1,967
Views
19
CrossRef citations to date
0
Altmetric
Articles

‘CHARLIE: PLEASE RESPOND!’ Using a participatory methodology with individuals on the autism spectrum

, &
Pages 407-420 | Received 29 Feb 2012, Accepted 14 Aug 2012, Published online: 27 Mar 2013
 

Abstract

This paper explores a participatory research approach used with 10 higher education students on the autism spectrum (mainly diagnosed with Asperger syndrome). The methodology sought to overcome barriers to participation. Participants' views were sought on the benefits and challenges related to their participation. Most participants opted for face-to-face participation and expressed the desire to improve understanding of autism and help others with the condition, somewhat at odds with some of the prevailing stereotypes of autism. Findings indicate that the research methodology was successful in engaging participants, enabling them to participate on both practical and theoretical levels. The adaptations required additional time for both researcher and participants but were deemed worthwhile by both parties. Participants demonstrated commitment to the project and through it viewed themselves as potential agents for change. The paper concludes that a flexible, multi-faceted research approach can be effective in supporting individuals with social/communication difficulties to be active participants, and moreover that the research field stands to benefit significantly from their involvement.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.