Citations (50)
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Nicola Glennie, Fiona M. Harris & Emma F. France. (2023) Perceptions and experiences of control among people living with motor neurone disease: a systematic review and thematic synthesis. Disability and Rehabilitation 45:16, pages 2554-2566.
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Jasmine F. Ashhurst, Sicong Tu, Hannah C. Timmins & Matthew C. Kiernan. (2022) Progress, development, and challenges in amyotrophic lateral sclerosis clinical trials. Expert Review of Neurotherapeutics 22:11-12, pages 905-913.
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Dominika Lisiecka, Aine Kearns, Fiona Bourke, Ian Lawson & Cath Muir. (2022) A qualitative meta-synthesis of evidence (meta-ethnography) exploring the personal experiences of gastrostomy tube in neurodegenerative diseases: a case of motor neurone disease. Disability and Rehabilitation 44:18, pages 4949-4965.
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C. Paynter, S. Mathers, H. Gregory, A. P. Vogel & M. Cruice. (2022) How people living with motor neurone disease and their carers experience healthcare decision making: a qualitative exploration. Disability and Rehabilitation 44:13, pages 3095-3103.
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Maria Stavrou, Judith Newton, Gill Stott, Shuna Colville, Siddharthan Chandran, Sharon Abrahams, Suvankar Pal & Richard Davenport. (2020) National audit of cognitive assessment in people with pwMND A national audit of cognitive assessment in people with motor neurone disease (pwMND) in Scotland. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:5-6, pages 459-462.
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Geraldine Foley & Geralyn Hynes. (2018) Decision-making among patients and their family in ALS care: a review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:3-4, pages 173-193.
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Anne Hogden, Geraldine Foley, Robert D Henderson, Natalie James & Samar M Aoun. (2017) Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach. Journal of Multidisciplinary Healthcare 10, pages 205-215.
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Dikaios Sakellariou. (2015) Home Modifications and Ways of Living Well. Medical Anthropology 34:5, pages 456-469.
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Eneida Mioshi, Sharpley Hsieh, Jashelle Caga, Eleanor Ramsey, Kelly Chen, Patricia Lillo, Neil Simon, Steve Vucic, Michael Hornberger, John R. Hodges & Matthew C. Kiernan. (2014) A novel tool to detect behavioural symptoms in ALS. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:3-4, pages 298-304.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2013) What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?. Patient Preference and Adherence 7, pages 171-181.
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Articles from other publishers (40)
Elisa Aust, Katharina Linse, Sven-Thomas Graupner, Markus Joos, Daniel Liebscher, Julian Grosskreutz, Johannes Prudlo, Thomas Meyer, René Günther, Sebastian Pannasch & Andreas Hermann. (2022) Quality of life and mental health in the locked-in-state—differences between patients with amyotrophic lateral sclerosis and their next of kin. Journal of Neurology 269:11, pages 5910-5925.
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Elham H. Othman, Inaam A. Khalaf, Mohammad R. Alosta, Hasan Abualruz & Ruqayya Zeilani. (2022) Death and Dying Through the Lens of Jordanian Muslim Patients and Caregivers. OMEGA - Journal of Death and Dying, pages 003022282211335.
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Katharina Linse, Elisa Aust, René Günther & Andreas Hermann. (2022) Caregivers’ View of Socio-Medical Care in the Terminal Phase of Amyotrophic Lateral Sclerosis—How Can We Improve Holistic Care in ALS?. Journal of Clinical Medicine 11:1, pages 254.
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Anke Erdmann, Celia Spoden, Irene Hirschberg & Gerald Neitzke. (2022) Talking about the end of life: communication patterns in amyotrophic lateral sclerosis – a scoping review. Palliative Care and Social Practice 16, pages 263235242210836.
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Berthe A.M. Makizodila, Johanna H.E. Wijdeven, Johannes J. Soet, Maurits K.A. Selms & Catherine M.C. Volgenant. (2021) Oral hygiene in patients with motor neuron disease requires attention: A cross‐sectional survey study. Special Care in Dentistry 42:1, pages 9-14.
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Katy Tobin, Sinead Maguire, Bernie Corr, Charles Normand, Orla Hardiman & Miriam Galvin. (2021) Discrete choice experiment for eliciting preference for health services for patients with ALS and their informal caregivers. BMC Health Services Research 21:1.
