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EBP Advancement Corner

“Attention: Myth Follows!” Facilitated Communication, Parent and Professional Attitudes towards Evidence-based Practice, and the Power of Misinformation

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References

  • Aarons, G. A. (2004). Mental health provider attitudes towards adoption of evidence-based practice: The evidence-based practice attitude scale (EBPAS). Mental Health Services Research, 6, 61–74. doi:10.1023/B:MHSR.0000024351.12294.65.
  • American Speech Language and Hearing Association. (2006). Guidelines for speech-language pathologists in diagnosis, assessment, and treatment of autism spectrum disorders across the life span. Retrieved Januay 04, 2011, from http://www.asha.org/docs/html/gl2006-00049.html
  • Auert, E. J., Trembath, D., Arciuli, J., & Thomas, D. (2012). Parents’ expectations, awareness, and experiences of accessing evidence-based speech-language pathology services for their children with autism. International Journal of Speech-Language Pathology, 14, 109–118. doi:10.3109/17549507.2011.652673.
  • Autism National Committee. (2008). Autism National Committee (AutCom) policy and principles regarding facilitated communication. Retrieved from http://www.autcom.org/articles/PPFC.pdf
  • Ayers, M. S., & Reder, L. M. (1998). A theoretical review of the misinformation effect: Predictions from an activation-based memory model. Psychonomic Bulletin & Review, 5, 1–21.
  • Barrett, S., & Herbert, V. (1994). The vitamin pushers: How the health food industry is selling America a bill of goods. Amherst, NY: Prometheus Books.
  • Blake, J. (1999). Overcoming the ‘value-action gap’ in environmental policy: Tensions between national policy and local experience. Local Environment, 4, 257–278. doi:10.1080/13549839908725599.
  • Boardman, A. G., Argüelles, M. E., Vaughn, S., Hughes, M. T., & Klingner, J. (2005). Special Education Teachers' Views of Research-Based Practices. The Journal of Special Education, 39, 168–180. doi:10.1177/00224669050390030401.
  • Bower, G. H., & Morrow, D. G. (1990). Mental models in narrative comprehension. Science, 247, 44–48. doi:10.1126/science.2403694.
  • Boynton, J. (2012). Facilitated communication—what harm it can do: Confessions of a former facilitator. Evidence-Based Communication Assessment and Intervention, 6, 3–13. doi:10.1080/17489539.2012.674680.
  • Call, N. A., Delfs, C. H., Reavis, A. R., & Mevers, J. L. (2015). Factors influencing treatment decisions by parents for their children with autism spectrum disorder. Research in Autism Spectrum Disorders, 15–16, 10–20. doi:10.1016/j.rasd.2015.04.001.
  • Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years — Autism and developmental disabilities monitoring network, 11 Sites, United States, 2010 Surveillance Summaries, 63(SS02), 1–21).
  • Chan, J., & Nankervis, K. (2014). Stolen voices: Facilitated communication is an abuse of human rights. Evidence-Based Communication Assessment and Intervention, 8, 151–156. doi:10.1080/17489539.2014.1001549.
  • Chater, N., & Vitanyi, P. (2003). Simplicity: A unifying principle in cognitive science. Trends in Cognitive Science, 7, 19–22. doi:10.1016/S1364-6613(02)00005-0.
  • Cheung, G., Trembath, D., Arciuli, J., & Togher, L. (2013). The impact of workplace factors on evidence-based speech-language pathology practice for children with autism spectrum disorders. International Journal of Speech-Language Pathology, 15, 396–406. doi:10.3109/17549507.2012.714797.
  • Chigwedere, P., Seage, I. G. R., Gruskin, S., Lee, T.-H., & Essex, M. (2008). Estimating the lost benefits of antiretroviral drug use in South Africa. Journal of Acquired Immune Deficiency Syndrome, 49, 410–415. doi:10.1097/QAI.0b013e31818a6cd5.
  • Clarke, C. (2008). A question of balance: The autism-vaccine controversy in the British and American Elite Press. Science Communication, 30, 77–107. doi:10.1177/1075547008320262.
