Citations (77)
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Corrine Dickinson, Jeanie Sheffield, Catherine Mak, Roslyn N. Boyd & Koa Whittingham. (2023) When a baby is diagnosed at high risk of cerebral palsy: understanding and meeting parent need. Disability and Rehabilitation 45:24, pages 4016-4024.
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Penelope Analytis, Narelle Warren, Alison Crichton, Sarah Knight & Jennie Ponsford. (2022) Coping and wellbeing in families with a child with acquired brain injury compared with families in the community. Disability and Rehabilitation 44:25, pages 7993-8000.
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Maria Markodimitraki, Garyfalia Charitaki, Maria Kypriotaki, Maria-Efterpi Fragogianni & George Kypriotakis. (2022) The role of marital satisfaction and social activities on parents’ self-perception: evidence from Greek families of children with and without disabilities. International Journal of Developmental Disabilities 0:0, pages 1-14.
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Claudia Zanini, Maddalena Fiordelli, Julia Amann, Mirjam Brach, Armin Gemperli & Sara Rubinelli. (2022) Coping strategies of family caregivers in spinal cord injury: a qualitative study. Disability and Rehabilitation 44:2, pages 243-252.
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Joslin Alexei Dogbe, Joana D. A. Kyeremateng, Maxwell Peprah Opoku, William Nketsia & Charles Hammond. (2022) ‘There is family tension, but they understand…’: familial and sibling relationships following the diagnosis of cerebral palsy in children in Ghana. International Journal of Developmental Disabilities 68:1, pages 35-46.
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Rosalie Power, Mohammad Muhit, Eamin Heanoy, Tasneem Karim, Claire Galea, Nadia Badawi & Gulam Khandaker. (2021) Depression, anxiety and stress among caregivers of adolescents with cerebral palsy in rural Bangladesh . Disability and Rehabilitation 43:15, pages 2123-2130.
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C. Sivaratnam, B. Devenish, K. Howells, T. Chellew, K. Reynolds & N. Rinehart. (2021) Risk factors for mental health difficulties in parents of children with cerebral palsy: a systematic review and meta-analysis. Clinical Psychologist 25:1, pages 1-18.
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Sarvnaz Taherian & Claire Davies. (2018) Multiple stakeholder perceptions of assistive technology for individuals with cerebral palsy in New Zealand. Disability and Rehabilitation: Assistive Technology 13:7, pages 648-657.
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Randi Damgård, Kristian Sørensen, Ida Eline Vestrheim, Bjørn Lerdal, Jon Skranes & Gudrun Rohde. (2016) Optimism and sense of coherence in mothers and fathers of children with cerebral palsy participating in an intensified habilitation programme. Scandinavian Journal of Disability Research 18:3, pages 245-255.
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Hyo Jung Lee, Jiyoung Lyu, Chae Man Lee & Jeffrey A. Burr. (2014) Intergenerational financial exchange and the psychological well-being of older adults in the Republic of Korea. Aging & Mental Health 18:1, pages 30-39.
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Koa Whittingham, Diana Wee, Matthew R. Sanders & Roslyn Boyd. (2013) Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences. Disability and Rehabilitation 35:17, pages 1447-1452.
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Amy Nicolson, Lois Moir & Jeannine Millsteed. (2013) The impact of switching on family caregivers of children with cerebral palsy. Disability and Rehabilitation: Assistive Technology 8:2, pages 169-175.
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Amy Nicolson, Lois Moir & Jeannine Millsteed. (2012) Impact of assistive technology on family caregivers of children with physical disabilities: a systematic review. Disability and Rehabilitation: Assistive Technology 7:5, pages 345-349.
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Marlene Sandlund, Katarina Dock, Charlotte K. Häger & Eva Lindh Waterworth. (2012) Motion interactive video games in home training for children with cerebral palsy: parents’ perceptions. Disability and Rehabilitation 34:11, pages 925-933.
