Construct validity of the family impact of assistive technology scale for augmentative and alternative communication

References

• American Speech-Language-Hearing Association. (2018a). Augmentative and alternative communication: Overview. Retrieved from https://www.asha.org/PRPSpecificTopic.aspx?folderid=8589942773&section=Overview
   Google Scholar
• American Speech-Language-Hearing Association. (2018b). Augmentative and alternative communication: Key Issues. Retrieved from https://www.asha.org/PRPSpecificTopic.aspx?folderid=8589942773&section=Key_Issues
   Google Scholar
• Angelo, D.H., Jones, S.D., & Kokoska, S.M. (1995). Family perspectives on augmentative and alternative communication: Families of young children. Augmentative and Alternative Communication, 11, 193–202. doi:10.1080/07434619512331277319
   Google Scholar
• Branson, D., & Demchak, M. (2009). The use of augmentative and alternative communication methods with infants and toddlers with disabilities: A research review. Augmentative and Alternative Communication, 25, 274–286. doi:10.3109/07434610903384529
   PubMed Web of Science ®Google Scholar
• Brehaut, J.C., Kohen, D.E., Raina, P., Walter, S.D., Russell, D.J., … Rosenbaum, P. (2004). The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers? Pediatrics, 114, e182–e191. doi:10.1542/peds.114.2.e182
   PubMed Web of Science ®Google Scholar
• Cohen, J. (1988). Statistical power analysis for behavioral sciences (2nd ed.). Hillsdale, NJ: Erlbaum.
   Google Scholar
• Coster, W., Bedell, G., Law, M., Khetani, M.A., Teplicky, R., Liljenquist, K, … Kao, Y.-C. (2011). Psychometric evaluation of the Participation and Environment Measure for Children and Youth. Developmental Medicine & Child Neurology, 53, 1030–1037. doi:10.1111/j.1469-8749.2011.04094.x
   PubMed Web of Science ®Google Scholar
• Delarosa, E., Horner, S., Eisenberg, C., Ball, L., Renzoni, A.M., & Ryan, S.E. (2012). Family Impact of Assistive Technology Scale: Development of a measurement scale for parents of children with complex communication needs. Augmentative and Alternative Communication, 28, 171–180. doi:10.3109/07434618.2012.704525
   PubMed Web of Science ®Google Scholar
• Dillman, D.A., Smyth, J.D., & Christian, L.M. (2008). Internet, mail, and mixed-mode surveys: The tailored design method. Hoboken, NJ: John Wiley & Sons, Inc.
   Google Scholar
• Eliasson, A.-C., Krumlinde-Sundholm, L., Rösblad, B., Beckung, E., Arner, M., Öhrvall, A.-M., & Rosenbaum, P. (2006). The Manual Ability Classification System (MACS) for children with cerebral palsy: Scale development and evidence of validity and reliability. Developmental Medicine and Child Neurology, 48, 549–554. doi:10.1017/S0012162206001162
   PubMed Web of Science ®Google Scholar
• Enderby, P. (2014). Introducing the therapy outcome measure for AAC services in the context of a review of other measures. Disability and Rehabilitation: Assistive Technology, 9, 33–40. doi:10.3109/17483107.2013.823576
   PubMedGoogle Scholar
• Ganz, J.B., Earles-Vollrath, T.L., Heath, A.K., Parker, R.I., Rispoli, M.J., & Duran, J.B. (2012). A meta-analysis of single case research studies on aided augmentative and alternative communication systems with individuals with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42, 60–74. doi:10.1007/s10803-011-1212-2
   PubMed Web of Science ®Google Scholar
• Granlund, M., Björck-Åkesson, E., Wilder, J., & Ylvén, R. (2008). AAC interventions for children in a family environment: Implementing evidence in practice. Augmentative and Alternative Communication, 24, 207–219. doi:10.1007/s10803-011-1212-2
   PubMed Web of Science ®Google Scholar
• Henderson, S., Skelton, H., & Rosenbaum, P. (2008). Assistive devices for children with functional impairments: Impact on child and caregiver function. Developmental Medicine and Child Neurology, 50, 89–98. doi:10.1111/j.1469-8749.2007.02021.x
   PubMed Web of Science ®Google Scholar
• Hidecker, M.J., Paneth, N., Rosenbaum, P.L., Kent, R.D., Lillie, J., Eulenberg, J.B., … Taylor, K. (2011). Developing and validating the Communication Function Classification System for individuals with cerebral palsy. Developmental Medicine and Child Neurology, 53, 704–710. doi:10.1111/j.1469-8749.2011.03996.x
   PubMed Web of Science ®Google Scholar
