The American Journal of Bioethics, Volume 20, Issue 8 (2020)

Browse this journal
Sample our Medicine, Dentistry, Nursing & Allied Health journals, sign in here to start your FREE access for 14 days

The American Journal of Bioethics, Volume 20, Issue 8 (2020)

See all volumes and issues
Vol 24, 2024 Vol 23, 2023 Vol 22, 2022 Vol 21, 2021 Volume 20, 2020 Vol 19, 2019 Vol 18, 2018 Vol 17, 2017 Vol 16, 2016 Vol 15, 2015 Vol 14, 2014 Vol 13, 2013 Vol 12, 2012 Vol 11, 2011 Vol 10, 2010 Vol 9, 2009 Vol 8, 2008 Vol 7, 2007 Vol 6, 2006 Vol 5, 2005 Vol 4, 2004 Vol 3, 2003 Vol 2, 2002 Vol 1, 2001
Download citations Download PDFs

GUEST EDITORIALS

Upstream Ethical Mapping of Germline Genome Editing
Jodi Halpern & David Paolo
Pages: 1-4
Published online: 06 Aug 2020
First Page PreviewforUpstream Ethical Mapping of Germline Genome Editing | Full Text | References | PDF (374.1 KB) | EPUB
  • 1127 Views
  • 1 CrossRef citations
  • 0Altmetric
Free Access
Ethically Problematic Medical Device Representation
Judy Illes, Patrick J. McDonald, Chloe Lau, Viorica M. Hrincu & Mary B. Connolly
Pages: 5-6
Published online: 06 Aug 2020
CitationforEthically Problematic Medical Device Representation | Full Text | References | PDF (267.7 KB) | EPUB
  • 368 Views
  • 2 CrossRef citations
  • 0Altmetric

TARGET ARTICLE

Article
Revising, Correcting, and Transferring Genes
Bryan Cwik
Pages: 7-18
Published online: 06 Aug 2020
AbstractforRevising, Correcting, and Transferring Genes | Full Text | References | PDF (1,020.6 KB) | EPUB
  • 1332 Views
  • 23 CrossRef citations
  • 0Altmetric

