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Original Research
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity, and inclusion; and implementation science
Vanessa R. Byamsa Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USACorrespondence[email protected]
https://orcid.org/0000-0002-7700-2667View further author information
Judith R. Bakerb Center for Inherited Blood Disorders, Western States Regional Hemophilia Network, Orange, California, USA
https://orcid.org/0000-0002-7850-0027View further author information
Cindy Baileyc Los Angeles Orthopaedic Hemophilia Treatment Center, Los Angeles, California, USAView further author information
, Nathan T. Connelld Boston Hemophilia Center, Division of Hematology, Department of Medicine, Brigham and Women’s Hospital, Boston, Massachusetts, USA;e Department of Medicine, Harvard Medical School, Boston, Massachusetts, USA
https://orcid.org/0000-0003-4100-7826View further author information
Melissa S. Crearyf American Thrombosis and Hemostasis Network, Rochester, New York, USA;g Department of Health Management and Policy, University of Michigan School of Public Health, Ann Arbor, Michigan, USA
https://orcid.org/0000-0001-7904-3377View further author information
Randall G. Curtish Hematology Utilization Group Study (HUGS), University of Southern California, Los Angeles, California, USA;i Patient Reported Outcomes, Burdens and Experiences (PROBE), Washington, DC, USA
https://orcid.org/0000-0002-6859-6432View further author information
Alexis Dinnoj The Oregon Health & Science University-Portland State University School of Public Health, Portland, Oregon, USAView further author information
, Christine J. Guelcherk Hemostasis and Thrombosis Program, Children’s National Hospital, Washington, DC, USA
https://orcid.org/0000-0001-9226-2347View further author information
Michelle Kiml Hemophilia Foundation of Southern California, Pasadena, California, USAView further author information
, Roshni Kulkarnim MSU Center of Bleeding and Clotting Disorders, Department Pediatrics and Human Development, Michigan State University, East Lansing, Michigan, USA
https://orcid.org/0000-0001-9372-3184View further author information
Susan Lattimoren Department of Pediatrics, Oregon Health & Science University, Portland, Oregon, USA;o Mountain States Regional Hemophilia Network, Portland, Oregon, USA
https://orcid.org/0000-0001-6110-0257View further author information
Keri L. Norrisp National Hemophilia Foundation, New York, New York, USAView further author information
, Lucy Ramirezq Rush Hemophilia and Thrombophilia Treatment Center, Rush University Medical Center, Chicago, Illinois, USAView further author information
, Mark W. Skinnerr Institute for Policy Advancement, Washington, DC, USA;s Health Sciences, McMaster University, Hamilton, Ontario, Canada
https://orcid.org/0000-0002-0934-0680View further author information
Susan Symingtont Genentech, Phoenix, Arizona, USAView further author information
, Patricia Tobaseu University of California San Francisco Hemophilia Treatment Center, University of California San Francisco, San Francisco, California, USAView further author information
, Esmeralda Vázquezv Patient Author, Lived Experience Expert, Chicago, Illinois, USAView further author information
, Beth B. Warrenw Department of Pediatrics, University of Colorado School of Medicine, Aurora, Colorado, USA;x Hemophilia and Thrombosis Center, Division of Hematology, University of Colorado School of Medicine, Aurora, Colorado, USA
https://orcid.org/0000-0003-4416-3031View further author information
Emily Wheatw Department of Pediatrics, University of Colorado School of Medicine, Aurora, Colorado, USA;x Hemophilia and Thrombosis Center, Division of Hematology, University of Colorado School of Medicine, Aurora, Colorado, USAView further author information
& Tyler W. Bucknerx Hemophilia and Thrombosis Center, Division of Hematology, University of Colorado School of Medicine, Aurora, Colorado, USA
https://orcid.org/0000-0003-1954-4385View further author information
Pages 87-106
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Received 01 Feb 2023, Accepted 20 Feb 2023, Published online: 15 Mar 2023
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