Finding out about sperm banking: what information is available online for men diagnosed with cancer?

References

• Achille, M. A., Rosberger, Z., Robitaille, R., Lebel, S., Gouin, J. P., Bultz, B. D. et al. (2006). Facilitators and obstacles to sperm banking in young men receiving gonadotoxic chemotherapy for cancer: the perspective of survivors and health care professionals. Human reproduction, 21, 3206–3216.
   PubMed Web of Science ®Google Scholar
• Boulos, M. N. (2005). British internet-derived patient information on diabetes mellitus: is it readable? Diabetes technology & therapeutics, 7, 528–535.
   PubMedGoogle Scholar
• Canada, A. L. & Schover, L. R. (2005). Research promoting better patient education on reproductive health after cancer. Journal of the National Cancer Institute. Monographs, 98–100.
   Google Scholar
• Chestnutt, I. G. (2004). Internet-derived patient information on common oral pathologies: is it readable? Primary dental care, 11, 51–54.
   Google Scholar
• Edge, B., Holmes, D., & Makin, G. (2006). Sperm banking in adolescent cancer patients. Archives of disease in childhood, 91, 149–152.
   PubMedGoogle Scholar
• Eiser, C., Arden-Close, E., Morris, K., & Pacey, A. A. (2011). The legacy of sperm banking: how fertility monitoring and disposal of sperm are linked with views of cancer treatment. Human reproduction, 26, 2791–2798.
   PubMedGoogle Scholar
• ESHRE. (2004). Taskforce 7: Ethical considerations for the cryopreservation of gametes and reproductive tissues for self-use. Human Reproduction, 19, 460–462.
   Google Scholar
• Experian Hitwise. (2011). http://www.hitwise.com/uk/datacentre/main/dashboard-7323.html.
   Google Scholar
• Eysenbach, G. & Köhler, C. (2002). How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews. BMJ, 324, 573–577.
   PubMed Web of Science ®Google Scholar
• Flesch, R. (1948). A new readability yardstick. The Journal of applied psychology, 32, 221–233.
   PubMed Web of Science ®Google Scholar
• Freda, M. C., Damus, K., & Merkatz, I. R. (1999). Evaluation of the readability of ACOG patient education pamphlets. The American College of Obstetricians and Gynecologists. Obstetrics and gynecology, 93(5 Pt 1), 771–774.
   PubMed Web of Science ®Google Scholar
• Fulcher, G. (1997). Text difficulty and accessibility: Reading formulae and expert judgement. System, 25, 497–513.
   Google Scholar
• Future Foundations. (2009). The future of remote diagnosis and prescription services. An analysis commissioned by Lloyds Pharmacy. Available via http://s3.amazonaws.com/zanran_storage/www.lloydspharmacy.com/ContentPages/43581275.pdf
   Google Scholar
• Gilbert, E., Adams, A., Mehanna, H., Harrison, B., & Hartshorne, G. M. (2011). Who should be offered sperm banking for fertility preservation? A survey of UK oncologists and haematologists. Annals of oncology, 22, 1209–1214.
   PubMed Web of Science ®Google Scholar
• Hobbie, W. L., Ogle, S. K., & Ginsberg, J. P. (2009). Fertility concerns for young males undergoing cancer therapy. Seminars in oncology nursing, 25, 245–250.
   Google Scholar
• Huyghe, E., Martinetti, P., Sui, D., & Schover, L. R. (2009). Banking on Fatherhood: pilot studies of a computerized educational tool on sperm banking before cancer treatment. Psychooncology, 18, 1011–1014.
   PubMed Web of Science ®Google Scholar
• James, N., Daniels, H., Rahman, R., McConkey, C., Derry, J., & Young, A. (2007). A study of information seeking by cancer patients and their carers. Clinical oncology, 19, 356–362.
   PubMed Web of Science ®Google Scholar
• Jona, K. & Gerber, A. (2010). MyOncofertility.org: a web-based patient education resource supporting decision making under severe emotional and cognitive overload. Cancer treatment and research, 156, 345–361.
   Google Scholar
• Kessels, R. P. (2003). Patients’ memory for medical information. Journal of the Royal Society of Medicine, 96, 219–222.
   PubMed Web of Science ®Google Scholar
• Klare, G. (1984). Readability. In: Pearson P. G., ed. Handbook of reading research. New York: Longman; 681–744.
   Google Scholar
• Kusec, S., Brborovic, O., & Schillinger, D. (2003). Diabetes websites accredited by the Health On the Net Foundation Code of Conduct: readable or not? Studies in health technology and informatics, 95, 655–660.
   PubMedGoogle Scholar
• Landis, J. R. & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159–174.
   PubMed Web of Science ®Google Scholar
• Lass, A., Akagbosu, F., & Brinsden, P. (2001). Sperm banking and assisted reproduction treatment for couples following cancer treatment of the male partner. Human reproduction update, 7, 370–377.