OPEN PEER COMMENTARIES

New Barriers on the Slippery Slope?
John H. Evans
Pages: 19-21
Published online: 06 Aug 2020
First Page PreviewforNew Barriers on the Slippery Slope? | Full Text | References | PDF (454.2 KB) | EPUB
  • 200 Views
  • 1 CrossRef citations
  • 0Altmetric
Gremlins in the Germline
Tim Lewens
Pages: 21-23
Published online: 06 Aug 2020
First Page PreviewforGremlins in the Germline | Full Text | References | PDF (512 KB) | EPUB
  • 160 Views
  • 0 CrossRef citations
  • 0Altmetric
Non-Human Germline Interventions
Stephen R. Latham
Pages: 23-25
Published online: 06 Aug 2020
First Page PreviewforNon-Human Germline Interventions | Full Text | References | PDF (568.7 KB) | EPUB
  • 122 Views
  • 0 CrossRef citations
  • 0Altmetric
Enriching, Rather than Revising, the Conceptual Toolbox on Germline Interventions
Alexandre Erler
Pages: 25-27
Published online: 06 Aug 2020
First Page PreviewforEnriching, Rather than Revising, the Conceptual Toolbox on Germline Interventions | Full Text | References | PDF (754.2 KB) | EPUB
  • 109 Views
  • 0 CrossRef citations
  • 0Altmetric
Technical Categories and Ethical Justifications: Why Cwik’s Approach is the Wrong Way Around for Categorizing Germ-Line Gene Editing
Anthony Wrigley & Ainsley J. Newson
Pages: 27-29
Published online: 06 Aug 2020
First Page PreviewforTechnical Categories and Ethical Justifications: Why Cwik’s Approach is the Wrong Way Around for Categorizing Germ-Line Gene Editing | Full Text | References | PDF (626.5 KB) | EPUB
  • 179 Views
  • 1 CrossRef citations
  • 0Altmetric
Is It All About Revising, Correcting, and Transferring Genes?
Vasilija Rolfes, Uta Bittner, Heiner Fangerau & Karsten Weber
Pages: 30-32
Published online: 06 Aug 2020
First Page PreviewforIs It All About Revising, Correcting, and Transferring Genes? | Full Text | References | PDF (909.4 KB) | EPUB
  • 91 Views
  • 1 CrossRef citations
  • 0Altmetric
Ethical Framework for Next-Generation Genome and Epigenome Editing
Kyoko Akatsuka, Mitsuru Sasaki-Honda & Tsutomu Sawai
Pages: 32-36
Published online: 06 Aug 2020
First Page PreviewforEthical Framework for Next-Generation Genome and Epigenome Editing | Full Text | References | PDF (1.1 MB) | EPUB
  • 254 Views
  • 3 CrossRef citations
  • 0Altmetric
Germline Gene Editing: Minding the Past and the Future
Inmaculada de Melo-Martin
Pages: 36-38
Published online: 06 Aug 2020
First Page PreviewforGermline Gene Editing: Minding the Past and the Future | Full Text | References | PDF (778.2 KB) | EPUB
  • 271 Views
  • 1 CrossRef citations
  • 0Altmetric
Of the Rights and Best Interests of Future Generations
Erika Kleiderman, Minh Thu Nguyen & Bartha Maria Knoppers
Pages: 38-40
Published online: 06 Aug 2020
First Page PreviewforOf the Rights and Best Interests of Future Generations | Full Text | References | PDF (736.7 KB) | EPUB
  • 233 Views
  • 0 CrossRef citations
  • 0Altmetric
It Is Time to Consult the Children: A Mother Who Faced Mitochondrial Replacement and Her Son Consider the Limits of Genetic Modification
Susan M. Wolf & Jacob S. Borgida
Pages: 41-43
Published online: 06 Aug 2020
First Page PreviewforIt Is Time to Consult the Children: A Mother Who Faced Mitochondrial Replacement and Her Son Consider the Limits of Genetic Modification | Full Text | References | PDF (376.6 KB) | EPUB
  • 259 Views
  • 1 CrossRef citations
  • 0Altmetric
Revising, Correcting and Transferring Genes: Germline Editing Versus Natural Reproduction
Jesse Gray
Pages: 44-46
Published online: 06 Aug 2020
First Page PreviewforRevising, Correcting and Transferring Genes: Germline Editing Versus Natural Reproduction | Full Text | References | PDF (619.8 KB) | EPUB
  • 124 Views
  • 0 CrossRef citations
  • 0Altmetric
Germline Gene Editing for Sickle Cell Disease
Akshay Sharma, Nickhill Bhakta & Liza-Marie Johnson
Pages: 46-49
Published online: 06 Aug 2020
First Page PreviewforGermline Gene Editing for Sickle Cell Disease | Full Text | References | PDF (803.4 KB) | EPUB
  • 756 Views
  • 3 CrossRef citations
  • 0Altmetric
Assessing the Ethical Distinctions Between Different Types of Prospective Human Germline Genetic Interventions
Audrey R. Chapman
Pages: 49-50
Published online: 06 Aug 2020
CitationforAssessing the Ethical Distinctions Between Different Types of Prospective Human Germline Genetic Interventions | Full Text | References | PDF (303.3 KB) | EPUB
  • 147 Views
  • 0 CrossRef citations
  • 0Altmetric
Host as a Unique Ethical Dimension of Germline Interventions
Connor T. A. Brenna
Pages: 51-53
Published online: 06 Aug 2020
First Page PreviewforHost as a Unique Ethical Dimension of Germline Interventions | Full Text | References | PDF (464.4 KB) | EPUB
  • 89 Views
  • 1 CrossRef citations
  • 0Altmetric

TARGET ARTICLE

Article
Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives
Emily Walsh
Pages: 54-64
Published online: 06 Aug 2020
AbstractforCognitive Transformation, Dementia, and the Moral Weight of Advance Directives | Full Text | References | PDF (825.9 KB) | EPUB
  • 2037 Views
  • 36 CrossRef citations
  • 0Altmetric