  • Cook, B. G., Cook, L., & Landrum, T. J. (2013). Moving research into practice: can we make dissemination stick? Exceptional Children, 79, 163–180.
  • Deyro, M. C., Simon, E. W., & Guay, J. (2014). Parental awareness of empirically established treatments for autism spectrum disorders. Focus on Autism and Other Developmental Disabilities: Advance online publication. doi:10.1177/1088357614559210.
  • Dolloghan, C. (2007). The handbook for evidence-based practice in communication disorders. Paul H. Brookes: University of Michigan.
  • Ecker, U. K. H., Lewandowsky, S., Swire, B., & Chang, D. (2011). Correcting false information in memory: Manipulating the strength of misinformation encoding and its retraction. Psychonomic Bulletin & Review, 18, 570–578.
  • Ecker, U. K. H., Lewandowsky, S., & Tang, D. T. W. (2010). Explicit warnings reduce but do not eliminate the continued influence of misinformation. Memory & Cognition, 38, 1087–1100.
  • Freeman, H. (2015). Pseudoscience and strawberries: ‘Wellness’ gurus should carry a health warning. The Guardian. Retrieved April 23, 2015, from http://www.theguardian.com/commentisfree/2015/apr/22/wellness-gurus-belle-gibson-pseudoscience
  • Gigerenzer, G., & Gaissmaier, W. (2011). Heuristic decision making. Annual Review of Psychology, 62, 451–482. doi:10.1146/annurev-psych-120709-145346.
  • Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in Developmental Disabilities, 27, 70–84. doi:10.1016/j.ridd.2004.12.002.
  • Guillory, J. J., & Geraci, L. (2013). Correcting erroneous inferences in memory: The role of source credibility. Journal of Applied Research in Memory and Cognition, 2, 201–209. doi:10.1016/j.jarmac.2013.10.001.
  • Hemsley, B., & Dann, S. (2014). Social media and social marketing in relation to facilitated communication: Harnessing the affordances of social media for knowledge translation. Evidence-Based Communication Assessment and Intervention, 8, 187–206. doi:10.1080/17489539.2015.1023988.
  • Hess, K. L., Morrier, M. 1. J., Heflin, L. J., & Ivey, M. L. (2008). Autism Treatment Survey: Services Received by Children with Autism Spectrum Disorders in Public School Classrooms. Journal of Autism and Developmental Disorders, 38, 961–971. doi:10.1007/s10803-007-0470-5.
  • Hibbard, J. H., & Peters, E. (2003). Supporting informed consumer health care decisions: Data presentation approaches that facilitate the use of information in choice. Annual Review of Public Health, 24, 413–433. doi:10.1146/annurev.publhealth.24.100901.141005.
  • International Society for Augmentative and Alternative Communication (2014). ISAAC position statement on facilitated communication. Augmentative and Alternative Communication, 30, 357–358.
  • Johnson, H. M., & Seifert, C. M. (1994). Sources of the continued influence effect: When misinformation in memory affects later inferences. Journal of Experimental Psychology: Learning, Memory, and Cognition, 20, 1420–1436.
  • Kahan, D. M. (2010). Fixing the communications failure. Nature, 463, 296–297. doi:10.1038/463296a.
  • Kalichman, S. C. (2014). The psychology of AIDS denialism: Pseudoscience, conspiracy thinking, and medical mistrust. European Psychologist, 19, 13–22. doi:10.1027/1016-9040/a000175.
  • Kata, A. (2010). A postmodern Pandora's box: Anti-vaccination misinformation on the Internet. Vaccine, 28, 1709–1716. doi:10.1016/j.vaccine.2009.12.022.
  • Kowalski, P., & Taylor, A. K. (2009). The effect of refuting misconceptions in the introductory psychology class. Teaching of Psychology, 36, 153–159. doi:10.1080/00986280902959986.
  • Lewandowsky, S. (2011). Popular consensus: Climate change is set to continue. Psychological Science, 22, 460–463. doi:10.1177/0956797611402515.