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Jill Maggs, Robert Palisano, Lisa Chiarello, Margo Orlin, Hui-ju Chang & Marcia Polansky. (2011) Comparing the priorities of parents and young people with cerebral palsy. Disability and Rehabilitation 33:17-18, pages 1650-1658.
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Koa Whittingham, Diana Wee, Matthew Sanders & Roslyn Boyd. (2011) Responding to the challenges of parenting a child with cerebral palsy: a focus group. Disability and Rehabilitation 33:17-18, pages 1557-1567.
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Articles from other publishers (61)
Mandy D. Bamber, Helen Mahony & Regena Spratling. (2023) Mothers of Children With Special Health Care Needs: Exploring Caregiver Burden, Quality of Life, and Resiliency. Journal of Pediatric Health Care 37:6, pages 643-651.
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Hayati Kadir Shahar, Sankar Chandra Debnath, Norliza Ahmad & Md. Nazrul Islam. (2023) Prevalence and Factors Associated with Maternal Stress Among Mothers of Children with Cerebral Palsy in Rural Bangladesh. Pertanika Journal of Social Sciences and Humanities 31:3.
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Maxwell Peprah Opoku, Joana D. A. Kyeremateng, Hala Elhoweris, Joslin Alexei Dogbe, William Nketsia, Charles Hammond & Shashidhar Belbase. (2023) Caregivers’ Accounts of School Searches for Children with Cerebral Palsy in a Developing Sub-Saharan African Context. Advances in Neurodevelopmental Disorders.
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Paola Mendoza-Sengco, Caitlin Lee Chicoine & Jilda Vargus-Adams. (2023) Early Cerebral Palsy Detection and Intervention. Pediatric Clinics of North America 70:3, pages 385-398.
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Bimba D.R. Hewawitharana, Champa J. Wijesinghe, Aruna De Silva, John P. Phillips & Gemunu P. Hewawitharana. (2023) Disability and caregiver burden: Unique challenges in a developing country. Journal of Pediatric Rehabilitation Medicine, pages 1-9.
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Crossref
Kuen-Fung Sin, Lan Yang & Frank Tian-Fang Ye. (2023) Self-dehumanization and other-dehumanization toward students with special educational needs: examining their prevalence, consequences and identifying solutions—a study protocol. BMC Psychology 11:1.
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Letycia Monteiro Cavalcanti Araújo, Vinícius J. Guimarães‐do‐Carmo, Tácia Gabriela V. S. Andrade, Sabrina Cavalcanti Claudino, Diego Moura Soares & Renato S. Melo. (2022) Musculoskeletal pain and quality of life in mothers of children with microcephaly, due to congenital Zika virus syndrome. Child: Care, Health and Development 49:2, pages 268-280.
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Crossref
Vivek Ramanandi, Aparna Bachkaniwala, Aksh Chahal, Sakshi Vats, Mansi Jain, Abhishek Sharma, Nidhi Sharma & Kanika. (2023) The Parental Stress Scale: Validity and Reliability of Gujarati Translated Version in Parents of Children with Cerebral Palsy. Journal of Lifestyle Medicine 13:1, pages 59-65.
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Duppy Manyuma, Mary Maluleke, Ndidzulafhi Selina Raliphaswa, Thingahangwi Cecilia Masutha, Mphedziseni Esther Rangwaneni, Takalani Eldah Thabathi & Ndivhaleni Robert Lavhelani. (2023) Title: Caring for Children with Cerebral Palsy: A Challenge to Caregivers in Rural Areas of South Africa. Children 10:3, pages 440.
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Ana Guimarães, Armanda Pereira, André Oliveira, Sílvia Lopes, Ana Rita Nunes, Cleia Zanatta & Pedro Rosário. (2023) Parenting in Cerebral Palsy: Understanding the Perceived Challenges and Needs Faced by Parents of Elementary School Children. International Journal of Environmental Research and Public Health 20:5, pages 3811.
