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Original Research
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities to transform the care of people with hemophilia
Duc Q. Trana Hemophilia of Georgia Center for Bleeding & Clotting Disorders of Emory, Emory University, Atlanta, Georgia, USACorrespondence[email protected]
https://orcid.org/0000-0002-6347-4452View further author information
Craig C. Bensonb Sanofi - Rare and Rare Blood Disorders Development, Cambridge, Massachusetts, USAView further author information
, Judith A. Boicec Tremeau Pharmaceuticals, Concord, Massachusetts, USA
https://orcid.org/0000-0001-5700-2742View further author information
Meera Chitlurd Division of Hematology/Oncology, Central Michigan University College of Medicine, Detroit, Michigan, USA
https://orcid.org/0000-0001-7656-0694View further author information
Amy L. Dunne Division of Hematology, Oncology and Bone Marrow Transplant, Nationwide Children’s Hospital, Columbus, Ohio, USA;f Department of Pediatrics, The Ohio State University College of Medicine, Columbus, Ohio, USA
https://orcid.org/0000-0002-9645-6365View further author information
Miguel A. Escobarg Division of Hematology, UTHealth Houston McGovern Medical School, Gulf States Hemophilia and Thrombophilia Center, Houston, Texas, USA
https://orcid.org/0000-0002-2944-0240View further author information
Kalpna Guptah Center for Bleeding and Clotting Disorders, Division Hematology, Oncology and Transplantation, University of Minnesota, Minneapolis, Minnesota, USA;i Division of Hematology/Oncology, Department of Medicine, University of California, Irvine, California, USA
https://orcid.org/0000-0001-9381-9979View further author information
Jill M. Johnsenj Bloodworks Northwest, Seattle, Washington, USA;k Department of Medicine, University of Washington, Seattle, Washington, USA;l Washington Center for Bleeding Disorders, Seattle, Washington, USA
https://orcid.org/0000-0002-2279-2550View further author information
James Jorgensonm Visante Inc, St. Paul, Minnesota, USAView further author information
, Scott D. Martinn National Hemophilia Foundation, NY, New York, USAView further author information
, Suzanne Martino Bleeding Disorders Association of South Carolina, Greenville, South Carolina, USAView further author information
, Shannon L. Meeksa Hemophilia of Georgia Center for Bleeding & Clotting Disorders of Emory, Emory University, Atlanta, Georgia, USA;p Aflac Cancer and Blood Disorders Center, Children’s Healthcare of Atlanta Inc, Atlanta, Georgia, USA and Department of Pediatrics, Emory University, Atlanta, Georgia, USA
https://orcid.org/0000-0002-3683-8644View further author information
Alfredo A. Narvaez Jrq Louisiana Center for Bleeding & Clotting Disorders, Tulane University, New Orleans, Louisiana, USAView further author information
, Doris V. Quonr Orthopaedic Hemophilia Treatment Center, Orthopaedic Hospital of Los Angeles, California, USA
https://orcid.org/0000-0002-9148-3268View further author information
Mark T. Redingh Center for Bleeding and Clotting Disorders, Division Hematology, Oncology and Transplantation, University of Minnesota, Minneapolis, Minnesota, USAView further author information
, Ulrike M. Reisss Department of Hematology, St. Jude Children’s Research Hospital, Memphis, Tennessee, USA
https://orcid.org/0000-0002-2258-3687View further author information
Brittany Savaget Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USAView further author information
, Kim Schaferu Davis Hemostasis and Thrombosis Center, University of California Davis, Sacramento, California, USAView further author information
, Bruno Steinerl Washington Center for Bleeding Disorders, Seattle, Washington, USA
https://orcid.org/0000-0001-9705-8900View further author information
Courtney Thornburgv Division of Pediatric Hematology/Oncology,Rady Children’s Hospital-San Diego, San Diego, California, USA;w Department of Pediatrics, UC San Diego, La Jolla, California, USAView further author information
, Lena M. Vollandn National Hemophilia Foundation, NY, New York, USAView further author information
& Annette von Drygalskix Hemophilia & Thrombosis Treatment Center, University of California San Diego, California, USA
https://orcid.org/0000-0002-9426-6322View further author information
Pages 19-37
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Received 05 Dec 2022, Accepted 19 Jan 2023, Published online: 15 Mar 2023
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