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Remko M. van Eenennaam, Loulou S. Koppenol, Willeke J. Kruithof, Esther T. Kruitwagen-van Reenen, Sotice Pieters, Michael A. van Es, Leonard H. van den Berg, Johanna M. A. Visser-Meily & Anita Beelen. (2021) Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study. Brain Sciences 11:12, pages 1597.
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Jacqueline Gillespie, Antoine Przybylak-Brouillard & Christine L Watt. (2021) The Palliative Care Information Needs of Patients with Amyotrophic Lateral Sclerosis and their Informal Caregivers: A Scoping Review. Journal of Pain and Symptom Management 62:4, pages 848-862.
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Jashelle Caga, Emma Devenney, William Huynh, Margaret C. Zoing, Rebekah M. Ahmed & Matthew C. Kiernan. (2021) Illness Cognitions in ALS: New Insights Into Clinical Management of Behavioural Symptoms. Frontiers in Neurology 12.
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Shelagh K. Genuis, Westerly Luth, Sandra Campbell, Tania Bubela & Wendy S. Johnston. (2021) Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence. Frontiers in Neurology 12.
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Filipe Emanuel Oliveira de Almeida, Anne Kelly do Carmo Santana & Fernanda Oliveira de Carvalho. (2021) Multidisciplinary care in Amyotrophic Lateral Sclerosis: a systematic review and meta-analysis. Neurological Sciences 42:3, pages 911-923.
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Sabrina Cipolletta & Margherita Reggiani. (2020) End-of-life care after the legal introduction of advance directives: A qualitative study involving healthcare professionals and family caregivers of patients with amyotrophic lateral sclerosis. Palliative Medicine 35:1, pages 209-218.
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Ahmad R. Abuzinadah, Aysha A. AlShareef, Abdullah AlKutbi, Ahmed K. Bamaga, Ali Alshehri, Hussein Algahtani, Edward Cupler & Mohammed H. Alanazy. (2020) Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions. Brain and Behavior 10:10.
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Arnab Mukherjea, Shabana Ali & Jason A. Smith. (2020) A Human Rights Perspective on Palliative Care. Topics in Language Disorders 40:3, pages 278-296.
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Kate Flemming, Victoria Turner, Samantha Bolsher, Bill Hulme, Elizabeth McHugh & Ian Watt. (2020) The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review. Palliative Medicine 34:6, pages 708-730.
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Anne Hogden, Camille Paynter & Karen Hutchinson. (2020) How can we improve patient-centered care of motor neuron disease?. Neurodegenerative Disease Management 10:2, pages 91-97.
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Julie Labra, Anne Hogden, Emma Power, Natalie James & Victoria M Flood. (2020) Gastrostomy uptake in motor neurone disease: a mixed-methods study of patients’ decision making. BMJ Open 10:2, pages e034751.
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Arash Jalali-Sohi, Leila Darki & Said R Beydoun. (2020) A Retrospective Review to Evaluate the Demographics and Management Profile of Patients with Amyotrophic Lateral Sclerosis Attending a Multidisciplinary Clinic. US Neurology 16:2, pages 110.
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Patama Gomutbutra & Megan Brandeland. (2019) Advance Care Plan and Factors Related to Disease Progression in Patients With Spinocerebellar Ataxia Type 1: A Cross-Sectional Study in Thailand. American Journal of Hospice and Palliative Medicine® 37:1, pages 46-51.
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Camille Paynter, Madeline Cruice, Susan Mathers, Heidi Gregory & Adam P. Vogel. (2019) Communication and cognitive impairments and health care decision making in MND: A narrative review. Journal of Evaluation in Clinical Practice 25:6, pages 1182-1192.
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Nicolò Zarotti, Elizabeth Coates, Alex McGeachan, Isobel Williams, Daniel Beever, Gemma Hackney, Paul Norman, Theocharis Stavroulakis, David White, Sean White, Vanessa Halliday & Christopher McDermott. (2019) Health care professionals’ views on psychological factors affecting nutritional behaviour in people with motor neuron disease: A thematic analysis. British Journal of Health Psychology 24:4, pages 953-969.
