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Research Articles

Loneliness and how to counter it: People with intellectual disability share their experiences and ideas

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References

  • Australian Institute of Health and Welfare 2021 Welfare in Australia. (2021). https://www.aihw.gov.au/reports/australias-welfare/social-isolation-and-loneliness-covid-pandemic
  • Bigby, C., & Frawley, P. (2010). Reflections on doing inclusive research in the “making life good in the community” study. Journal of Intellectual & Developmental Disability, 35(2), 53–61. https://doi.org/10.3109/13668251003716425
  • Bigby, C., & Wiesel, I. (2015). Mediating community participation: Practice of support workers in initiating, facilitating or disrupting encounters between people with and without intellectual disability. Journal of Applied Research in Intellectual Disabilities, 28(4), 307–318. https://doi.org/10.1111/jar.12140
  • Byhlin, S., & Käcker, P. (2018). “I want to participate!” Young adults with mild to moderate intellectual disabilities: How to increase participation and improve attitudes. Scandinavian Journal of Disability Research, 20(1), 172–181. https://doi.org/10.16993/sjdr.58
  • Commonwealth Government, Department of Social Services. (2011). National Disability Strategy 2011–2021. Commonwealth of Australia.
  • Commonwealth Government, Department of Social Services. (2021). Australia’s Disability Strategy 2021–2031. https://www.disabilitygateway.gov.au/sites/default/files/documents/2021-11/1786-australias-disability.pdf
  • Di Lorito, C., Bosco, A., Birt, L., & Hassiotis, A. (2018). Co-research with adults with intellectual disability: A systematic review. Journal of Applied Research in Intellectual Disabilities, 31(5), 669–686. https://doi.org/10.1111/jar.12435
  • Dyson, S., Frawley, P., & Robinson, S. (2017). “Whatever it takes”: Access for women with disabilities to domestic and domestic violence services: Final report.
  • Emerson, E., Fortune, N., Llewellyn, G., & Stancliffe, R. (2021). Loneliness, social support, social isolation and wellbeing among working age adults with and without disability: Cross-sectional study. Disability and Health Journal, 14(1), Article 100965. https://doi.org/10.1016/j.dhjo.2020.100965
  • Foley, K. R., Blackmore, A. M., Girdler, S., O’Donnell, M., Glauert, R., Llewellyn, G., & Leonard, H. (2012). To feel belonged: The voices of children and youth with disabilities on the meaning of wellbeing. Child Indicators Research, 5(2), 375–391. https://doi.org/10.1007/s12187-011-9134-2
  • Fyson, R., & Patterson, A. (2020). Staff understandings of abuse and poor practice in residential settings for adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 33(3), 354–363. https://doi.org/10.1111/jar.12677
  • Gilmore, L., & Cuskelly, M. (2014). Vulnerability to loneliness in people with intellectual disability: An explanatory model. Journal of Policy and Practice in Intellectual Disabilities, 11(3), 192–199. https://doi.org/10.1111/jppi.12089
  • Hastings, R. P. (2010). Support staff working in intellectual disability services: The importance of relationships and positive experiences. Journal of Intellectual and Developmental Disability, 35(3), 207–210. https://doi.org/10.3109/13668250.2010.492710
  • Hawkley, L. C., & Cacioppo, J. T. (2010). Loneliness matters: A theoretical and empirical review of consequences and mechanisms. Annals of Behavioral Medicine, 40(2), 218–227. https://doi.org/10.1007/s12160-010-9210-8
  • Impellizzeri, J., Savinsky, D. M., King, J. A., & Leitch-Alford, L. (2017). Conceptual mapping task: An effective verification tool for qualitative counseling research. Counseling Outcome Research and Evaluation, 8(1), 31–47. https://doi.org/10.1080/21501378.2017.1327745
  • Jansen-van Vuuren, J., & Aldersey, H. M. (2020). Stigma, acceptance and belonging for people with IDD across cultures. Current Developmental Disorders Reports, 7(3), 163–172. https://doi.org/10.1007/s40474-020-00206-w
  • Macdonald, S. J., Deacon, L., Nixon, J., Akintola, A., Gillingham, A., Kent, J., Ellis, G., Mathews, D., Ismail, A., Sullivan, S., Dore, S., & Highmore, L. (2018). “The invisible enemy”: Disability, loneliness and isolation. Disability & Society, 33(7), 1138–1159. https://doi.org/10.1080/09687599.2018.1476224
  • Mason, P., Timms, K., Hayburn, T., & Watters, C. (2013). How do people described as having a learning disability make sense of friendship? Journal of Applied Research in Intellectual Disabilities, 26(2), 108–118. https://doi.org/10.1111/jar.12001
  • McVilly, K. R., Stancliffe, R. J., Parmenter, T. R., & Burton-Smith, R. M. (2006). “I get by with a little help from my friends”: Adults with intellectual disability discuss loneliness. Journal of Applied Research in Intellectual Disabilities, 19(2), 191–203. https://doi.org/10.1111/j.1468-3148.2005.00261.x
  • Merrells, J., Buchanan, A., & Waters, R. (2019). “We feel left out”: Experiences of social inclusion from the perspective of young adults with intellectual disability. Journal of Intellectual & Developmental Disability, 44(1), 13–22. https://doi.org/10.3109/13668250.2017.1310822