  • Lewandowsky, S., Ecker, U. K. H., Seifert, C. M., Schwarz, N., & Cook, J. (2012). Misinformation and its correction: Continued influence and successful debiasing. Psychological Science in the Public Interest, 13, 106–131. doi:10.1177/1529100612451018.
  • Lilienfeld, S. O., Marshall, J., Todd, J. T., & Shane, H. C. (2014). The persistence of fad interventions in the face of negative scientific evidence: Facilitated communication for autism as a case example. Evidence-Based Communication Assessment and Intervention, 8, 62–101. doi:10.1080/17489539.2014.976332.
  • Lombrozo, T. (2007). Simplicity and probability in causal explanation. Cognitive Psychology, 55, 232–257. doi:10.1016/j.cogpsych.2006.09.006.
  • Lu, L.-C., Chang, W.-P., & Chang, H.-H. (2014). Consumer attitudes toward blogger’s sponsored recommendations and purchase intention: The effect of sponsorship type, product type, and brand awareness. Computers in Human Behavior, 34, 258–266. doi:10.1016/j.chb.2014.02.007.
  • Mirenda, P. (2014). Comments and a personal reflection on the persistence of facilitated communication. Evidence-Based Communication Assessment and Intervention, 8, 102–110. doi:10.1080/17489539.2014.997427.
  • National Autism Center (2009). National standards report: Addressing the need for evidencebased practice guidelines for autism spectrum disorders. Randolph, MA: National Autism Center.
  • National Autism Center (2015). National Standards Report. Randolph, MA: National Autism Center.
  • Nickerson, R. S. (1998). Confirmation bias: A ubiquitous phenomenon in many guises. Review of General Psychology, 2, 175–220. doi:10.1037/1089-2680.2.2.175.
  • Nyhan, B., & Reifler, J. (2010). When corrections fail: The persistence of political misperceptions. Political Behavior, 32, 303–330.
  • Nyhan, B., & Reifler, J. (2011). Opening the political mind? The effects of self-affirmation and graphical information on factual misperceptions. Unpublished manuscript, Dartmouth College.
  • Odom, S. L., Boyd, B. A., Hall, L. J., & Hume, K. (2010). Evaluation of comprehensive treatment models for individuals with autism spectrum disorders. Journal of Autism Developmental Disorders, 40, 425–436. doi:10.1007/s10803-009-0825-1.
  • Odom, S. L., Collet-Klingenberg, L., Rogers, S. J., & Hatton, D. D. (2010). Evidence-based practices in interventions for children and youth with autism spectrum disorders. Preventing School Failure: Alternative Education for Children and Youth, 54, 275–282. doi:10.1080/10459881003785506.
  • Oreskes, N., & Conway, E. M. (2011). Merchants of doubt: How a handful of scientists obscured the truth on issues from tobacco smoke to global warming. USA: Bloomsbury Publishing.
  • Paynter, J., Ferguson, S., Fordyce, K., Joosten, A., Paku, S., Stephens, M., . . . Keen, D. (2015). Implementation of evidence-based practices by ASD early intervention service providers: Translating research to practice. ( Unpublished Manuscript).
  • Paynter, J., & Keen, D. (2015). Knowledge and use of intervention practices by community-based early intervention service providers. Journal of Autism and Developmental Disorders, 45, 1614–1623. doi:10.1007/s10803-014-2316-2.
  • Poland, G. A., & Jacobson, R. M. (2001). Understanding those who do not understand: A brief review of the anti-vaccine movement. Vaccine, 19, 2440–2445. doi:10.1016/S0264-410X(00)00469-2.
  • Pornpitakpan, C. (2004). The persuasiveness of source credibility: A critical review of five decades' evidence. Journal of Applied Social Psychology, 34, 243–281. doi:10.1111/jasp.2004.34.issue-2.
  • Prasad, M., Perrin, A. J., Bezila, K., Hoffman, S. G., Kindleberger, K., Manturuk, K., & Powers, A. S. (2009). “There must be a reason”: Osama, Saddam, and Inferred Justification. Sociological Inquiry, 79, 142–162. doi:10.1111/soin.2009.79.issue-2.