Crossref
Crossref
Sibongile Seroke & Sipho W. Mkhize. (2023) Psychosocial experiences of mothers caring for children with cerebral palsy in the eThekwini district. Health SA Gesondheid 28.
Crossref
Crossref
Silja Berg Kårstad, Åse Bjørseth, Johanna Lindstedt, Anne Synnøve Brenne, Helene Steihaug & Ann-Kristin Gunnes Elvrum. (2022) Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy. Journal of Clinical Medicine 12:1, pages 277.
Crossref
Crossref
Vanessa Carolyn Andrews. 2022. The Role of Child Life Specialists in Community Settings. The Role of Child Life Specialists in Community Settings
242
267
.
Alicia Aurora Rodríguez, Imanol Amayra, Juan Francisco López-Paz, Oscar Martínez, Maitane García, Mónika Salgueiro, Mohammad Al-Rashaida, Paula María Luna, Paula Pérez-Nuñez, Nicole Passi, Irune García & Javiera Ortega. (2022) The Role of Associations in Reducing the Emotional and Financial Impact on Parents Caring for Children with Duchenne Muscular Dystrophy: A Cross-Cultural Study. International Journal of Environmental Research and Public Health 19:19, pages 12334.
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Crossref
Katarína Molnárová Letovancová & Miriam Slaná. (2022) Factors influencing the quality of life of parents raising a child with a disability. Kontakt 24:2, pages 154-162.
Crossref
Crossref
Joëlle Castellani, Omari Kimbute, Charles Makasi, Zakayo E. Mrango, Aggie T. G. Paulus, Silvia M. A. A. Evers, Pip Hardy, Tony Sumner, Augusta Keiya, Borislava Mihaylova, Mohammad Abul Faiz & Melba Gomes. (2021) Daily Life and Challenges Faced By Households With Permanent Childhood Developmental Disability in Rural Tanzania – A Qualitative Study. Journal of Developmental and Physical Disabilities 34:3, pages 471-490.
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Crossref
Nandini Sharma, S. Z. H. Zaidi & Syed Sajid Husain Kazmi. 2022. Handbook of Research on Clinical Applications of Meditation and Mindfulness-Based Interventions in Mental Health. Handbook of Research on Clinical Applications of Meditation and Mindfulness-Based Interventions in Mental Health
127
143
.
Zhi Hong Ni, Sheng Ding, Jin Hua Wu, Shuo Zhang & Chun Yan Liu. (2022) Family Caregivers’ Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study. INQUIRY: The Journal of Health Care Organization, Provision, and Financing 59, pages 004695802211215.
Crossref
Crossref
Frank Tian-Fang Ye, Kuen-Fung Sin & Xiaozi Gao. (2021) Subjective Well-Being among Parents of Children with Special Educational Needs in Hong Kong: Impacts of Stigmatized Identity and Discrimination under Social Unrest and COVID-19. International Journal of Environmental Research and Public Health 19:1, pages 238.
Crossref
Crossref
Gina-Maree Sartore, Anastasia Pourliakas & Vince Lagioia. (2021) Peer support interventions for parents and carers of children with complex needs. Cochrane Database of Systematic Reviews 2021:12.
Crossref
Crossref
Katrine Røhder, Maria Willerslev-Olsen, Jens Bo Nielsen, Gorm Greisen & Susanne Harder. (2021) Parent-Infant Interactions Among Infants With High Risk of Cerebral Palsy: A Protocol for an Observational Study of Infant and Parental Factors for Dyadic Reciprocity. Frontiers in Psychiatry 12.
Crossref
Crossref
Barbara Gugała. (2021) Caregiver burden versus intensity of anxiety and depression symptoms in parents of children with cerebral palsy as well as factors potentially differentiating the level of burden: a cross-sectional study (Poland). BMJ Open 11:6, pages e036494.
