642
Views
3
CrossRef citations to date
0
Altmetric
Original Article

The current state of birth outcome and birth defect surveillance in northern regions of the world

, , , , &
Pages 443-458 | Received 15 Apr 2009, Accepted 13 Aug 2009, Published online: 18 Mar 2012

References

  • Waitzman N, Scheffler R, Romano P. The cost of birth defects. Maryland: The University Press of America; 1996. 262 pp.
  • Carmona R. The global challenges of birth defects and disabilities. Lancet 2005; 366: 1142–1144.
  • McBride W. Thalidomide and congenital abnormalities. Lancet 1961;ii:1358.
  • MRC Vitamin Study Research Group. Prevention of neural tube defects: results of the medical research council vitamin study. Lancet 1991; 338 (8760): I31–137.
  • Botto LD, Olney RS, Erickson JD. Vitamin supplements and the risk for congenital anomalies other than neural tube defects. Am J Med Genet C Semin Med Genet 2004;15:125C(I):12–21.
  • De Wals P, Tairou F, Van Allen MI, Uh SH, Lowry RB, Sibbald B, et al. Reduction in neural-tube defects after folic acid fortification in Canada. N Engl J Med 2007;J12357 (2): 135–142.
  • Canfield MA, Collins JS, Botto LD, Williams LJ, Mai CT, Kirby RS, et al. Changes in the birth prevalence of selected birth defects after grain fortification with fo-lic acid in the United States: findings from a multi-state population-based study. Birth Defects Res A Clin Mol Teratol 2005;73(10):679–689.
  • Kuhnlein HV, Receveur O, Soueida R, Egeland GM. Arctic indigenous peoples experience the nutrition transition with changing dietary patterns and obesity. J Nutr 2004; 134 (6): 1447–1453.
  • Young TK, Reading J, Elias B, O’Neil JD. Type 2 diabetes mellitus in Canada’s first nations: status of an epidemic in progress. CMAJ 2000; 163 (5): 561–566.
  • Jorgensen M, Young TK. Chapter 16 Cardiovascular Diseases, Diabetes, and Obesity. In: Young TK, Bjer-regaard P, editors. Health Transitions in Arctic Populations. Toronto: University of Toronto Press; 2008. 291–307.
  • AMAP Human Health Group. AMAP assessement 2002: Human health in the Arctic. Oslo, Norway: Arctic Monitoring and Assessment Programme (AMAP) 2003. 137 pp.
  • Waldram JB, Herring A, Young TK. Aboriginal Health in Canada: Historical, Cultural, and Epidemiological Perspectives. Toronto, ON: University of Toronto Press; 2006. 367 pp.
  • Lopez AD, Mathers CD, Ezzati M, Jamison DT, Mur-ray CJ. Global and regional burden of disease and risk factors, 2001: systematic analysis of population health data. Lancet 2006; 367 (9524): 1747–1757.
  • Odland JO, Arbour L. Chapter 20 Maternal Child Health. In: Young TK, Bjerregaard P, editors. Health Transitions in Arctic Populations. Toronto: University of Toronto Press; 2008. 379–402.
  • International Union for Circumpolar Health (IUCH). The International Union for Circumpolar Health: Welcome Web Page. Winnipeg, Manitoba: Interna-tional Network for Circumpolar Health Research; 2006 [cited 2008 Oct 7]. Available from: http://www.iuch.org/index.html
  • Canadian Society for Circumpolar Health. The By-Laws for the Canadian Society for Circumpolar Health. Ottawa, Ontario: National Aboriginal Health Organization; 1990 [cited 2008 Sept 14]. Available from: http://www.csch.ca/english/grfx/PDFs/1990%20Bylaws.pdf
  • Alaska Vital Statistics Agency. Data and Statistics. Anchorage, AK: Bureau of Vital Statistics, Department of Health and Social Services, State of Alaska; [cited 2009 Nov 23]. Available from: http://www.hss.state.ak.us/dph/bvs/data/default.htm
  • Department of Health and Social Services. Report of Induced Termination of Pregnancy. Anchorage, AK: Bureau of Vital Statistics, Department of Health and Social Services, State of Alaska; [cited 2009 Nov 23]. Available from: http://www.hss.state.ak.us/dph/bvs/PDFs/itop/ITOP_form.pdf
  • Schoelhorn KJ, Beery AL. Alaska Maternal Child Health Data Book 2005. Surveillance edition ed. Anchorage, AK: Maternal and Child Health epidemiology Unit, Section of Women’s, Children’s, and Family Health, Division of Public Health, Alaska Depart-ment of Health and Social Services; 2006. 196 pp.
  • Public Health Agency of Canada. Maternal and infant Health: Canadian Perinatal Surveillance System. Ottawa, Ontario: Crown Copyright & Licensing, Govern-ment of Canada; [cited 2009 Nov 23]. Available from: http://www.phac-aspc.gc.ca/rhs-ssg/index-eng.php
  • Rouleau J, Arbuckle TE, Johnson KC, Sherman GJ. Description and limitations of the Canadian Congenital Anomalies Surveillance System (CCASS). Chronic Dis Can 1995; I (I):37–42.
