AAC and Early Intervention for Children with Cerebral Palsy: Parent Perceptions and Child Risk Factors

References

• American Speech-Language-Hearing Association (ASHA). (2004). Roles and responsibilities of speech-language pathologists with respect to augmentative and alternative communication: Technical report (Technical report).
   Google Scholar
• Andersen, G., Mjøen, T.R., & Vik, T. (2010). Prevalence of speech problems and the use of augmentative and alternative communication in children with cerebral palsy: a registry-based study in Norway. Perspectives on Augmentative and Alternative Communication, 19, 12–20. doi: 10.1044/aac19.1.12
   Google Scholar
• Bax, M., Tydeman, C., & Flodmark, O. (2006). Clinical and MRI correlates of cerebral palsy: the European cerebral palsy study. Journal of the American Medical Association, 296, 1602–1608. doi: 10.1001/jama.296.13.1602.
   PubMed Web of Science ®Google Scholar
• Biklen, S.K., & Bogdan, R. (1992). Qualitative Research for Education: An Introduction to Theory and Methods. Boston, MA: Allyn & Bacon.
   Google Scholar
• Brady, N. (2000). Improved comprehension of object names following voice output communication aid use: two case studies. Augmentative and Alternative Communication, 16, 197–204. doi: 10.1080/07434610012331279054
   Google Scholar
• Brady, N., Skinner, D., Roberts, J., & Hennon, E. (2006). Communication in young children with Fragile X syndrome: a qualitative study of mothers’ perspectives. American Journal of Speech-Language Pathology, 15, 353–364. doi: 10.1044/1058-0360(2006/033)
   PubMed Web of Science ®Google Scholar
• Calculator, S.N., & Black, T. (2010). Parents’ priorities for AAC and related instruction for their children with Angelman syndrome. Augmentative and Alternative Communication, 26, 30–40. doi: 10.3109/07434610903585406
   PubMed Web of Science ®Google Scholar
• Carifio, L., & Perla, R. (2008). Resolving the 50 year debate around using and misusing Likert scales. Medical Education, 42, 1150–1152. doi: 10.1111/j.1365-2923.2008.03172.x
   PubMed Web of Science ®Google Scholar
• Chiarello, L.A., Palisano, R.J., Maggs, J.M., Orlin, M.N., Almasri, N., Kang, L., Chang, H. (2010). Family priorities for activity and participation of children and youth with cerebral palsy. Physical Therapy, 90, 1254–1264. doi: 10.2522/ptj.20090388
   PubMed Web of Science ®Google Scholar
• Clarke, M., & Price, K. (2012). Augmentative and alternative communication for children with cerebral palsy. Paediatrics and Child Health, 22, 367–371. doi: 10.1016/j.paed.2012.03.002
   Google Scholar
• Cockerill, H., Elbourne, D., Allen, E., Scrutton, D., Will, E., McNee, A., … & Baird, G. (2014). Speech, communication and use of augmentative communication in young people with cerebral palsy: the SHAPE population study: Communication and AAC use in bilateral cerebral palsy. Child: Care, Health and Development, 40, 149–157. doi: 10.1111/cch.12066
   PubMed Web of Science ®Google Scholar
• Cress, C.J. (2004). Augmentative and alternative communication and language: understanding and responding to parents’ perspectives. Topics in Language Disorders, 24, 51–61.
   Web of Science ®Google Scholar
• Cress, C.J., & Marvin, C.A. (2003). Common questions about AAC services in early intervention. Augmentative and Alternative Communication, 19, 254–272. doi: 10.1080/07434610310001598242
   Google Scholar
• Cress, C.J. (2004). Augmentative and alternative communication and language: Understanding and responding to parents’ perspectives. Topics in Language Disorders, 24(1), 51–61.
