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Hematology Volume 27, 2022 - Issue 1
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Research Article

The burden of illness of patients with paroxysmal nocturnal haemoglobinuria receiving C5 inhibitors: clinical outcomes and medical encounters from the patient perspective

Flore Sicre de Fontbrunea Hematology transplant Unit – French Reference Center for Aplastic Anemia, Hôpital Saint-Louis, Paris, FranceView further author information
,
Pascale Burmesterb Stiftung Lichterzellen, Cologne, GermanyView further author information
,
Maria Pigginc PNH Support, London, UKView further author information
,
Joana E. Matosd Employee of Kantar Health, New York, NY, USA at the time of the studyView further author information
,
Halley Costantinoe Cerner Enviza (formerly Kantar Health), Malvern, PA, USAView further author information
,
Koo Wilsonf Swedish Orphan Biovitrum AB, Stockholm, SwedenCorrespondence[email protected]
View further author information
,
Zalmai Hakimif Swedish Orphan Biovitrum AB, Stockholm, SwedenView further author information
,
Jameel Nazirf Swedish Orphan Biovitrum AB, Stockholm, SwedenView further author information
,
Renaud Desgrazg Apellis Pharmaceuticals, Zug, SwitzerlandView further author information
,
Jesse Fishmanh Apellis Pharmaceuticals, Inc., Waltham, MA, USAView further author information
,
Emmelie Perssonf Swedish Orphan Biovitrum AB, Stockholm, SwedenView further author information
&
Jens Pansei Department of Oncology, Hematology, Hemostaseology and Stem Cell Transplantation, University Hospital RWTH Aachen, Aachen, Germany;j Center for Integrated Oncology (CIO) Aachen, Bonn, Cologne, DuesseldorfView further author information
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Pages 1140-1151 | Published online: 27 Sep 2022

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The burden of illness of patients with paroxysmal nocturnal haemoglobinuria receiving C5 inhibitors: clinical outcomes and medical encounters from the patient perspective
Source: Taylor & Francis

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