Crossref
Crossref
Alanoud Akram Aman, Bashaer Baharoon, Haifa Jamal Idrees, Ahad Mohammedyusuf Taj, Bassmah Ali Alzahrani & Osama Yousef Muthaffar. (2021) A Cross-sectional Study to Evaluate the Quality of Life of Caregivers for Children with Cerebral Palsy. Pharmacophore 12:5, pages 69-75.
Crossref
Crossref
Cong Xia, Mei Sun, Xinying Li, Chenhao Lu, Xiu Gao, Jun Lu & Gang Chen. (2020) Health-Related Quality of Life and Related Factors among Primary Caregivers of Children with Disabilities in Shanghai, China: A Cross-Sectional Study. International Journal of Environmental Research and Public Health 17:24, pages 9299.
Crossref
Crossref
Ian Thiruchelvam ElangkovanShefaly Shorey. (2020) Experiences and Needs of Parents Caring for Children with Cerebral Palsy: A Systematic Review. Journal of Developmental & Behavioral Pediatrics 41:9, pages 730-739.
Crossref
Crossref
Sabrina Sales Martinez, Hector Pardo‐Hernandez & Cristina Palacios. (2020) Feeding modifications and additional primary caregiver support for infants exposed to Zika virus or diagnosed with congenital Zika syndrome: a rapid review of the evidence. Tropical Medicine & International Health 25:11, pages 1353-1361.
Crossref
Crossref
Koa Whittingham, Jeanie Sheffield, Catherine Mak, Corrine Dickinson & Roslyn N Boyd. (2020) Early Parenting Acceptance and Commitment Therapy ‘Early PACT’ for parents of infants with cerebral palsy: a study protocol of a randomised controlled trial. BMJ Open 10:10, pages e037033.
Crossref
Crossref
Yongli Wang, Zhaoming Huang & Feng Kong. (2017) Parenting stress and life satisfaction in mothers of children with cerebral palsy: The mediating effect of social support. Journal of Health Psychology 25:3, pages 416-425.
Crossref
Crossref
Sabina Veronica Stan. 2020. Analyzing Paradigms Used in Education and Educational Psychology. Analyzing Paradigms Used in Education and Educational Psychology
225
247
.
Da-Jung Kim & Youn-Jung Kim. (2019) Effects of the Parenting Efficacy Improvement Program for mothers as primary caregivers of children with cerebral palsy under rehabilitation. Journal of Exercise Rehabilitation 15:6, pages 763-768.
Crossref
Crossref
OLAJIDE BENJAMIN OBEMBE, SURAJU ADEYEMO, OLUWAYEMI CECILIA OGUN & GRACE TEMITAYO IJAROGBE. (2019) The relationship between coping styles and depression among caregivers of children with cerebral palsy in Nigeria, West Africa. Archives of Clinical Psychiatry (São Paulo) 46:6, pages 145-150.
Crossref
Crossref
Louise Irwin, Ceit Jesmont & Anna Basu. (2019) A systematic review and meta-analysis of the effectiveness of interventions to improve psychological wellbeing in the parents of children with cerebral palsy. Research in Developmental Disabilities 95, pages 103511.
Crossref
Crossref
Barbara Gugała, Beata Penar-Zadarko, Danuta Pięciak-Kotlarz, Katarzyna Wardak, Aneta Lewicka-Chomont, Magdalena Futyma-Ziaja & Józef Opara. (2019) Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors. International Journal of Environmental Research and Public Health 16:21, pages 4173.
Crossref
Crossref
Şeyma TOY, Ayşegül BEYKUMÜL, Zeynep Tuğçe AVCI & Raikan BÜYÜKAVCI. (2019) Fibromyalgia in the mothers of the children with cerebral palsy, and determination of the related depression and anxiety situations. The European Research Journal 5:5, pages 873-878.
Crossref
Crossref
Nathaniel Scherer, Ibone Verhey & Hannah Kuper. (2019) Depression and anxiety in parents of children with intellectual and developmental disabilities: A systematic review and meta-analysis. PLOS ONE 14:7, pages e0219888.