   Web of Science ®Google Scholar
• Creswell, J.W. (2013). Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Dada, S., & Alant, E. (2009). The effect of aided language stimulation on vocabulary acquisition in children with little or no functional speech. American Journal of Speech-Language Pathology, 18, 50–64. doi: 10.1044/1058-0360(2008/07-0018)
   PubMed Web of Science ®Google Scholar
• Drager, K., Light, J., & McNaughton, D. (2010). Effects of AAC interventions on communication and language for young children with complex communication needs. Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach, 3, 303–310. doi: 10.3233/PRM-2010-0141
   PubMedGoogle Scholar
• Eisenberg, S.L., Fersko, T.M., & Lundgren, C. (2001). The use of MLU for identifying language impairment in preschool children: A review. American Journal of Speech-Language Pathology, 10, 323–342. doi: 10.1044/1058-0360(2001/028)
   Web of Science ®Google Scholar
• Geytenbeek, J. (2011). Prevalence of speech and communication disorders in children with CP. Developmental Medicine and Child Neurology, 53, 10–11. doi: 10.1111/j.1469-8749.2010.03803.x
   PubMed Web of Science ®Google Scholar
• Goossens’, C. (1989). Aided communication intervention before assessment: a case study of a child with cerebral palsy. Augmentative and Alternative Communication, 5, 14–26. doi: 10.1080/07434618912331274926
   Google Scholar
• Granlund, M., Björck-Åkesson, E., Wilder, J., & Ylvén, R. (2008). AAC interventions for children in a family environment: implementing evidence in practice. Augmentative and Alternative Communication, 24, 207–219. doi: 10.1080/08990220802387935
   PubMed Web of Science ®Google Scholar
• Hebbeler, K., Spiker, D., Bailey, D., Scarborough, A., Mallik, S., Simeonsson, R., … & Nelson, L. (2007). Early intervention for infants and toddlers with disabilities and their families: participants, services, and outcomes. Final Report of the National Early Intervention Longitudinal Study (NEILS). Retrieved from http://sriinternational.mobi/sites/default/files/publications/neils_finalreport_200702.pdf
   Google Scholar
• Hustad, K.C., Allison, K., McFadd, E., & Riehle, K. (2014). Speech and language development in 2-year-old children with cerebral palsy. Developmental Neurorehabilitation, 17, 167–175. doi: 10.3109/17518423.2012.747009
   PubMed Web of Science ®Google Scholar
• Hustad, K.C., Gorton, K., & Lee, J. (2010). Classification of speech and language profiles in 4-year-old children with cerebral palsy: a prospective preliminary study. Journal of Speech, Language, and Hearing Research, 53, 1496–1513. doi: 10.1044/1092-4388(2010/09-0176)
   PubMed Web of Science ®Google Scholar
• Hustad, K.C., & Miles, L.K. (2010). Alignment between augmentative and alternative communication needs and school-based speech-language services provided to young children with cerebral palsy. Early Childhood Services, 4, 129–140.
   Google Scholar
• Jonsson, A., Kristoffersson, L., Ferm, U., & Thunberg, G. (2011). The ComAlong communication boards: parents’ use and experiences of aided language stimulation. Augmentative and Alternative Communication, 27, 103–116. doi: 10.3109/07434618.2011.580780
   PubMed Web of Science ®Google Scholar
• Kangas, K.A., & Lloyd, L.L. (1988). Early cognitive skills as prerequisites to augmentative and alternative communication use: What are we waiting for? Augmentative and Alternative Communication, 4, 211–221. doi: 10.1080/07434618812331274817
   Google Scholar
• Light, J., & Drager, K. (2012). Early intervention for young children with autism, cerebral palsy, Down syndrome, and other disabilities. Retrieved from http://aackids.psu.edu
   Google Scholar
• Light, J., & McNaughton, D. (2012a). Supporting the communication, language, and literacy development of children with complex communication needs: state of the science and future research priorities. Assistive Technology, 24, 34–44. doi: 10.1080/10400435.2011.648717
   Web of Science ®Google Scholar
• Light, J., & McNaughton, D. (2012b). The changing face of augmentative and alternative communication: past, present, and future challenges. Augmentative and Alternative Communication, 28, 197–204. doi: 10.3109/07434618.2012.737024
   PubMed Web of Science ®Google Scholar
• Marshall, J., & Goldbart, J. (2008). “Communication is everything I think.” Parenting a child who needs augmentative and alternative communication (AAC). International Journal of Language & Communication Disorders, 43, 77–98. doi: 10.1080/13682820701267444
   PubMed Web of Science ®Google Scholar
• McLellan, A., Cipparone, C., Giancola, D., Armstrong, D., & Bartlett, D. (2012). Medical and surgical procedures experienced by young children with cerebral palsy. Pediatric Physical Therapy, 24, 268–277. doi: 10.1097/PEP.0b013e31825be2f6
   PubMed Web of Science ®Google Scholar
• Millar, D.C., Light, J.C., & Schlosser, R.W. (2006). The impact of augmentative and alternative communication intervention on the speech production of individuals with developmental disabilities: a research review. Journal of Speech, Language, and Hearing Research, 49, 248–264. doi: 10.1044/1092-4388(2006/021)
   PubMed Web of Science ®Google Scholar
• Miller, J., & Chapman, R. (1985). Systematic Analysis of Language Transcripts. Madison, WI: University of Wisconsin.
   Google Scholar
• Norman, G. (2010). Likert scales, levels of measurement and the “laws” of statistics. Advances in Health Sciences Education, 15, 625–632. doi: 10.1007/s10459-010-9222-y
   PubMed Web of Science ®Google Scholar
• Palisano, R.J., Begnoche, D.M., Chiarello, L.A., Bartlett, D.J., McCoy, S.W., & Chang, H.-J. (2012). Amount and focus of physical therapy and occupational therapy for young children with cerebral palsy. Physical & Occupational Therapy in Pediatrics, 32, 368–382. doi: 10.3109/01942638.2012.715620
   PubMed Web of Science ®Google Scholar
• Palisano, R.J., Hanna, S.E., Rosenbaum, P.L., Russell, D.J., Walter, S.D., Wood, E.P., … & Galuppi, B.E. (2000). Validation of a model of gross motor function for children with cerebral palsy. Physical Therapy, 80, 974–985.
   PubMed Web of Science ®Google Scholar
• Palisano, R.J., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39, 214–223.
