Citations (72)
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Nicola Glennie, Fiona M. Harris & Emma F. France. (2023) Perceptions and experiences of control among people living with motor neurone disease: a systematic review and thematic synthesis. Disability and Rehabilitation 45:16, pages 2554-2566.
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Stefan Sennfält, Ulf Kläppe, Sebastian Thams, Kristin Samuelsson, Rayomand Press, Fang Fang & Caroline Ingre. (2023) The path to diagnosis in ALS: delay, referrals, alternate diagnoses, and clinical progression. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 45-53.
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Christopher Poppe, Insa Koné, Luzia Margarete Iseli, Kathi Schweikert, Bernice Simone Elger & Tenzin Wangmo. (2020) Differentiating needs of informal caregivers of individuals with ALS across the caregiving course: a systematic review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 519-541.
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Kate T. Brizzi, John F. P. Bridges, Jill Yersak, Calaneet Balas, Neil Thakur, Miriam Galvin, Orla Hardiman, Chad Heatwole, John Ravits, Zachary Simmons, Lucie Bruijn, James Chan, Richard Bedlack & James D. Berry. (2020) Understanding the needs of people with ALS: a national survey of patients and caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:5-6, pages 355-363.
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Manjusha G. Warrier, Priya Treesa Thomas, Arun Sadasivan, Bhuvaneshwari Balasubramaniam, Seena Vengalil, Saraswati Nashi, Veeramani Preethish-Kumar, Kiran Polavarapu, Niranjan Prakash Mahajan, Pradeep Chandra Reddy Chevula & Atchayaram Nalini. (2019) Family Caregivers’ Experiences with Dying and Bereavement of Individuals with Motor Neuron Disease in India. Journal of Social Work in End-of-Life & Palliative Care 15:2-3, pages 111-125.
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Louise Sofia Madsen, Jørgen Jeppesen & Charlotte Handberg. (2019) “Understanding my ALS”. Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation. Disability and Rehabilitation 41:12, pages 1410-1418.
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Priya Treesa Thomas, Manjusha G. Warrier, Arun Sadasivan, Bhuvaneshwari Balasubramanium, Veeramani Preethish-kumar, Saraswati Nashi, Kiran Polavarapu, Gopalkrishna Krishna, Seena Vengalil, Prakashi Rajaram & Atchayaram Nalini. (2018) Caregiver burden and quality of life of patients with amyotrophic lateral sclerosis in India. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:7-8, pages 606-610.
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Geraldine Foley & Geralyn Hynes. (2018) Decision-making among patients and their family in ALS care: a review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:3-4, pages 173-193.
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Anne Hogden, Geraldine Foley, Robert D Henderson, Natalie James & Samar M Aoun. (2017) Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach. Journal of Multidisciplinary Healthcare 10, pages 205-215.
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David Oliver, Aleksandar Radunovic, Alexander Allen & Christopher McDermott. (2017) The development of the UK National Institute of Health and Care Excellence evidence-based clinical guidelines on motor neurone disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:5-6, pages 313-323.
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Samar M Aoun, Lauren J Breen, Denise Howting, Robert Edis, David Oliver, Robert Henderson, Margaret O’Connor, Rodney Harris & Carol Birks. (2016) Receiving the news of a diagnosis of motor neuron disease: What does it take to make it better?. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:3-4, pages 168-178.
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Dikaios Sakellariou, Gail Boniface & Paul Brown. (2013) Experiences of living with motor neurone disease: a review of qualitative research. Disability and Rehabilitation 35:21, pages 1765-1773.
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Jan R. Oyebode, Hayley-Jane Smith & Karen Morrison. (2013) The personal experience of partners of individuals with motor neuron disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:1, pages 39-43.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Preference and Adherence 6, pages 829-838.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals. Patient Preference and Adherence 6, pages 691-701.
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Mary R. O’Brien, Bridget Whitehead, Barbara A. Jack & J. Douglas Mitchell. (2012) The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study. Disability and Rehabilitation 34:3, pages 247-256.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2012) Patients’ perceptions of services and preferences for care in amyotrophic lateral sclerosis: A review. Amyotrophic Lateral Sclerosis 13:1, pages 11-24.
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