OPEN PEER COMMENTARIES

Whose Preferences?
L. A. Paul
Pages: 65-66
Published online: 06 Aug 2020
CitationforWhose Preferences? | Full Text | References | PDF (353.7 KB) | EPUB
  • 238 Views
  • 2 CrossRef citations
  • 0Altmetric
Understanding Advance Directives as a Component of Advance Care Planning
Kristina Celeste Fong & Winston Chiong
Pages: 67-69
Published online: 06 Aug 2020
First Page PreviewforUnderstanding Advance Directives as a Component of Advance Care Planning | Full Text | References | PDF (621.5 KB) | EPUB
  • 381 Views
  • 1 CrossRef citations
  • 0Altmetric
Advance Directives and Transformative Experience: Resilience in the Face of Change
Govind C. Persad
Pages: 69-71
Published online: 06 Aug 2020
First Page PreviewforAdvance Directives and Transformative Experience: Resilience in the Face of Change | Full Text | References | PDF (379.5 KB) | EPUB
  • 263 Views
  • 1 CrossRef citations
  • 0Altmetric
Personal Transformation and Advance Directives: An Experimental Bioethics Approach
Brian D. Earp, Stephen R. Latham & Kevin P. Tobia
Pages: 72-75
Published online: 06 Aug 2020
First Page PreviewforPersonal Transformation and Advance Directives: An Experimental Bioethics Approach | Full Text | References | PDF (758.8 KB) | EPUB
  • 413 Views
  • 5 CrossRef citations
  • 0Altmetric
The Moral Weight of Preferences: Death, Sex, and Dementia
Elizabeth Lanphier & Shannon Fyfe
Pages: 76-78
Published online: 06 Aug 2020
First Page PreviewforThe Moral Weight of Preferences: Death, Sex, and Dementia | Full Text | References | PDF (720.6 KB) | EPUB
  • 214 Views
  • 1 CrossRef citations
  • 0Altmetric
“Why Should Adamancy of an Uninformed View Give Moral Weight?”
Sara Goering
Pages: 78-79
Published online: 06 Aug 2020
Citationfor“Why Should Adamancy of an Uninformed View Give Moral Weight?” | Full Text | References | PDF (411 KB) | EPUB
  • 145 Views
  • 1 CrossRef citations
  • 0Altmetric
Advance Directives for Dementia Can Survive Altered Preferences
Paul T. Menzel
Pages: 80-82
Published online: 06 Aug 2020
First Page PreviewforAdvance Directives for Dementia Can Survive Altered Preferences | Full Text | References | PDF (360.6 KB) | EPUB
  • 267 Views
  • 1 CrossRef citations
  • 0Altmetric
Where Do You End, and I Begin? How Relationships Confound Advance Directives in the Care of Persons Living with Dementia
David M. Lyreskog, Jason Karlawish & Saskia K. Nagel
Pages: 83-85
Published online: 06 Aug 2020
First Page PreviewforWhere Do You End, and I Begin? How Relationships Confound Advance Directives in the Care of Persons Living with Dementia | Full Text | References | PDF (733.7 KB) | EPUB
  • 278 Views
  • 3 CrossRef citations
  • 0Altmetric
Living Will Versus Will to Live? How to Navigate Through Complex Decisions for Persons With Dementia
Ralf J. Jox
Pages: 85-87
Published online: 06 Aug 2020
First Page PreviewforLiving Will Versus Will to Live? How to Navigate Through Complex Decisions for Persons With Dementia | Full Text | References | PDF (470.2 KB) | EPUB
  • 302 Views
  • 2 CrossRef citations
  • 0Altmetric
Dementia, Cognitive Transformation, and Supported Decision Making
Megan S. Wright
Pages: 88-90
Published online: 06 Aug 2020
First Page PreviewforDementia, Cognitive Transformation, and Supported Decision Making | Full Text | References | PDF (572.6 KB) | EPUB
  • 526 Views
  • 6 CrossRef citations
  • 0Altmetric
Losing Rather than Choosing: A Defense of Advance Directives in the Context of Dementia
Karin Jongsma
Pages: 90-92
Published online: 06 Aug 2020
First Page PreviewforLosing Rather than Choosing: A Defense of Advance Directives in the Context of Dementia | Full Text | References | PDF (468.7 KB) | EPUB
  • 283 Views
  • 3 CrossRef citations
  • 0Altmetric
Advanced Care Planning: Promoting Autonomy in Caring for People with Dementia
Francesca Bosisio & Gaia Barazzetti
Pages: 93-95
Published online: 06 Aug 2020
First Page PreviewforAdvanced Care Planning: Promoting Autonomy in Caring for People with Dementia | Full Text | References | PDF (365.1 KB) | EPUB
  • 1282 Views
  • 7 CrossRef citations
  • 0Altmetric
Why We Should Not Let the Cheerfully Demented Die
David G. Limbaugh, Peter M. Koch & Eric C. Merrell
Pages: 96-98
Published online: 06 Aug 2020
First Page PreviewforWhy We Should Not Let the Cheerfully Demented Die | Full Text | References | PDF (728.6 KB) | EPUB
  • 135 Views
  • 1 CrossRef citations
  • 0Altmetric
The Irrelevance of Origins: Dementia, Advance Directives, and the Capacity for Preferences
Jason Adam Wasserman & Mark Christopher Navin
Pages: 98-100
Published online: 06 Aug 2020
First Page PreviewforThe Irrelevance of Origins: Dementia, Advance Directives, and the Capacity for Preferences | Full Text | References | PDF (635.9 KB) | EPUB
  • 254 Views
  • 1 CrossRef citations
  • 0Altmetric
Beyond Cognition: Psychological and Social Transformations in People Living with Dementia and Relevance for Decision-Making Capacity and Opportunity
John Noel Viaña, Fran McInerney & Henry Brodaty
Pages: 101-104
Published online: 06 Aug 2020
First Page PreviewforBeyond Cognition: Psychological and Social Transformations in People Living with Dementia and Relevance for Decision-Making Capacity and Opportunity | Full Text | References | PDF (899.7 KB) | EPUB
  • 1152 Views
  • 5 CrossRef citations
  • 0Altmetric
Beyond Precedent Autonomy and Current Preferences: A Narrative Perspective on Advance Directives in Dementia Care
Guy Widdershoven, Rien Janssens & Yolande Voskes
Pages: 104-106
Published online: 06 Aug 2020
First Page PreviewforBeyond Precedent Autonomy and Current Preferences: A Narrative Perspective on Advance Directives in Dementia Care | Full Text | References | PDF (364.2 KB) | EPUB
  • 475 Views
  • 5 CrossRef citations
  • 0Altmetric
Holding On: A Community Approach to Autonomy in Dementia
Kit Rempala, Marley Hornewer, Joseph Vukov, Rohan Meda & Sarah Khan
Pages: 107-109
Published online: 06 Aug 2020
First Page PreviewforHolding On: A Community Approach to Autonomy in Dementia | Full Text | References | PDF (355.3 KB) | EPUB
  • 549 Views
  • 1 CrossRef citations
  • 0Altmetric

