1,130
Views
11
CrossRef citations to date
0
Altmetric
Empirical Studies

A trustful relationship—the importance for relatives to actively participate in the meeting with the physician

, RN, RNT, PhD
Article: 20608 | Accepted 22 Apr 2013, Published online: 20 May 2013

References

  • Agar M. H. Institutional discourse. Text. 1985; 5: 147–168.
  • Andershed B, Ternestedt B-M. Development of a theoretical framework describing relatives’ involvement in palliative care. Journal of Advanced Nursing. 2001; 34: 554–562.
  • Aronsson K, Larsson U. S. Politeness strategies and doctor–patient communication. On the social choreography of collaborative thinking. Journal of Language and Social Psychology. 1987; 6: 1–27.
  • Attree M. Patients’ and relatives’ experiences and perspectives of ‘Good’ and ‘Not so Good’ quality care. Journal of Advanced Nursing. 2001; 33: 456–466.
  • Barry C. A, Stevenson F. A, Britten N, Barber N, Bradley C. P. Giving voice to the lifeworld. More humane, more effective medical care? A qualitative study of doctor–patient communication in general practice. Social, Science & Medicine. 2001; 53: 487–505.
  • Beisecker A. E. The influence of a companion on the doctor–elderly patient interaction. Health Communication. 1989; 1: 55–70.
  • Beisecker A. E, Brecheisen M. A, Ashworth J, Hayes J. Perceptions of the role of cancer patients’ companions during medical appointments. Journal of psychosocial oncology. 1996; 14: 29–45.
  • Brown J. B, Brett P, Stewart M, Marshall J. N. Roles and influence of people who accompany patients on visits to the doctor. Canadian Family Physician. 1998; 44: 1644–1650.
  • Bryman A. Samhällsvetenskapliga metoder. 2011; Malmö: Liber. (Methods in social science). (2nd ed.)..
  • Dowsett S. M, Saul J. L, Butow P. N, Dunn S. M, Boyer M. J, Findlow R, etal. Communication styles in the cancer consultation: Preferences for a patient-centered approach. Psycho-Oncology. 2000; 9: 147–156.
  • Fiske J. Introduction to communication studies. 1990; 2nd ed., London: Routledge.
  • Fortinsky R. H. Health care triads and dementia care: Integrative framework and future directions. Aging & Mental Health. 2001; 5: 35–48.
  • Gilmour J. A. Dis/integrated care: Family caregivers and in-hospital respite care. Journal of Advanced Nursing. 2002; 39: 546–553.
  • Glasser M, Miller B. Caregiver and physician perspectives of medical encounters involving dementia patients. American Journal of Alzheimer's Disease and Other Dementias. 1998; 13: 70–80.
  • Glasser M, Prohaska T, Gravdal J. Elderly patients and their accompanying caregivers on medical visits. Research on Aging. 2001; 23: 326–348.
  • Greene M. G, Majerovitz S. D, Adelman R. D, Rizzo C. The effects of the presence of a third person on the physician–older patient medical interview. Journal of American Geriatrics Society. 1994; 42: 413–419.
  • Hedemalm A, Schaufelberger M, Ekman I. A review of records from follow-up visits for immigrant and Swedish patients at a heart failure clinic. The European Journal of Cardiovascular Nursing. 2007; 6: 216–222.
  • Hertzberg A, Ekman S. L. “We not them and us?” Views on the relationships and interactions between staff and relatives of older people permanently living in nursing homes. Journal of Advanced Nursing. 2008; 31: 614–622.
  • Hertzberg A, Ekman S. L, Axelsson K. ‘Relatives are a resource, but …’: Registered Nurses’ views and experiences of relatives of residents in nursing homes. Journal of Clinical Nursing. 2003; 12: 431–441.
  • Hesselink G, Flink M, Olsson M, Barach P, Dudzik-Urbaniak E, Orrego C, etal. Are patients discharged with care? A qualitative study of perceptions and experiences of patients, family members and care providers. BMJ Quality and Safety. 2012; 21: 39–49.
  • Hesslefors Arktoft E. I ord och handling. Innebörder av “att anknyta till elevers erfarenheter”, uttryckta av lärare. 1996; Göteborg: ACTA Universitatis Gothoburgensis. By word and action: the meaning of ‘‘using pupil experiences’’,expressed by teachers). (PhD diss.). Göteborgs Studies in educational sciences 110.
