Co-calibrating quality-of-life scores from three pulmonary disorders: implications for comparative-effectiveness research

References

• Chalkidou K, Anderson G. Comparative effectiveness research: International experiences and implications for the United States. Washington DC: Academy Health, 2009 http://www.nihcm.org/pdf/CER_International_Experience_09.pdf. Accessed October 30, 2015
   Google Scholar
• Group EQ. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy 1990;16:199-208
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Care Excellence. Guide to the methods of technology appraisal. London: National Institute for Health and Care Excellence, 2008
   Google Scholar
• van Boven JF, Stuurman-Bieze AG, Hiddink EG, et al. Effects of targeting disease and medication management interventions towards patients with COPD. Curr Med Res Opin 2016;32:229-39
   Google Scholar
• Schofield DJ. How should we measure the impact of chronic pain? Pain 2014;155:1918-19
   PubMed Web of Science ®Google Scholar
• Torrance N, Lawson KD, Afolabi E, et al. Estimating the burden of disease in chronic pain with and without neuropathic characteristics: does the choice between the EQ-5D and SF-6D matter? Pain 2014;155:1996-2004
   PubMed Web of Science ®Google Scholar
• Kusel J. Why has value based assessment been abandoned by NICE in the UK? Value & Outcomes Spotlight 2015;1:22-5
   Google Scholar
• Taylor WJ, McPherson KM. Using Rasch analysis to compare the psychometric properties of the Short Form 36 physical function score and the Health Assessment Questionnaire disability index in patients with psoriatic arthritis and rheumatoid arthritis. Arthritis Rheum 2007;57:723-9
   PubMed Web of Science ®Google Scholar
• Jenkinson C, Fitzpatrick R, Garratt A, et al. Can item response theory reduce patient burden when measuring health status in neurological disorders? Results from Rasch analysis of the SF-36 physical functioning scale (PF-10). J Neurol Neurosurg Psychiatry 2001;71:220-4
   PubMed Web of Science ®Google Scholar
• Twiss J, Meads DM, Preston EP, et al. Can we rely on the Dermatology Life Quality Index (DLQI) as a measure of the impact of psoriasis or atopic dermatitis? J Invest Dermatol 2012;132:76-84
   PubMed Web of Science ®Google Scholar
• Tang K. Disease-related differential item functioning in the work instability scale for rheumatoid arthritis: converging results from three methods. Arthritis Arthritis Care Res (Hoboken) Res 2011;63:1159-69
   PubMed Web of Science ®Google Scholar
• Lundgren-Nilsson A, Tennant A, Grimby G, et al. Cross-diagnostic validity in a generic instrument: an example from the Functional Independence Measure in Scandinavia. Health Qual Life Outcomes 2006;4:55-63
   PubMed Web of Science ®Google Scholar
• Wann-Hansson C, Klevsgård R, Hagell P. Cross-diagnostic validity of the Nottingham Health Profile index of distress (NHPD). Health Qual Life Outcomes 2008;6:47-60
   PubMed Web of Science ®Google Scholar
• McKenna SP. Measuring patient-reported outcomes: moving beyond misplaced common sense to hard science. BMC Med 2011;9:86-98
   PubMed Web of Science ®Google Scholar
• Velanovich V. Comparison of generic (SF-36) vs. disease-specific (GERD-HRQL) quality-of-life scales for gastroesophageal reflux disease. J Gastrointest Surg 1998;2:141-5
   PubMedGoogle Scholar
• Bessette L, Sangha O, Kuntz KM, et al. Comparative responsiveness of generic versus disease-specific and weighted versus unweighted health status measures in carpal tunnel syndrome. Med Care 1998;36:491-502
   PubMed Web of Science ®Google Scholar
• Jenkinson C, Gray A, Doll H, et al. Evaluation of index and profile measures of health status in a randomized controlled trial: comparison of the medical outcomes study 36-Item Short Form Health Survey, EuroQoL, and disease specific measures. Med Care 1997;35:1109-18
   PubMed Web of Science ®Google Scholar
• Weldam SWM, Schuurmans MR, Lui R, et al. Evaluation of Quality of Life instruments for use in COPD care and research: a systematic review. Int J Nurs Stud 2013;50:688-707
   PubMed Web of Science ®Google Scholar
• Puhan MA, Guyatt GH, Goldstein R, et al. Relative responsiveness of the Chronic Respiratory Questionnaire, St George’s Respiratory Questionnaire and four other health-related quality of life instruments for patients with chronic lung disease. Resp Med 2007;101:308-16
   Web of Science ®Google Scholar
• Wiebe S, Guyatt G, Weaver B, et al. Comparative responsiveness of generic and specific quality-of-life instruments. J Clin Epidemiol 2003;56:52-60
   PubMed Web of Science ®Google Scholar
• Allen MJ, Yen WM. Introduction to measurement theory. Long Grove, IL: Waveland Press, 2002
   Google Scholar
• Kline TJB. Psychological testing: a practical approach to design and evaluation. California: SAGE Publications, Inc, 2005
   Google Scholar
• De Champlain AF. A primer on classical test theory and item response theory for assessments in medical education. Med Educ 2010;44:109-17