   PubMed Web of Science ®Google Scholar
• Lee, S. J., Schover, L. R., Partridge, A. H., Patrizio, P., Wallace, W. H., Hagerty, K. et al. American Society of Clinical Oncology. (2006). American Society of Clinical Oncology recommendations on fertility preservation in cancer patients. Journal of clinical oncology, 24, 2917–2931.
   PubMed Web of Science ®Google Scholar
• Mayer, D. K., Terrin, N. C., Kreps, G. L., Menon, U., McCance, K., Parsons, S. K. et al. (2007). Cancer survivors information seeking behaviors: a comparison of survivors who do and do not seek information about cancer. Patient education and counseling, 65, 342–350.
   PubMed Web of Science ®Google Scholar
• McHugh, S. M., Corrigan, M., Morney, N., Sheikh, A., Lehane, E., & Hill, A. D. (2011). A quantitative assessment of changing trends in internet usage for cancer information. World journal of surgery, 35, 253–257.
   Google Scholar
• National Collaborating Centre for Women’s and Children’s Health. (2004). Fertility: assessment and treatment for people with fertility problems. commissioned by the National Institute for Clinical Excellence. London: RCOG Press.
   Google Scholar
• Office for National Statistics. (2011). Internet Access-Households and Individuals. http://www.ons.gov.uk/ons/rel/rdit2/internet-access---households-and-individuals/2011/stb-internet-access-2011.html.
   Google Scholar
• Pacey, A. A. & Eiser, C. (2011). Banking sperm is only the first of many decisions for men: what healthcare professionals and men need to know. Human fertility, 14, 208–217.
   PubMed Web of Science ®Google Scholar
• Pacey, A. A. (2007). Fertility issues in survivors from adolescent cancers. Cancer treatment reviews, 33, 646–655.
   PubMed Web of Science ®Google Scholar
• Quinn, G. P., Vadaparampil, S. T., Gwede, C. K., Miree, C., King, L. M., Clayton, H. B. et al. (2007). Discussion of fertility preservation with newly diagnosed patients: oncologists’ views. Journal of cancer survivorship, 1, 146–155.
   PubMedGoogle Scholar
• Quinn, G. P., Vadaparampil, S. T., Malo, T., Reinecke, J., Bower, B., Albrecht, T. et al. (2011). Oncologists’ use of patient educational materials about cancer and fertility preservation. Psychooncology. Doi:10.1002/pon. 2022.
   Google Scholar
• Quinn, G. P., & Vadaparampil, S. T.; Fertility Preservation Research Group. (2009). Fertility preservation and adolescent/young adult cancer patients: physician communication challenges. The Journal of adolescent health, 44, 394–400.
   PubMed Web of Science ®Google Scholar
• Royal College of Physicians. (2007). The effects of cancer treatment on reproductive functions. Guidance on Management. London: Royal College of Physicians. 72 pp.
   Google Scholar
• Schover, L. R., Brey, K., Lichtin, A., Lipshultz, L. I., & Jeha, S. (2002). Oncologists’ attitudes and practices regarding banking sperm before cancer treatment. Journal of clinical oncology, 20, 1890–1897.
   PubMed Web of Science ®Google Scholar
• Schover, L. R., Rybicki, L. A., Martin, B. A., & Bringelsen, K. A. (1999). Having children after cancer. A pilot survey of survivors’ attitudes and experiences. Cancer, 86, 697–709.
   PubMed Web of Science ®Google Scholar
• Stinson, J. N., White, M., Breakey, V., Chong, A. L., Mak, I., Low, K. K. et al. (2011). Perspectives on quality and content of information on the internet for adolescents with cancer. Pediatric blood & cancer, 57, 97–104.
   PubMed Web of Science ®Google Scholar
• Vadaparampil, S., Quinn, G., King, L., Wilson, C., & Nieder, M. (2008). Barriers to fertility preservation among pediatric oncologists. Patient education and counseling, 72, 402–410.
   PubMed Web of Science ®Google Scholar
• Wilford, H. & Hunt, J. (2003). An overview of sperm cryopreservation services for adolescent cancer patients in the United Kingdom. European journal of oncology nursing, 7, 24–32.
   PubMedGoogle Scholar
• Zapzalka, D. M., Redmon, J. B., & Pryor, J. L. (1999). A survey of oncologists regarding sperm cryopreservation and assisted reproductive techniques for male cancer patients. Cancer, 86, 1812–1817.
   PubMed Web of Science ®Google Scholar
• Zebrack, B. (2008). Information and service needs for young adult cancer patients. Supportive care in cancer, 16, 1353–1360.
   PubMed Web of Science ®Google Scholar
• Ziebland, S., Chapple, A., Dumelow, C., Evans, J., Prinjha, S., & Rozmovits, L. (2004). How the internet affects patients’ experience of cancer: a qualitative study. BMJ, 328, 564.
   PubMed Web of Science ®Google Scholar