Advanced search
Publication Cover
Amyotrophic Lateral Sclerosis Volume 13, 2012 - Issue 3
Journal homepage
218
Views
19
CrossRef citations to date
0
Altmetric
ORIGINAL ARTICLE

Predictors of emergent feeding tubes and tracheostomies in amyotrophic lateral sclerosis (ALS)

Amy Y. TsouRobert Wood Johnson Foundation Veterans Affairs Clinical Scholars Program, University of Pennsylvania;Department of Neurology, Perelman School of Medicine at the University of PennsylvaniaCorrespondence[email protected]
,
Jason KarlawishDepartments of Medicine and Medical Ethics, Division of Geriatrics, Perelman School of Medicine
,
Leo McCluskeyDepartment of Neurology, Perelman School of Medicine at the University of Pennsylvania
,
Sharon X. XieDepartment of Biostatistics and Epidemiology, Perelman School of Medicine at the University of Pennsylvania
&
Judith A. LongPhiladelphia VA Center for Health Equity Research and Promotion, Philadelphia;Division of General Internal Medicine, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania, USA
Pages 318-325 | Received 27 Oct 2011, Accepted 29 Jan 2012, Published online: 08 May 2012

References

  • Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. 2001.
  • Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, . Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008;300:1665−73.
  • Zhang B, Wright AA, Huskamp HA, Nilsson ME, Maciejewski ML, Earle CC, . Health care costs in the last week of life: associations with end-of-life conversations. Arch Intern Med. 2009;169:480−8.
  • Chio A, Bottacchi E, Buffa C, Mutani R, Mora G. Positive effects of tertiary centers for amyotrophic lateral sclerosis on outcome and use of hospital facilities. J Neurol Neurosurg Psychiatry. 2006;77:948−50.
  • van den Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, van der Graaff MM, . Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005;65:1264−7.
  • Traynor BJ, Alexander M, Corr B, Frost E, Hardiman O. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996−2000. J Neurol Neurosurg Psychiatry. 2003; 74:1258−61.
  • https://secure.ssa.gov/poms.nsf/lnx/0423580001. Accessed April 2, 2011.
  • http://www.census.gov/main/www/cen2000.html. Accessed April 2, 2011.
  • Elixhauser A, Steiner C, Harris DR, Coffey RM. Comorbidity measures for use with administrative data. Med Care. 1998;36:8−27.
  • Wright AA, Keating NL, Balboni TA, Matulonis UA, Block SD, Prigerson HG. Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers’ mental health. J Clin Oncol. 2010;28:4457−64.
  • Tang ST, McCorkle R. Determinants of congruence between the preferred and actual place of death for terminally ill cancer patients. J Palliat Care. 2003;19:230−7.
  • Pritchard RS, Fisher ES, Teno JM, Sharp SM, Reding DJ, Knaus WA, . Influence of patient preferences and local health system characteristics on the place of death. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Risks and Outcomes of Treatment. J Am Geriatr Soc. 1998;46:1242−50.
  • Katzberg HD, Benatar M. Enteral tube feeding for amyotrophic lateral sclerosis/motor neuron disease. Cochrane Database Syst Rev. 2011;1:CD004030.
  • Borum ML, Lynn J, Zhong Z. The effects of patient race on outcomes in seriously ill patients in SUPPORT: an overview of economic impact, medical intervention, and end-of-life decisions. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. J Am Geriatr Soc. 2000;48(Suppl):S194−8.
  • Gordon HS, Street RL Jr, Sharf BF, Souchek J. Racial differences in doctors’ information-giving and patients’ participation. Cancer. 2006;107:1313−20.
  • Mitsumoto H, Davidson M, Moore D, Gad N, Brandis M, Ringel S, . Percutaneous endoscopic gastrostomy (PEG) in patients with ALS and bulbar dysfunction. Amyotroph Lateral Scler Other Motor Neuron Disord. 2003;4: 177−85.
  • Miller RG, Rosenberg JA, Gelinas DF, Mitsumoto H, Newman D, Sufit R, . Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence based review): report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology. 1999;52:1311−23.
  • Miller RG, Anderson F, Brooks BR, Mitsumoto H, Bradley WG, Ringel SP. Outcomes research in amyotrophic lateral sclerosis: lessons learned from the amyotrophic lateral sclerosis clinical assessment, research, and education database. Ann Neurol. 2009;65 (Suppl 1):S24−8.
  • Chio A, Ciccone G, Calvo A, Vercellino M, Di Vito N, Ghiglione P, . Validity of hospital morbidity records for amyotrophic lateral sclerosis. A population based study. J Clin Epidemiol. 2002;55:723−7.
  • Albert SM, Murphy PL, Del Bene ML, Rowland LP. Prospective study of palliative care in ALS: choice, timing, outcomes. J Neurol Sci. 1999;169:108−13.
  • Olney RK, Murphy J, Forshew D, Garwood E, Miller BL, Langmore S, . The effects of executive and behavioral dysfunction on the course of ALS. Neurology. 2005; 65:1774−7.
  • Ringholz GM, Appel SH, Bradshaw M, Cooke NA, Mosnik DM, Schulz PE. Prevalence and patterns of cognitive impairment in sporadic ALS. Neurology. 2005;65:586−90.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.