  • Ho A. Relational autonomy or undue pressure? Family's role in medical decision-making. Scandinavian Journal of Caring Sciences. 2008; 22: 128–135.
  • Jakobsson E, Bergh I, Öhlén J. The turning point: Identifying end-of-life care in everyday health care practice. Contemporary Nurse. 2007; 27(1): 107–118.
  • Jansson W, Nordberg G, Grafström M. Patterns of elderly spousal caregiving in dementia care: An observational study. Journal of Advanced Nursing. 2001; 34: 804–812.
  • Johanson M, Larsson U. S, Säljö R, Svärdsudd K. Lifestyle discussion in the provision of health care. An empirical study of patient–physician interaction. Social Science & Medicine. 1998; 1: 103–112.
  • Junefelt K, Sätterlund Larsson U. Sociocultural theory and methods—From the standpoint of a linguist. Socio-cultural theory and methods an anthology. 2001; Vänersborg: Vänersborg University College of Health Sciences. 87–117.
  • Karnieli-Miller O, Werner P, Neufeld-Kroszynski G, Eidelman S. Are you talking to me?! An exploration of the triadic physician–patient–companion communication within memory clinics encounters. Patient Education and Counseling. 2012; 88: 381–390.
  • Kissane D. W. The challenge of discrepancies in values among physicians, patients, and family members. Cancer. 2004; 100: 1771–1775.
  • Korfage I. J, Audrey S, Hak T, Blazeby J. M, Abel J, Campbell R. M. Recognising the importance of ‘family time-out’ in consultations: an exploratory qualitative study. BMJ Open. 2013. 3, e002144.
  • Kristjanson L, S Aranda, M O'Connor. Families of palliative care patients; a model of care. Palliative care nursing: A guide to practice. 1999; Melbourne: Ausmed. 279–293.
  • Labrecque M. S, Blanchard C. G, Ruckdeschel J. C, Blanchard E. B. The impact of family presence on the physician–cancer patient interaction. Social, Science & Medicine. 1991; 33: 1253–1261.
  • Larsson U. S, Säljö R, Aronsson K. Patient–doctor communication on smoking and drinking: Lifestyle in medical consultations. Social, Science & Medicine. 1987; 25: 1129–1137.
  • Levenstein J. H, McCracken E. C, McWhinney I. R, Stewart M. A, Brown J. B. The patient-centered clinical method. A model for the doctor–patient interaction in family medicine. Family Practice. 1986; 3: 24–30.
  • Levine C. The good doctor: the carer's perspective. Clinical Medicine. 2004; 4: 244–245.
  • Levine C, Zuckerman C. The trouble with families: Toward an ethic of accommodation. Annual Internal Medicine. 1999; 130: 148–152.
  • Li H. Hospitalized elders and family caregivers: a topology of family worry. Journal of Clinical Nursing. 2005; 14: 3–8.
  • Löfmark U, Hammarström A. Older stroke patients’ negotiations within the hierarchic medical context. Qualitative Health Research. 2005; 15: 778–790.
  • Magnusson A, Granskär M. Next of kin's experiences of transferring critically ill patients. Vård i Norden. 2005; 25: 15–19.
  • Mehnert A, Lehmann C, Koch U. Doctor–patient interaction: Dealing with difficult situations. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2012; 55: 1134–1143.
  • Mishler E. G. Discourse of medicine: Dialectics of medical interviews. 1984; Norwood, NJ: Ablex.
  • Mishler E. G. Research interviewing. Context and narrative. 1986; Cambridge, MA: Harvard University Press.
  • Patton M. Q. Qualitative research & evaluation methods. 2002; London: Sage.
  • Paul F, Hendry C, Cabrelli L. Meeting patient and relatives’ information needs upon transfer from an intensive unit: the development and evaluation of an information booklet. Journal of Clinical Nursing. 2004; 13: 396–405.
  • Perreault M, Paquin G, Kennedy S, Desmarais J, Tardif H. Patients’ perspective on their relatives’ involvement in treatment during a short-term psychiatric hospitalization. Social Psychiatry and Psychiatric Epidemiology. 1999; 34: 157–165.
  • Petek Ster M. Teaching communication at the Medical School in Ljubljana. Acta Medica Academica. 2012; 41: 38–46.
  • Polit D. F, Beck C. T. Nursing research. Generating and assessing evidence for nursing practice. 2006; 8th ed., Philadelphia: Lippincott Williams & Wilkins.