   PubMed Web of Science ®Google Scholar
• Tennant A, McKenna SP, Hagell P. Application of Rasch analysis in the development and application of quality of life instruments. Value Health 2004;7:S22-6
   PubMed Web of Science ®Google Scholar
• Rasch G. Probabilistic models for some intelligence and attainment tests. Chicago, IL: University of Chicago Press, 1960 (Reprinted 1980)
   Google Scholar
• Tennant A, Conaghan PG. The Rasch measurement model in rheumatology: what is it and why use it? When should it be applied, and what should one look for in a Rasch paper? Arthritis Rheum 2007;57:1358-62
   PubMed Web of Science ®Google Scholar
• Andrich D. Rasch models for measurement: Sage University Paper Series on quality application in the social sciences. Newbury Park, CA: Sage Publications Inc, 1988
   Google Scholar
• Bond TG, Fox CM. Applying the Rasch model: fundamental measurement for the human sciences. Mahwah, NJ: Erlbaum, 2001
   Google Scholar
• Wright BD. Fundamental measurement. Rasch Meas Tansact 1997;11:558
   Google Scholar
• Qadir MJ, Gilani IG, Hameed A. Rasch calibration of general science test at Grade-VIII in Pakistan. J Educ Vocat Res 2012;3:98-106
   Google Scholar
• Twiss J, McKenna SP. Comparing the impact of psoriasis and atopic dermatitis on quality of life: Co-calibration of the PSORIQoL and QoLIAD. Qual Life Res 2015;24:105-13
   PubMed Web of Science ®Google Scholar
• Latimer S, Covic T, Tennant A. Co-calibration of deliberate self-harm (DSH) behaviours: towards a common measurement metric. Psychiatry Res 2012;200:26-34
   PubMed Web of Science ®Google Scholar
• Bezruczko N, Perkins K. Multi-factor scale consolidation when theory is weak. J Appl Meas 2012;13:77-96
   PubMedGoogle Scholar
• Meads DM, McKenna SP, Doward LC, et al. Development and validation of the Asthma Life Impact Scale (ALIS). Respir Med Med 2010;104:633-43
   PubMed Web of Science ®Google Scholar
• McKenna SP, Meads DM, Doward LC, et al. Development and validation of the living with chronic obstructive pulmonary disease questionnaire. Qual Life Res 2011;20:1043-52
   PubMed Web of Science ®Google Scholar
• McKenna SP, Doughty N, Meads DM, et al. The Cambridge Pulmonary Hypertension Outcome review (CAMPHOR): a measure of health-related quality of life and quality of life for patients with pulmonary hypertension. Qual Life Res 2006;15:103-1
   PubMed Web of Science ®Google Scholar
• Hunt SM, McKenna SP. The QLDS: a scale for the measurement of quality of life in depression. Health Policy 1992;22:307-19
   PubMed Web of Science ®Google Scholar
• Guttman L. The basis for scalogram analysis. In: Stouffer SA, ed. Measurement and prediction. New York: Wiley, 1950
   Google Scholar
• Ayele DG, Zewotir T, Mwambi H. Using Rasch modeling to re-evaluate rapid malaria diagnosis test analyses. Int J Environ Res Public Health 2014;11:6681-91
   PubMed Web of Science ®Google Scholar
• Smith EV, Jr. Detecting and evaluating the impact of multidimensionality using item fit statistics and principal component analysis of residuals. J Appl Meas 2002;3:205-31
   PubMedGoogle Scholar
• Andrich D, Sheridan B, Ludo G. Rasch unidimensional measurement models: a Windows-based item analysis program employing Rasch models (RUMM2020). Perth, Australia: Murdoch University, 2005
   Google Scholar
• Doward LC, McKenna SP, Meads DM, et al. The development of patient-reported outcome indices for multiple sclerosis (PRIMUS). Mult Scler 2009;15:1092-102
   PubMed Web of Science ®Google Scholar
• Wilburn J, McKenna SP, Twiss J, et al. Assessing quality of life in Crohn's disease: development and validation of the Crohn's Life Impact Questionnaire (CLIQ). Qual Life Res 2015;24:2279-88
   PubMed Web of Science ®Google Scholar
• Whalley D, McKenna SP, de Jong Z, et al. Quality of life in rheumatoid arthritis. Br J Rheumatol 1997;36:884-8
   PubMedGoogle Scholar
• Doward LC, Spoorenberg A, Cook SA, et al. Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis. Ann Rheum Dis 2003;62:20-6
   PubMed Web of Science ®Google Scholar
• Slutsky JR, Clancy CM. AHRQ's Effective Health Care Program: why comparative effectiveness matters. Effective Care: comparative matters. Am J Med Qual 2009;24:67-70
   PubMed Web of Science ®Google Scholar
• Mereles D, Ehlken N, Kreuscher S, et al. Exercise and respiratory training improves exercise capacity and quality of life in patients with severe chronic pulmonary hypertension. Circulation. 2006;114:1482-9
   PubMed Web of Science ®Google Scholar
• Gloeckl R, Marinov B, Pitta F. Practical recommendations for exercise training in patients with COPD. 2013;22:178-86
   Google Scholar
• Meyer A, Günther S, Volmer T. A 12-month, moderate-intensity exercise training program improves fitness and quality of life in adults with asthma: a controlled trial. BMC Pulm Med 2015;15:56
   PubMed Web of Science ®Google Scholar