Older people who stutter: barriers to communication and perceptions of treatment needs

References

• Alm, P.. 2004. Stuttering and the basal ganglia circuits: a critical review of possible relations. Journal of Communication Disorders. 37, 325–369.
   PubMed Web of Science ®Google Scholar
• Barbour, R. S.. 2001. Checklists for improving rigour in Qualitative research: a case of the tail wagging the dog?. British Medical Journal. 322, 1115–1117.
   PubMed Web of Science ®Google Scholar
• Barrett, J., Kirk, S.. 2000. Running focus groups with elderly and disabled elderly participants. Applied Ergonomics. 31, 621–629.
   PubMed Web of Science ®Google Scholar
• Block, S., Onslow, M., Packman, A., Gray, B., Dacakis, G.. 2005. Treatment of chronic stuttering: outcomes from a student training clinic. International Journal of Language and Communication Disorders. 40, 455–466.
   PubMed Web of Science ®Google Scholar
• Boberg, E., Kully, D.. 1994. Long-term results of an intensive treatment program for adults and adolescents who stutter. Journal of Speech and Hearing Research. 37, 1050–1059.
   PubMedGoogle Scholar
• Boyatzis, R. E., 1998, Transforming Qualitative Information; Thematic Analysis and Code Development Thousand Oaks, CA: Sage.
   Google Scholar
• Bricker-Katz, G., Lincoln, M., McCabe, P.. A lifetime of stuffering: How emotional reactions impact activities and participation in older people who stuffer. Disability and Rehabilitation. Forthcoming.
   Google Scholar
• Bricker-Katz, G., Lincoln, M., McCabe, P.. The persistence of stuttering behaviors in people 55 years and older. Disability and Rehabilitation. 2008 Epub ahead of print. 19 December 2008.
   Google Scholar
• Caruso, A. J., Mueller, P. B., Shadden, B.. 1995. Effects of ageing on speech and voice. Physical and Occupational Therapy in Geriatrics. 13, 63–79.
   Google Scholar
• Corcoran, J., Stewart, M.. 1998. Stories of stuttering: a qualitative analysis of interview narratives. Journal of Fluency Disorders. 23, 247–264.
   Web of Science ®Google Scholar
• Craig, A., Tran, Y.. 2006. Fear of speaking: chronic anxiety and stammering. Advances in Psychiatric Treatment. 12, 63–68.
   Google Scholar
• Cream, A., Onslow, M., Packman, A., Llewellyn, G.. 2003. Protection from harm: the experience of adults after therapy with prolonged-speech. International Journal of Language and Communication Disorders. 38, 379–395.
   PubMed Web of Science ®Google Scholar
• Crichton-Smith, I.. 2002. Communicating in the real world: accounts from people who stammer. Journal of Fluency Disorders. 27, 333–351.
   PubMed Web of Science ®Google Scholar
• DiLollo, A., Neimeyer, R. A., Manning, W. H.. 2002. A personal construct psychology view of relapse: indications for a narrative therapy component to stuttering treatment. Journal of Fluency Disorders. 27, 19–40.
   PubMed Web of Science ®Google Scholar
• Finn, P., Howard, R., Kubala, R.. 2005. Unassisted recovery from stuttering: self-perceptions of current speech behavior, attitudes, and feelings. Journal of Fluency Disorders. 30, 281–305.
   PubMed Web of Science ®Google Scholar
• Gabel, R. M., Blood, G. W., Tellis, G. M., Althouse, M. T.. 2004. Measuring role entrapment of people who stutter. Journal of Fluency Disorders. 29, 27–49.
   PubMed Web of Science ®Google Scholar
• Guitar, B., 2006, Stuttering: An Integrated Approach to Its Nature and Treatment Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• Hayhow, R., Stewart, T.. 2006. Introduction to qualitative research and its application to stuttering. International Journal of Language and Communication Disorders. 41, 475–493.
   PubMed Web of Science ®Google Scholar
• Healey, E. C., Gabel, R. M., Daniels, D. E., Kawai, N.. 2007. The effects of self-disclosure and non self-disclosure of stuttering on listeners' perception of a person who stutters. Journal of Fluency Disorders. 32, 51–69.
   Google Scholar
• Hearne, A., Packman, A., Onslow, M., Quine, S.. 2008. Stuttering and its treatment in adolescence: the perceptions of people who stutter. Journal of Fluency Disorders. 33, 81–98.
   PubMed Web of Science ®Google Scholar
• James, S. E., Brumfitt, S. M., Cudd, P. A.. 1999. Communicating by telephone: views of a group of people with stuttering impairment. Journal of Fluency Disorders. 24, 299–317.
   Web of Science ®Google Scholar
• Kalinowski, J. S., Saltuklaroglu, T., 2006, Stuttering San Diego, CA: Plural.
   Google Scholar
• Kathard, H., Pillay, M., Samuel, M., Reddy, V.. 2004. Genesis of self-identity as disother: life histories of people who stutter. South African Journal of Communication Disorders — Die Suid-Afrikaanse Tydskrif vir Kommunikasieafwykings. 51, 4–14.
   PubMedGoogle Scholar
• Kitzinger, J.. 1994. The methodology of focus groups: the importance of interactions between research participants. Sociology of Health and Illness. 16, 103–121.
