Linking autism measures with the ICF-CY: Functionality beyond the borders of diagnosis and interrater agreement issues

References

• World Health Organization. International classification of functioning, disability and health, version for children and youth. World Health Organization, GenèveSwitzerland 2007
   Google Scholar
• World Health Organization. International classification of diseases and health related problems10th. World Health Organization, GenèveSwitzerland 2007
   Google Scholar
• World Health Organization. International classification of functioning, disability and health. World Health Organization, GenèveSwitzerland 2001
   Google Scholar
• American Psychiatric Association. Diagnostic and statistical manual of mental disorders, fourth edition (DSM-IV). American Psychiatric Association, Arlington, VA 2000
   Google Scholar
• Simeonsson RJ. Appendix C: Defining and classifying disability in children. Workshop on disability in America: A new look, MJ Field, A Jette, L Martin. National Academy Press, Washington, DC 2006; 67–87
   Google Scholar
• Westbrook LE, Silver EJ, Stein RK. Implications for estimates of disability in children. Pediatrics 1998; 101(6)1025–1030
   PubMed Web of Science ®Google Scholar
• Engel G. The need for a new medical model: A challenge for biomedicine. Science 1977; 196(4286)129–136
   PubMed Web of Science ®Google Scholar
• Bronfenbrenner U, Morris P. The bioecological model of human development. Handbook of child psychology, W Damon, RM Lerner. Wiley, New York 1998; 1: 993–1028
   Google Scholar
• Sameroff AJ, Chandler MJ. Reproductive risk and the continuum of caretaking casualty. Review of child development research, FD Horowitz, M Hetherington, S Scarr-Salapatek, G Siegel. Lawrence Erlbaum Associates, Hillsdale, NJ 1975; 4: 83–104
   Google Scholar
• Sameroff AJ, Fiese BH. Transactional regulation and early intervention. Handbook of early childhood intervention, SJ Meisels, P Shonkoff. Cambridge University Press, Cambridge 1990; 119–149
   Google Scholar
• Simeonsson RJ, Leonardi M, Lollar D, Bjorck-Akesson E, Hollenweger J, Martinuzzi A. Applying the international classification of functioning, disability and health (ICF) to measure childhood disability. Disability and Rehabilitation 2003; 25(11/12)602–610
   PubMed Web of Science ®Google Scholar
• Badley E. Enhancing the conceptual clarity of the activity and participation components of the international classification of functioning, disability, health. Social Science and Medicine 2008; 66(11)2335–2345
   PubMed Web of Science ®Google Scholar
• McConachie HH, Colver AF, Forsyth RJ, Jarvis SN, Parkinson KN. Participation of disabled children: How should it be characterized and measured?. Disability and Rehabilitation 2006; 28(18)1157–1164
   PubMed Web of Science ®Google Scholar
• Noonan V, Kopec J, Noreau L, Singer J, Chan A, Mâsse L, Dvorak M. Comparing the content of participation instruments using the international classification of functioning, disability and health. Health and Quality of Life Outcomes 2009; 7: 93
   PubMed Web of Science ®Google Scholar
• Bult MK, Verschuren OO, Gorter JW, Jongmans MJ, Piškur BB, Ketelaar MM. Cross-cultural validation and psychometric evaluation of the Dutch language version of the children's assessment of participation and enjoyment (CAPE) in children with and without physical disabilities. Clinical Rehabilitation 2010; 24(9)843–853
   PubMed Web of Science ®Google Scholar
• Coster W, Bedell G, Law M, Khetani M, Teplick R, Liljenquist K, Kao Y. Psychometric evaluation of the participation and environment measure for children and youth. Developmental Medicine and Child Neurology 2011; 53(11)1030–1037
   PubMed Web of Science ®Google Scholar
• Maini MM, Nocentini UU, Prevedini AA, Giardini AA, Muscolo EE. An Italian experience in the ICF implementation in rehabilitation: Preliminary theoretical and practical considerations. Disability and Rehabilitation: An International, Multidisciplinary Journal 2008; 30(15)1146–1152
   PubMed Web of Science ®Google Scholar
• Nijhuis BJG, Reinders-Messelink H, de Blécourt ACE, Boonstra AM, Calamé EHM, Groothoff JW, Nakken H. Goal setting in Dutch paediatric rehabilitation. Are the needs and principal problems of children with cerebral palsy integrated into their rehabilitation goals?. Clinical Rehabilitation 2008; 22(4)348–363
   PubMed Web of Science ®Google Scholar
• Ibragimova N, Granlund M, Björck-Åkesson E. Field trial of ICF version for children and youth (ICF-CY) in Sweden: Logical coherence, developmental issues and clinical use. Developmental Neurorehabilitation 2009; 12(1)3–11
   PubMed Web of Science ®Google Scholar