   PubMed Web of Science ®Google Scholar
• Pennington, L. (2008). Cerebral palsy and communication. Paediatrics and Child Health, 18, 405–409. doi: 10.1016/j.paed.2008.05.013
   Google Scholar
• Pennington, L., & Noble, E. (2010). Acceptability and usefulness of the group interaction training program It Takes Two to Talk to parents of pre-school children with motor disorders. Child: Care, Health, and Development, 36, 285–296. doi: 10.1111/J.1365-2214.2009.01054.x
   PubMed Web of Science ®Google Scholar
• QSR International. (2012). NVivo qualitative data analysis (Version 10) [Computer Software].
   Google Scholar
• Rice, M.L., Smolik, F., Perpich, D., Thompson, T., Rytting, N., & Blossom, M. (2010). Mean length of utterance levels in 6-month intervals for children 3 to 9 years with and without language impairments. Journal of Speech, Language, and Hearing Research, 53, 333. doi: 10.1044/1092-4388(2009/08-0183)
   PubMed Web of Science ®Google Scholar
• Roche, L., Sigafoos, J., Lancioni, G.E., O’Reilly, M.F., Green, V.A., Sutherland, D.,…& Edrisinha, C.D. (2014). Tangible symbols as an AAC option for individuals with developmental disabilities: a systematic review of intervention studies. Augmentative and Alternative Communication, 30, 28–39. doi: 10.3109/07434618.2013.878958
   PubMed Web of Science ®Google Scholar
• Romski, M.A., & Sevcik, R.A. (1993). Language comprehension: considerations for augmentative and alternative communication. Augmentative and Alternative Communication, 9, 281–285. doi: 10.1080/07434619312331276701
   Google Scholar
• Romski, M.A., & Sevcik, R.A. (1996). Breaking the Speech Barrier. Baltimore, MD: Brookes.
   Google Scholar
• Romski, M.A., & Sevcik, R.A. (2003). Augmented input: enhancing communication development. In J.C. Light, D.R. Beukelman, & J. Reichle (Eds.), Communicative Competence for Individuals who use AAC: From Research to Effective Practice. Baltimore, MD: Paul H. Brookes.
   Google Scholar
• Romski, M.A., & Sevcik, R.A. (2005). Augmentative communication and early intervention: Myths and realities. Infants & Young Children, 18, 174–185.
   Web of Science ®Google Scholar
• Romski, M.A., Sevcik, R.A., Adamson, L.B., Cheslock, M., Smith, A., Barker, R.M., & Bakeman, R. (2010). Randomized comparison of augmented and nonaugmented language interventions for toddlers with developmental delays and their parents. Journal of Speech, Language, and Hearing Research, 53, 350–364. doi: 10.1044/1092-4388(2009/08-0156)
   PubMed Web of Science ®Google Scholar
• Romski, M.A., Sevcik, R.A., Adamson, L.B., Smith, A., Cheslock, M., & Bakeman, R. (2011). Parent perceptions of the language development of toddlers with developmental delays before and after participation in parent-coached language interventions. American Journal of Speech-Language Pathology, 20, 111–118. doi: 10.1044/1058-0360(2011/09-0087)
   PubMed Web of Science ®Google Scholar
• Schlosser, R.W., & Wendt, O. (2008). Effects of augmentative and alternative communication intervention on speech production in children with autism: a systematic review. American Journal of Speech-Language Pathology, 17, 212–230. doi: 1058-0360/08/1703-0212
   PubMed Web of Science ®Google Scholar
• Sevcik, R.A. (2006). Comprehension: an overlooked component in augmented language development. Disability & Rehabilitation, 28, 159–167. doi: 10.1080/09638280500077804
   PubMed Web of Science ®Google Scholar
• Sigurdardottir, S., & Vik, T. (2011). Speech, expressive language, and verbal cognition of preschool children with cerebral palsy in Iceland: speech, language, and cognition in CP. Developmental Medicine & Child Neurology, 53, 74–80. doi: 10.1111/j.1469-8749.2010.03790.x
   PubMed Web of Science ®Google Scholar
• Smith, A., Romski, M.A., Sevcik, R.A., Adamson, L.B., & Bakeman, R. (2011). Parent stress and its relation to parent perceptions of communication following parent-coached language intervention. Journal of Early Intervention, 33, 135–150. doi: 10.1177/1053815111405526
   Web of Science ®Google Scholar
• Vygotsky, L. (1978). Mind in Society. Cambridge, MA: Harvard University Press.
   Google Scholar
• Yoder, P.J., & Warren, S.F. (2002). Effects of prelinguistic milieu teaching and parent responsivity education on dyads involving children with intellectual disabilities. Journal of Speech, Language, and Hearing Research, 45, 1158–1174. doi: 10.1044/1092-4388(2002/094)
   PubMed Web of Science ®Google Scholar
• Zimmerman, I.L., Steiner, V.G., & Pond, R.E. (2002). Preschool Language Scale (4th ed.) San Antonio, TX: The Psychological Corporation.
   Google Scholar