Supporting healthy ageing for people with intellectual disabilities in group homes: Staff experiences

References

• Alftberg, Å., Johansson, M., & Ahlström, G. (2021). Ambivalence among staff regarding ageing with intellectual disabilities: Experiences and reflections. Journal of Intellectual Disabilities, 25(2), 192–209. https://doi.org/10.1177/1744629519874997
   PubMed Web of Science ®Google Scholar
• Araten-Bergman, T., & Bigby, C. (2021). Ageing in place in group homes: An Australian context. In M. Putnam & C. Bigby (Eds.), Handbook on ageing with disability (pp. 337–349). Routledge.
   Google Scholar
• Bigby, C. (2008). Beset by obstacles: A review of Australian policy development to support ageing in place for people with intellectual disability. Journal of Intellectual and Developmental Disability, 33(1), 76–86. https://doi.org/10.1080/13668250701852433
   PubMed Web of Science ®Google Scholar
• Bigby, C. (2020). Dedifferentiation and people with intellectual disabilities in the Australian National Disability Insurance Scheme: Bringing research, politics and policy together. Journal of Intellectual & Developmental Disability, 45(4), 309–319. https://doi.org/10.3109/13668250.2020.1776852
   Web of Science ®Google Scholar
• Carey, G., Malbon, E., Weier, M., & Duff, G. (2022). Balancing stability and change: Lessons on policy responsiveness and turbulence in the disability care sector. Health & Social Care in the Community, 30(4), 1307–1314. https://doi.org/10.1111/hsc.13454
   PubMed Web of Science ®Google Scholar
• Charmaz, K. (2014). Constructing grounded theory (2nd ed.). Sage.
   Google Scholar
• Coppus, A. M. (2013). People with intellectual disability: What do we know about adulthood and life expectancy? Developmental Disabilities Research Reviews, 18(1), 6–16. https://doi.org/10.1002/ddrr.1123
   PubMed Web of Science ®Google Scholar
• Covelli, V., Raggi, A., Meucci, P., Paganelli, C., & Leonardi, M. (2016). Ageing of people with Down’s syndrome: A systematic literature review from 2000 to 2014. International Journal of Rehabilitation Research, 39(1), 20–28. https://doi.org/10.1097/MRR.0000000000000147
   PubMed Web of Science ®Google Scholar
• Dowse, L., & Wiese, M. (2016). Cognitive disability and complex support needs: Challenges in the National Disability Insurance Scheme. In E. Moore (Ed.), Case management: Inclusive community practice (2nd ed., pp. 417–437). Oxford University Press.
   Google Scholar
• Fleming, P., McGilloway, S., Hernon, M., Furlong, M., O'Doherty, S., Keogh, F., & Stainton, T. (2019). Individualized funding interventions to improve health and social care outcomes for people with a disability: A mixed-methods systematic review. Campbell Systematic Reviews, 15(1–2), e1008. https://doi.org/10.4073/csr.2019.3
   PubMedGoogle Scholar
• Green, C., Malbon, E., Carey, G., Dickinson, H., & Reeders, D. (2017). Competition and collaboration between service providers in the NDIS. Centre for Social Impact, University of New South Wales.
   Google Scholar
• Heller, T. (2019). Bridging aging and intellectual/developmental disabilities in research, policy, and practice. Journal of Policy and Practice in Intellectual Disabilities, 16(1), 53–57. https://doi.org/10.1111/jppi.12263
   Web of Science ®Google Scholar
• Hussain, R., Parmenter, T., Wark, S., Janicki, M., Knox, M., & Hayhoe, N. (2021). Mitigating the impact of the “silos” between the disability and aged-care sectors in Australia: Development of a best practice framework. Journal of Applied Research in Intellectual Disabilities, 34(6), 1477–1488. https://doi.org/10.1111/jar.12890
   PubMed Web of Science ®Google Scholar
• Innes, A., McCabe, L., & Watchman, K. (2012). Caring for older people with an intellectual disability: A systematic review. Maturitas, 72(4), 286–295. https://doi.org/10.1016/j.maturitas.2012.05.008
   PubMed Web of Science ®Google Scholar
• Johansson, M., Björne, P., Runesson, I., & Ahlström, G. (2017). Healthy ageing in people with intellectual disabilities from managers’ perspective: A qualitative study. Healthcare, 5(3), 45. https://doi.org/10.3390/healthcare5030045
   Web of Science ®Google Scholar
• Kåhlin, I., Kjellberg, A., & Hagberg, J.-E. (2016). Ageing in people with intellectual disability as it is understood by group home staff. Journal of Intellectual and Developmental Disability, 41(1), 1–10. https://doi.org/10.3109/13668250.2015.1094038
   Web of Science ®Google Scholar
• Mavromaras, K., Moskos, M., Mahuteau, S., & Iskerwood, L. (2019). Evaluation of the NDIS: Final report. National Institute of Labour Studies, Flinders University. https://doi.org/10.1332/239788218X15440231663890
   Google Scholar
• McKenzie, K., & Smith-Merry, J. (2023). Responding to complexity in the context of the National Disability Insurance Scheme. Social Policy and Society, 22(1), 139–154. https://doi.org/10.1017/S1474746422000562
   Web of Science ®Google Scholar
• National Aged Care Alliance. (2016). Improving the interface between the aged care and disability sectors. NACA.
   Google Scholar
• National Disability Insurance Scheme. (2023). Intellectual disability data to 31 March 2023. Australian Government.
   Google Scholar
• National Disability Insurance Scheme Act. (2013). Australian Government.
   Google Scholar
• Ortlipp, M. (2008). Keeping and using reflective journals in the qualitative research process. The Qualitative Report, 13(4), 695–705.
   Google Scholar
• Schepens, H. R., Van Puyenbroeck, J., & Maes, B. (2019). How to improve the quality of life of elderly people with intellectual disability: A systematic literature review of support strategies. Journal of Applied Research in Intellectual Disabilities, 32(3), 483–521. https://doi.org/10.1111/jar.12559
   PubMed Web of Science ®Google Scholar
• Strydom, A., Dodd, K., Uchendu, N., & Wilson, S. (2020). Dementia and other disorders associated with ageing in people with intellectual disability. In S. Bhaumik & R. Alexander (Eds.), Oxford textbook of the psychiatry of intellectual disability (pp. 83–90). Oxford University Press.
   Google Scholar
• Thalen, M., Van Oorsouw, W. M., Volkers, K. M., & Embregts, P. J. (2023). Support needs of older people with intellectual disabilities: An exploratory study among psychologists in the Netherlands. Journal of Intellectual Disabilities, 27(1), 266–277. https://doi.org/10.1177/17446295211062399
   PubMed Web of Science ®Google Scholar
• Tune, D. (2019). Review of the National Disability Insurance Act 2013: Removing red tape and implementing the NDIS participant service guarantee. Australian Department of Social Services.
   Google Scholar
• Wark, S., Hussain, R., & Edwards, H. (2015). Assisting individuals ageing with learning disability: Support worker perspectives. Tizard Learning Disability Review, 20(4), 213–222. https://doi.org/10.1108/TLDR-02-2015-0008
   Web of Science ®Google Scholar
• Webber, R., Bowers, B., & McKenzie-Green, B. (2010). Staff responses to age-related health changes in people with an intellectual disability in group homes. Disability & Society, 25(6), 657–671. https://doi.org/10.1080/09687599.2010.505736
   Web of Science ®Google Scholar
• WHO. (2015). World report on ageing and health. World Health Organization.
   Google Scholar