  • Public Health Agency of Canada. Congenital anomalies in Canada: a perinatal health report, 2002. Ottawa, Ontario: Crown Copyright & Licensing, Govern-ment of Canada; [cited 2009 Nov 23]. Available from: http://www.phac-aspc.gc.ca/publicat/cac-acc02/pdf/cac2002_e.pdf
  • BC Perinatal Health Program. Optimizing Neonatal, Maternal and Fetal Health. Vancouver, BC: Ministry of Health, Province of British Columbia; [cited 2009 Nov 23]. Available from: http://www.bcphp.ca/
  • BC Vital Statistics Agency. The British Columbia Health Status Registry. [Quarterly Digest December 2000] Victoria, BC: Ministry of Health, Province of British Columbia; Volume 10: issues 2–3. [cited 2009 Nov 23]. Available from: http://www.vs.gov.bc.ca/stats/quarter/q2_3_2000/index.html
  • Canadian Congenital Anomalies Surveillance Network - Public Health Agency of Canada. Alberta - Alberta Congenital Anomalies Surveillance System (ACASS): Directory of Surveillance Systems. Ottawa, Ontario: Crown Copyright & Licensing, Government of Canada; [cited 2007 Dec II]. Available from: http://www.phac-aspc.gc.ca/ccasn-rcsac/dss/alberta_e.html
  • Lowry RB, Thunem NY, Silver M. Congenital anomalies in American Indians of British Columbia. Genet Epidemiol 1986; 3 (6): 455–467.
  • Public Health Agency of Canada. Canada’s New Gov-ernment Signs First Nations Health Agreement with B.C. and First Nations Leadership Council. Ottawa, Ontario: Crown Copyright & Licensing, Government of Canada; [cited 2009 Nov 23]. Available from: http://www.hc-sc.gc.ca/ahc-asc/media/nr-cp/_2007/2007_69-eng.php
  • Giwercman YL, Kleist KE, Giwercman A, Giwerc-man C, Toft G, Bonde JP, et al. Remarkably low inci-dence of hypospadias in Greenland despite high ex-posure to endocrine disrupters; possible protective effect of androgen receptor genotype. Pharmaco-genet Genomics 2006; 16 (5): 375–377.
  • Larsen H, Nielsen GL, Bendsen J, Flint C, Olsen J, Sorensen HT. Predictive value and completeness of the registration of congenital abnormalities in three Danish population-based registries. Scand J Public Health 2003; 31 (I):12–16.
  • Knudsen LB, Olsen J. The Danish Medical Birth Registry. Dan Med Bull 1998; 45 (3): 320–323.
  • Dolk H. EUROCAT: 25 years of European surveillance of congenital anomalies. Arch Dis Child Fetal Neonatal Ed 2005; 90: F355–F8.
  • WHO Collaborating Center for the Epidemiological Surveillance of Congenital Anomalies. European Surveillance of Congenital Anomalies. Newtonabbey, Co Antrim European Commission Public Health Program; [cited 2008 Oct 1]. Available from: http://www.euro-cat.ulster.ac.uk/
  • Game E. Denmark, Odense. [Internet report pdf] Odense, Denmark: EU ROCAT Registry of Congenital Malformations; [cited 2009 Jul DAY?]. Available from: http://www.eurocat.ulster.ac.uk/pdf/Reg-Des/Odense.pdf
  • lrgens LM. The Medical Birth Registry of Norway. Epidemiological research and surveillance through-out 30 years. Acta Obstet Gynecol Scand 2000;79 (6): 435–439.
  • Irgens LM. The Medical Birth Registry of Norway; a source for epidemiological and clinical research. Scand J Rheumatol Suppl 1998; 107: 105–108.
  • Berle J, Mykletun A, Daltveit AK, Rasmussen S, Hol-sten F, Dahl AA. Neonatal outcomes in offspring of women with anxiety and depression during pregnancy. A linkage study from The Nord-Trondelag Health Study (HUNT) and Medical Birth Registry of Norway. Arch Womens Ment Health 2005; 8 (3): 181–189.
  • Kallén B. The use of national health registers for studying environmental causes of congenital defects. Rev Environ Health 2005;20(1):57–64.
  • Lie RT. Environmental epidemiology at the Medical Birth Registry of Norway; strengths and limitations. Cent Eur J Public Health 1997; 5 (2): 57–59.
  • Lie RT, Wilcox AJ, Skjaerven R. A population-based study of the risk of recurrence of birth defects. N Engl J Med 1994;331(1):1–4.
  • Wilcox AJ. The medical birth registry of Norway - An international perspective. Tidsskrift for Norsk forening for epidemiologi 2007; 17 (2): 103–105.
  • Franco-Lie I, Iversen T, Robsahm TE, Abdelnoor M. Birth weight and melanoma risk: a population-based case-control study. Br J Cancer 2008;98 (I):179–182.
  • Stene LC, Thorsby PM, Berg JP, Ronningen KS, Und-lien DE, Joner G. The relation between size at birth and risk of type I diabetes is not influenced by adjustment for the insulin gene (-23Hphl) polymorphism or HLA-DQ genotype. Diabetologia 2006; 49 (9): 2068–2073.