Crossref
Crossref
Aleksandra Kołtuniuk, Anna Rozensztrauch, Paulina Budzińska & Joanna Rosińczuk. (2019) The Quality of Life of Polish Children with Cerebral Palsy and the Impact of the Disease on the Family Functioning. Journal of Pediatric Nursing 47, pages e75-e82.
Crossref
Crossref
Kim Kotzky, Jacob E. Allen, Lara R. Robinson, Ashley Satterfield-Nash, Jeanne Bertolli, Camille Smith, Isabela Ornelas Pereira, Ana Carolina Faria e Silva Santelli & Georgina Peacock. (2019) Depressive Symptoms and Care Demands Among Primary Caregivers of Young Children with Evidence of Congenital Zika Virus Infection in Brazil. Journal of Developmental & Behavioral Pediatrics 40:5, pages 344-353.
Crossref
Crossref
Robert J Fortuna, Ashley Holub, Margaret A Turk, Jon Meccarello & Philip W Davidson. (2018) Health conditions, functional status and health care utilization in adults with cerebral palsy. Family Practice 35:6, pages 661-670.
Crossref
Crossref
Luana Elayne Cunha de Souza, Tiago Jessé Souza de Lima, Erlane Marques Ribeiro, André Luiz Santos Pessoa, Thamyres Costa Figueiredo & Luiza Barbosa Porto Lima. (2018) Mental Health of Parents of Children with Congenital Zika Virus Syndrome in Brazil. Journal of Child and Family Studies 27:4, pages 1207-1215.
Crossref
Crossref
Christine Taylor, Melissa Zhang, Jann Foster, Iona Novak & Nadia Badawi. (2018) Caregivers’ experiences of feeding children with cerebral palsy: a systematic review protocol of qualitative evidence. JBI Database of Systematic Reviews and Implementation Reports 16:3, pages 589-593.
Crossref
Crossref
AditiS Jambekar, ManasiS Padhyegurjar, ShekharB Padhyegurjar, SadhanaP Joshi & Pushpa Shahri. (2018) Impact of having a child with special needs on the psychosocial well-being of the parents: A cross-sectional study. Journal of Mental Health and Human Behaviour 23:2, pages 115.
Crossref
Crossref
Brian Chanda Chiluba & Geoffrey Moyo. (2017) Caring for a cerebral palsy child: a caregivers perspective at the University Teaching Hospital, Zambia. BMC Research Notes 10:1.
Crossref
Crossref
Yongli Wang, Qin Wan, Zhaoming Huang, Li Huang & Feng Kong. (2017) Psychometric Properties of Multi-Dimensional Scale of Perceived Social Support in Chinese Parents of Children with Cerebral Palsy. Frontiers in Psychology 8.
Crossref
Crossref
J. Wu, J. Zhang & Y. Hong. (2017) Quality of life of primary caregivers of children with cerebral palsy: a comparison between mother and grandmother caregivers in Anhui province of China. Child: Care, Health and Development 43:5, pages 718-724.
Crossref
Crossref
Chang-Kyo Yun. (2017) Relationship between the quality of life of the caregiver and motor function of children with cerebral palsy. Physical Therapy Rehabilitation Science 6:1, pages 26-32.
Crossref
Crossref
Ji-Young SeoHae-Jin LeeMi-Ae You. (2017) Factors Influencing Burnout among Mothers of Children with Cerebral Palsy. Journal of Korean Academy of Nursing 47:2, pages 233.
Crossref
Crossref
Ji-Na Yoo. (2016) Correlations among Motor Function, Quality of Life, and Caregiver Depression Levels in Children with Cerebral Palsy. The Journal of Korean Physical Therapy 28:6, pages 385-392.