• Hulley, S.B., Cummings, S.R., Browner, W.S., Grady, D.G., & Newman, T.B. (2013). Designing clinical research (4th ed.). Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• King, G., Rigby, P., & Batorowicz, B. (2013). Conceptualizing participation in context for children and youth with disabilities: an activity setting perspective. Disability and Rehabilitation, 35, 1578–1588. doi:10.3109/09638288.2012.748836
   PubMed Web of Science ®Google Scholar
• Light, J., & McNaughton, D. (2012). Supporting the communication, language, and literacy development of children with complex communication needs: State of the science and future research priorities. Assistive Technology, 24, 34–44. doi:10.1080/10400435.2011.648717
   Web of Science ®Google Scholar
• Light, J., & McNaughton, D. (2015). Designing AAC research and intervention to improve outcomes for individuals with complex communication needs. Augmentative and Alternative Communication, 31, 85–96. doi:10.3109/07434618.2015.1036458
   PubMed Web of Science ®Google Scholar
• McCullough, N., & Parkes, J. (2008). Use of the child health questionnaire in children with cerebral palsy: A systematic review and evaluation of the psychometric properties. Journal of Pediatric Psychology, 33, 80–90. doi:10.1093/jpepsy/jsm070
   PubMed Web of Science ®Google Scholar
• McDougall, J., Wright, V., & Rosenbaum, P. (2010). The ICF model of functioning and disability, incorporating quality of life and human development. Developmental Neurorehabilitation, 13, 204–211. doi:10.3109/17518421003620525
   PubMed Web of Science ®Google Scholar
• 2009/10 National Survey of Children with Special Health Care Needs. (2018). Unmet needs for communication aids or devices. Retrieved from http://childhealthdata.org/browse/survey/results?q=1948&r=1
   Google Scholar
• Pless, M., & Granlund, M. (2012). Implementation of the International Classification of Functioning, Disability and Health (ICF) and the ICF Children and Youth Version (ICF-CY) within the context of augmentative and alternative communication. Augmentative and Alternative and Communication, 28, 11–20. doi:10.3109/07434618.2011.654263
   PubMed Web of Science ®Google Scholar
• Raat, H., Botterweck, A., Landgraf, J.M., Hoogeveen, C.W., & Essink-Bot, M. (2005). Reliability and validity of the short form of the child health questionnaire for parents (CHQ-PF28) in large random school based and general population samples. Journal of Epidemiology and Community Health, 59, 75–82. doi:10.1136/jech.2003.012914
   PubMed Web of Science ®Google Scholar
• Raghavendra, P., Bornman, J., Granlund, M., & Björck-Åkesson, E. (2007). The World Health Organization’s International Classification of Functioning, Disability and Health: Implications for Clinical and Research Practice in the field of Augmentative and Alternative Communication. Augmentative and Alternative Communication, 23, 349–361. doi:10/1080/07434610701650928
   Web of Science ®Google Scholar
• Raghavendra, P., Virgo, R., Olsson, C., Connell, T., & Lane, A.E. (2011). Activity participation of children with complex communication needs, physical disabilities and typically-developing peers. Developmental Neurorehabilitation, 14, 145–155. doi:10.3109/17518423.2011.568994
   PubMed Web of Science ®Google Scholar
• Romski, M., Sevcik, R.A., Adamson, L.B., Smith, A., Cheslock, M., & Bakeman, R. (2011). Parent perceptions of the language development of toddlers with developmental delays before and after participation in parent-coached language interventions. American Journal of Speech-Language Pathology, 20, 111–118. doi:10.1044/1058-0360(2011/09-0087
   PubMed Web of Science ®Google Scholar
• Rowland, C., Fried-Oken, M., Steiner, S.A.M., Lollar, D., Phelps, R., Simeonsson, R.J., & Granlund, M. (2012). Developing the ICF-CY for AAC Profile and code set for children who rely on AAC. Augmentative and Alternative Communication, 28, 21–32. doi:10.3109/07434618.2012.654510
   PubMed Web of Science ®Google Scholar
• Ryan, S.E., Klejman, S., & Gibson, B.E. (2013). Measurement of the product attitudes of youth during the selection of assistive technology devices. Disability & Rehabilitation: Assistive Technology, 8, 21–29. doi:10.3109/17483107.2012.685500
   PubMedGoogle Scholar
• Ryan, S.E., Shepherd, T.A., Renzoni, A.M., Servais, M., Kingsnorth, S., Laskey, C., … Bradley, K. (2018). Responsiveness of a parent-reported outcome measure to evaluate AAC interventions for children and youth with complex communication needs. Augmentative and Alternative Communication, 34.