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Daniela K. Schlüter, David P. Holland, Roger J. Mills, Christopher J. McDermott, Timothy L. Williams & Carolyn A. Young. (2019) Use of coping strategies in MND/ALS: Association with demographic and disease‐related characteristics. Acta Neurologica Scandinavica 140:2, pages 131-139.
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Ileana Howard & Abigail Potts. (2019) Interprofessional Care for Neuromuscular Disease. Current Treatment Options in Neurology 21:8.
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James R. Pearlman & Einar B. Thorsteinsson. (2019) Psychological flexibility and attitudes toward evidence-based interventions by amyotrophic lateral sclerosis patients. PeerJ 7, pages e6527.
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Hikari Ando, Rosanna Cousins & Carolyn A Young. (2019) Exploring and Addressing ‘Concerns’ for Significant Others to Extend the Understanding of Quality of Life With Amyotrophic Lateral Sclerosis: A Qualitative Study. Journal of Central Nervous System Disease 11, pages 117957351985936.
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Anne Hogden, Samar M. Aoun & Peter L. Silbert. (2018) Palliative Care in Neurology: Integrating a Palliative Approach to Amyotrophic Lateral Sclerosis Care. EMJ Neurology, pages 68-76.
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Peter M. Andersen, Magdalena Kuzma-Kozakiewicz, Jürgen Keller, Helena E. A. Aho-Oezhan, Katarzyna Ciecwierska, Natalia Szejko, Cynthia Vázquez, Sarah Böhm, Gisela Badura-Lotter, Thomas Meyer, Susanne Petri, Katharina Linse, Andreas Hermann, Olof Semb, Erica Stenberg, Simona Nackberg, Johannes Dorst, Ingo Uttner, Ann-Cristin Häggström, Albert C. Ludolph & Dorothée Lulé. (2018) Therapeutic decisions in ALS patients: cross-cultural differences and clinical implications. Journal of Neurology 265:7, pages 1600-1606.
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Anneli Ozanne & Ulla H. Graneheim. (2018) Understanding the incomprehensible - patients’ and spouses’ experiences of comprehensibility before, at and after diagnosis of amyotrophic lateral sclerosis. Scandinavian Journal of Caring Sciences 32:2, pages 663-671.
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Melanie Harris, Geoff Thomas, Mary Thomas, Paul Cafarella, Allegra Stocks, Julia Greig & R. Doug McEvoy. (2017) Supporting wellbeing in motor neurone disease for patients, carers, social networks, and health professionals: A scoping review and synthesis. Palliative and Supportive Care 16:2, pages 228-237.
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Anne Hogden & Ashley Crook. (2017) Patient-centered decision making in amyotrophic lateral sclerosis: where are we?. Neurodegenerative Disease Management 7:6, pages 377-386.
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Brenda BentleyMoira O'Connor. (2016) The End-of-Life Experiences of People with Motor Neuron Disease: Family Carers' Perspectives. Journal of Palliative Medicine 19:8, pages 857-862.
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Anne Hogden, David Greenfield, Jashelle Caga & Xiongcai Cai. (2016) Development of patient decision support tools for motor neuron disease using stakeholder consultation: a study protocol. BMJ Open 6:4, pages e010532.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2015) Development of a model to guide decision making in amyotrophic lateral sclerosis multidisciplinary care. Health Expectations 18:5, pages 1769-1782.
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Andrew Soundy & Nicola Condon. (2015) Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis. Frontiers in Psychology 6.
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John I MacArtney, Alex Broom, Emma Kirby, Phillip Good, Julia Wootton, Patsy M Yates & Jon Adams. (2014) On resilience and acceptance in the transition to palliative care at the end of life. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 19:3, pages 263-279.
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L. P. Greenaway, N. H. Martin, V. Lawrence, A. Janssen, A. Al-Chalabi, P. N. Leigh & L. H. Goldstein. (2015) Accepting or declining non-invasive ventilation or gastrostomy in amyotrophic lateral sclerosis: patients’ perspectives. Journal of Neurology 262:4, pages 1002-1013.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2014) Understanding psycho-social processes underpinning engagement with services in motor neurone disease: A qualitative study. Palliative Medicine 28:4, pages 318-325.
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Anne Hogden. (2014) Optimizing patient autonomy in amyotrophic lateral sclerosis: inclusive decision-making in multidisciplinary care. Neurodegenerative Disease Management 4:1, pages 1-3.
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