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Disability and Rehabilitation
Volume 44, 2022 - Issue 22
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Research Papers
Experiences of patients with facioscapulohumeral dystrophy with facial weakness: a qualitative study
Sümeyye Sezera Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlandshttps://orcid.org/0000-0001-7386-334X
, Edith H. C. Cupb Department of Rehabilitation, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlandshttps://orcid.org/0000-0003-3452-9650
, Lieve M. Roets-Merkenc Radboud Institute for Health Science, Radboud University Medical Center, Nijmegen, The Netherlandshttps://orcid.org/0000-0002-7248-7968
, Anke Lanserd Patient Representative & Chairman FSHD Advocacy Group, Patient Organization for Muscular Disease Spierziekten Nederland, Baarn, The Netherlands
, Ietske Siemanne Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlandshttps://orcid.org/0000-0002-0246-4402
, Janneke G. Weikampf Department of Rehabilitation, Donders Centre for Neuroscience, Radboud University Medical Center, Nijmegen, The Netherlandshttps://orcid.org/0000-0002-1003-0161
, Karlien Mula Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlandshttps://orcid.org/0000-0001-8487-9478
, Baziel G. van Engelena Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlandshttps://orcid.org/0000-0001-9867-9047
, Ton Satinkg Department of Occupational Therapy, HAN University of Applied Sciences, Nijmegen, The Netherlandshttps://orcid.org/0000-0003-2316-7009
& Nicol C. Voermansa Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The NetherlandsCorrespondence[email protected]
https://orcid.org/0000-0002-5837-7295
show allhttps://orcid.org/0000-0002-5837-7295
Pages 6775-6782
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Received 27 Apr 2021, Accepted 23 Aug 2021, Published online: 16 Sep 2021
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