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Clinical Research

How to assess quality of life in child and adolescent psychiatry

¿Cómo evaluar la calidad de vida en psiquiatría infantil y del adolescente?

Comment évaluer la qualité de vie des enfants et des adolescents en psychiatrie?

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REFERENCES

  • BellM.FiszdonJ.RichardsonR.LysakerP.BrysonG.Are self-reports valid for schizophrenia patients with poor insights? Relationship of unawareness of illness to psychological self-report instruments.Psychiatry Res.2007151374617343920
  • WhittyP.BrowneS.ClarkeM.et alSystematic comparison of subjective and objective measures of quality of life at 4-year follow-up subsequent to a first episode of psychosis.J Nerv Ment Dis.200419280580915583500
  • Van CleaveJ.GortmakerSL.PerrinJM.Dynamics of obesity and chronic health conditions among children and youth.JAMA.201030362363020159870
  • FayedN.De CamargoOK.KerrE.et alGeneric patient-reported outcomes in child health research: a review of conceptual content using World Health Organization definitions.Dev Med Child Neurol.2012541085109522913566
  • EiserC.JenneyME.Measuring symptomatic benefit and quality of life in paediatric oncology.Br J Cancer.199673131313168645572
  • SaarniSI.SuvisaariJ.SintonenH.et alImpact of psychiatric disorders on health-related quality of life: general population survey.Br J Psychiatry.200719032633217401039
  • Ravens-SiebererU.ErhartM.WilleN.NickelJ.BullingerM.Lebens-qualitätsverfahren für Kinder - methodische Herausforderungen und aktuelle Instrumente.Z Med Psychol.2007162540
  • World Health Organization - Division of Mental Health.Measurement of Quality of Life in Children. MNH/PSF/94.5. Geneva, Switzerland: World Health Organization.1994
  • NolteS.RoseM.Die Erfassung gesundheitsbezogener Lebensqualität bei Erwachsenen.Gesundheitswesen .20137516617423516118
  • SolansM.PaneS.EstradaM-D.et alHealth-related quality of life measurement in children and adolescents: a systematic review of generic and disease-specific instruments.Value Health.20081174276418179668
  • GrangeA.BekkerH.NoyesJ.LangleyP.Adequacy of health-related quality of life measures in children under 5 years old: systematic review.J Adv Nurs.20075919722017627625
  • BullingerM.Assessing health related quality of life in medicine. An overview over concepts, methods and applications in international research.Restor Neurol Neurosci.2002209310112454358
  • MatzaLS.SwensenAR.FloodEM.SecnikK.LeidyNK.Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues.Value Health.20047799214720133
  • BullingerM.Ravens-SiebererU.General principles, methods and areas of application of quality of life research in children.Prax Kinderpsychol Kinderpsychiatr.1995443913998975234
  • SchorEL.Children's health and the assessment of health-related quality of life. In: Drotar D, ed.Measuring Health-Related Quality of Life In Children And Adolescents. Hillsdale, New Jersey: Lawrence Hillbaum19982539
  • SchumacherJ.KlaibergA.BrählerE.Diagnostik von Lebensqualität und Wohlbefinden - Eine Einführung. In: Schumacher J, Klaiberg A, Brähler E, eds.Diagnostische Verfahren zu Lebensqualität und Wohlbefinden. Göttingen: Hogrefe2003924
  • RajmilL.HerdmanM.Fernandez de SanmamedMJ.et alGeneric health-related quality of life instruments in children and adolescents: a qualitative analysis of content.J Adolesc Health.200434374514706404
  • RileyAW.Evidence that school-age children can self-report on their health.Ambul Pediatr.2004437137615264962
  • PickardAS.KnightSJ.Proxy evaluation of health-related quality of life: a conceptual framework for understanding multiple proxy perspectives.Med Care.20054349349915838415
  • DavisE.NicolasC.WatersE.et alParent-proxy and child self-reported health-related quality of life: using qualitative methods to explain the discordance.Qual Life Res.20071686387117351822
  • UptonP.LawfordJ.EiserC.Parent-child agreement across child health-related quality of life instruments: a review of the literature.Qual Life Res.20081789591318521721
  • EllertU.Ravens-SiebererU.ErhartM.KurthBM.Determinants of agreement between self-reported and parent-assessed quality of life for children in Germany-results of the German Health Interview and Examination Survey for Children and Adolescents (KiGGS).Health Qual Life Outcomes.2011910222111939
  • HerschbachP.The “Well-being paradox” in quality-of-life research.Psychother Psych Med.200252141150
  • SprangersMA.SchwartzCE.Integrating response shift into health-related quality of life research: a theoretical model.Soc Sci Med.1999481507151510400253
  • GerharzEW.EiserC.WoodhouseCR.Current approaches to assessing the quality of life in children and adolescents.BJU Int.20039115015412519117
  • AcquadroC.ConwayK.HareendranA.AaronsonN.European Regulatory I, Quality of life assessment G. Literature review of methods to translate health-related quality of life questionnaires for use in multinational clinical trials.Value Health.20081150952118179659
  • Ravens-SiebererU.GoschA.AbelT.et alQuality of life in children and adolescents: a European public health perspective.Soz Praventivmed.20014629430211759336
  • BullingerM.SchmidtS.PetersenC.Assessing quality of life of children with chronic health conditions and disabilities: a European approach.Int J Rehabil Res.20022519720612352173