CASE REPORT

Case Report
Surprise Billing in the Emergency Department: What’s a Clinical Ethics Consultant to Do?
Anita Tarzian
Pages: 110-111
Published online: 06 Aug 2020
CitationforSurprise Billing in the Emergency Department: What’s a Clinical Ethics Consultant to Do? | Full Text | References | PDF (239.8 KB) | EPUB
  • 130 Views
  • 1 CrossRef citations
  • 0Altmetric

CASE COMMENTARIES

Surprise Billing in a Hospital Emergency Department – An Ethical, Contractual, and Legislative Conundrum
Frederick J. White
Pages: 112-114
Published online: 06 Aug 2020
First Page PreviewforSurprise Billing in a Hospital Emergency Department – An Ethical, Contractual, and Legislative Conundrum | Full Text | References | PDF (562.2 KB) | EPUB
  • 215 Views
  • 3 CrossRef citations
  • 0Altmetric
Surprise Billing as a Source of Vulnerability—An Ethics Question Indeed
Leslie Kuhnel
Pages: 114-116
Published online: 06 Aug 2020
First Page PreviewforSurprise Billing as a Source of Vulnerability—An Ethics Question Indeed | Full Text | References | PDF (415.5 KB) | EPUB
  • 144 Views
  • 1 CrossRef citations
  • 0Altmetric
The Nexus of Medical Professional Ethics and Business Ethics
Robert Charles Solomon
Pages: 117-118
Published online: 06 Aug 2020
CitationforThe Nexus of Medical Professional Ethics and Business Ethics | Full Text | References | PDF (298.2 KB) | EPUB
  • 120 Views
  • 0 CrossRef citations
  • 0Altmetric

CASE REPORT

Case Report
Treatment Refusal in the Setting of Self-Immolation
Leah Eisenberg & Benjamin Krohmal
Pages: 119-120
Published online: 06 Aug 2020
CitationforTreatment Refusal in the Setting of Self-Immolation | Full Text | PDF (238.1 KB) | EPUB
  • 232 Views
  • 0 CrossRef citations
  • 0Altmetric