   Web of Science ®Google Scholar
• Klein, J. F., Hood, S. B.. 2004. The impact of stuttering on employment opportunities and job performance. Journal of Fluency Disorders. 29, 255–273.
   PubMed Web of Science ®Google Scholar
• Klompas, M., Ross, E.. 2004. Life experiences of people who stutter, and the perceived impact of stuttering on quality of life: personal accounts of South African individuals. Journal of Fluency Disorders. 29, 275–305.
   PubMed Web of Science ®Google Scholar
• Kroll, T., Barbour, R., Harris, J.. 2007. Using focus groups in disability research. Qualitative Health Research. 17 5: 690–698.
   PubMed Web of Science ®Google Scholar
• Krueger, R. A., 1994, Focus groups: A Practical Guide to Applied Research Thousand Oaks, CA: Sage.
   Google Scholar
• Lincoln, Y. S., Guba, E. G., 1985, Naturalistic Inquiry Beverley Hills, CA: Sage.
   Google Scholar
• Lubinski, R., Welland, R. J.. 1997. Normal aging and environmental effects on communication. Seminars in Speech and Language. 18, 107–125.
   PubMedGoogle Scholar
• Manning, W., Daily, D., Wallace, S.. 1984. Attitude and personality characteristics of older stutterers. Journal of Fluency Disorders. 9, 207–215.
   Web of Science ®Google Scholar
• St Clare, T., Menzies, R. G., Onslow, M., Packman, A., Thompson, R., Block, S.. Unhelpful thoughts and beliefs linked to social anxiety in stuttering: development of a measure. Epub ahead of print. 25 September 2008. International Journal of Language and Communication Disorder. 2008.
   Google Scholar
• Messenger, M., Onslow, M., Packman, A., Menzies, R.. 2004. Social anxiety in stuttering: measuring negative social expectancies. Journal of Fluency Disorders. 29, 201–212.
   PubMed Web of Science ®Google Scholar
• Morse, J. M., Barrett, M., Mayan, M., Olson, K., Spiers, J.. 2002. Verification strategies for establishing reliability and validity in qualitative research. International Journal of Qualitative Methods. 1 2.
   Google Scholar
• Nussbaum, J. F., Coupland, J., 2004, Handbook of Communication and Aging Research Retrieved 27 February 2009. http: //www.ualberta.ca/∼ijqm. Mahwah, NJ: Lawrence Erlbaum Associates.
   Google Scholar
• O'Hanlon, A., Coleman, P., 2004, Attitudes towards ageing: adaptation, development and growth into later years. In Nussbaum J. F., Coupland J. (eds), Handbook of Communication and Ageing Research. 2nd Edn Mahwah, NJ: Lawrence Erlbaum Associates, 31–69.
   Google Scholar
• Onslow, M.. 2006. Connecting stuttering management and measurement: V. Deduction and induction in the development of stuttering treatment outcome measures and stuttering treatments. International Journal of Language and Communication Disorders. 41, 407–421.
   PubMed Web of Science ®Google Scholar
• Peters, H. F. M., Starkweather, W. C.. 1989. Development of stuttering throughout life. Journal of Fluency Disorders. 14, 303–321.
   Web of Science ®Google Scholar
• Silverman, F. H., 1992, Stuttering and Other Fluency Disorders Englewood Cliffs, NJ: Prentice-Hall.
   Google Scholar
• Stewart, T., Richardson, G.. 2004. A qualitative study of therapeutic effect from a user's perspective. Journal of Fluency Disorders. 29, 95–108.
   PubMed Web of Science ®Google Scholar
• Stewart, D. W., Shamdasani, P. N., Rook, D. W., 2007, Focus Groups: Theory and Practice Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Tellis, G. M., Bressler, L., Emerick, K.. 2008. An exploration of clinicians' views about assessment and treatment of stuttering. Perspectives on Fluency and Fluency Disorders. 18 1: 16–23.
   Google Scholar
• Tennstedt, S. L.. 2000. Empowering older patients to communicate more effectively in the medical encounter. Clinics in Geriatric Medicine. 16, 61–70.
   PubMed Web of Science ®Google Scholar
• , World Health Organisation, 2001, International Classification of Functioning, Disability and Health Geneva: World Health Organisation.
   Google Scholar
• , World Health Organization, 2008, Definition of an older or elderly person: proposed Working Definition of an Older Person in Africa for the MDS Project. Health Statistics and Health Information Systems. (available at: http://www.who.int/healthinfo/survey/ageingdefnolder/en/index.html) (accessed on 7 June 2008).
   Google Scholar
• Worrall, L. E., Hickson, L. M., 2003, Communication Disability in Aging: From Prevention to Intervention Clifton Park, NY: Delmar Learning.
   Google Scholar
• Yairi E., Grinager-Ambrose N., 2005, Early Childhood Stuttering for Clinicians by Clinicians Austin, TX: PRO-ED.
   Google Scholar
• Yaruss, J. S.. 2007. Application of the ICF in fluency disorders. Seminars in Speech and Language. 28, 312–322.
   PubMedGoogle Scholar
• Yaruss, S., Quesal, R., Reeves, L., Molt, L., Kluetz, B., Caruso, A.. 2002. Speech treatment and support group experiences of people who participate in the National Stuttering Association. Journal of Fluency Disorders. 27, 115–134.
   PubMed Web of Science ®Google Scholar