Burden of illness of progressive familial intrahepatic cholestasis in the US, UK, France, and Germany: study rationale and protocol of the PICTURE study

Sonia O’Harab HCD Economics, Daresbury, UK

Alan Finneganc Faculty of Health and Social Care, University of Chester, UKView further author information

Alison Taylord Children’s Liver Disease Foundation, Birmingham, UKView further author information

Emily Venturae PFIC Advocacy and Resource Network, KY, United StatesView further author information

Anil Dhawanf Pediatric Liver GI and Nutrition Center, King’s College Hospital, London, UKView further author information

Karen F Murrayg Pediatric Institute, Cleveland Clinic Children’s Hospital, Cleveland, OH, United StatesView further author information

Jorn Schattenbergh University Medical Center of the Johannes Gutenberg-University, Mainz, Germany

Jose Willemsei Dutch Liver Patient Association (NLV), Hoogland, NetherlandsView further author information

Melanie Karakaidose PFIC Advocacy and Resource Network, KY, United StatesView further author information

Harpreet Brrangd Children’s Liver Disease Foundation, Birmingham, UKView further author information

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