CASE COMMENTARIES

Suicide Attempts and the Obligations of Medical Providers
Erica K. Salter
Pages: 121-122
Published online: 06 Aug 2020
CitationforSuicide Attempts and the Obligations of Medical Providers | Full Text | References | PDF (241.2 KB) | EPUB
  • 134 Views
  • 0 CrossRef citations
  • 0Altmetric
Comfort Care after Self-Immolation: Is the Physician Complicit?
Chad M. Teven & Peter Angelos
Pages: 123-125
Published online: 06 Aug 2020
First Page PreviewforComfort Care after Self-Immolation: Is the Physician Complicit? | Full Text | References | PDF (508 KB) | EPUB
  • 89 Views
  • 3 CrossRef citations
  • 0Altmetric
Honoring a Request for Comfort Measures Only After Self-Harm
Benjamin Krohmal
Pages: 125-127
Published online: 06 Aug 2020
First Page PreviewforHonoring a Request for Comfort Measures Only After Self-Harm | Full Text | References | PDF (358.6 KB) | EPUB
  • 83 Views
  • 0 CrossRef citations
  • 0Altmetric

CORRESPONDENCES

Days of Future Past: Reply to Open Peer Commentaries on “Revising, Correcting, and Transferring Genes”
Bryan Cwik
Pages: W1-W3
Published online: 06 Aug 2020
First Page PreviewforDays of Future Past: Reply to Open Peer Commentaries on “Revising, Correcting, and Transferring Genes” | Full Text | References | PDF (418.6 KB) | EPUB
  • 492 Views
  • 2 CrossRef citations
  • 0Altmetric
Free Access
A Critical Dialogue on the Transformational Nature of Dementia: Response to Open Peer Commentaries on “Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives”
Emily Walsh
Pages: W4-W7
Published online: 06 Aug 2020
First Page PreviewforA Critical Dialogue on the Transformational Nature of Dementia: Response to Open Peer Commentaries on “Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives” | Full Text | References | PDF (379.2 KB) | EPUB
  • 1023 Views
  • 1 CrossRef citations
  • 0Altmetric
Free Access
Response to Open Peer Commentaries on “How Payment for Research Participation Can Be Coercive”
Joseph Millum & Michael Garnett
Pages: W8-W11
Published online: 06 Aug 2020
First Page PreviewforResponse to Open Peer Commentaries on “How Payment for Research Participation Can Be Coercive” | Full Text | References | PDF (391.9 KB) | EPUB
  • 125 Views
  • 0 CrossRef citations
  • 0Altmetric
Response to Open Peer Commentaries on “Partnering with Patients to Bridge Gaps in Consent for Acute Care Research”
Neal W. Dickert, A. Michelle Bernard, JoAnne M. Brabson, Rodney J. Hunter, Regina McLemore, Andrea R. Mitchell, Stephen Palmer, Barbara Reed, Michele Riedford, Raymond T. Simpson, Candace D. Speight, Tracie Steadman & Rebecca D. Pentz
Pages: W12-W13
Published online: 06 Aug 2020
CitationforResponse to Open Peer Commentaries on “Partnering with Patients to Bridge Gaps in Consent for Acute Care Research” | Full Text | References | PDF (249.4 KB) | EPUB
  • 58 Views
  • 0 CrossRef citations
  • 0Altmetric
Response to Open Peer Commentaries on “Solidarity and Community Engagement in Global Health Research”
Bridget Pratt, Phaik Yeong Cheah & Vicki Marsh
Pages: W14-W16
Published online: 06 Aug 2020
First Page PreviewforResponse to Open Peer Commentaries on “Solidarity and Community Engagement in Global Health Research” | Full Text | References | PDF (360.8 KB) | EPUB
  • 713 Views
  • 0 CrossRef citations
  • 0Altmetric
Open Access

Explore articles

Explore the most recently published articles

The Social Value Misconception in Clinical Research
Jake Earl et al.
Target Article | Published online: 15 Jul 2024
The Uniform Determination of Death Act is Not Changing. Will Physicians Continue to Misdiagnose Brain Death?
Michael Nair-Collins
Target Article | Published online: 5 Jul 2024
Open Access
Near Fatal Opioid Overdose: A Paradigm Case Where Principlism Fails
Jolion McGreevy
Letter to the Editor | Published online: 26 Jun 2024
Respect for Autonomy Requires a Mental Model
Nada Gligorov et al.
Article Commentary | Published online: 24 Jun 2024
View all latest articles