   Google Scholar
• Shepherd, T.A., Renzoni, A.M., Viegas, C., Kalp, F., & Ryan, S.E. (2014, July). Understanding factors that predict functional communication in children and youth with complex communication needs. Poster session presented at the meeting of the International Society for Augmentative and Alternative Communication (ISAAC), Lisbon, Portugal.
   Google Scholar
• Simeonsson, R.J., Björck-Åkessön, E., & Lollar, D.J. (2012). Communication, disability, and the ICF-CY. Augmentative and Alternative Communication, 28, 3–10. doi:10.3109/07434618.2011.653829
   PubMed Web of Science ®Google Scholar
• Smith, A.L., & Hustad, K.C. (2015). AAC and early intervention for children with cerebral palsy: Parent perceptions and child risk factors. Augmentative and Alternative Communication, 31, 336–350. doi:10.3109/07434618.2015.1084373
   PubMed Web of Science ®Google Scholar
• Sparrow, S.S., Cicchetti, D.V., & Balla, D.A. (2005). Vineland Adaptive Behavior Scales (2nd ed; Vineland-II). San Antonio, TX: Pearson.
   Google Scholar
• Starble, A., Hutchins, T., Favro, M.A., Prelock, P., & Bitner, B. (2005). Family-centered intervention and satisfaction with AAC device training. Communication Disorders Quarterly, 27, 47–54. doi:10.1177/15257401050270010501
   Google Scholar
• Stein, R.E., & Jessop, D.J. (2003). The Impact on Family Scale revisited: Further psychometric data. Journal of Developmental and Behavioural Pediatrics, 24, 9–16. doi:10.1097/00004703-200302000-00004
   PubMed Web of Science ®Google Scholar
• Stier, C., Chieu, I., Howell, L., & Ryan, S.E. (2017). Exploring the functional impact of adaptive seating on the lives of individual children and their families: a collective case study. Disability & Rehabilitation: Assistive Technology, 12, 450–456. doi:10.3109/17483107.2016.1139634
   PubMed Web of Science ®Google Scholar
• Streiner, D., Norman, G., & Cairney, J. (2015). Health measurement scales: A practical guide to their development and use (5th ed.). Oxford: Oxford University Press.
   Google Scholar
• Thomas-Stonell, N.L., Oddson, B., Robertson, B., & Rosenbaum, P.L. (2010). Development of the FOCUS (Focus on the Outcomes of Communication Under Six): A communication outcome measure for preschool children. Development Medicine and Child Neurology, 52, 47–53. doi:10.1111/j.1469-8749.2009.03410.x
   PubMed Web of Science ®Google Scholar
• Viera, A.J., & Garrett, J.M. (2005). Understanding interobserver agreement: The Kappa statistic. Family Medicine, 37, 360–363.
   PubMed Web of Science ®Google Scholar
• Washington, K., Thomas-Stonell, N., Oddson, B., McLeod, S., Warr-Leeper, G., Robertson, B., … Rosenbaum, P. (2013). Construct validity of the FOCUS© (Focus on the Outcomes of Communication Under Six): a communicative participation outcome measure for preschool children. Childcare, Health and Development, 39, 481–489. doi:10.1111/cch.12043
   PubMed Web of Science ®Google Scholar
• Williams, C. (2007). Research Methods. Journal of Business & Economic Research, 5, 65–72. doi:10.19030/jber.v5i3.2532
   Google Scholar
• World Health Organization. (2001). International classification of functioning, disability and health. Geneva, Switzerland: World Health Organization.
   Google Scholar
• World Health Organization. (2007). International classification of functioning, disability and health for children and youth. Geneva, Switzerland: World Health Organization.
   Google Scholar
• World Health Organization (2018, March 2). Merging the ICF-CY into ICF. Retrieved from http://www.who.int/classifications/icf/en/
   Google Scholar
• Yin, R. (2013). Case study research: Design and methods (5th ed.). Thousand Oaks, CA: Sage Publications.
   Google Scholar