Crossref
Crossref
Pelin PİŞTAV AKMEŞE & Nilay KAYHAN. (2016) Erken Çocukluk Döneminde Serebral Palsili Çocuğu Olan Annelerin Algıladıkları Sosyal Destek Düzeylerinin İncelenmesi. Sakarya University Journal of Education, pages 150-150.
Crossref
Crossref
Taryn B. Bemister, Brian L. Brooks, Richard H. Dyck & Adam Kirton. (2015) Predictors of caregiver depression and family functioning after perinatal stroke. BMC Pediatrics 15:1.
Crossref
Crossref
Jermaine M. Dambi, Jennifer Jelsma & Tecla Mlambo. (2015) Caring for a child with Cerebral Palsy: The experience of Zimbabwean mothers. African Journal of Disability 4:1.
Crossref
Crossref
Adam Posłuszny, Andrzej Myśliwiec, Edward Saulicz, Iwona Doroniewicz, Paweł Linek & Tomasz Wolny. (2015) The occurrence of the cervical pain syndromes in parents of children with physical disability in the population of Poland. Disability and Health Journal 8:2, pages 278-283.
Crossref
Crossref
Jermaine M Dambi & Jennifer Jelsma. (2014) The impact of hospital-based and community based models of cerebral palsy rehabilitation: a quasi-experimental study. BMC Pediatrics 14:1.
Crossref
Crossref
Ekhlas Al-Gamal & Tony Long. (2014) The MM-CGI Cerebral Palsy: modification and pretesting of an instrument to measure anticipatory grief in parents whose child has cerebral palsy. Journal of Clinical Nursing 23:13-14, pages 1810-1819.
Crossref
Crossref
Raymond Warouw Atmawidjaja, Sau Wei Wong, Wai Wai Yang & Lai Choo Ong. (2014) Sleep disturbances in Malaysian children with cerebral palsy. Developmental Medicine & Child Neurology 56:7, pages 681-685.
Crossref
Crossref
Taryn B. Bemister, Brian L. Brooks & Adam Kirton. (2014) Development, Reliability, and Validity of the Alberta Perinatal Stroke Project Parental Outcome Measure. Pediatric Neurology 51:1, pages 43-52.
Crossref
Crossref
N. Reynolds, S. Mrug, M. Hensler, K. Guion & A. Madan-Swain. (2014) Spiritual Coping and Adjustment in Adolescents With Chronic Illness: A 2-Year Prospective Study. Journal of Pediatric Psychology 39:5, pages 542-551.
Crossref
Crossref
Modesta Pousada, Noemí Guillamón, Eulàlia Hernández-Encuentra, Elena Muñoz, Diego Redolar, Mercè Boixadós & Beni Gómez-Zúñiga. (2013) Impact of Caring for a Child with Cerebral Palsy on the Quality of Life of Parents: A Systematic Review of the Literature. Journal of Developmental and Physical Disabilities 25:5, pages 545-577.
Crossref
Crossref
Gina Sartore, Vince Lagioia & Robyn Mildon. (2013) Peer support interventions for parents and carers of children with complex needs. Cochrane Database of Systematic Reviews.
Crossref
Crossref
Noemí Guillamón, Ruben Nieto, Modesta Pousada, Diego Redolar, Elena Muñoz, Eulàlia Hernández, Mercè Boixadós & Benigna Gómez‐Zúñiga. (2013) Quality of life and mental health among parents of children with cerebral palsy: the influence of self‐efficacy and coping strategies. Journal of Clinical Nursing 22:11-12, pages 1579-1590.
Crossref
Crossref
K. Whittingham, D. Wee, M. R. Sanders & R. Boyd. (2012) Predictors of psychological adjustment, experienced parenting burden and chronic sorrow symptoms in parents of children with cerebral palsy. Child: Care, Health and Development 39:3, pages 366-373.
Crossref
Crossref
Pedro Weisleder. (2011) Family Interventions to Prevent Maltreatment of Children With Disabilities. Journal of Child Neurology 26:8, pages 1052-1053.
Crossref
Crossref