• Cieza AA, Hilfiker RR, Boonen AA, van der Heijde DD, Braun JJ, Stucki GG. Towards an ICF-based clinical measure of functioning in people with ankylosing spondylitis: A methodological exploration. Disability and Rehabilitation: An International, Multidisciplinary Journal 2009; 31(7)528–537
   PubMed Web of Science ®Google Scholar
• Wynia K, Middel B, de Ruiter H, van Dijk JP, Lok WS, de Keyser JA, Reijneveld SA. Adding a subjective dimension to an ICF-based disability measure for people with multiple sclerosis: Development and use of a measure for perception of disabilities. Disability and Rehabilitation: An International, Multidisciplinary Journal 2009; 31(12)1008–1017
   PubMed Web of Science ®Google Scholar
• Bedell G, Khetani M, Cousins M, Coster W, Law M. Parent perspectives to inform development of measures of children's participation and environment. Archives of Physical Medicine and Rehabilitation 2011; 92(5)765–773
   PubMed Web of Science ®Google Scholar
• Castro S, Pinto A, Maia M. Linking the Carolina curriculum for preschoolers with special needs to the ICF-CY. British Journal of Developmental Disabilities 2011; 57 Part 2(113)133–146
   Google Scholar
• Adolfsson M, Malmqvist J, Pless M, Granuld M. Identifying child functioning from an ICF-CY perspective: Everyday life situations explored in measures of participation. Disability and Rehabilitation 2011; 33(13–14)1230–1244
   PubMed Web of Science ®Google Scholar
• World Health Organization. The ICD-10 classification of mental and behavioural disorders – diagnostic criteria for research. World Health Organization, GenèveSwitzerland 1993
   Google Scholar
• Wilczynski SMK, Menousek HM, Mudgal D. Individualized education programs for youth with autism spectrum disorders. Psychology in the Schools 2007; 44(7)653–666
   Web of Science ®Google Scholar
• Lollar DJ, Simeonsson RJ. Diagnosis to function: Classification for children and youths. Journal of Developmental and Behavioral Pediatrics 2005; 26(4)323–330
   PubMed Web of Science ®Google Scholar
• Odom SL, Boyd BA, Hall LJ, Hume K. Evaluation of comprehensive treatment models for individuals with autism spectrum disorders. Journal of Autism and Developmental Disorders 2010; 40(4)425–436
   PubMed Web of Science ®Google Scholar
• Etscheidt S. An analysis of legal hearings and cases related to individualized education programs for children with autism. Research and Practice for Persons with Severe Disabilities 2003; 28(2)51–69
   Web of Science ®Google Scholar
• Baron S, Linden M. The role of the ‘International Classification of Functioning, Disability and Health, ICF’ in the description and classification of mental disorders. European Archives of Psychiatry and Clinical Neuroscience 2008; 258(Suppl. 5)81–85
   PubMed Web of Science ®Google Scholar
• Castro S, Pinto A. Identification of core functioning features for assessment and intervention in Autism Spectrum Disorders. Disability and Rehabilitation 2012, DOI:10.3109/09638288.2012.690494
   PubMed Web of Science ®Google Scholar
• Creswell. Research design: Qualitative, quantitative, and mixed method approaches. Sage, Thousand Oaks, CA 2003
   Google Scholar
• Castro S, Pinto AI, Simeonsson RJ. Content analysis of Portuguese individualized education programmes for young children with autism using the ICF-CY framework. European Early Childhood Education Research Journal 2012, DOI:10.1080/1350293X.2012.704303
   Web of Science ®Google Scholar
• Lord C, Rutter M, Dilavore P, Risi S. Autism diagnostic observation schedule (ADOS). WPS, Torrance, CA 2001
   Google Scholar
• Rutter M, Le Couteur A, Lord C. Autism diagnostic interview revised (ADI-R). WPS, Torrance, CA 2003
   Google Scholar
• Schopler E, Reichler RJ, deVellis RF, Daly K. Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS). Journal of Autism and Developmental Disorders 1980; 10(1)91–103
   PubMed Web of Science ®Google Scholar
• Sparrow SS, Cicchetti DV, Balla DA. Vineland adaptive behavior scales.2nd. Pearson, Upper Saddle River, NJ 2005
   Google Scholar
• Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustuün B, Stucki G. ICF linking rules: An update based on lessons learned. Journal of rehabilitation medicine: Official Journal of the UEMS European Board of Physical and Rehabilitation Medicine 2005; 37(4)212–218
   PubMed Web of Science ®Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 2004; 24(2)105–112
   PubMed Web of Science ®Google Scholar
• Sartorius N. Diagnostic criteria for research. World Health Organization, GenevaSwitzerland 1993
   Google Scholar
• Creswell JW. Qualitative inquiry and research design: Choosing among five traditions. Sage, Thousand Oaks, CA 1998
   Google Scholar
• Lincoln IS, Guba EG. Naturalistic inquiry. Sage, Thousand Oaks, CA 1985
   Google Scholar