  • International Clearinghouse for Birth Defects Surveillance and Research. Descriptions of International programs: International Clearing House for Birth Defects Surveillance and Research; [cited 2009 Nov 23]. Available from: http://www.icbdsr.org/page.asp?p=12919&I=I
  • Vaktskjold A, Talykova L, Chashchin V, Nieboer E, Odland JO. The Kola Birth Registry and perinatal mortality in Moncegorsk, Russia. Acta Obstet Gyne-col Scand 2004;83(1):58–69.
  • Anda EE, Nieboer E, Voitov AV, Kovalenko AA, Lap-ina YM, Voitova EA, et al. Implementation, quality control and selected pregnancy outcomes of the Murmansk county birth registry in Russia. Int J Circumpolar Health 2008; 67 (4): 318–334.
  • Kobrinsky B, Tester I, Demikova N, Sedov Y, Marjanchik B, Taperova L, et al. A multifunctional system of the national genetic register. Stud Health Technol Inform 1998;52 Pt 1: 121–125.
  • Kobrinsky BA, Demikova NS, Baleva LS. Medmonitor Statistical Bulletin (Russia). Moscow: Open Society Institute, Soros Foundation - Russia; [cited 2008 Sep I]. Available from: http://www.pedklin.ru/medmoni-tor.ru/default-eng.html
  • Petrova JG, Vaktskjold A. The incidence and maternal age distribution of abdominal wall defects in Norway and Arkhangelskaja Oblast in Russia. Int J Circumpolar Health 2008; 2009;68(I):75–83.
  • Krikunova NI, Minaicheva LI, Nazarenko LP, Tadinova VN, Nesterova VV, Fadiushina SV, et al. Epidemiology of congenital malformations in Gorno-Altaisk, Altai Republic, Russia. Genetika 2004; 40 (8): 1138–1144.
  • Magnusson LL, Bodin L, Wennborg H. Adverse pregnancy outcomes in offspring of fathers working in bio-medical research laboratories. Am J Ind Med 2006; 49 (6): 468–473.
  • Statistics Canada. Infant mortality rates, by province and territory (both sexes). Ottawa, Ontario: Crown Copyright & Licensing, Government of Canada; [cited 2009 Nov 23]. Available from: http://www40.statcan.ca/I0I/cst01/health2Ia.htm
  • Muggah E, Way D, Muirhead M, Baskerville B. Preterm delivery among Inuit women in the Baffin Region of the Canadian Arctic. Int J Circumpolar Health 2004;63 Suppl 2: 242–247.
  • Arbour L, Gilpin C, Millor-Roy V, Platt R, Pekeles G, Egeland GM, et al. Heart defects and other malformations in the Inuit in Canada: a baseline study. Int J Circumpolar Health 2004;63 (3): 251–266.
  • Health and Social Services. Alaska Birth Defects Registry. Juneau, Alaska: State of Alaska; [cited. 2009 Nov 23]. Available from: http://www.epi.hss.state.ak.us/mchepi/ABDR/default.stm
  • Health and Social Services. Bureau of Vital Statistics. Juneau, Alaska: State of Alaska; [cited 2009 Nov 23]. Available from: http://www.hss.state.ak.us/dph/bvs
  • National Board of Health. Sundhedsstyrelsen. Koben-havn: Ministry for Health and Prevention; [cited 2009 Nov 23]. Available from: http://www.sst.dk/English.aspx?sc_lang=en
  • National Institute for Health and Welfare. Medical birth register, description of file. Helsinki, Finland: National Institute for Health and Welfare; [cited 2009 Nov 23]. Available from: http://www.stakes.fi/EN/ti-lastot/filedescriptions/medicalbirthregister.htm
  • National Institute for Health and Welfare. Register of congenital malformations. Helsinki, Finland: National Institute for Health and Welfare; [cited 2009 Nov 23] .Available from: http://www.stakes.fi/EN/tilastot/filedescriptions/malformations.htm
  • Statistics Iceland. National register of persons. Reykjavik, Iceland: Statistics Iceland; [cited 2009 Nov 23]. Available from: http://www.statice.is/?PagelD=1117&highlight=National
  • Norwegian Institute of Public Health. Medisinsk fod-selsregister [Medical Birth Register]. Bergen, Norway: Norwegian Institute of Public Health; [cited 2009 Nov 23]. Available from: http://www.fhi.no/eway/default.aspx?pid=233&trg=MainArea_5661&MainArea_5661=5631:0:15,3278:1:0:0:::0:0
  • Socialstyrelsen. Statistics: Swedish Medical Birth Registry. Stockholm: National Board of Health and Wel-fare; [cited 2009 Jul 1]. Available from: http://www.socialstyrelsen.se/en/Statistics/statsbysubject/Swedish+Medical+Birth+Registry.htm
  • Socialstyrelsen. Statistics: The Swedish Birth Defect Registry. Stockholm: National Board of Health and Welfare; [cited 2009 Jul 1]. Available from: http://www.socialstyrelsen.se/en/Statistics/statsbysubject/Birth_Defect_Registry.htmM