  • Prior, M., & Roberts, J. (2012). Early intervention for children with autism spectrum disorders: ‘Guidelines for good practice’. Retrieved from http://www.fahcsia.gov.au/sites/default/files/documents/11_2012/early_intervention_practice_guidlines.pdf
  • Proctor, R. N. (2011). Golden holocaust: Origins of the cigarette catastrophe and the case for abolition. Berkeley, CA: University of California Press.
  • Purcell, G. P., Wilson, P., & Delamothe, T. (2002). The quality of health information on the internet: As for any other medium it varies widely; regulation is not the answer. British Medical Journal, 324, 557–558. doi:10.1136/bmj.324.7337.557.
  • Queensland Facilitated Communication Training Incorporated. (2015). Welcome to QLD Facilitated Communication Training Inc. Retrieved June 18, 2015, from http://www.qldfctinc.com.au/
  • Rosenau, J. (2012). Science denial: A guide for scientists. Trends in Microbiology, 20, 567–569. doi:10.1016/j.tim.2012.10.002.
  • Scanfeld, D., Scanfeld, V., & Larson, E. L. (2010). Dissemination of health information through social networks: Twitter and antibiotics. American Journal of Infection Control, 38, 182–188. doi:10.1016/j.ajic.2009.11.004.
  • Schlosser, R. W., & Raghavendra, P. (2004). Evidence-based practice in augmentative and alternative communication. Augmentative and Alternative Communication, 20, 1–21. doi:10.1080/07434610310001621083.
  • Schwarz, N., Sanna, L. J., Skurnik, I., & Yoon, C. (2007). Metacognitive experiences and the intricacies of setting people straight: Implications for debiasing and public information campaigns. Advances in Experimental Social Psychology, 39, 127–161. doi:10.1016/S0065-2601(06)39003-X.
  • Seifert, C. M. (2002). The continued influence of misinformation in memory: What makes a correction effective? The Psychology of Learning and Motivation, 41, 265–292. doi:10.1016/S0079-7421(02)80009-3.
  • Speech Pathology Australia (2010). Position paper: Evidence based speech pathology practice for individuals with autism spectrum disorder. Melbourne: Speech Pathology Australia.
  • Stahmer, A. C., & Aarons, G. (2009). Attitudes toward adoption of evidence-based practices: A comparison of autism early intervention providers and children’s mental health providers. Psychological Services, 6, 223–234. doi:10.1037/a0010738.
  • Stahmer, A. C., Collings, N. M., & Palinkas, L. A. (2005). Early intervention practices for children with autism: Descriptions from community providers. Focus on Autism and Other Developmental Disabilities, 20, 66–79. doi:10.1177/10883576050200020301.
  • Trembath, D., Hawtree, R., Arciuli, J., & Caithness, T. (in press). What do speech-language pathologists think parents expect when treating their children with Autism Spectrum Disorder? International Journal of Speech-Language Pathology.
  • Trembath, D., & Vivanti, G. (2014). Problematic but predictive: Individual differences in children with autism spectrum disorders. International Journal of Speech Language Pathology, 16, 57–60. doi:10.3109/17549507.2013.859300.
  • Wombles, K. (2014). Some fads never die—they only hide behind other names: Facilitated Communication is not and never will be Augmentative and Alternative Communication. Evidence-Based Communication Assessment and Intervention, 8, 181–186. doi:10.1080/17489539.2015.1012780.
  • Wong, C., Odom, S. L., Hume, K., Cox, A. W., Fettig, A., Kucharczyk, S., . . . Schultz, T. R. (Eds.). (2013). Evidence-based practices for children, youth, and young adults with autism spectrum disorder. Chapel Hill: The University of North Carolina: Frank Porter Graham Child Development Institute, Autism Evidence-Based Practice Review Group.
  • Wyatt, N., & Stolper, D. (2013). Science literacy in Australia. Retrieved from https://21-science.cdn.aspedia.net/sites/default/files/user-content/resources/file/scienceliteracyreport.pdf

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