  • Ravens-SiebererU.GoschA.RajmilL.et alKIDSCREEN-52 quality-of-life measure for children and adolescents.Expert Rev Pharmacoecon Outcomes Res.2005535336419807604
  • SchöffskiO.Lebensqualität als Ergebnisparameter in gesundheitsökonomischen Studien. In: Schöffski O, Graf von den Schulenburg JM, eds.Gesundheitsökonomische Evaluationen. Vol 4. Heidelberg, Germany: Springer.2012
  • RileyAW.ForrestC.StarfieldB.RebokG.GreenB.RobertsonJ.Child Health and Illness Profile-Child Edition (CHIP-CE). Baltimore, MD: The Johns Hopkins University2001
  • StarfieldB.BergnerM.EnsmingerM.RileyAW.GreenBF.RyanS.Child Health and Illness Profile-Adolescent Edition (CHIP-AE). Baltimore, MD: The Johns Hopkins University1994
  • RileyAW.GreenBF.ForrestCB.StarfieldB.KangM.EnsmingerME.A taxonomy of adolescent health: development of the adolescent health profile-types.Med Care.199836122812369708594
  • RileyAW.ForrestCB.RebokGW.et alThe Child Report Form of the CHIP-Child Edition: reliability and validity.Med Care.20044222123115076821
  • RileyAW.ForrestCB.StarfieldB.RebokGW.RobertsonJA.GreenBF.The Parent Report Form of the CHIP-Child Edition: reliability and validity.Med Care.20044221022015076820
  • RileyAW.ForrestCB.StarfieldB.GreenB.KangM.EnsmingerM.Reliability and validity of the adolescent health profile-types.Med Care.199836123712489708595
  • LandgrafJM.MaunsellE.SpeechleyKN.et alCanadian-French, German and UK versions of the Child Health Questionnaire: methodology and preliminary item scaling results.Qual Life Res.199874334459691723
  • LandgrafJM.AbetzL.WareJE.Child Health Questionnaire: A User's Manual. Boston, MA: The Health Institute, New England Medical Center1996
  • RupertoN.RavelliA.PistorioA.et alCross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology.Clin Exp Rheumatol.200119S1S911510308
  • Ravens-SiebererU.Der Kindl-R. Fragebogen zur Erfassung der gesundheitsbezogenen Lebensqualität bei Kindern und Jugendlichen - Revidierte Form. In: Schumacher J, Klaiberg A, Brâhler E, eds.Diagnostische Verfahren zu Lebensqualität und Wohlbefinden. Göttingen: Hogrefe.2003184188
  • Ravens-SiebererU.HeilmannM.WalleserS.Assessment of quality of life in young children with a computer assisted touch screen program (CAT-Screen): reliability, validity and feasibility.Qual Life Research.20009298
  • Ravens-SiebererU.BullingerM.Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results.Qual Life Res.199873994079691720
  • BullingerM.BruttAL.ErhartM.Ravens-SiebererU.Psychometric properties of the KINDL-R questionnaire: results of the BELLA study.Eur Child Adolesc Psychiatry.200817(suppl 1)12513219132312
  • Ravens-SiebererU.EllertU.ErhartM.Health-related quality of life of children and adolescents in Germany. Norm data from the German Health Interview and Examination Survey (KiGGS).Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz.20075081081817514467
  • VarniJW.SeidM.RodeCA.The PedsQL: measurement model for the pediatric quality of life inventory.Med Care.19993712613910024117
  • VarniJ.LimbersC.NeighborsK.et alThe PedsQLTM Infant Scales: feasibility, internal consistency reliability, and validity in healthy and ill infants.Qual Life Res.201120455520730626
  • VarniJW.BurwinkleTM.SeidM.The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity.Qual Life Res.20061520321516468077
  • Ravens-SiebererU.ErhartM.RajmilL.et alReliability, construct and criterion validity of the KIDSCREEN-10 score: a short measure for children and adolescents' well-being and health-related quality of life.Qual Life Res.2010191487150020668950
  • Ravens-SiebererU.GoschA.RajmilL.et alThe KIDSCREEN-52 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries.Value Health.20081164565818179669
  • PetersenC.SchmidtS.PowerM.BullingerM.Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective.Qual Life Res.2005141065107716041902
  • BaarsRM.AthertonCI.KoopmanHM.BullingerM.PowerM.The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents.Health Qual Life Outcomes.200537016283947
  • SimeoniM-C.SchmidtS.MuehlanH.DebensasonD.BullingerM.GroupD.Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic Module.Qual Life Res.20071688189317404899
  • SchmidtS.DebensasonD.MühlanH.et alThe DISABKIDS generic quality of life instrument showed cross-cultural validity.J Clin Epidemiol.20065958759816713521
  • MattejatF.RemschmidtH.ILKInventar zur Erfassung der Lebensqualität bei Kindern und Jugendlichen. Ratingbogen für Kinder, Jugendliche und Eltern. Bern, Switzerland: Verlag Hans Huber.2006
  • HorsmanJ.FurlongW.FeenyD.TorranceG.The Health Utilities Index (HUI): concepts, measurement properties and applications.Health Qual Life Outcomes.200315414613568
  • WilleN.BadiaX.BonselG.et alDevelopment of the EQ-5D-Y: a child-friendly version of the EQ-5D.Qual Life Res.20101987588620405245
  • The EuroQol Group EuroQol - A new facility for the measurement of health-related quality of life.Health Policy.19901619920810109801
  • Ravens-SiebererU.WilleN.BadiaX.et alFeasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study.Qual Life Res.20101988789720401552
  • BullingerM.SchmidtS.NaberD.Cross-Cultural Quality of Life Research in Mental Health. In: Ritsner M, Awad A, eds.Quality of Life Impairment in Schizophrenia, Mood and Anxiety Disorders. Dordrecht, the Netherlands: Springer.20076798
  • FeenyD.FurlongW.BarrRD.Multiattribute approach to the assessment of health-related quality of life: Health Utilities Index.Med Pediatr Oncol.1998(suppl 1)54599659947