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Research Papers

Tele-assistance in patients with amyotrophic lateral sclerosis: long term activity and costs

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Pages 494-500 | Received 25 Jul 2011, Accepted 01 Dec 2011, Published online: 07 Feb 2012

References

  • Nijeweme-d’Hollosy WO, Janssen EP, Huis in ‘t Veld RM, Spoelstra J, Vollenbroek-Hutten MM, Hermens HJ. Tele-treatment of patients with amyotrophic lateral sclerosis (ALS). J Telemed Telecare 2006;12 Suppl 1:31–34.
  • Pinto A, Almeida JP, Pinto S, Pereira J, Oliveira AG, de Carvalho M. Home telemonitoring of non-invasive ventilation decreases healthcare utilisation in a prospective controlled trial of patients with amyotrophic lateral sclerosis. J Neurol Neurosurg Psychiatr 2010;81:1238–1242.
  • Vitacca M, Comini L, Tentorio M, Assoni G, Trainini D, Fiorenza D, Morini R, et al. A pilot trial of telemedicine-assisted, integrated care for patients with advanced amyotrophic lateral sclerosis and their caregivers. J Telemed Telecare 2010;16:83–88.
  • Vitacca M, Bazza A, Bianchi L, Gilè S, Assoni G, Porta R, Bertella E, et al. Tele-assistance in chronic respiratory failure: patients’ characterization and staff workload of 5-year activity. Telemed J E Health 2010;16:299–305.
  • Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, Nakanishi A. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci 1999;169:13–21.
  • Brooks BR, Miller RG, Swash M, Munsat TL; World Federation of Neurology Research Group on Motor Neuron Diseases. El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord 2000;1:293–299.
  • Vitacca M, Bianchi L, Guerra A, Fracchia C, Spanevello A, Balbi B, Scalvini S. Tele-assistance in chronic respiratory failure patients: a randomised clinical trial. Eur Respir J 2009;33:411–418.
  • de Almeida JP, Pinto AC, Pereira J, Pinto S, de Carvalho M. Implementation of a wireless device for real-time telemedical assistance of home-ventilated amyotrophic lateral sclerosis patients: a feasibility study. Telemed J E Health 2010;16:883–888.
  • Paré G, Jaana M, Sicotte C. Systematic review of home telemonitoring for chronic diseases: the evidence base. J Am Med Inform Assoc 2007;14:269–277.
  • Mays GP, Smith SA, Ingram RC, Racster LJ, Lamberth CD, Lovely ES. Public health delivery systems: evidence, uncertainty, and emerging research needs. Am J Prev Med 2009;36:256–265.
  • Vitacca M, Mazzù M, Scalvini S. Socio-technical and organizational challenges to wider e-Health implementation. Chron Respir Dis 2009;6:91–97.
  • European Commission communication.“Telemedicine for the benefit of patients, healthcare systems and society”. Commission staff working paper sec (2009) 943 final June 2009. Available from: http://ec.europa.eu/information_society/activities/health/policy/telemedicine/index_en.htm
  • Testi A, Benacchio MPianificazione dei posti letto di un reparto ospedaliero: una simulazione. In: Franco Angeli, ed. Milano: Economia Pubblica, 2001;4:1–16.
  • Mitchell JD, Callagher P, Gardham J, Mitchell C, Dixon M, Addison-Jones R, Bennett W, O’Brien MR. Timelines in the diagnostic evaluation of people with suspected amyotrophic lateral sclerosis (ALS)/motor neuron disease (MND) – a 20-year review: can we do better? Amyotroph Lateral Scler 2010;11:537–541.
  • Mateen FJ, Carone M, Sorenson EJ. Patients who survive 5 years or more with ALS in Olmsted County, 1925-2004. J Neurol Neurosurg Psychiatr 2010;81:1144–1146.
  • Chiò A. Mortality trends in ALS: an increasingly intricate puzzle. Lancet Neurol 2005;4:453–454.
  • Vitacca M, Clini E, Facchetti D, Pagani M, Poloni M, Porta R, Ambrosino N. Breathing pattern and respiratory mechanics in patients with amyotrophic lateral sclerosis. Eur Respir J 1997;10:1614–1621.
  • Marin B, Couratier P, Preux PM, Logroscino G. Can mortality data be used to estimate amyotrophic lateral sclerosis incidence? Neuroepidemiology 2011;36:29–38.
  • Beghi E, Chiò A, Couratier P, Esteban J, Hardiman O, Logroscino G, Millul A, et al.; Eurals Consortium. The epidemiology and treatment of ALS: focus on the heterogeneity of the disease and critical appraisal of therapeutic trials. Amyotroph Lateral Scler 2011;12:1–10.
  • Chiò A, Calvo A, Ghiglione P, Mazzini L, Mutani R, Mora G; PARALS. Tracheostomy in amyotrophic lateral sclerosis: a 10-year population-based study in Italy. J Neurol Neurosurg Psychiatr 2010;81:1141–1143.
  • Vianello A, Arcaro G, Palmieri A, Ermani M, Braccioni F, Gallan F, Soraru’ G, Pegoraro E. Survival and quality of life after tracheostomy for acute respiratory failure in patients with amyotrophic lateral sclerosis. J Crit Care 2011;26:329.e7–329.14.
  • Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomised controlled trial. Lancet Neurol 2006;5:140–147.

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