science ®Google Scholar
• Alvesson, M. (2013). The Triumph of Emptiness. Oxford University Press.
   Google Scholar
• Arron, K., Oliver, C., Moss, J., Berg, K., & Burbidge, C. (2011). The prevalence and phenomenology of self-injurious and aggressive behaviour in genetic syndromes. Journal of Intellectual Disability Research, 55(2), 109–120. https://doi.org/10.1111/j.1365-2788.2010.01337.x
   PubMedGoogle Scholar
• Cooper, S., Smiley, E., Allan, L. M., Jackson, A., Finlayson, J., Mantry, D., & Morrison, J. (2009). Adults with intellectual disabilities: Prevalence, incidence and remission of self-injurious behaviour, and related factors. Journal of Intellectual Disability Research, 53(3), 200–216. https://doi.org/10.1111/j.1365-2788.2008.01060.x
   PubMed Web of Science ®Google Scholar
• Daveney, J., Hassiotis, A., Katona, C., Matcham, F., & Sen, P. (2019). Ascertainment and prevalence of post-traumatic stress disorder (PTSD) in people with intellectual disabilities. Journal of Mental Health Research in Intellectual Disabilities, 12(3–4), 211–233. https://doi.org/10.1080/19315864.2019.1637979
   Web of Science ®Google Scholar
• Dilworth, J. A., Phillips, N., & Rose, J. (2011). Factors relating to staff attributions of control over challenging behaviour. Journal of Applied Research in Intellectual Disabilities, 24(1), 29–38. https://doi.org/10.1111/j.1468-3148.2010.00570.x
   Web of Science ®Google Scholar
• Dörenberg, V. E., de Veer, A. J., Francke, A. L., Embregts, P. J., van Nieuwenhuijzen, M., & Frederiks, B. J. (2018). Applying restrictive measures in the care of adolescents with mild intellectual disabilities: Attitudes of support staff and policy implications. Journal of Policy and Practice in Intellectual Disabilities, 15(1), 26–35. https://doi.org/10.1111/jppi.12223
   Web of Science ®Google Scholar
• Fitton, L., & Jones, D. (2018). Restraint of adults with intellectual disabilities: A critical review of the prevalence and characteristics associated with its use. Journal of Intellectual Disabilities, 24(2), 268–283. https://doi.org/10.1177/1744629518778695
   PubMed Web of Science ®Google Scholar
• Folch, AC-C, Muñoz, S., Rovira, L., Orejuela, C., Haro, J. M., Vilella, E., & Martínez-Leal, R. (2018). Risk factors and topographies for self-injurious behaviour in a sample of adults with intellectual developmental disorders. Journal of Intellectual Disability Research, 62(12), 1018–1029. https://doi.org/10.1111/jir.12487
   PubMed Web of Science ®Google Scholar
• Ford, J. D., & Courtois, C. A. (2020). Treating complex traumatic stress disorders in adults. Scientific foundations and therapeutic models (2nd ed.). The Guilford Press.
   Google Scholar
• Gubrium, J. F., & Holstein, J. A. (2008). Narrative ethnography. In S. H. Hesse-Biber & P. Leavy (Eds.), Handbook of emergent methods (pp. 241–264). The Guilford Press.
   Google Scholar
• Health and Social Care Inspectorate. (2019). Vad har IVO sett? 2018 [What has the Health and Social Care Inspectorate seen? 2018].
   Google Scholar
• Hughes, R. B., Robinson-Whelen, S., Raymaker, D., Lund, E. M., Oschwald, M., Katz, M., Starr, A., Ashkenazy, E., Powers, L. E., & Nicolaidis, C. (2019). The relation of abuse to physical and psychological health in adults with developmental disabilities. Disability and Health Journal, 12(2), 227–234. https://doi.org/10.1016/j.dhjo.2018.09.007
   PubMed Web of Science ®Google Scholar
• Ion, R., Jones, A., & Craven, R. (2016). Raising concerns and reporting poor care in practice. Nursing Standard, 31(15), 55–63. https://doi.org/10.7748/ns.2016.e10665
   PubMedGoogle Scholar
• Keesler, J. M. (2014). A call for the integration of trauma-informed care among intellectual and developmental disability organizations. Journal of Policy and Practice in Intellectual Disabilities, 11(1), 34–42. https://doi.org/10.1111/jppi.12071.
   Web of Science ®Google Scholar
• Kildahl, A. N., Bakken, T. L., Iversen, T. E., & Helverschou, S. B. (2019). Identification of post-traumatic stress disorder in individuals with autism spectrum disorder and intellectual disability: A systematic review. Journal of Mental Health Research in Intellectula Disabilities, 12(1–2), 1–25. https://doi.org/10.1080/19315864.2019.1595233.
   Web of Science ®Google Scholar
• Kvale, S., & Brinkmann, S. (2014). Den kvalitatativa forskningsintervjun. Studentlitteratur.
   Google Scholar
• Macrae, D. (2016). The problem with incident reporting. BMJ Quality & Safety, 25(2), 71–75. https://doi.org/10.1136/bmjqs-2015-004732
   PubMed Web of Science ®Google Scholar
• McGill, P., Murphy, G., & Kelly-Pike, A. (2009). Frequency of use and characteristics of people with intellectual disabilities subject to physical interventions. Journal of Applied Research in Intellectual Disabilities, 22(2), 152–158. https://doi.org/10.1111/j.1468-3148.2008.00483.x
   Web of Science ®Google Scholar
• Mitchell, I., Schuster, A., Smith, K., Pronovost, P., & Wu, A. (2016). Patient safety incident reporting: A qualitative study of thoughts and perceptions of experts 15 years after ‘To Err is Human’. BMJ Quality & Safety, 25(2), 92–99. https://doi.org/10.1136/bmjqs-2015-004405
   PubMed Web of Science ®Google Scholar
• National Board of Health and Welfare. (2014). Lex Sarah. Handbok för tillämpningen av bestämmelserna om lex Sarah [Handbook on the application of the legislation of lex Sarah].