  • Rogoff B. Apprenticeship in thinking. 1990; New York: Oxford University Press.
  • Royak-Schaler R, Gadalla S. M, Lemkau J. P, Ross D. D, Alexander C, Scott D. Family perspectives on communication with healthcare providers during end-of-life cancer care. Oncology Nursing Forum. 2006; 33: 753–760.
  • Rydeman I, Törnkvist L, Agreus L, Dahlberg K. Being in-between and lost in the discharge process––An excursus of two empirical studies of older persons’, their relatives’, and care professionals experience. International Journal of Qualitative Studies on Health Well-being. 2012; 7 http://dx.doi.org/10.3402/qhw.v7i0.19678 1–9, 19678.
  • Sakai E. Y, Carpenter B. D. Linguistic features of power dynamics in triadic dementia diagnostic conversations. Patient Education and Counseling. 2011; 85: 295–298.
  • Säljö R. Practical learning. A socio-cultural perspective. 2000; Stockholm: Bokförlaget Prisma.
  • Sayers G. M, Bethell H. W. Pacing extremely old patients: Who decides—the doctor, the patient, or the relatives?. Heart. 2004; 90: 134–135.
  • Schilling L. M, Scatena L, Steiner J. F, Albertson G. A, Lin C. T, Cyran L, etal. The third person in the room: Frequency, role, and influence of companions during primary care medical encounters. Journal of Family Practice. 2002; 51: 685–690.
  • Schweitzer S, van Oorschot B, Kohler N, Leppert K, Steibach K, Hausmann C, etal. The patient and his family. Psychotherapie Psychosomatik Medizinische Psychologie. 2005; 55: 298–304.
  • Selander S. Om kommunikation i vården och medicinsk information. (Health care communication and medical information). SPOV. 1991; 11: 3–10.
  • SFS. Lagen om ändring i hälso-och sjukvårdslagen [Swedish Health and Medical Service Act]. 1982; Stockholm, Sweden: Ministry of Health and Social Affairs. (amended from 2011:1576). Retrieved April 17, 2012, from http://www.notisum.se 763.
  • Shields C. G, Epstein R. M, Fiscella K, Franks P, McCann R, McCormick K, etal. Influence of accompanied encounters on patient-centeredness with older patients. Journal of American Board Family Medicine. 2005; 18: 344–354.
  • Silliman R. A. Caregiving issues in geriatric medical encounter. Clinics in Geriatric Medicine. 2000; 16: 51–60.
  • Silverman D. Interpreting qualitative data method for analysing talk, text and interaction. 2001; London: Sage.
  • Silverman D. Interpreting qualitative data. Method for analyzing talk, text and interaction. 2006; 3rd ed., London: Sage.
  • SOU. Awareness of meeting of elderly. 1997; Stockholm, Sweden: Ministry of Health and Social Affairs. 170.
  • Swedish Government Bill. National development plan for health and social care for the elderly. 2005/06. Retrieved January 16, 2013, from: http://www.sweden.gov.se/sb/d/5692/a/60665 115.
  • The National Board of Health and Welfare. The elderly mission. 1998; Stockholm: Author.
  • The National Board of Health and Welfare. Your safety and security as a patient. 2008; Stockholm: The National Board of Health and Welfare.
  • Vetenskapsrådet. Riktlinjer för etisk värdering av medicinsk humanforskning. MRF-rapport. [Swedish Research Council. Guidelines for the ethical evaluation of medical research]. 2003; Uppsala: Almqvist & Wiksell.
  • Vygotsky L. S. Thought and language. 1987; Cambridge, MA: MIT Press.
  • Wertsch J. Voices of mind. 1998; Cambridge, MA: Harvard University Press.
  • Wilz G, Meichsner F. Involving family members of chronically ill patients in physician–patient communication. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2012; 55: 1125–1131.
  • Wolff J. L, Clayman M. L, Rabins P, Cook M. A, Roter D. L. An exploration of patient and family engagement in routine primary care visits. Health Expectations. 2012. 16, 1–11.
  • Wolff J. L, Roter D. L. Older adults’ mental health function and patient-centered care: does the presence of a family companion help or hinder communication?. Journal of General Internal Medicine. 2012; 27: 661–668.
  • World Health Organization. Information needs for research, policy and action on ageing and older persons: Definition of an older or elderly person. 2003; Switzerland: Geneva.