  • Mooney, F., Rafique, N., & Tilly, L. (2019). Getting involved in the community – what stops us? Findings from an inclusive research project. British Journal of Learning Disabilities, 47(4), 241–246. https://doi.org/10.1111/bld.12283
  • Näykki, P., & Järvelä, S. (2008). How pictorial knowledge representations mediate collaborative knowledge construction in groups. Journal of Research on Technology in Education, 40(3), 359–387. https://doi.org/10.1080/15391523.2008.10782512
  • Neale, J. (2016). Iterative categorization (IC): A systematic technique for analysing qualitative data. Addiction, 111(6), 1096–1106. https://doi.org/10.1111/add.13314
  • Olsen, J. (2018). Socially disabled: The fight disabled people face against loneliness and stress. Disability & Society, 33(7), 1160–1164. https://doi.org/10.1080/09687599.2018.1459228
  • Petroutsou, A., Hassiotis, A., & Afia, A. (2018). Loneliness in people with intellectual and developmental disorders across the lifespan: A systematic review of prevalence and interventions. Journal of Applied Research in Intellectual Disabilities, 31(5), 643–658. https://doi.org/10.1111/jar.12432
  • Poscia, A., Stojanovic, J., La Milia, D. I., Duplaga, M., Grysztar, M., Moscato, U., Onder, G., Collamati, A., Ricciardi, W., & Magnavita, N. (2018). Interventions targeting loneliness and social isolation among the older people: An update systematic review. Experimental Gerontology, 102, 133–144. https://doi.org/10.1016/j.exger.2017.11.017
  • Robinson, S. (2018). Safety and harm in school: Promoting the perspectives of students with intellectual disability. Journal of Research in Special Educational Needs, 18(S1), 48–58. https://doi.org/10.1111/1471-3802.12417
  • Robinson, S., Graham, A., Fisher, K. R., Neale, K., Davy, L., Johnson, K., & Hall, E. (2020). Understanding paid support relationships: Possibilities for mutual recognition between young people with disability and their support workers. Disability & Society, 36(9), 1423–1448. https://doi.org/10.1080/09687599.2020.1794797
  • Robinson, S., Hill, M., Fisher, K. R., & Graham, A. (2020). Belonging and exclusion in the lives of young people with intellectual disability in small town communities. Journal of Intellectual Disabilities, 24(1), 50–68. https://doi.org/10.1177/1744629518765830
  • Shakespeare, T. (2014). Disability rights and wrongs revisited. Routledge.
  • Simplican, S. C. (2019). Theorising community participation: Successful concept or empty buzzword? Research and Practice in Intellectual and Developmental Disabilities, 6(2), 116–124. https://doi.org/10.1080/23297018.2018.1503938
  • Simplican, S. C., Leader, G., Kosciulek, J., & Leahy, M. (2015). Defining social inclusion of people with intellectual and developmental disabilities: An ecological model of social networks and community participation. Research in Developmental Disabilities, 38, 18–29. https://doi.org/10.1016/j.ridd.2014.10.008
  • Strnadová, I., Johnson, K., & Walmsley, J. (2018). “ … but if you're afraid of things, how are you meant to belong?” What belonging means to people with intellectual disabilities? Journal of Applied Research in Intellectual Disabilities, 31(6), 1091–1102. https://doi.org/10.1111/jar.12469
  • Svendsen, L. (2017). A philosophy of loneliness. Reaktion Books.
  • United Nations (UN). (2007). Convention on the rights of persons with disabilities. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html
  • Veazie, S., Gilbert, J., Winchell, K., Paynter, R., & Guise, J.-M. (2019). Addressing social isolation to improve the health of older adults: A rapid review. https://effectivehealthcare.ahrq.gov/sites/default/files/pdf/rapid-social-isolation-older-adults-final.pdf
  • Victor, C. R., & Yang, K. (2012). The prevalence of loneliness among adults: A case study of the United Kingdom. The Journal of Psychology, 146(1-2), 85–104. https://doi.org/10.1080/00223980.2011.613875
  • Wiesel, I., & Bigby, C. (2014). Being recognised and becoming known: Encounters between people with and without intellectual disability in the public realm. Environment and Planning A: Economy and Space, 46(7), 1754–1769. https://doi.org/10.1068/a46251
  • Wiesel, I., Bigby, C., Kamstra, P., & Farmer, J. (2020). Possibility and risk in encounter between people with and without intellectual disability. Journal of Intellectual & Developmental Disability, 46(1), 35–44. https://doi.org/10.3109/13668250.2020.1837606
  • Wigfield, A., Turner, R., Alden, S., Green, M., & Karania, V. (2020). Developing a new conceptual framework of meaningful interaction for understanding social isolation and loneliness. Social Policy and Society. https://doi.org/10.1017/S147474642000055X
  • Wilson, N., Jaques, H., Johnson, A., & Brotherton, M. (2017). From social exclusion to supported inclusion: Adults with intellectual disability discuss their lived experiences of a structured social group. Journal of Applied Research in Intellectual Disabilities, 30(5), 847–858. https://doi.org/10.1111/jar.12275

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