   Google Scholar
• National Board of Health and Welfare. (2018). Personer med funktionsnedsättning – insatser enligt LSS [Persons with disabilities: measures according to LSS].
   Google Scholar
• National Board of Health and Welfare, regulation 2011:9. (n.d.). Ledningssystem för systematiskt kvalitetsarbete [NBHW regulation, Management system for systematic quality developement].
   Google Scholar
• NICE Guideline. (2018). Learning disabilities and behaviour that challenges: service design and delivery. https://www.nice.org.uk/guidance/ng93
   Google Scholar
• Northway, R., Bennett, D., Melsome, M., Flood, S., Howarth, J., & Jones, R. (2013). Keeping safe and providing support: A participatory survey about abuse and people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 10(3), 236–244. https://doi.org/10.1111/jppi.12049
   Web of Science ®Google Scholar
• Northway, R., Melsome, M., Flood, S., Bennett, D., Howarth, J., & Thomas, B. (2013b). How do people with intellectual disabilities view abuse and abusers? Journal of Intellectual Disabilities, 17(4), 361–375. https://doi.org/10.1177/1744629513509565
   PubMedGoogle Scholar
• Olivier-Pijpers, V. C., Cramm, J. M., & Nieboer, A. P. (2018). Influence of the organizational environment on challenging behaviour in people with intellectual disabilities: Professionals’ views. Journal of Applied Research in Intellectual Disabilities, 32(3), 1–12. https://doi.org/10.1111/jar.12555
   PubMed Web of Science ®Google Scholar
• Poppes, P., van der Putten, A., & Vlaskamp, C. (2010). Frequency and severity of challenging behaviour in people with profound intellectual and multiple disabilities. Research in Developmental Disabilities, 31(6), 1269–1275. https://doi.org/10.1016/j.ridd.2010.07.017
   PubMed Web of Science ®Google Scholar
• Qu, S. Q., & Dumay, J. (2011). The qualitative research interview. Qualitative Research in Accounting & Management, 8(3), 238–264. https://doi.org/10.1108/11766091111162070
   Google Scholar
• Riessman, C. K. (2008). Narrative methods for the human sciences. SAGE.
   Google Scholar
• Rittmannsberger, D., Kocman, A., Weber, G., & Lueger-Schuster, B. (2019). Trauma exposure and post-traumatic stress disorder in people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(3), 558–567. https://doi.org/10.1111/jar.12549
   PubMed Web of Science ®Google Scholar
• Rittmannsberger, D., Yanagida, T., Weber, G., & Lueger-Schuster, B. (2020). The association between challenging behaviour and symptoms of post-traumatic stress disorder in people with intellectual disabilities: A Bayesian mediation analysis approach. Journal of Intellectual Disability Research, 64(7), 538–550. https://doi.org/10.1111/jir.12733
   PubMed Web of Science ®Google Scholar
• SAMHSA. (2014). SAMHSA’s concept of trauma and guidance for a trauma-informed approach. https://ncsacw.samhsa.gov/userfiles/files/SAMHSA_Trauma.pdf
   Google Scholar
• Schalock, R. L., Verdugo, M., & Lee, T. (2016). A systematic approach to an organization's sustainability. Evaluation and Program Planning, 56, 56–63. https://doi.org/10.1016/j.evalprogplan.2016.03.005
   PubMed Web of Science ®Google Scholar
• Schalock, R., & Verdugo, M. (2012). A conceptual and measurement frramework to guide policy development and systems change. Journal of Policy and Practice in Intellectual Disabilities, 9(1), 63–72. https://doi.org/10.1111/j.1741-1130.2012.00329.x
   Web of Science ®Google Scholar
• Schippers, B., Frederiks, B. J. M., van Nieuwenhuijzen, M., & Schuengel, C. (2018). Reliability and feasibility of systematic registration of coercive measures in care for people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 15(3), 202–213. https://doi.org/10.1111/jppi.12252
   Web of Science ®Google Scholar
• SFS. (1993). Act concerning support and service for persons with certain functional impairments.
   Google Scholar
• Sturmey, P. (2018). Reducing restraint in individuals with intellectual disabilities and autism spectrum disorders: A systematic review group interventions. Advances in Neurodevelopental Disorders, 2, 375–390. https://doi.org/10.1007/s41252-018-0088-y
   Google Scholar
• Webber, L., Richardson, B. W., Fitzpatrick, P., McVilly, K., & Forster, S. (2019). Factors associated with the use of mechanical restraint in disability services. Journal of Intellectual & Developmental Disability, 44(1), 116–120. https://doi.org/10.3109/13668250.2017.1310814
   Web of Science ®Google Scholar
• Weiner, B. J. (2009). A theory of organizational readiness for change. Implementation Science, https://doi.org/10.1186/1748-5908-4-67
   Google Scholar
• Wigham, S., & Emerson, E. (2015). Trauma and life events in adults with intellectual disability. Current Developmental Disorders Reports, 2, 93–99. https://doi.org/10.1007/s40474-015-0041-y.
   Google Scholar
• Yin, R. K. (2014). Case study research: Design and methods (5th ed.). SAGE.
   Google Scholar