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REPORTS

Non-invasive ventilation and gastrostomy may not impact overall quality of life in patients with ALS

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Pages 55-58 | Received 30 Jul 2011, Accepted 13 Nov 2011, Published online: 03 Jan 2012

References

  • Bensimon G, Lacomblez L, Meininger V, ALS/Riluzole Study Group. A controlled trial of riluzole in amyotrophic lateral sclerosis. N Engl J Med. 1994;330:585–91.
  • Lacomblez L, Bensimon G, Leigh PN, Guillet P, Meininger V, ALS/Riluzole Study Group II. Dose-ranging study of riluzole in amyotrophic lateral sclerosis. Lancet. 1996;347:1425–31.
  • Mazzini L, Corra T, Zaccala M, Mora G, del Piano M, Galante M. Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis. J Neurol. 1995;242:695–8.
  • Del Piano M, Occhipinti P, Orsello M, Ballare M. Percutaneous endoscopic gastrostomy (PEG) reduces complications and improves survival in amyotrophic lateral sclerosis (ALS). Gastointest Endosc 1999;49:AB192.
  • Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomized controlled trial. Lancet Neurol 2006;5:140–147.
  • Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, . Practice parameter update: the care of the patient with amyotrophic lateral sclerosis. Drug, nutritional, and respiratory therapies (an evidence based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2009;73:1218–26.
  • Lyall RA, Donaldson N, Fleming T, Wood C, Newsom-Davis I, Polkey MI, . A prospective study of quality of life in ALS patients treated with non-invasive ventilation. Neurology. 2001;57:153–6.
  • Jackson CE, Rosenfeld J, Moore DH, Bryan WW, Barohn RJ, Wrench M, . A preliminary evaluation of a prospective study of pulmonary function studies and symptoms of hypoventilation in ALS/MND patients. J Neurol Sci. 2001;191:75–8.
  • Bourke SC, Bullock RE, Williams TL, Shaw PJ, Gibson GJ. Non-invasive ventilation in ALS: indications and effect on quality of life. Neurology. 2003;61:171–7.
  • Butz M, Wollinsky KH, Wiedemuth-Catrinescu U, Sperfeld A, Winter S, Mehrkens HH, . Longitudinal effects of non-invasive positive-pressure ventilation in patients with amyotrophic lateral sclerosis. Am J Phys Med Rehabil. 2003;82:597–604.
  • Gill TM, Feinstein AR. A critical appraisal of the quality of quality-of-life measurements. JAMA. 1994;272:619–26.
  • World Health Organization. The World Health Organization Quality of Life Assessment. Field Trial Version for Adults. Administration Manual. Geneva: World Health Organization; 1995.
  • World Health Organization. WHOQoL: measuring quality of life. Geneva: World Health Organization; 1997.
  • Simmons Z, Felgoise SH, Bremer BA, Walsh SM, Hufford DJ, Bromberg MB, . The ALSSQoL: balancing physical and non-physical factors in assessing quality of life in ALS. Neurology. 2006;67:1659–64.
  • Felgoise S, Rodriguez J, Stephens H, Walsh S, Bremer B, Simmons Z. Validation of a shorter ALS-specific quality of life instrument: the ALSSQoL-R. Amyotroph Lateral Scler 2008;9(Suppl 1):12–3.
  • Brooks BR, Miller RG, Swash M, Munsat TL, for the World Federation of Neurology Research Group on Motor Neuron Diseases. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2000; 1:293–9.
  • Cedarbaum J, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, . The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. J Neurol Sci. 1999;169:13–21.
  • Singer JD, Willett JB. Applied Longitudinal Data Analysis: Modeling Change and Event Occurrence. New York: Oxford University Press; 2003.
  • Robbins, RA, Simmons Z, Bremer BA, Walsh SM, Fischer S. Quality of life in ALS is maintained as physical function declines. Neurology. 2001;56:442–4.
  • van der Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, van der Fraaff, . Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005;65:1264–7.
  • Wilson IB. Clinical understanding and clinical implications of response shift. Soc Sci Med. 1999;48:1577–88.
  • Carr AJ, Gibson B, Robinson PG. Measuring quality of life: is quality of life determined by expectations or experience? Br Med J. 2001;322:1240–3.
  • Bromberg MB, Forshew DA. Comparison of instruments addressing quality of life in patients with ALS and their caregivers. Neurology. 2002;58:320–2.
  • Neudert C, Wasner M, Borasio GD. Individual quality of life is not correlated with health related quality of life or physical function in patients with amyotrophic lateral sclerosis. J Palliat Med. 2004;7:551–7.
  • de Groot IJM, Post MWM, van Heuveln T, van den Berg LH, Lindeman E. Cross-sectional and longitudinal correlations between disease progression and different health-related quality of life domains in persons with amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2007;8:356–61.

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